Why are symptoms worse at night?

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Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 593
   Posted 1/29/2011 10:14 AM (GMT -7)   
Does anybody else experience a worsening of symptoms at night?  I have some relief during the day but at night it is terrible.  I sleep from about 10pm to 1am and then I start running.  At some point in the morning it eases up for the rest of the day.  Even on the steroids this last week the night is killing me.  Just can't figure out why it happens.
UC since 2002
Humira weekly, Asacol, Immodium, Bentyl, Rowasa, Canasa, Pre-Natals, Folgard, Vit D.

journey2health
Veteran Member


Date Joined Oct 2009
Total Posts : 2696
   Posted 1/29/2011 12:23 PM (GMT -7)   
Sorry you are experiencing this. When are you eating your last meal of the day? It should be fairly early like 6 p.m., I think.
In delicate remission--pancolitis. 8 Asacol, Rowasa nightly, Canasa, Psyllium husk, Align probiotic. turmeric, Vitamins. Avoid greasy, fried, spicy, citrus, dairy (except yogurt), red meat, caffeine, alcohol. Bipolar/anxiety/depression: lamictal, Lexapro; Sleep-zinc magnesium B6--Zyprexa, klonopin if sleep regime fails.

quincy
Elite Member


Date Joined May 2003
Total Posts : 25881
   Posted 1/29/2011 12:26 PM (GMT -7)   
It could have something to do with your transit time...when stool is entering the lower part of your colon.

Maybe you can ask the doc about taking a half imodium bafore bedtime?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Symbicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Post Edited (quincy) : 1/29/2011 11:50:42 AM (GMT-7)


Alinus
Veteran Member


Date Joined May 2010
Total Posts : 593
   Posted 1/29/2011 12:35 PM (GMT -7)   
my worse period is between 3 a.m and 8 a.m. Heather is right, seems to be the period when my lower part of the colon starts bowel movements, because i usualy go to toilet in the evening. then things settle a bit. Since the inflammation is higher in our rectums the pain we get is.....normal.
Romanian.

Rectocolitis (20 cm) - 2010 january. Symptoms since about 2002.
Ankylosing Spondylitis in 2008 as a gift from rectocolitis. Symptoms since about 2002.
____________________________________________________________
Sulfur/sulfide foods excluded.

Mesalasine 1500 mg/day.
Boswellia 1500 mg/day.

Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 593
   Posted 1/29/2011 12:36 PM (GMT -7)   
I have been taking an immodium at bed time.  Still no good.  I just want to be able to keep the Rowasa in for more than five minutes.  It is terrible. 
UC since 2002
Humira weekly, Asacol, Immodium, Bentyl, Rowasa, Canasa, Pre-Natals, Folgard, Vit D.

beachlife
Regular Member


Date Joined Feb 2009
Total Posts : 471
   Posted 1/29/2011 12:45 PM (GMT -7)   
been rare for me to have a bad time at night, maybe a nightly mesalamine enema would help?
Blogging my experience With UC.
http://lifewithcolitis.blogspot.com/

12-14-2010 - Following strict TCM(Traditional Chinese Medicine) diet and teas.

2000 - Ulcerative Colitis - Proctitis
Asacol -> Colazal -> Lialda 4x/day (Rowasa/Canasa when flare)

quincy
Elite Member


Date Joined May 2003
Total Posts : 25881
   Posted 1/29/2011 12:52 PM (GMT -7)   
What time at night are you taking the imodium?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Symbicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 593
   Posted 1/29/2011 1:01 PM (GMT -7)   
Quincy-  Been taking the immodium about 8:00pm.  I have been on the Prednisone 40mg since Wednesday.  They just don't kick in like they used to.  I can keep the Canaswa in during  the day but the Rowasa at night is useless. 
UC since 2002
Humira weekly(discontinued), Asacol, Immodium, Rowasa, Canasa, Pre-Natals, Folgard, Vit D, Lovenox Injection daily(pregnancy), 40mg Prednisone

AZYooper
Veteran Member


Date Joined Mar 2010
Total Posts : 1180
   Posted 1/29/2011 2:15 PM (GMT -7)   
Night should be the time with the least symptoms and is a sign your UC is getting worse.

That said I had the same problem starting 1-3 am. I have also had problems with waking up at that time and not being able to fall back asleep off and on for years. Maybe night time UC symptoms are being caused by sleep disturbance or poor sleeping?

Trying sleeping pills might tell you.

songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3252
   Posted 1/29/2011 2:30 PM (GMT -7)   
Of course night "should" be the time with the least symptoms, but sometimes it doesn't happen that way.... some flare are just different.

When my son had his small flare last spring, his only symptoms were at night - he was getting up for bms 3 or 4 times at night, then having none at all during the day. He was fine 9 am to midnight, and then had issues.

The ideas is GI had (or rather, her wonderful nurse) were to eat smaller evening meals and earlier, and to try psyllium.

I hope you feel better soon! Not getting a good night's sleep makes everything difficult. I feel for you!
Co-Moderator, UC Forum
Age 54. Diagnosed UP 1983, UC 1986
Asacol - 16 pills/day,
steroid enemas, Canasa occasionally
Metamucil - 2 doses/day
VSL#3DS 3 x daily, Multivitamin, Calcium and D
homemade yogurt each day
trying Slippery Elm again
fending off a flare......
Son, 17, dx pancolitis 2007, in remission

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10595
   Posted 1/29/2011 2:44 PM (GMT -7)   
What time do you eat dinner? Do you think this has anythign to do with it?
Co-moderator: Ulcerative Colitis
03/07: Diagnosis: Mild Proctitis | 08/08: Diagnosis: Pancolitis - FLARE & Anemic! Asacol (3600mg) + Canasa (1000mg morning/night) | 01/10: FLARE! Prednisone + Cortifoam + Asacol + Canasa + Rowasa | Currently: stable - Asacol (3200mg) + Canasa (nightly) + 6mp + Allopurinol + Prednisone + Ponstel + Klonopin + Ambien

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3770
   Posted 1/29/2011 2:59 PM (GMT -7)   
My symptoms are always worse in the morning.
26 years old; diagnosed March 2007

Asacol, 4 tabs, 3xday; Rowasa once or twice weekly; multivitamin; Ortho Tri-Cyclen

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 4610
   Posted 1/30/2011 12:15 AM (GMT -7)   
It could be that you roll onto your left side in the middle of the night, and that activates your inflamed tissue, pushing the stool downward. I know it's a very frustrating stage to endure-- because one needs more sleep to heal, not less being up & running to the throne room in the wee hours. It's also possible that the Rowasa disagrees, if you're feeling better at other times. I used it successfully for 14 yrs, but it made me worse during my last flare, and my gastro immediately took me off it. / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)

quincy
Elite Member


Date Joined May 2003
Total Posts : 25881
   Posted 1/30/2011 1:42 AM (GMT -7)   
Why not use the imodium a bit later?

Maybe use just the Canasa instead of the enemas for a while. They can be used 3X daily. It's just possible that the extra fullness of the Rowasa is too much...or you might be sensitive to it.

Can you take any fibre supplements?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Symbicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!
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