Dr. to do Fecal Transplant

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cra43
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Date Joined May 2008
Total Posts : 154
   Posted 9/30/2011 12:50 PM (GMT -6)   
Hi, does anyone know of a Gastro Doctor in the Wash. D.C. area or Northern Virginia area who would go along or help out with a fecal transplant?
My son is interested,,,and I'd be the perfect donor..but his doctor acted a little doubtful about it, and not enthusiastic. Thanks
 
 
 
[added subject]

Post Edited By Moderator (notsosicklygirl) : 9/30/2011 12:54:02 PM (GMT-6)


notsosicklygirl
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Date Joined Dec 2008
Total Posts : 10292
   Posted 9/30/2011 2:01 PM (GMT -6)   
Cra, I deleted your duplicate post.
 
This is a tough one because doctors open up a can of worms by providing procedures that are not FDA approved. While we have seen a lot of people have success with this procedure (if you look up past threads, you can learn how to do an at home procedure), I have only spoken with one person  who had this procedure done by a GI (her name is sas). Her GI is very open-minded and was willing to do it on other patients but I believe it became too much of a liability and he wasn't able to provide it to anyone else. I know there is a doctor who does this procedure in Australia for people with UC. Here in the US, it is only approved FDA for C. Diff and I believe it would only be used in that case if you failed to respond to conventional antibiotic therapies.
 
We have discussed this a lot and the majority of us do not understand why this is not being researched further in treatment of UC. We seem to have concluded that it's probably because the pharmaceutical companies do not make any money by using something that we can get for free to treat people. I would think a GI office would be able to get a clinicl trial going... or perhaps CCFA would be doing studies...
 
There was a post about possible trials in the US recently:
http://www.healingwell.com/community/default.aspx?f=38&m=2196012
 
You may want to take a look. I hope you find something that gets him into remission.
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beachlife
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Date Joined Feb 2009
Total Posts : 467
   Posted 9/30/2011 2:53 PM (GMT -6)   
cra43 - that's great you and your son are looking to do that. I don't know if my old GI would be open to it, but I found him to be an excellent GI, maybe worth the call, in person visit
Dr. Martin G. Prosky, MD - (703) 876-0437

maybe call your local CCFA office, they may know someone to refer you?

good luck and keep us posting on who you use and how it goes, definitely something I have been thinking about doing as I read all the success
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sweetpeasmom
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Date Joined May 2010
Total Posts : 58
   Posted 10/1/2011 12:22 AM (GMT -6)   
There are a couple of GI's trying to get the okay for clinical trials, but I was told no one has yet gotten FDA approval. The trials have to be approved by the hospital's Institutional /Ethics Review Boards and apparently they can insist on FDA approval. I would love to see a journal article published using the results of everyone posting here that has tried FT (positive or negative) so it would bring more attention to the procedure. I hope you find a GI willing to help!
Diagnosed age 18, 2/2010 after Z-Pac for URI, Amoxicillin for strep, Hospitalized 3/2010, 7/2010, 8/2010. C-Diff 3/2010
Meds: Remicade 10mg/kg q 8 weeks increased from 5mg/kg began 7/26/2010, Azathioprine (Imuran) 175mg began 7/2010, Citalopram (Celexa) 10mg, Florastor 2/day, Ferrous Sulfate 65mg, Cortisone enemas began 5/2011, gummi multivitamin, Prednisone 3/2010-12/2010, restarted 5/2011

cra43
Regular Member


Date Joined May 2008
Total Posts : 154
   Posted 10/1/2011 9:16 AM (GMT -6)   
Thank you all for the info and suggestions....Matt is so darn tired of this lousy disease, as I'm sure you all are too. He was perfectly healthy until around about 36 years old, ( he is now 44) then all of a sudden he started with all this weird bowel problems,,that was U.C. Ruined his life..he lost his job,,due to flares,,his personality changed,, He had to sell his house, move back home and ,he isn't as patient..He does take the Remicade thanks to the PAP halp..He could never afford it on his own, and has no health insurance ,,can't afford it. He started his own little carpet cleaning business, just to keep busy, and no one can fire him from missing work and he can schedule his own time now. He definitely qualifies for help due to financial reasons..but he'd love to be normal again, so he can just get a regular job. Thank goodness he is single,,and no worries about children. He is sure counting on this Fecal transplant theory,,as it may restore him to normalcy.
Also, he had Salmonella as a baby due to a sick turtle we had,,and also took that drug for acne as a teen,,ACUTANE... Also, had constant strep throat as a baby, with a lot of antibiotics, until finally at 3 they took his tonsils out. None of my other sons ever had any of these problems,and they are in perfect health...go figure.
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