Microscopic (Lymphocytic) Colitis - Does anyone here have it?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Skunk Ape
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/7/2011 8:38 PM (GMT -6)   
This is my first post here and I am not sure I'm in the right place. I have been given so little information from my doctor, I do not even know the difference between Ulcerative Colitis and Microscopic Colitis. However since there is no forum for Microscopic Colitis (MC), I figured I would try here.
 
I never really thought a whole lot about the colitis until reading posts here. Now you got my attention! This can be a pretty nasty condition! While I've have never had bleeding or cramps, the diarrhea is chronic.
 
I was diagnosed with MC one year ago but have probably had it for 10 years. It started with bi-weekly bouts of diarrhea which I kept under control with daily doses of imodium ad. Dosing started at two a day, gradually going up over the next ten years. I finally went to my doctor last year when my daily dose of imodium reached 20 (10 am/10 pm) and could no longer do it's job. The first thing he did was a colonoscopy and he found just one polyp. A week later when the labs came back I was informed that I have Microscopic (Lymphocytic) Colitis.
 
I was not really told much about the condition but was given a prescription of Apriso 3/day. When I only got a little relief from the Apriso my GI added 3 daily Entocort EC to the 3 Apriso. This seemed to work really well. My diarrhea was under control and two or three amodiums would quickly knock out any flare ups. When my employer changed medical plans the Entocort was no longer an option. My copay was all of a sudden $800 for a 3 month supply of entocort. My GI upped my dose of Apriso to 4 a day with that dose I need to take 12 amodiums a day split 1/2 in the am and 1/2 in the p/m.
 
With my last appointment completed yesterday, My GI said the Apriso wasn't doing enough and gave me a month worth of Asacol HD to try for a month. The dosage he placed me on is 4 a day (2AM/2PM). I have just started taking them today so I don't know how they will work.
 
Does anyone here have Microscopic Colitis? If so, how are you being treated for it? 
 
 
 
 
Age: 51
Microscopic (Lymphocytic) Colitis
Asacol HD 800mg x 4/day

Post Edited (Skunk Ape) : 6/7/2011 7:49:23 PM (GMT-6)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10379
   Posted 6/7/2011 11:17 PM (GMT -6)   
Hello & Welcome!

I do not have experience with mucroscopic colitis but I have seen some posts in the past about the subject. If you do a search in the box on the top right, you will find some discussions. Some of the users may still be active, hopefully they respond.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis & Migraines. Battling Extreme Exhaustion | Past Meds: Prednisone + Cortifoam + Asacol (3600) + Canasa + Rowasa + 6mp + Allopurinol
Currently: Asacol (3200mg) + 6mp

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 22068
   Posted 6/8/2011 6:51 AM (GMT -6)   
The difference between Uc and MC is that with MC, most times visible damage or inflammation will not be seen via scope such as ulcerations but can be seen under a microscope. MC can be cured while Uc can not. The treatment is the same though. The meds are designed to reduce inflammation in the colon. Have you ever had stool testing done to rule out parasites?

Here is a good website that can tell you more about MC:

www.mayoclinic.com/health/collagenous-colitis/DS00824
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(50mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis~GAD-Klonopin (.25mgs)~Rosacea-Metrogel/Elidel~IBS~Diverticulosis~Fibromyalgia

Skunk Ape
New Member


Date Joined Jun 2011
Total Posts : 2
   Posted 6/8/2011 7:10 AM (GMT -6)   
Thanks for the response. I have found a forum for MC and will most likely be leaving here. From what I've read, while MC rarely causes bleeding the rest of the symptoms can be identical to UC. As you said treatments and medications are also the same. One error in your statement though. According to my GI doc, the MC forum and what I could find online, there is no cure for MC. So like you, I'm stuck with this for life.
Age: 51
Microscopic (Lymphocytic) Colitis
Asacol HD 800mg x 4/day
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, October 31, 2014 1:55 AM (GMT -6)
There are a total of 2,256,069 posts in 250,943 threads.
View Active Threads


Who's Online
This forum has 157687 registered members. Please welcome our newest member, Zoophilijess.
179 Guest(s), 2 Registered Member(s) are currently online.  Details
BadDay, Flip Flop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer