This is my first post here and I am not sure I'm in the right place. I have been given so little information from my doctor, I do not even know the difference between Ulcerative Colitis and Microscopic Colitis. However since there is no forum for Microscopic Colitis (MC), I figured I would try here.
I never really thought a whole lot about the colitis until reading posts here. Now you got my attention! This can be a pretty nasty condition! While I've have never had bleeding or cramps, the diarrhea is chronic.
I was diagnosed with MC one year ago but have probably had it for 10 years. It started with bi-weekly bouts of diarrhea which I kept under control with daily doses of imodium ad. Dosing started at two a day, gradually going up over the next ten years. I finally went to my doctor last year when my daily dose of imodium reached 20 (10 am/10 pm) and could no longer do it's job. The first thing he did was a colonoscopy and he found just one polyp. A week later when the labs came back I was informed that I have Microscopic (Lymphocytic) Colitis.
I was not really told much about the condition but was given a prescription of Apriso 3/day. When I only got a little relief from the Apriso my GI added 3 daily Entocort EC to the 3 Apriso. This seemed to work really well. My diarrhea was under control and two or three amodiums would quickly knock out any flare ups. When my employer changed medical plans the Entocort was no longer an option. My copay was all of a sudden $800 for a 3 month supply of entocort. My GI upped my dose of Apriso to 4 a day with that dose I need to take 12 amodiums a day split 1/2 in the am and 1/2 in the p/m.
With my last appointment completed yesterday, My GI said the Apriso wasn't doing enough and gave me a month worth of Asacol HD to try for a month. The dosage he placed me on is 4 a day (2AM/2PM). I have just started taking them today so I don't know how they will work.
Does anyone here have Microscopic Colitis? If so, how are you being treated for it?
Microscopic (Lymphocytic) Colitis
Asacol HD 800mg x 4/day
Post Edited (Skunk Ape) : 6/7/2011 7:49:23 PM (GMT-6)