Microscopic (Lymphocytic) Colitis - Does anyone here have it?

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Skunk Ape
New Member

Date Joined Jun 2011
Total Posts : 2
   Posted 6/7/2011 7:38 PM (GMT -7)   
This is my first post here and I am not sure I'm in the right place. I have been given so little information from my doctor, I do not even know the difference between Ulcerative Colitis and Microscopic Colitis. However since there is no forum for Microscopic Colitis (MC), I figured I would try here.
I never really thought a whole lot about the colitis until reading posts here. Now you got my attention! This can be a pretty nasty condition! While I've have never had bleeding or cramps, the diarrhea is chronic.
I was diagnosed with MC one year ago but have probably had it for 10 years. It started with bi-weekly bouts of diarrhea which I kept under control with daily doses of imodium ad. Dosing started at two a day, gradually going up over the next ten years. I finally went to my doctor last year when my daily dose of imodium reached 20 (10 am/10 pm) and could no longer do it's job. The first thing he did was a colonoscopy and he found just one polyp. A week later when the labs came back I was informed that I have Microscopic (Lymphocytic) Colitis.
I was not really told much about the condition but was given a prescription of Apriso 3/day. When I only got a little relief from the Apriso my GI added 3 daily Entocort EC to the 3 Apriso. This seemed to work really well. My diarrhea was under control and two or three amodiums would quickly knock out any flare ups. When my employer changed medical plans the Entocort was no longer an option. My copay was all of a sudden $800 for a 3 month supply of entocort. My GI upped my dose of Apriso to 4 a day with that dose I need to take 12 amodiums a day split 1/2 in the am and 1/2 in the p/m.
With my last appointment completed yesterday, My GI said the Apriso wasn't doing enough and gave me a month worth of Asacol HD to try for a month. The dosage he placed me on is 4 a day (2AM/2PM). I have just started taking them today so I don't know how they will work.
Does anyone here have Microscopic Colitis? If so, how are you being treated for it? 
Age: 51
Microscopic (Lymphocytic) Colitis
Asacol HD 800mg x 4/day

Post Edited (Skunk Ape) : 6/7/2011 7:49:23 PM (GMT-6)

Forum Moderator

Date Joined Dec 2008
Total Posts : 12589
   Posted 6/7/2011 10:17 PM (GMT -7)   
Hello & Welcome!

I do not have experience with mucroscopic colitis but I have seen some posts in the past about the subject. If you do a search in the box on the top right, you will find some discussions. Some of the users may still be active, hopefully they respond.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis & Migraines. Battling Extreme Exhaustion | Past Meds: Prednisone + Cortifoam + Asacol (3600) + Canasa + Rowasa + 6mp + Allopurinol
Currently: Asacol (3200mg) + 6mp

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Date Joined Apr 2004
Total Posts : 22852
   Posted 6/8/2011 5:51 AM (GMT -7)   
The difference between Uc and MC is that with MC, most times visible damage or inflammation will not be seen via scope such as ulcerations but can be seen under a microscope. MC can be cured while Uc can not. The treatment is the same though. The meds are designed to reduce inflammation in the colon. Have you ever had stool testing done to rule out parasites?

Here is a good website that can tell you more about MC:

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Skunk Ape
New Member

Date Joined Jun 2011
Total Posts : 2
   Posted 6/8/2011 6:10 AM (GMT -7)   
Thanks for the response. I have found a forum for MC and will most likely be leaving here. From what I've read, while MC rarely causes bleeding the rest of the symptoms can be identical to UC. As you said treatments and medications are also the same. One error in your statement though. According to my GI doc, the MC forum and what I could find online, there is no cure for MC. So like you, I'm stuck with this for life.
Age: 51
Microscopic (Lymphocytic) Colitis
Asacol HD 800mg x 4/day

New Member

Date Joined Mar 2015
Total Posts : 1
   Posted 3/7/2015 7:55 PM (GMT -7)   
I, too, have microscopic colitis. When I was 17 they called it a spastic colon and I was told I would have it all my life and there was nothing I could do about it. I suffered for years. I actually crap water for 7 years. I would have to pull off on the side of the road from the pain. When Imodium came out, I thanked God. But you know how that is. Finally about 9 years ago, I got such pain from hemorrhoids I went to my doctor. He asked about my hard stools. I laughed and told him I don't have stools, I have tea. Gross talk, isn't it? Such a dirty little secret. All that embarrassment. Trying to be quiet in a public restroom. All the pain, and trying to pretend you're not in pain, and trying not to crap yourself. Well, finally this doctor sent me to a Gastro guy, Saint Gastro Guy, who discovered my Microscopic Colitis. He put me on Entocort, 4 a day. Still have to fight the Insurance company all the time because they say all I need is 3. Yay, Entocort. Of course, that brings even more gas! Wonderful. I'm still a mess. Urgency, diarreah, just not 30 times a day. 3 months ago I started ordering Lactinex, a refridgerated pro-biotic, yogurt isn't it. Well, some times I actually form turds. And that is a gift nobody else understands is a gift, but us. Please try probiotics. Good luck, and may you never run out of toilet paper.

Regular Member

Date Joined Dec 2014
Total Posts : 65
   Posted 3/7/2015 8:26 PM (GMT -7)   
Hello. I was dx over 20 yrs ago with proctitis. ( 6 inches of inflammation in the rectum area ) about 5 yrs ago, during my colonoscopy I was told that I had microscopic colitis. I remember having some bouts of D but not too bad . I just had a bad flare of UC? ( Blood, pain & lots of D )during the holidays. Took pred, now I am on asacol, and so far I am doing quite well. I will be having another scope in November to see what is going on.

I wonder if microscopic colitis is the start of UC ?
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