Remicade Symptoms

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Remikid
New Member


Date Joined Jun 2011
Total Posts : 8
   Posted 6/3/2011 8:15 PM (GMT -6)   
My daughter had her 2nd infusion of Remicade one week ago.  The day after the infusion she broke out in red "pimples" on her back, chest, forehead,  under her jawline.  I called the doctor and he didn't think it was the type of rash that usually goes with the Remicade, however I did read that Prednisone does have that kind of side effect (known as steroid acne).  She has been on (and off) of Prednisone for the past 5 months without a rash.  Today, she complained of "chest pain".  She described it as "when you eat or drink too fast and you get that pain in the center of your chest."  Has anyone experienced this?  Any ideas or suggestions? 
Thanks.
 
 ______________________________________________________
Diagnosed with Ulcerative Colitis and possible Crohns 12/2010
Hospitalized 5/2011 for 6 days - received 1st Remicade infusion
Was on Aziathiaprine for 3 months but it didn't help.
Prednisone titrating down currently 20 mg
Asacol-HD 800 mg 3x daily
Omeprazole
Vitamin E 800i.u
Folic Acid
D3 1000
Iron - twice daily
 
 
 

Post Edited (Remikid) : 6/3/2011 7:56:25 PM (GMT-6)


UC2010
Regular Member


Date Joined Jul 2010
Total Posts : 39
   Posted 6/3/2011 11:33 PM (GMT -6)   
I had prednisone acne on my face, back, and shoulders when I was on pred. But I would describe that as acne, not little bumps.

When I was above 50mg I would slab have what I would describe as tightness in my chest along with a racing heart. Could that be what she is complaining about?
23 y/o Male
Jan. 28, 2010: Colonoscopy - DX w/ Moderate/Severe UC (Pancolitis)
July 30, 2010: Sigmoidoscope - Lialda not controlling UC
FLARES: Dec. 2009 to Feb. 5, 2010, July 1 to Sept. 25, 2010
CURRENT MEDS: Lialda 4x per day (1/28/10), Prednisone (7/27/10 50mg, 10mg as of 9/29/10), Humira (8/12/10)

mom2panda
Veteran Member


Date Joined Oct 2009
Total Posts : 713
   Posted 6/4/2011 12:09 AM (GMT -6)   
I am not sure about the bumps, it is possible it is a delayed reaction. I have heard that Remicade can cause heartburn is some people. Is that what she is describing? Can she breath okay?
F/42 • Ontario • UC Dx Sep/09- 50cm (far as flex would go).
- Pred dependent (on pred for 14 months leading up to Remi)
- Remicade Jan 24/11 - up'd to 10mg/kg Apr 14/11.
- May 2011 - back on pred until next Remi dose (June 8)

- Tried: SCD, VSL, other diets, budesonide enemas, cortifoam • Fecal Transplant
- Can't take 5-ASA or Imuran
- Calcium, Synthroid, Pantaloc, Iron Infusions

WIMOMOFTHREE
Veteran Member


Date Joined Apr 2009
Total Posts : 654
   Posted 6/4/2011 9:00 AM (GMT -6)   
I get chest pain from the remicade. Since my first infusion actually.  Mine gets worse when i eat or drink.  My doc did tons of blood work and chest exams(I seen a cardiologist) and I was fine.  I knew it was the remicade.  I knew it.  Well, we think it is heartburn.  I'm on prilosec twice a day and if I forget to take it I pay big time.  i get the pain in my chest and it feels like I'm having a heart attack sometimes.  I can breath okay and everything it just hurts.  I have had two scopes down the throat done and they come back fine.  I just went to the dentist the other day and he asked if I have acid reflux because from last time I seen him I am getting acid errotion on my teeth.  I would ask to go on prilosec this kind of sounds like what I get.  If she is having a hard time breathing I would call the doc right away.  You don't want to mess around on remicade.
 
Also, the rash thing maybe put her on zyrtex.  I take it every day once a day.  If I don't I get a rash on my chest, jaw line, and arms.  It itches so bad.  I never got a rash on prednisone. 
 
Is the remicade helping her symptoms?  The only reason I stay on it is because it has given me my life back.  But I have heart burn, reflux, joint pain, and a rash to deal with from the remicade.   I wish her the best of luck.
On remicade since July 2009, Upped my dose in August 2010 to 7.5kg
Currently taking:Calcium Citrate, Vitamin D and Vitamin B12 shot(monthly, myself), Zinc, Magnesium, Zyrtex, Prilosec, Fish Oil, Levothyroxine, and a Multi Chewable Vitamin
Had a scope on 1-11 and my left side is completely healed and my right side has some mild inflammation and ulcers. The remi is working!!!!!

Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 6/4/2011 9:11 AM (GMT -6)   
When I was on Remicade, I had all sorts of pain. When I was getting the infusion, I would feel like I was having some asthma issues. I would just keep a close eye on her when she goes to get her third infusion....
29 year old, Married, Female. Moved from Sacramento, Ca to Arizona July 5th, 2010
Diagnosed with UC since March 2007
Taking Humira since May ’07 (Currently in remission since May ’07 with minor yearly flares)
Prescribed Imuran from May ’07 to Jan. 15, 2009. Can’t take Asacol, allergic to remicade, odd reactions to Canasa.
Flares: *5/ ’08 – 7/ ’08 * Mid 6/ ’09 – 8/21/2009 * 3/16/2010 – Beg. 8/2010

Remikid
New Member


Date Joined Jun 2011
Total Posts : 8
   Posted 6/5/2011 6:19 AM (GMT -6)   
Thanks to everyone who replied! We are new members and very much appreciate the support and feedback. We are hoping with the titration of prednisone, the "steriod acne" will begin to subside, if not we have been advised by her GI to contact a dermatologist. She did have some breathing issues but that was when she was on the azathiaprine (which she is unable to take). Yesterday, we are happy to say, she said that although her "chest hurt" a little her breathing was so much better (she used to run 7 miles now she is happy to get 2). Last night, after dinner the chest pain was a "9" (we like to work with a rating scale of 1-10 with 10 being the worst possible pain). My husband gave her omeprazole (she takes this in the morning 15-30min before she eats) and within 15 minutes the pain had subsided. Even though she is dealing with a rash/acne and heartburn, she says its better than the alternative. She doesn't want to stop the remicade.

Colonoscopy: Diagnosed with Ulcerative Colitis and possible Crohns 12/2010
Signmoidoscopy 5/2011
Hospitalized 5/2011 for 6 days - received 1st Remicade infusion
Was on Aziathiaprine for 3 months but it didn't help.
Prednisone titrating down currently 20 mg
Asacol-HD 800 mg 3x daily
Omeprazole
Vitamin E 800i.u
Folic Acid
D3 1000
Iron - twice daily
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