Transdermal LDN put me in remission!! PART I

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InSoFla
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Date Joined Jan 2011
Total Posts : 4679
   Posted 4/11/2011 6:17 AM (GMT -7)   
I wanted to share with everyone that Transdermal LDN has put me into remission.

www.skipspharmacy.com



Please, go to www.youtube.com write: Low dose Naltrexone in the search field and you will find a pharmacist explaining where in the U.S you can buy your medicine. You can also read these pages to find more info to bring to your doctor:
www.ldninfo.org[/color]

<br]www.ldnscience.org
]


and if you want to find what other Crohns and UC patients have experienced when using LDN, choose Crohns Disease and Ulcerataive Colitis at:
www.ldndatabase.com



Hope this helps.

I would love to hear from others of you who have tried LDN, thinking about trying LDN.

:)



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Post Edited By Moderator (Red_34) : 5/9/2011 12:47:25 PM (GMT-6)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10468
   Posted 4/11/2011 8:48 AM (GMT -7)   
Wonderful to hear you're doing so well on LDN. This is a treatment that I am definitely interested in although I've heard about a lot more people with Chron's having luck treating with it than UC. I've also heard it's important to get it compounded at a pharmacy that is familiar with the process.
Co-moderator: Ulcerative Colitis
03/07: Diagnosis: Mild Proctitis | 08/08: Diagnosis: Pancolitis - FLARE & Anemic! Asacol (3600mg) + Canasa (1000mg morning/night) | 01/10: FLARE! Prednisone + Cortifoam + Asacol + Canasa + Rowasa | Currently: stable - Asacol (3200mg) + Canasa (nightly) + 6mp + Allopurinol + Prednisone + Ponstel + Klonopin + Ambien

Peace&Harmony
Veteran Member


Date Joined Jul 2010
Total Posts : 1121
   Posted 4/11/2011 12:41 PM (GMT -7)   

I started LDN on March 11 at 1.5mg pills.  Since my flare was upsetted by addtional stressors I up to 3.0mg then to 4.5mg.  I'm also taking Budesonide suppositroies 0.5mg 3x a day.  I think the Budesonide is doing the trick.

I was told it could take several months for LDN to take effect and that the tranmittal type is questionable as skin absorbs at different rates.  Guess you don't know unless you try and it's worth the try....hardly any side effects and cheap price..my two favorite combination!

 

 

 


41 year old female, diagnosed July 2010
flaring as of 10/15/2010,
Rectosigmoid up to 30 cm -mild
As of 2/2/2011 up to 15cm - mild to moderate - ulerative procitis
Apriso 4 pills AM/ Canasa 2x daily
Started LDN 3.0mg on 3/16/2011, increased to 4.5mg on 3/23/2011
Folic Acid 1 mg daily / Probotics /Energy Multi-Plex / Vital-Zymes Complete / BSP-201
Microgestin (birth control), Magnesium for leg cra

InSoFla
Veteran Member


Date Joined Jan 2011
Total Posts : 4679
   Posted 4/11/2011 8:33 PM (GMT -7)   
Notsosicklygirl,
 
Thanks, Yes, you can only get it through a compounding pharmacy, and it's important to get it from one that knows how to compound it properly into a transdermal formulation.
Let me know your next steps....
Good luck.
 
Peace & Harmony,
Hope you start to get good results on the LDN. Is it the oral kind or transdermal kind?
Transdermal kind is very effective, in many cases more so than oral, since lots of UC and Crohns patients have absorption issues.
Please keep me updated on your progress.
Diagnosed with UC in September 2010.Tried various Mesalamine enemas/suppos/pills with Prednisone for several round without any help.Diet consists of only protein: protein shakes w/Maca powder,L-Glutamine 15 grams, D-Ribose 5grams, chia seeds, and meat & fish only.Liquid Minerals& Vitamins. Transdermal LDN is working!!!

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 2930
   Posted 4/12/2011 12:48 PM (GMT -7)   
InsoFla
Is that the only medication you are taking now? Just the LDN? That's great news! I'm looking into the cream again and from Skips. I have more issues that UC but maybe it will work this time around. I'm on the 4.5 mg at night and it's not working. Bleeding is worse. I'm probably just not absorbing it.
 
Thank you.
UC since '05, now sulfasaladine (4 pills a day),I've been on Rocephin shot weekly, for Lyme's disease, that's worked amazing for my gut issues of gas, bloating and pain. I highly recommend it!

zucchini
Regular Member


Date Joined Jun 2010
Total Posts : 370
   Posted 4/12/2011 8:03 PM (GMT -7)   
I'm interested too, to hear more about this, if anyone else has any thoughts or experiences with LDN.

jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1581
   Posted 4/12/2011 9:25 PM (GMT -7)   
I know someone who is taking this for MS and is doing wonderful on it.
Diagnosed July 2005 with Pancolitis
sulfasalazine 6 a day
Pro-Bio, multivitamin, lisinopril
proctofoam as needed
Humira every two weeks
IBD related Arthritis
http://mysite.verizon.net/vzewor6c

InSoFla
Veteran Member


Date Joined Jan 2011
Total Posts : 4679
   Posted 4/14/2011 5:12 AM (GMT -7)   
Therearemiracles,
If you are on 4.5mg and are not doing well, yes, you're probably not absorbing it. As you may have seen from my post, I lost 5 weeks to incorrect type of LDN, due to allergic reaction to avicel filler, then to malabsorption. I'll be anxious to hear about your results with the Transdermal LDN. Please let me know. For me, it took just 4 days of Transdermal to start having an effect.
 
Just before starting the Transdermal LDN, I had started with the canasa suppositories, which wasn't helping. And since it takes a few weeks for the immune system to rev up (because that's what LDN promotes), I figured I'd stay on canasa. I've tapered to canasa only twice weekly, and will continue to eventually nothing. But I am SURE the great improvement is all LDN causal, as I have never had any improvement prior to.
 
Please let me know your progress.
:)
Diagnosed with UC in September 2010.Tried various Mesalamine enemas/suppos/pills with Prednisone for several round without any help.Diet consists of only protein: protein shakes w/Maca powder,L-Glutamine 15 grams, D-Ribose 5grams, chia seeds, and meat & fish only.Liquid Minerals& Vitamins. Transdermal LDN is working!!!

InSoFla
Veteran Member


Date Joined Jan 2011
Total Posts : 4679
   Posted 4/14/2011 5:32 AM (GMT -7)   
Jano437,
LDN has helped so many people with so many different types of conditions - many auto-immune diseases, such as MS, Parkingson's, Lupus, etc...
I've read amazing accounts of some who are wheelchair bound with MS, and after a few months, can start walking with a walker, and then within a few more months with a cane.
I've also read some accounts of it putting breat cancer, prostate cancer, and even a stage 4 pancreatic cancer patient into remission.
It's too bad too many doctors are to set in their ways and not open minded to consider the LDN for their patients. But so many are ruled by the almighty buck, and the perks they get from BIg Pharma for the big ticket $ items they prescribe is too big a lure for them.
Greed doesn't advance anyone's cause, except the one whose pockets are being filled.
Diagnosed with UC in September 2010.Tried various Mesalamine enemas/suppos/pills with Prednisone for several round without any help.Diet consists of only protein: protein shakes w/Maca powder,L-Glutamine 15 grams, D-Ribose 5grams, chia seeds, and meat & fish only.Liquid Minerals& Vitamins. Transdermal LDN is working!!!

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 2930
   Posted 4/14/2011 8:16 AM (GMT -7)   
so true InsoFla, in all that you wrote. Today was much better for me hardly any blood this morning. I'm clearing yeast big time by doing 200mg of diflucan twice a day for three weeks before I start the cream. It's recommended the yeast be cleared and any bacteria issue before starting LDN and if LDN stops working check for yeast/candida. I belong to the LDN forum too www.ldnproboards.com and there's great info there. My stool are not formed in any means, I can't wait for that day! I'm still taking my sulfasalazine though and a strong probiotic. Today has been one of the better days and I will keep in touch when I start the LDN. You don't drink on it do you? I will miss a occasionaly margarita that's for sure but gettng better is more important!

InSoFla
Veteran Member


Date Joined Jan 2011
Total Posts : 4679
   Posted 4/16/2011 6:52 AM (GMT -7)   
therearemiracles,
The one contra-indication on LDN (any type) is alcohol and opiate pain killers. Apparently the cell receptor site that the LDN binds onto is the same one that is used for alcohol and opiate pain killers. So, if you use either one, the LDN won't be effective.
Did you finally get the Transdermal LDN?
How are you  doing on it now?
I am on the same LDN forum proboards as well.
I am also on this one: http://www.crohnsdiseasesn.com/forum , there's a UC topic on it as well.
Anyway, please let me know your progress.
 
Diagnosed with UC in September 2010.Tried various Mesalamine enemas/suppos/pills with Prednisone for several round without any help.Diet consists of only protein: protein shakes w/Maca powder,L-Glutamine 15 grams, D-Ribose 5grams, chia seeds, and meat & fish only.Liquid Minerals& Vitamins. Transdermal LDN is working!!!

Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 593
   Posted 4/16/2011 8:37 AM (GMT -7)   
I am going on my fifth day of transdermal LDN.  I think it is helping.  The number of trips to the bathroom is dramatically reduced.  People are right when they say you can't absorb the pills.  They gave me extreme night time diarrhea.  Now on the cream I sleep through the night with maybe one bathroom trip.  I am hoping over time things only get better.
Sally (40yrs)
UC since 2002
Humira and Remicade (discontinued), Asacol, Immodium, Rowasa, Canasa, Proctofoam, LDN, Calcium, Vit D, Folgard. VSL#3.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10468
   Posted 4/16/2011 9:41 AM (GMT -7)   
That sounds very hopeful Boxer. Please keep me updated. I am interested in trying LDN when the time is right :) Best of luck to you!
Co-moderator: Ulcerative Colitis
03/07: Diagnosis: Mild Proctitis | 08/08: Diagnosis: Pancolitis - FLARE & Anemic! Asacol (3600mg) + Canasa (1000mg morning/night) | 01/10: FLARE! Prednisone + Cortifoam + Asacol + Canasa + Rowasa | Currently: stable - Asacol (3200mg) + Canasa (nightly) + 6mp + Allopurinol + Prednisone + Ponstel + Klonopin + Ambien

InSoFla
Veteran Member


Date Joined Jan 2011
Total Posts : 4679
   Posted 4/16/2011 8:20 PM (GMT -7)   
Boxermom2,
great news! Yes, you were definitely having absorption issues.
So glad you are on Transdermal LDN. I think you'll find better and better results, the more you use it.
Keep us apprised of your progress please.
 
Diagnosed with UC in September 2010.Tried various Mesalamine enemas/suppos/pills with Prednisone for several round without any help.Diet consists of only protein: protein shakes w/Maca powder,L-Glutamine 15 grams, D-Ribose 5grams, chia seeds, and meat & fish only.Liquid Minerals& Vitamins. Transdermal LDN is working!!!

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2800
   Posted 4/18/2011 8:39 AM (GMT -7)   
InSoFla said...
therearemiracles,
The one contra-indication on LDN (any type) is alcohol and opiate .


Thanks for posting your experience. I have always been interested in LDN, but I thought that immune-suppressing drugs such as Humira (which I am on) must be discontinued for a few months before commencing LDN. If Not, I would be keen to try it soon.
"In order to save the village organ, we had to destroy remove it" -- Doctor's Prescriber's proverb. 
 

Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 593
   Posted 4/18/2011 4:09 PM (GMT -7)   
When can I expect to see some good changes? Does it take weeks? I just want to wake up and have formed stools and feel good. I am really hoping for the best on this stuff.
Sally (40yrs)
UC since 2002
Humira and Remicade (discontinued), Asacol, Immodium, Rowasa, Canasa, Proctofoam, LDN, Calcium, Vit D, Folgard. VSL#3.

InSoFla
Veteran Member


Date Joined Jan 2011
Total Posts : 4679
   Posted 4/18/2011 4:14 PM (GMT -7)   
Probiotic,
Glad to do it; just trying to help as many UC and Crohns' patients see it as an effective alternative to Big Pharma drugs (with lots of big side effects).
No as I mentioned only contra-indications are opiates and alcohol.
LDN is even given to chemo and radiation cancer patients while getting traditional treatment.
Please let me know your decision on trying it, and if you start it, your progress as well :)
 
Diagnosed with UC in September 2010.Tried various Mesalamine enemas/suppos/pills with Prednisone for several round without any help.Diet consists of only protein: protein shakes w/Maca powder,L-Glutamine 15 grams, D-Ribose 5grams, chia seeds, and meat & fish only.Liquid Minerals& Vitamins. Transdermal LDN is working!!!

InSoFla
Veteran Member


Date Joined Jan 2011
Total Posts : 4679
   Posted 4/18/2011 4:19 PM (GMT -7)   
Boxermom2,
I thought you were starting to see some good results?
You are taking transdermal LDN? What dosage? It should be at an equivalent dosage of 4.5mg in cream.
What time are your applying it ? and where are you applying it?
You should be applying it between 10 pm and midnight, and it should be applied to the bottom part of the forearm - the area adjacent to the wrist. And you should alternate - the left wrist area one day, and the right one the next.
You should start to see some results within a few weeks, although some see results within 1 week, and others see results within a few months - so it is very individualized. The pharmacist told me to give it a good solid 6 months.
Please keep me apprised of your progress.
Diagnosed with UC in September 2010.Tried various Mesalamine enemas/suppos/pills with Prednisone for several round without any help.Diet consists of only protein: protein shakes w/Maca powder,L-Glutamine 15 grams, D-Ribose 5grams, chia seeds, and meat & fish only.Liquid Minerals& Vitamins. Transdermal LDN is working!!!

Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 593
   Posted 4/18/2011 4:38 PM (GMT -7)   
I am applying it to the forearm just above the wrist.  I have been alternating arms and putting it on around 10pm before bed.  I do seem to think the number of bathroom trips is down.  I never had much blood so I can't tell by that.  Nothing is formed up though and that is what I want.  It hasn't been a week yet so I think it may still be too early. 
Sally (40yrs)
UC since 2002
Humira and Remicade (discontinued), Asacol, Immodium, Rowasa, Canasa, Proctofoam, LDN, Calcium, Vit D, Folgard. VSL#3.

cupcakespinkgal
Veteran Member


Date Joined Jun 2010
Total Posts : 720
   Posted 4/18/2011 6:02 PM (GMT -7)   
I am from the Crohn's board but am using LDN and have a friend with UC on LDN (she is the one that got me on it).

Boxermom,

Some people on the Crohn's board have seen big improvements within a couple days to a couple weeks, but there are also a lot of people that it takes a few months. Unfortunately with this treatment I think patience is key. I have been on it since October and it took me until just last month that I felt a major improvement. I had small improvements within a few weeks, but it wasn't until more recently that things firmed up and frequency went way down. I am doing great now, formed stool and only going once in the AM maybe twice if I ate a lot the day before.

My friend with UC took it for 4 months before seeing an improvement. She kept taking it and felt like nothing was happening, then right around the 4 month mark she felt fantastic, she is doing the best she has since diagnosis (which is about 10 yrs). She is also on Humira, but she had already been on the Humira for awhile and it wasn't quite helping all the way.

Not sure if that is encouraging or not. Maybe discouraging that it could still be a few months, but encouraging that people that have stuck with it do see an improvement eventually!
Diagnosed with Crohn's in 1998, father has UC we were both diagnosed at 20 yrs old.
Previously on Remicade, Humira - No surgeries so far

Meds ~ Sulfasalazine 2/2xday, 1.5 mg LDN, increasing at 2 week intervals
Supps ~ Culturellle, psylium seed, olive leaf extract, magnesium, D3, K2, Calcium/Boron, multi-mineral. Modified Fodmap/low fructose/no sugar

Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 593
   Posted 4/18/2011 6:18 PM (GMT -7)   
Thanks Cupcake! That is encouraging. I'm in it for the long run. I will keep everyone posted.
Sally (40yrs)
UC since 2002
Humira and Remicade (discontinued), Asacol, Immodium, Rowasa, Canasa, Proctofoam, LDN, Calcium, Vit D, Folgard. VSL#3.

InSoFla
Veteran Member


Date Joined Jan 2011
Total Posts : 4679
   Posted 4/18/2011 8:36 PM (GMT -7)   
So glad you were able to shed some light on progress times for various people - it goes to show how individualized this can be for most. Thank you.
glad you are in for the long run, and perhaps in a few weeks you may even get surprised by more substansive
progress.
 
Please keep us apprised.

Diagnosed with UC in September 2010.Tried various Mesalamine enemas/suppos/pills with Prednisone for several round without any help.Diet consists of only protein: protein shakes w/Maca powder,L-Glutamine 15 grams, D-Ribose 5grams, chia seeds, and meat & fish only.Liquid Minerals& Vitamins. Transdermal LDN is working!!!

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 2930
   Posted 4/19/2011 8:33 AM (GMT -7)   
I started the cream last nigt. Do you spread the medication up and down the arm or just put in a small location and rub it in? I put in on my left arm, below the wrist and rub in up and down inside of arm.
 
Today I had a "accident" leaving the house in my car, had to change my pants. Had bleeding this morning as well. I know it takes more than a day and maybe months, so I'll keep it up. I sleep so hard with it and yes vivid dreams all night it seems. It's hard to get out of bed but once I'm up I'm ok. Are you using any other meds at this time? I use sulfasalazine as well. Plus I'm suppose to get a shot of rocephin every week, but I'm sick of doing the shots and I'm sure it messes up yeast wouldn't it even if it's injected and not taken orally?
 
I haven't had a "accident" in some time. I was doing well on diflucan and was taking two pills a day, but my doc said stop. So I'm switching to Allimax double strength capsules for yeast, bacteria (I also have Lyme's). No doc can say if I have UC caused by lyme's or they are two seperate things I have.
 
I'll keep you posted.
 
Thank you,
 
Linda

Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 593
   Posted 4/19/2011 8:47 AM (GMT -7)   
Good luck Linda. I thought I was doing good after five days on it but like you I had a small accident when I walked in my front door after eating lunch out. The place was only a few blocks from home but I still didn't make it. It is really hit or miss with me. Today I may be fine.

I was rubbing the cream up and down too because it didn't rub in right away. Last night I tried to do a little at a time in smaller spot.
Sally (40yrs)
UC since 2002
Humira and Remicade (discontinued), Asacol, Immodium, Rowasa, Canasa, Proctofoam, LDN, Calcium, Vit D, Folgard. VSL#3.

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 2930
   Posted 4/19/2011 8:49 AM (GMT -7)   
Hi Sally
I ordered Alliultra double strength capsules maybe this will help with yeast and this way I don't have to take the diflucan. Hit and miss with me too. I'm 41 and this just sucks, we are young!
 
Hugs,
 
Linda
UC since '05, now sulfasaladine (4 pills a day),I've been on Rocephin shot weekly, for Lyme's disease, that's worked amazing for my gut issues of gas, bloating and pain. I highly recommend it!
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