Treating a Severe Flare up with Diet

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notsosicklygirl
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Date Joined Dec 2008
Total Posts : 10349
   Posted 2/17/2011 11:46 AM (GMT -6)   
I never had luck treating any of my flare ups with diet but I see people here who seem to get into remission with diet alone.
 
I was wondering, are these people experiencing severe flare ups or more mild ones?
 
Severe means going 10+ times a day with lots of blood and mucus, D, anemia, extreme urgency, getting up in the middle of the night to use the toilet multiple times...
 
Let's hear it, how bad was your UC when you started a diet that "cured you"?
 
What diet did you use and how long did it take?
 
Were you on other medication/s at the time?
Co-moderator: Ulcerative Colitis
03/07: Diagnosis: Mild Proctitis | 08/08: Diagnosis: Pancolitis - FLARE & Anemic! Asacol (3600mg) + Canasa (1000mg morning/night) | 01/10: FLARE! Prednisone + Cortifoam + Asacol + Canasa + Rowasa | Currently: stable - Asacol (3200mg) + Canasa (nightly) + 6mp + Allopurinol + Prednisone + Ponstel + Klonopin + Ambien

zucchini
Regular Member


Date Joined Jun 2010
Total Posts : 370
   Posted 2/17/2011 12:57 PM (GMT -6)   
I have had pretty good luck with my diet, but I have never had a severe flare, it has always been very mild (mostly blood and mucous, not massive amounts of D.)
Ulcerative Colitis diagnosed April 2010 at age 37
Female, mom of 2
Canasa made things worse. Hydrocortisone made no difference.
Tried "Specific Carbohydrate Diet" ... Jun - Nov 2010.
Currently following Weston Price Foundation dietary advice, also Gluten-free.
Trying alternative routes to healing, including Traditional Chinese Medicine

Alba29
Regular Member


Date Joined Nov 2010
Total Posts : 253
   Posted 2/17/2011 12:59 PM (GMT -6)   
I have severe UC but keep it under control with Lialda and Canasa by dieting. My GI is also a fan of the SCD and he has good results with it, especially for CD. I also do low sulfides, too (no wine, cured meats and cruciferous veggies).

what I eat

morning: 2 boiled eggs and SCD yogurt with VSL#3 and toppings (berries, banana, cinnamon, freeze dried black raspberries and raw manuka honey).

lunch: beef or chicken soup with veggies (carrots, onions, spinach, celery, peas) and 1 piece of fruit, now an orange

snack: roasted chicken or smoked salmon, raw cheddar cheese or parmigiano-reggiano with some cherry tomatoes or red pepper and another piece of fruit (whatever is in season, now an apple)

dinner: protein (roasted chicken, salmon, pork, steak, liver) with roasted veggies (green beans, beets, asparagus or tomatoes)

snack: SCD with VSL#3 and the toppings

If I crave something sweet, I usually bake apples with honey.

When I eat out, I have some protein and veggies or sushi (sashimi).

I'm eating all the major food groups and don't think I'm missing much by skipping grains and sugar.

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 3787
   Posted 2/17/2011 4:34 PM (GMT -6)   
Yes my UC was severe. It was never really under control in the 10 years I was on meds with no diet modification, I just adjusted my behavior to accommodate it because none of the pharmacy drugs did anything for me. Besides countless BM's per day I alternated between being overweight and underweight during the course of a year with no diet mod. Looking back I can see that I used constipation as a tool to get me through some days.

The first time I tried diet modification (and I have tried it several times in different versions over the years) my flare was so bad that the only food my gut would accept was chicken, eggs and bread. I have since discovered that gluten is one cause of irritation to my gut and much, much later when I quit gluten my bleeding stopped. At that time I could not see any improvement in my UC due to diet. Perhaps the flare was too bad or maybe the diet wasn't juuuust right.

My past symptoms were heavy bleeding, continuous D, inability to sleep through night due to urgency, inability to talk on the telephone without urgency, tenesmus almost always, not being able to stand in a store's checkout line unless I was first in line. I used to sleep in the living room so I wouldn't disturb my spouse with constant bathroom trips all night.

Today none of that is true and is totally due to diet modification. I was taking the same drug Balsalazide before I started diet mod. with no improvement and knew that Remicade or Humira were next, so I gave diet one last try. This time I got some early positive results which gave me encouragement to keep trying. It has not been a straight line path to success but I continue to get better and back to normal function.

Even this week I have seen improvement, this time due to stopping 2 supplements: Vitamin D 5000 and Turmeric. Although I've been taking both for some time I could tell something wasn't right so I stopped first one then the other. Yep, better BM's than before. My PCP told me that VitD can cause loose stools and that is true. I will get out more in the sun instead to get my D.

I would suggest starting with the Specific Carbohydrate Diet as I did but pay attention to your gut. It never hurts to remove more types of food from your diet than SCD allows. I have been back and forth with the SCD yogurt but do better without it. My sig. explains what I eat and I am pretty hard-a** about it most days. But being human I allow some cheating with not much payback now that I have healed.

Lately I've paid attention to sulfites (eliminating them) and that is a good idea for my gut. No wine, for example. On SCD they allow hard liquor but I can't figure out what to mix vodka with cause I can't drink juice or soda and can't deal with "straight" (yuk). Vodka and carrot juice? :-(

I really feel in control of my life and my bodily functions unlike the first 10 years of UC. My GI doc doesn't even hassle me about getting a c-scope anymore because I am doing so well. I think she keeps waiting for me to regress and is surprised that I haven't (I'm guessing most UC patients are on a spiral of ever stronger drugs).

Princesa has good ideas about diet as does Babe in the Woods.
In remission April 2010 after 10 years of UC with no remission ever
Jan 2010 began SpecCarbDiet (modified to remove dairy, fruit & juices,)
Gluten-free=bleeding stopped in 3 days, 95% remission in 5.5 months on SCD
SCDiet: Gluten/grain-free, starch-free, low carb, honey as sweetener
(9)Balsalazide+(6)Citrucel, mesalamine enema as needed
Spinach daily, (1) VSL#3 nightly

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 3787
   Posted 2/17/2011 8:18 PM (GMT -6)   
:-( I can't drink cranberry juice either. Verrrrry bad. No orange juice, no grapefruit juice, no juices period. Redbull might possibly send me to the ER lol. I tried making something with honey once, it was disGUSting.
In remission April 2010 after 10 years of UC with no remission ever
Jan 2010 began SpecCarbDiet (modified to remove dairy, fruit & juices,)
Gluten-free=bleeding stopped in 3 days, 95% remission in 5.5 months on SCD
SCDiet: Gluten/grain-free, starch-free, low carb, honey as sweetener
(9)Balsalazide+(6)Citrucel, mesalamine enema as needed
Spinach daily, (1) VSL#3 nightly

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1188
   Posted 2/17/2011 11:20 PM (GMT -6)   
For me, my symptoms were like a roller coaster. Had very bad symptoms, severe urgency, weight loss, bleeding, several trips to the bathroom to pass mucous mostly, slight fever, chills, severe pain just before, during and especially after a BM. had to lie down on bed to recover. Was pretty well house bound at various intervals of my flare ups. Rowasa would help with the symptoms. No other drug seemed to help, just make it worse, and I tried more than I care to remember. This roller coaster of being well/not well lasted for 8 years.  Had probably 7+ scopes in my life, some of which my doctor said my insides looked like they had gone through a meat grinder, had 5 benign polyps removed. It seemed everytime I moved to a new house, I would get sick again.
 
 I moved alot in the first 5 years of my marriage. As I reflect back, each house I moved in had water damage or damp or moldy basements. I was also on birth control pills for a long time (which allows yeast to proliferate), and was given antibiotics in my teen years and I suspect after the delivery of my first child. I had high group B Strep, but can't specifically remember if I was given antibiotics. (My symptoms first appeared within months of my first baby). I also loved bread, and other high carb foods such as pasta, sweets and potatoes. ( a possible clue that fungus could be the problem. It is a parasite and needs these foods to survive).
 
So, after researching on my own, I discovered UC can have a fungal etiology. For me, it made sense. I went on an antifungal diet and was blown away to discover my symptoms were getting better after only a 2 week period of the diet. (Diet was pretty well all whole natural foods -choices from any meats/fish/poultry, most veggies (no potatoes or corn- which is really a grain, berries, eggs..., BUT-NO grains, yeast, alcohol, processed/artificial sugar, or high sugar fruits. I also took natural antifungals -olive leaf extract and rotated with caprylic acid. I continued on a phase 2 of the diet for probably six months. Since then, have not been on meds or had any flares. I don't follow the diet strictly today, but am aware of what goes in my mouth. I stay away from processed foods if possible, yeast still bothers my gut (gas/bloating). So far, so good. That was 6 years ago.
 
Fungus is becoming implicated in more than just UC symptoms. More and more it is coming to light that antifungals are helping those with a myriad of health problems, even cancer. I am now a FUPO head...fungus until proven otherwise. :)

napacabs
Regular Member


Date Joined Jan 2010
Total Posts : 90
   Posted 2/18/2011 10:22 AM (GMT -6)   
I started SCD immediately after starting Remicade. My symptoms were classic UC and I was intolerant to mesalamine, 5-ASA and did not respond to steroids. I was started on Remicade and quickly started the path towards remission (thank you Remicade). I was also starting the SCDiet around the same time. Remicade tore my body apart. Aches, pains, psoriasis. After approximately 2 years of Remicade and continuing with a modified version of the diet, I stopped Remicade with my GI's blessing. By this time, I was using VSL#3 as well as sticking to my diet. I have been in remission since. I don't know if diet could have brought me into remission. Thankfully, I have remained in remission and after stopping Remicade, my aches/pains/psoriasis have resolved.

35 yo male
Physician/Orthopedic Surgeon
In Remission
VSL#3 DS: 2 sachets daily
Modified SCDiet (brown rice, quinoa ok)
Psyllium Husk for regularity

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3133
   Posted 2/18/2011 11:58 AM (GMT -6)   
during my severe flare-ups, all I could handle was tiny sips of water. Even those would send me running to the bathroom, passing bloody diarrhea. And this would go on for days & days. 'Til prednisone, thank god! I remember when I first took pred, it was so awesome, I ate & ate... no pain, no D, it was really nice. For about 3 days, 'til the side effects kicked in! But to answer the main question- no, diet has never been able to control any flare for me- aside from the obvious, which is that when I am flaring now, I drink Ensure & maybe have watery oatmeal, bery little food coming in so very little food going out! I'm of the mindset that if one can control/turn-around a "severe" flare with diet, the flare wasn't too severe in the first place.

diagnosed 2002
Asacol
Remicade-10mgs/kg- from 4/07 thru 1/10
Humira
Imuran- 150mgs/day
homemade kefir, probiotic supplement, turmeric

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3766
   Posted 2/18/2011 1:16 PM (GMT -6)   
I agree, Eva Lou. I couldn't even drink a sip of water either without running to the bathroom when I first got UC and was in a severe flare (severe meaning having "D" 20-25 times a day, sleeping in the bathroom because I was waking up every 15 minutes to go with just pure blood and mucous coming out...horrible cramps and feeling like I was going to die.)
27 years old; diagnosed March 2007

Asacol, 6 tabs, 2xday; Rowasa every other night; multivitamin; Ortho Tri-Cyclen

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10349
   Posted 2/18/2011 2:18 PM (GMT -6)   
I think I agree with you too Eva. That's what I was trying to figure out. Are the people who manage their symptoms with diet experiencing a flare like the ones I've experienced or are they experiencing a flare like my original proctitis flare which was very controllable with diet or by simply doing nothing, it wasn't life altering..
Co-moderator: Ulcerative Colitis
03/07: Diagnosis: Mild Proctitis | 08/08: Diagnosis: Pancolitis - FLARE & Anemic! Asacol (3600mg) + Canasa (1000mg morning/night) | 01/10: FLARE! Prednisone + Cortifoam + Asacol + Canasa + Rowasa | Currently: stable - Asacol (3200mg) + Canasa (nightly) + 6mp + Allopurinol + Prednisone + Ponstel + Klonopin + Ambien

Cazzmags
Regular Member


Date Joined Oct 2010
Total Posts : 21
   Posted 2/18/2011 2:48 PM (GMT -6)   
I've had uc (pancolitis) 31 years and experienced very severe flares like you describe. Sipping water and just moving in bed have sent me running to the loo with appalling diarrhea and bleeding and I have been known to spend the night on the bathroom floor many times. I was looking seriously at surgery but decided the SC diet was worth a try. After nearly 5 months I'm now in established remission so in answer to your question diet does work for some people. I don't profess to be 'cured' as you put it but am certainly much better than I have ever been since my diagnosis in 1979 and I've got my life back. :-)

blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/18/2011 4:57 PM (GMT -6)   
I'm currently flaring right now, and am starting Phase 1 of the SCD diet. I'm currently taking 40 mg of prednisone, Levaquin, and Flagyl. The doc isn't sure if it's a flare or a really bad bacterial infection. I've lossed 20 pounds in the process, and have no energy. It does feel like a flare because of all the cramping, and the diarrhea. I'm glad to say that the bleeding has gone away. Time to snack on those really ripe bananas.
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1188
   Posted 2/18/2011 5:04 PM (GMT -6)   
Cazzmags- Wow! 31 years and now you have relief. Good for you :) The Maker's Diet has helped others with Crohn's Disease be able to avoid surgery, as well. Diet change (ie. antifungal/SCD/Maker's Diet) may not help all, but I recommend giving it a fair, serious try if you've tried everything else and are sick and tired of being sick and tired. 
 
Just avoiding random foods here and there won't make a difference. Researching and understanding why these diets do work for some people is important. I also took antifungal supplements and probiotics. I confidently say that DIET ALONE for me would NOT have made the big difference.

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 3787
   Posted 2/18/2011 5:37 PM (GMT -6)   
I am simply amazed that people sharing their stories describing how bad their symptoms were are dismissed with "if one can control/turn-around a "severe" flare with diet, the flare wasn't too severe in the first place."

And that others agree.

I expect this attitude from non-UC people but am surprised that people with UC would say this.
In remission April 2010 after 10 years of UC with no remission ever
Jan 2010 began SpecCarbDiet (modified to remove dairy, fruit & juices,)
Gluten-free=bleeding stopped in 3 days, 95% remission in 5.5 months on SCD
SCDiet: Gluten/grain-free, starch-free, low carb, honey as sweetener
(9)Balsalazide+(6)Citrucel, mesalamine enema as needed
Spinach daily, (1) VSL#3 nightly

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10349
   Posted 2/18/2011 5:40 PM (GMT -6)   
I am sorry if you think that we are dismissing your symptoms as not being severe. I am sure some do manage very severe symptoms with diet but I think unfortunately most probably can not.
Co-moderator: Ulcerative Colitis
03/07: Diagnosis: Mild Proctitis | 08/08: Diagnosis: Pancolitis - FLARE & Anemic! Asacol (3600mg) + Canasa (1000mg morning/night) | 01/10: FLARE! Prednisone + Cortifoam + Asacol + Canasa + Rowasa | Currently: stable - Asacol (3200mg) + Canasa (nightly) + 6mp + Allopurinol + Prednisone + Ponstel + Klonopin + Ambien

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5419
   Posted 2/18/2011 5:40 PM (GMT -6)   
Oh my gosh, I cannot imagine living with UC for 31 years!! My hat is off to you!

Sue

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3133
   Posted 2/19/2011 4:16 PM (GMT -6)   
to clarify- I stand by my point that if one is able to turn around/heal a flare, it's not a severe flare. However, I do think diet monitoring while in remission can keep one in remission, for the most part. Whichever seems to work for you, SCD, Makers, vegan... if it's keeping you in remission than stick with it! But to treat a severe flare with diet alone- no, can't be done. Or maybe it could possibly be done, but would take so long you'd be dead before you noticed any effects! How can one eat when water alone sends you running to the bathroom passing blood??? Imagardener, you had UC with no remission for 10 years- obviously it wasn't a severe flare for 10 years, no? What did you use to treat it, before you changed your diet? And you're still on meds too, right? So no, diet alone won't heal a colon. See, I'd expect this mindset from other UC sufferers, who may have tried a diet change with no effect.
diagnosed 2002
Asacol
Remicade-10mgs/kg- from 4/07 thru 1/10
Humira
Imuran- 150mgs/day
homemade kefir, probiotic supplement, turmeric

IamCurious
Veteran Member


Date Joined Jan 2010
Total Posts : 2289
   Posted 2/19/2011 6:11 PM (GMT -6)   
I swear by maintaining remission thru diet; but I cannot recommend trying to end a flare by dieting. That was not how my last flare ended. Maybe it works for some but it did not for me. Napacabs said his flare ended with Remicade, others have said pred, for me it was Flagyl.

One problem I have with diet is that it is so hard to identify the foods that trigger flares. I was fortunate to have been a member of this forum last year when Christine1946 mentioned that over the years crab cakes have repeatedly sent her to flarestown. It was then that I noticed that I was regularly eating shellfish and clam chowder soup. When I stopped my symptoms became much less intense. Who’d a thunk it. Shellfish is SCD legal so it probably would have taken me months to discover that it might be triggering my symptoms.

The only general dietary recommendation I can make for someone in a flare is to avoid gluten foods for a few days. Gluten sensitivity is much more common than most believe. If symptoms begin to lesson then gluten free foods should probably be part of your diet to maintain remission. (If I were a GI I would recommend all my patients to avoid gluten for a few days to see what happens.) You may also want to try the same with dairy. But other than avoiding gluten and dairy I don’t know what other kind of diets you can try other than maintaining a food diary to isolate triggering foods.

But then you still have to jump-start your remission. Hopefully diet may work for you but if you are like me then you might need something more.
Male/59 DX ulcerative colitis Feb08, possible Crohn's colitis DX Mar10.
No Meds, allergic to Mesalamine. Remission since Mar10. Food journal instead of SCD. Psyllium seed + VSL3 especially helpful.

Boswellia, E. Coli Nissle (Mutaflor), turmeric, fish oil, S. Boulardii, OLE, resveratrol, multivitamin, extra D3, K2, C, high gamma E, magnesium, phos choline, glutamine. Lots of vegetables & fruit (but no plums), no soda, no HFCS, no trans fat, no shellfish, tea instead of coffee, watch gluten, few processed foods, no carrageenan.
Nature created all of the locks, therefore Nature has all of the keys

Post Edited (BabeintheWoods) : 2/20/2011 3:47:14 PM (GMT-7)


aguywithuc
Veteran Member


Date Joined Jun 2010
Total Posts : 2504
   Posted 2/19/2011 6:17 PM (GMT -6)   
It is a slipper slope for sure. I have had severe flares blood - almost all blood 20 times a day or more.

Usually that requires prednisone but that failed miserably last time. I have exited a bloody flare with diet but usually it is best caught early and the chances of diet working after a certain critical point are not very good. Therefore I apply diet strictness hard and fast the moment I see trouble. Much easier to manage early.

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1188
   Posted 2/19/2011 11:52 PM (GMT -6)   
For me,  if my prescriptive meds were doing the job and I was symptom-less, I wouldn't have bothered with the diet. I had tried so many, and the only one that seemed to work was Rowasa, but over time, that stopped being the "gold mine" that it once was. I was definitely in a flare when I started the diet. It was bad enough (no flare is good) that after 14 days on the diet I woke up one morning and felt like a changed woman. I was taking my meds while on the diet, but it was the diet and the supplements that caused the change. I was able to taper off as I was feeling so great, and haven't had a symptom since. I am still confident that the antifungal supplements were key to my recovery. Some people may need prescriptive antifungals as the" naturals" may not be enough.

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 2/20/2011 2:12 AM (GMT -6)   
Yes. My inflammation was severe. However, I don't just treat my IBD with diet. I also treat it with probiotics and fecal transplantation.

i_love_coffee
Veteran Member


Date Joined May 2010
Total Posts : 635
   Posted 2/20/2011 11:30 AM (GMT -6)   
imagardner:
 
as far as a mixer for drinks, tryhomemade unsweetened iced tea, whatever kind you can tolerate.  I make decaf green iced tea and mix with rum for the rare time i can tolerate a drink and i am well enough to drink it.
 
as far as diet: i think its a big part ,but so different for everyone and hard to isolate what bothers your gut sometimes. 

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 2/20/2011 3:37 PM (GMT -6)   
I started with the raw foods diet, really noticed improvement but still had bleeding and mucus. Bleeding stopped when i went to this anticandida diet. Im not finished with my program. so am still doing it. I am taking things like golden seal. wormwood and actually a whole list of other ingredients. Olive leafe i have also taken.

I really noticed an increase of energy when getting rid of gluten. I also has asthma difficulties and getting rid of gluten got rid of that completly. Example is i would wake up sneezing all the time. I didnt realize it was gluten that was causing that till i eleminated it. im not using any meds at present and my bms are still 1-2 a day.

Interesting enough as well i used to get colds and flus all the time. since going raw and this new candida diet im doing i havent has a cold or a flu. Ive been experimenting with these different diets for about 1 1/2 years now.

anit candida diet has been the best so far for me and has gotten me the furthest results. but as my recutm is so bad i have to remain strict.

Bleeding was the one thing that use to drive me crazy. i was fighting it so much even when using the drugs. im so glad i havent had any it scares me alot to see that.
female/ 34/ From the UK but grew up in the States
dignosis: Ulcerative Colitis 2007 currently they dont know the extent of it
treatment: anti candida diet by Gerald Green, now also doing an anti cadida program
drugs: none at present, due to anti candida diet

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1188
   Posted 2/20/2011 8:11 PM (GMT -6)   
For those of you who have tried an anticandida (antifungal) diet and found success, what prompted you to go on the diet? Was it from your own research or your doctor's suggestion? Just wondering, as my doctor ridiculed me for trying such a diet, and turns out the antifungal program- now my lifestyle- was the only thing that helped me get rid of symptoms and become drug free.

blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/20/2011 8:15 PM (GMT -6)   
I have to agree with Kim. I've gone back on the SCD and bleeding and mucus has stopped. I'm tapering off the prednisone as quickly as I can because it isn't do anything for me anyways. The cramping is still present; in my experience in the past that is usually the last thing that disappears.
Pharmacist as of 6/12/2009.
Diagnosed 8/99. Suffered for almost 10 years. I am currently on the Specific Carbohydrate Diet and am nearing remission. I feel fantastic! I have lossed so many years to this disease.

MED-FREE!!!

Doc wanted to put me on 6-mp or Remicade, but I refused to take the medications! Currently on the Specific Carbohydrate Diet.  I'm in remission and life is like it always should have been.
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