can't sleep on Prednisone

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moka
New Member


Date Joined Aug 2011
Total Posts : 1
   Posted 8/7/2011 12:19 AM (GMT -6)   
Had remission no meds for 10 years.  Flare april 40 prednisone taper till end of May.  Flare came back in August tried to treat with 20 mg and cortisone enema and Asacol).  So much pain today I bumped up to 40 to strat 5 day taper.  Just took a chlordiazepoxide-clidium cap because i am out of sleepin med and did not need on 20.  This is the worst.  Was hospitalized in 2000 with horrible flare that was managed on too low of a dose  so I freaked at the thought of that.  Diagonosed in 96 UC.  Wondering if I should have stayed on low dose like 10mg to maintain remission.  Rambling and miserable

Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 8/7/2011 6:08 AM (GMT -6)   
I ALWAYS took ALL of my dose in morning. Never in evening. More effective earlier too. Maybe change timing if you are doing a later dose?

cjgk
Regular Member


Date Joined Apr 2011
Total Posts : 120
   Posted 8/7/2011 8:23 AM (GMT -6)   
I second taking the entire dose in the morning. When I split the dose, I didn't sleep at all.

I don't think it is a good idea to stay on even a low dose of pred for maintenance. It is not meant to be used as a maintenance drug only to help induce remission in combination with some other maintenance med. Have you tried using mesalamine enemas like Rowasa?
Dx 2007
AsacolHD 2 pills 3x/day
Prednisone 40 mg
Imuran 100 mg
VSL#3DS, fish oil, calcium, multivit

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 14888
   Posted 8/7/2011 9:04 AM (GMT -6)   
I always took pred in the morning but I was unable to sleep regardless. I had to use Ambien or another sleep aid to get any rest. Staying on prednisone longterm has very bad effects on your body. I definitely wouldn't even consider it an option. There are a lot of other medications that are much safer for longterm use.

There is a post on the top of the main page of the forum here called "Resources". There's a post in there that goes through a lot of the treatment options. You should take a look to get an idea of what's out there.

Welcome to HW. I hope you're feeling better soon.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis & Migraines. Battling Extreme Exhaustion
Currently: Asacol (3200mg) + 6mp (25mg) + Pristiq (50mg) + Zantac (150mg) + Canasa (1g AM/PM)

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 8/7/2011 9:19 AM (GMT -6)   
Take it in the morning and if you still have problems, ask your GI for Ativan to take at night.
 
Sue

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/7/2011 11:43 AM (GMT -6)   
The eariler in the am you take all your pred, the better chance you will have sleeping at night. Good luck!!
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

MustLoveDogs
Regular Member


Date Joined Jan 2009
Total Posts : 394
   Posted 8/7/2011 12:36 PM (GMT -6)   
We were told not to take more than 20 mg of Pred at one time because it could dangerously increase your blood pressure. My daughter always took divided doses when she was on Pred. She used Melatonin for a while and then convinced herself it caused her to flare. Ativan worked for a while but Trazadone was the most helpful with getting her back on a normal sleep schedule.
13 yr old daughter diagnosed UC 12/08

Remicade: 6/16/11, 7/1/11 and 7/25/11
Also on METHOTREXATE injection 1x week

FINALLY OFF Prednisone...NEVER again please

C-Diff 6/10
previously on 6MP, Asacol, Lialda, Rowasa, Cortocoid
Pancreatitis 2/10 after being on Rowasa & Lialda

Husband dg'd Crohn's 2/09 at age 46 -
Remicade every 8 wks

BelleyAche
Regular Member


Date Joined Nov 2010
Total Posts : 117
   Posted 8/7/2011 12:51 PM (GMT -6)   
I am on 40 mg of Pred right now and feel great, other than sleep deprivation. I am not suffering the night sweats that I did a year ago with Pred though. I am going on night 3 of no real sleep, just 15 min cat naps. I shut my eyes only to be wide awake 15 min later. I am taking my entire dose first thing in the morning also, I just think this is how it affects me. I have been taking a .25 Xanax but I dont think its strong enough to keep me sleeping so tonight, it's a warm bath an a full .5.

Wish me luck!
50/f DX with pancolitis 6/2010 not currently flaring and waiting to see what my new treatment will be since I was taken off Apriso due to kidney damage from it. (Minimal Change)

Currently on:
Prednisone short term 40 Mg daily
Synthroid 75 mcg/ Alt 50 mcg
Folic Acid
Baby aspirin
B12 shots

xeekk
Regular Member


Date Joined May 2010
Total Posts : 256
   Posted 8/8/2011 7:00 PM (GMT -6)   
Nothing solved my sleeping. If it wasn't the prednisone keeping me wide awake it was the constant trips to the bathroom at night. I didn't sleep for months, not a wink.
Pain killers worked some, because they relaxed me, got rid of pain, and also slowed my bowel down at night.

journey2health
Veteran Member


Date Joined Oct 2009
Total Posts : 2804
   Posted 8/8/2011 9:53 PM (GMT -6)   
Klonipan helped me. Also a supplement known as ZMA -- google ZMA and sleep. Maybe it can help you, but I did nto take it on pred.
In remission with occasional blips --pancolitis since 8/09. 8 Asacol, Rowasa/thrice weekly (nightly if inflamed), Probiotic -RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules, vitamins, fish oil, calcium, l-acetyl carnitine. Eat all, but limit dairy, red meat, citrus, NO alcohol. Bipolar/anxiety/depression: lamictal, Lexapro; Sleep-(ZMA) zinc-magnesium-B6, occasional Zyprexa

BelleyAche
Regular Member


Date Joined Nov 2010
Total Posts : 117
   Posted 8/9/2011 5:02 AM (GMT -6)   
Honestly, the sleep depriviation, how good I feel, the big appetite, the loss of my facial wrinkles, my feeling of happiness, having 2 formed bowel movements a day.... it's all worth it to me. Prednisone may be a horrible drug but it's been a salvation to me.

It's like happiness in a bottle (but probably with big effects later) but I am being Scarlett O Hara... " I will worry tomorrow"
50/f DX with pancolitis 6/2010 not currently flaring and waiting to see what my new treatment will be since I was taken off Apriso due to kidney damage from it. (Minimal Change)

Currently on:
Prednisone short term 40 Mg daily
Synthroid 75 mcg/ Alt 50 mcg
Folic Acid
Baby aspirin
B12 shots

Doggiedo
Regular Member


Date Joined Jan 2014
Total Posts : 485
   Posted 1/10/2017 10:43 PM (GMT -6)   
Trying to bring back this thread. I took 40 mg of pred in the am and I am wide awake and it's midnight! I can't stop moving and can't relax. I even took two bebedryl and nothing. I have to be up in 5 hours and it's going to be a long day without any sleep. Suggestions? It's one horrible situation of living in the bathroom or another horrible situation of living without sleep. Right now I don't want to take my morning pred dose. If I only took it one day do I still need to taper? I'm miserable either way.
Diagnosed 2003, hospitalization in 2006, currently sever proctitis.
Current meds: Flortistor 2 pills/daily & Entyvio (since August 2016), hydrocortisonefoam in am, canasa mid-day, hydrocort enema in pm (if can't retain, I use foam). Pred 40 mg. Colonoscopy scheduled in two weeks.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 10040
   Posted 1/11/2017 5:41 AM (GMT -6)   
Prednisone insomnia sucks you might need a prescription sleep aid temporarily.
Moderator Ulcerative Colitis
John
, 38, in a minor flare, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 50mgs 6MP, 4.8g Mesalamine DR, 5mgs pred (tapering)

Tips for surviving UC: learn to laugh as it helps, get a good pair of running shoes for bathroom runs, and appreciate the small things.

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3456
   Posted 1/11/2017 8:02 AM (GMT -6)   
I'm on 40 my right now, I take little xanax before bed, and. Lavender oil on my skin and sleep fine, I'm on day five , finally my bleeding has stopped, my fissure it healing , no gut spasms.

Doggiedo
Regular Member


Date Joined Jan 2014
Total Posts : 485
   Posted 1/11/2017 10:30 AM (GMT -6)   
Ugh- I've never had to take a sleeping aid before! I usually can't do Tylenol pm or anything bc it causes the reverse reaction for me. Never took a xanax or anything. Did call the doc for a sleep aid- not sure if she'll approve but I don't see why not.

I almost fee like the not being able to sleep isn't as bad as the DESIRE to sleep! Torture! Hoping to see an improvement with the pred within the week.
Diagnosed 2003, hospitalization in 2006, currently sever proctitis.
Current meds: Flortistor 2 pills/daily & Entyvio (since August 2016), hydrocortisonefoam in am, canasa mid-day, hydrocort enema in pm (if can't retain, I use foam). Pred 40 mg. Colonoscopy scheduled in two weeks.

Doggiedo
Regular Member


Date Joined Jan 2014
Total Posts : 485
   Posted 1/12/2017 9:47 AM (GMT -6)   
I called the doc and they told me it's just a side effect and unfortunately I'll have to deal. If I want a deep aid, I'll have to call my primary. I don't mind calling my primary and I'm sure she'd scribe something, but what's bothering me now is that the doc prob thinks I'm being annoying. Last time I was on flagyl I called for stuff to help with nausea - it was horrible. He was fine with that and he always seems nice. But this time he had the nurse practitioner call and she was like - I talked to him and he said no.

Last night I took a trazadone I had from a while back and it worked beautifully but I don't wanna take that without asking first. Should I call my primary?

Also, doc said on Mon he would have his staff schedule a scope for me soon so we can see what's going on. And it's now Thursday and I haven't heard. Again, I hate to call back, but I'd rather do the procedure sooner than later so he can get in there and see what's going on before it heals over. He says he's going to be able to stage where I'm at no matter when he looks. Do I call back and annoy them again tomorrow, maybe, if I don't hear anything ?
Diagnosed 2003, hospitalization in 2006, currently sever proctitis.
Current meds: Flortistor 2 pills/daily & Entyvio (since August 2016), hydrocortisonefoam in am, canasa mid-day, hydrocort enema in pm (if can't retain, I use foam). Pred 40 mg. Colonoscopy scheduled in two weeks.

suzy-q
Regular Member


Date Joined Sep 2015
Total Posts : 177
   Posted 1/13/2017 10:09 AM (GMT -6)   
My husband has been on trazodone to help with sleep to do prednisone-induced insomnia. He had tried Benadryl but it didn't work. Trazodone is a very commonly used drug and while you can check with doc to put your mind at ease, I don't think you need to worry about using it in the interim if your doc had previously thought it was ok to prescribe.
Spouse diagnosed with UC in 2013. Developed antibodies to remicade, humira. Entyvio did not work after 6 infusions. Only thing that seemed to work was prednisone. Early March 2016 started Xeljanz off label. In remission within 2 months. Working with endocrinologist to get off prednisone, and neurologist to deal with neuropathy in feet that developed in conjunction with prednisone taper.

jars05
Regular Member


Date Joined May 2003
Total Posts : 297
   Posted 1/13/2017 4:49 PM (GMT -6)   
I'm 30 mg a day I take in morning. I sleep good enough. Makes me wake up to pee but I usually go right back to sleep.

Doggiedo
Regular Member


Date Joined Jan 2014
Total Posts : 485
   Posted 1/13/2017 5:46 PM (GMT -6)   
Lucky Jars05! I never had this problem before being on pred, even when I was on 60mg before , it didn't cause insomnia like this. Super thirsty, increased appetite, and puffy knees and hands. All par for the course I guess.

I did call the doc and they called in a low dose of Ambien. Trying it out tonight.
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