delayed release phosphatidylcholine from Germany

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kate22
Regular Member


Date Joined May 2009
Total Posts : 214
   Posted 4/18/2011 11:29 PM (GMT -6)   
I was just wondering 2 things regarding people who are using delayed release phosphatidylcholine from KliniPharm in Germany:
1. how are you doing on it - are you having good results?
2. those who are using it, does your insurance cover it?
 
thanks!

Alba29
Regular Member


Date Joined Nov 2010
Total Posts : 253
   Posted 4/19/2011 5:14 AM (GMT -6)   
1) yes, it helps with keeping me in remission.
2) yes, my prescription provider covers it partially as a compound medication. My employer covers international pharmacies.
modified SCD with no sulfites and lots of resistant starch.
Sulfa EC 4 pills/day, canasa
Multi, VSL3, Florastor, Vitamin D, Turmeric, Boswellia, EC lecithin, lactoferrin, propolis with royal jelly, ginkgo biloba and melatonin.

DanthaMan
Regular Member


Date Joined May 2005
Total Posts : 479
   Posted 4/19/2011 9:29 AM (GMT -6)   
I stopped taking it a few weeks ago. I didnt really noticing anything from it but that doesnt mean it wouldnt work for others. I think that the coating they use on it might have upset things more than help.

Sibby
Veteran Member


Date Joined Apr 2010
Total Posts : 1248
   Posted 4/19/2011 11:19 AM (GMT -6)   
Does anyone here have any information on this? I googled it but not a lot of information popped up.

Thanks :)
21-year-old writer
Inactive UC - Remission!
Diagnosed March 31, 2010. First year
March 2011 scope indicates 15 per cent inflammation
Salofalk made symptoms worse
Imuran, 100 mg
Folic acid, 5 mg
Multi-vitamin, Vit. B, D, Calcium
Avoids: red meat, alcohol, high fat, fried, salt, sugar.
Can have: fruits, vegetables, dairy, white meat

kate22
Regular Member


Date Joined May 2009
Total Posts : 214
   Posted 4/20/2011 9:26 PM (GMT -6)   
Hi Sibby,
the delayed release phosphatidylcholine we are referring to is from KliniPharm in Germany. Here is the link to their website explaining the enteric coated phosphatidylcholine (lecithin) that they compound http://www.klinipharm.com/research.html#pharmaceutical-research
just click or scroll down to "pharmaceutical research". I believe in the "contact us" area of their website, they provide both a phone number and an email address for more info/to order. You do need a prescription for this. I hope this helps...if you have any other questions, feel free to ask!
UC since 1994

7.5 mg prednisone,75 mg mercaptopurine, rowasa enemas, folic acid, vitamin D, Renew Life Ultimate Flora Critical Care Probiotic, vegetarian diet

Max32
New Member


Date Joined Oct 2012
Total Posts : 3
   Posted 10/22/2012 11:30 PM (GMT -6)   
I have emailed from the link given twice now with no response...?

Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 2280
   Posted 10/23/2012 7:59 AM (GMT -6)   
Try in German. I can translate.
Diagnosed with UC in '02
Past Treatments: Cortisone, Mesalazine, Azathioprine, MTX, Sulfasalazine, Remicade, Humira
Current Treatments: Apriso (extended-release capsules) 1,5g, SF Rowasa, Entocort
Currently flaring since beginning of '12 descending colon to rectum.
Last coloscopy: 5/4/12

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2782
   Posted 10/23/2012 8:09 AM (GMT -6)   
Call them directly. They are slow to respond to emails but the pharmacist speaks good english.
"In order to save the village organ, we had to destroy remove it" -- Doctor's Prescriber's proverb.
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