How long does it take rectal inflammation to fully heal?

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MaxMilian
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Date Joined Dec 2010
Total Posts : 1228
   Posted 1/9/2011 11:51 PM (GMT -6)   
I've heard that the inflammation in the rectum is one of the hardest areas to get into remission. How long did it take you to get that area 100% healed? What meds did you use?

suebear
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Date Joined Feb 2006
Total Posts : 5418
   Posted 1/10/2011 9:14 AM (GMT -6)   
You know, there is no straight answer for that, everyone is different. In my case I never did receive full rectal remission so I opted for surgery. I'm sure you can find a pretty wide range on this.

Sue

fruitgirl
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Date Joined Feb 2009
Total Posts : 6905
   Posted 1/10/2011 11:37 AM (GMT -6)   
I really have no idea when my rectum fully healed, or if it really is fully healed; I've only had one scope so far, which was the scope that diagnosed me, and unless you have a scope, there's no way to know if it's fully healed. As to getting into remission, I used Asacol (12/day), mesalamine enemas (nightly), and a fairly short course of pred. I almost got into remission w/o the pred, but I caught a tummy bug that stirred everything up again, and needed to get well ASAP for an interview, so went on pred.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, multivitamin.  Used prednisone (starting dose 40 mg) to get into remission.
 
 

Dsm4life
Regular Member


Date Joined Jul 2010
Total Posts : 445
   Posted 1/10/2011 1:16 PM (GMT -6)   
I have up (rectum). Was bleeding for a year. Finally on nightly enema, canasa in morning and cortzal (not sure spelling) 3 pill 3x a day and blood is gone. I get slight blood streaking on stool but nothing even close to the blood I was getting before.

Christine1946
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Date Joined Aug 2008
Total Posts : 5506
   Posted 1/10/2011 1:33 PM (GMT -6)   
      I had ulcerative proctitis for twelve years.  It stopped responding to treatment.....6MP, Colazal, Remicade, Humira, rectal meds....not to mention that dreaded prednisone on which I became dependent.  Like Suebear, I resorted to surgery.  Had a total colectomy with end ileostomy on June 28th.  My GI doctor said proctitis is much more resistant to meds than UC...sad that they had to remove my entire colon cry , as I only had mild diverticulosis in there.  Oh well.

quincy
Elite Member


Date Joined May 2003
Total Posts : 25764
   Posted 1/10/2011 1:41 PM (GMT -6)   
I seem to always have a teeny bit of redness during my scopes....could be from the clean-out, I don't know how it is between scopes, could be that's as good as it'll get...teeny bit that causes no symptoms. I can't imagine without the rectal meds, however.

As the others say...it's across the board, and some NEVER get any relief, regardless of meds. Some improve to the point of using no meds (although inflammation can also have NO symptoms, so that's a "crap" shoot to me), and some improve where life functions using meds and flares are minimal.

Healed is a subjective word...if you mean perfect...I doubt it ever happens.
As well...many with chronic rectal inflammation get to the point where their rectums don't even react anymore ... called rectal sparing. Sounds good, not really because the structure has changed the functioning and signals in the rectum.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Symbicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

C_G_K
Veteran Member


Date Joined Dec 2006
Total Posts : 905
   Posted 1/10/2011 7:11 PM (GMT -6)   
I've had inflammation mostly in the rectum, but creeping up as high as about 12 inches when I was trying to taper off steroid enemas... to quickly I now think. The reason I know how high it got is I had a flex sig after my symptoms re-flared when I was tapering.

I have been fighting it for about 9 months now.

The weird thing is, my symptoms have dramatically improved over the last month or so. I had some salofalk tablets in my cupboard that I wanted to use up so I started mixing in a few with my asacols. Within a few days, i felt way better. Urgency disappeared, swelling in the rectum went away, as did the pain when passing stool, tenesmus gone, mucous gone, blood gone, and no more accidents. I am now able to sleep in until 8 or 9 am on the weekends without having to rush to the bathroom. Before I was up at 6 or so with urgency.

The reason I switched from Salofalk tabs to asacol was because I am living in the US and salofalk tabs are not available here, so I had to buy them from Canada and they are bloody expensive ($700 for a 3 month supply).

I bit the bullet and have ordered more from a Canadian pharmacy, and I hope they are the reason I am feeling so much better. Sometimes playing around with different forms of mesalamine and 5 ASAs can give you relief, even when most of your problems are lower down.
DX Pancolitis 2003. Subsequent flares limited to left side
Flare every 2-3 years.
Asacol 12 tabs daily,
Probiotics: Primal defense, Ultimate Flora and VSL#3DS. Fiber: Psyllium and "super seed".
Allergic to Imuran

Current flare last 9 months.. No diarrhea.
Switched from Cortifoam to Colocort 2x daily.
Flared again while tapering. Inflamed up to about 12"

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/10/2011 7:17 PM (GMT -6)   
It depends on the person.

lv2Bhealthy
Regular Member


Date Joined Jan 2010
Total Posts : 54
   Posted 1/10/2011 8:38 PM (GMT -6)   
I don't know that I healed 100% (although I felt great from last spring until just recently - and even now my new mini flare seems to be under control), but it took me 8 weeks of nightly enemas and 4x lialda to get from severe left sided inflamation (15-20 bathroom trips per day) back to once a day, normal BMs.
*Female, 31 yrs old - currently in remission
*Maintaining with 2x lialda nightly & Rowasa enemas three nights per week
------------------------------------
*diagnosed with proctitis in fall '05 - remission after 1 month of Canasa suppositories
*2nd flare started in Apr '09, diagnosed with severe left-sided colitis in Jan '10
*remission as of March '10 after combining 4x lialda and 1 rowasa enema nightly for 8 weeks (started the Lialda in Nov '09 - helped, but didn't work on its own)
 

journey2health
Veteran Member


Date Joined Oct 2009
Total Posts : 2687
   Posted 1/10/2011 9:58 PM (GMT -6)   
So I've never heard this concept of rectal sparing. Why does it mean to change the structure and function? Why is this dangerous?
In remission--pancolitis. 8 Asacol, Rowesa every other day- with symptoms daily - adding Canasa daily and Psyllium husk.
Align probiotic. Vitamins. Avoid greasy, fried, spicy, citrus, dairy (except yogurt), caffeine, alcohol. Bipolar/anxiety/depression: lamictal, Lexapro; Sleep-zinc magnesium B6--Zyprexa, klonopin if sleep regime fails.
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