No Caffeine No Sulfite Diet

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Old Mike
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Date Joined Jan 2007
Total Posts : 2759
   Posted 2/10/2011 2:29 PM (GMT -7)   
Well its low caffeine, still drink decaf coffee.
Anyhow started diet on Dec 2nd, decafe coffee and decafe tea, no wine,no onions,still drink a little beer,no coke,or Balsamic vinegar.
Frozen shrimp seem to be ok, all I have read are packed with salt,and not sulfite.
Believe it or not stools have improved,now mostly solid, and long.
Went from going pasty mush many times a day to not going for 3-4 days, got worried about that so started metamucil again, now regular with close to/becoming normal stools.
I still shoot blood in the am though.
 
Tried this diet about 5 years ago when it came out, but probably only did no coffee, or no sulfite but not at the same time. Did not work.
I decided to revisit the diet after this thread was posted.
 
The other reason I decided to go off of caffeine is my son with the j-pouch says caffeine makes him loosebut he can drink all the decaf he wants,with no effect. He is a good testing ground since he has no colon.
 
This is a UK diet where they seem to have a lot of sulfite in many foods, do not believe we have too much here in the USA besides wine and possibly some sausage,dried fruit,instant potatoes.
 
The reason I am posting this is that I have not been in any kind of remission since 1986, and this is what I would call a big improvement.  I ususally don't get too excited about any alternative anymore because nothing has worked for me,but this is doing something. I am actually kind of shocked, since I have had UC since 1980 did not believe my colon was capable of good quality sinker stools anymore.
 
Old Mike
 
 
 
 

Post Edited (Old Mike) : 2/10/2011 2:48:54 PM (GMT-7)


Sara14
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Date Joined Mar 2007
Total Posts : 3770
   Posted 2/10/2011 2:31 PM (GMT -7)   
Glad to hear you are seeing some improvement! Thanks for posting this diet -- I had not heard of it before.
27 years old; diagnosed March 2007

Asacol, 6 tabs, 2xday; Rowasa every other night; multivitamin; Ortho Tri-Cyclen

Old Mike
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Date Joined Jan 2007
Total Posts : 2759
   Posted 2/10/2011 2:45 PM (GMT -7)   
The link I posted keeps coming up with a server error, just search magee diet on this site to come up with the old thread from november 23rd. Specific info on the diet and the study is there.
 
Here is the study again.
http://www.nutritionj.com/content/4/1/7
Old Mike

Post Edited (Old Mike) : 2/10/2011 1:51:11 PM (GMT-7)


Alba29
Regular Member


Date Joined Nov 2010
Total Posts : 253
   Posted 2/10/2011 3:42 PM (GMT -7)   
OldMike, check this link, too

http://www.gicare.com/Diets/Ulcerative-Colitis.aspx

Old Mike
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Date Joined Jan 2007
Total Posts : 2759
   Posted 2/10/2011 3:55 PM (GMT -7)   
Alba I went on a low sulfur diet years ago,along with massive doses of pepto bisol, which directly binds with hydrogen sulfide, did not work. But all the pepto turned my tongue black,which indicates I have a lot of sulfur reducing bacteria in my mouth.
Old Mike

Malkavian
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Date Joined Mar 2009
Total Posts : 1439
   Posted 2/10/2011 8:17 PM (GMT -7)   
I find when I'm flaring caffiene makes things worse just cause it's a stimulant (coffee makes a great laxative btw). However I can't function without it in remission.
Heather, 23 year old grad student
Ulcerative colitis from rectum to mid transverse colon, diagnosed 3/6/2009, symptoms for 2 years beforehand
In remission! <3
Currently on lialda 4x/day, azithioprine 150 mg/day
Allergies: penicillin, sulfa, bee stings, environmental (especially ragweed!), OTC meds as needed

DanthaMan
Regular Member


Date Joined May 2005
Total Posts : 480
   Posted 2/14/2011 9:20 AM (GMT -7)   
I too have been down this road but I have never had all the pieces before. I have never tried eliminating caffeine before but I have tried to reduce the SRB with pepto. I am currently taking Enteric coated Peppermint oil as that has been shown to help reduce those guys. I remember reading this study when it came out but thought that the results looked off. Seeing that some of the foods I thought didn't effect me was at the bottom of their list. I do know that alcohol is a no no and I did notice that chocolate gave me problems. I keep telling myself that I have all the pieces of the puzzle in front of me I just need to put them in the right order. Thanks for the post Old Mike as always. I am going to add this to my regime of rPC, Peppermint Oil, Psyllium Seed, and Udos Probiotics.

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 3861
   Posted 2/14/2011 10:04 AM (GMT -7)   
I am STILL tinkering with food/drink intake and yes believe in the no-sulfite no-caffeine regimen (along with my no-gluten/grain, very limited dairy, no-starch, no-carb no-sugar only honey diet).

For a loooong time Monday morning were the scene of too many BM's and I could never figure out what the cause was. No it's not work-stress I'm retired and Mondays are no different than Wednesdays. Today a light bulb went off for me. Not every Saturday but often on that evening I'll have a half glass (small) amount of white wine. I never connected Saturday night and Monday morning. But I truly think this is the reason. I believe sulfites are a problem in my lower GI area and it takes 36 hours to annoy my gut.

I think transit time unawareness is why it's taken me so very long to identify other problem food/drinks.

Re caffeine: even decaf coffee was a problem for me until I found a brand that worked for me. Possibly the chemicals they use to "decaf" is a problem for me. I use Newman's Own Special Decaf with no problem.

Good luck with your diet.
In remission April 2010 after 10 years of UC with no remission ever
Jan 2010 began SpecCarbDiet (modified to remove dairy, fruit & juices,)
Gluten-free=bleeding stopped in 3 days, 95% remission in 5.5 months on SCD
SCDiet: Gluten/grain-free, starch-free, low carb, honey as sweetener
(9)Balsalazide+(6)Citrucel+VSL#3 daily, mesalamine enema as needed
Curcumin/turmeric pill, D3 5000, L-glutamine

DanthaMan
Regular Member


Date Joined May 2005
Total Posts : 480
   Posted 2/14/2011 12:07 PM (GMT -7)   
Funny you say that because I noticed the exact same thing when I drink. I will be fine that night and in to the next day but starting late that evening and into the next day I have an urgency increase with looser stools.

Alinus
Veteran Member


Date Joined May 2010
Total Posts : 593
   Posted 2/14/2011 4:09 PM (GMT -7)   
i do not cope well with coffee, decaf or not. i can have one once and a while but no more.

on the other hand, i handle well dry red wine. in fact i am having every evening a 200 ml cup toghether with some ceddar cheese. it's one of my favourites.

different boddies, different reactions...
Romanian.

Rectocolitis (20 cm) - 2010 january. Symptoms since about 2002.
Ankylosing Spondylitis in 2008 as a gift from rectocolitis. Symptoms since about 2002.
____________________________________________________________

Mesalasine 1500 mg/day.
Salofalk enema 1/day

Old Hat
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Date Joined Feb 2007
Total Posts : 4612
   Posted 2/14/2011 8:26 PM (GMT -7)   
Great news, Mike! Glad it's working for you. I do a whole lot better avoiding caffeine. One of my all-time worst urgencies was caused by drinking an "einspanner" at a cafe in Austria. (Double-expresso coffee with whipped cream) Very potent stuff! / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)

DanthaMan
Regular Member


Date Joined May 2005
Total Posts : 480
   Posted 2/20/2011 5:07 PM (GMT -7)   
look at this!

http://www.businesswire.com/news/home/20100112005610/en

I dont understand how crackers and pizza are on the ok list when I read here that those items might have sulfites in them.

http://www.diagnose-me.com/cond/C488839.html

Old Mike
Veteran Member


Date Joined Jan 2007
Total Posts : 2759
   Posted 2/20/2011 6:28 PM (GMT -7)   
I knew about the Rowasa, I tried it years ago, and it was rough.
That is quite a list of foods that might contain sulfite, some I knew about others not. I eat a lot of frozen shrimp, the label says nothing about any kind of sulfite, just packed in salt.
Thanks
Old Mike

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 4612
   Posted 2/20/2011 7:59 PM (GMT -7)   
FYI Old Mike: it's now possible to get Rx for a newer formula Rowasa which does not contain sulfites. / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)

Meemers
Regular Member


Date Joined Sep 2010
Total Posts : 331
   Posted 2/20/2011 10:59 PM (GMT -7)   
I think Pizza & crackers have a much lower % of sulfites? *edit to add, just read the second link first, & the crackers listed was "filled" crackers.
 
 I've been doing lots of reading up on sulfites as I believe it triggered attacks that were completely sep from my UC (so thankful I posted about it here, thank you all again!!). Last attack was last week & it took me a day & a half to get the swelling down. Never was a wine drinker..but, my dinner had shrimp & a wine sauce...within minutes I was in misery & by 15 minutes, my stomach was HUGE, I'm not a big person so it's wild to watch expand! Bathroom trips & cramping were controlled by imodium, but that swelling wasn't gonna let go..
Oct. 2009 Mild UC.
Sept 2010 MAJOR flare, colonoscopy now shows full pancolitis.

Current meds.

Lialda 2 X a day
5,000 IU's vitamin D3
calcium
Magnesium (slow mag)
Multi vitamin
Align morning
acidophilus evening

I've learned more here than from My GI!

Post Edited (Meemers) : 2/20/2011 10:03:31 PM (GMT-7)

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