how long for entocort to work?

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sak147
Regular Member


Date Joined Dec 2010
Total Posts : 29
   Posted 11/7/2011 9:26 AM (GMT -6)   
just wondering if i should have seen some improvement by now. started about 2wks ago on 9mg in the morning. thinking i should call my doctor and start back on prednisone. while i know prednisone is not good for me in the long term, i also don't want to end up back in the hospital and prednisone usually works within a couple of days.
 
f.y.i this flare consists of bloody diarrhea about 3 - 5 times a day, i know this is not too bad but last time it progressed very quickly and by that point the oral pred. did not work and i needed IV steroids.
 
thanks for any info

Judy2
Forum Moderator


Date Joined Mar 2003
Total Posts : 9487
   Posted 11/7/2011 9:31 AM (GMT -6)   
Entocort never did work for me, I'm sorry to tell you. Also, don't necessarily believe the story about how it isn't absorbed systemically and therefore doesn't cause as many side effects. I developed type II diabetes and avascular necrosis in my shoulder while taking it.

I'm particularly sensitive to steroids, apparently, and I was on Entocort for over two years, so my story isn't necessarily typical. Just a warning that this can happen.
Ulcerative colitis diagnosed in 2001; symptoms as early as 1992. In remission since 2006 with Remicade.
Inflammatory osteoarthritis; osteonecrosis from steroids
Grave's disease successfully treated with radioactive iodine and now on Levothyroxine.
Type II diabetes induced by steroids.
Meds: Remicade, Colazal, Levothyroxine, Mobic, Metformin

Moderator, thyroid forum

sak147
Regular Member


Date Joined Dec 2010
Total Posts : 29
   Posted 11/7/2011 12:09 PM (GMT -6)   

Thanks for the info. I don't think it is working for me. and I did believe the info about the side effects not being as bad, so thanks for letting me know that. I do have a call in to my GI, so I will see what he says, I am assuming he will put me back on prednisone which I know is not good but It has worked for me in the past and I need to start feeling better. I had to call out sick from work friday and today and I dont want to keep having to do this. but the mornings are so rough that i can't get out the door.
thanks again.
Shawna 33/f
Diagnosed UC (limited) 12/22/10. MD thinks spread throughout but not confirmed with colonoscopy, due to severity of symptoms
Colazal 750mg 9/day
Lorazepam .5mg (for anxiety) Vistaril 50mg (for sleep)
VSL #3, Vitamin D, Fish Oil, Pre-Natal Vitamins

quincy
Elite Member


Date Joined May 2003
Total Posts : 25775
   Posted 11/7/2011 12:24 PM (GMT -6)   
Are you still on the Colazal?

Maybe discuss a switch to another 5ASA oral and rectal..both.

It would be nice if you don't have to go on pred again.

Are you going to be having a c-scope anytime soon?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

sak147
Regular Member


Date Joined Dec 2010
Total Posts : 29
   Posted 11/7/2011 12:54 PM (GMT -6)   
thanks for the reply, I am still on he colozal.
I had asked my current gi a while back about the rowasa but he said i prob. would not work because my colitis had spread. I now disagree with him. I am trying to get an appt. with a new gi at the boston medical center who is supposed to be more of an "expert" in Chrons and UC. I am hoping I can get in tomorrow, I am waiting for a call back from the secretary there.
as for the c-scope, no one has mentioned doing another one, I am suppose to have my regular f/u with my gi on 11/22 so not sure if he was going to want to do another one or if this new doc will suggest it.
 
thanks again

jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1581
   Posted 11/7/2011 5:51 PM (GMT -6)   
Give Entocort a chance to work. It takes about a month to get into your system. It is not a fast acting drug.
Diagnosed July 2005 with Pancolitis
IBD related arthritis
sulfasalazine 6 a day, methotrexate 15mg once a week
Pro-Bio, multivitamin, lisinopril, Lialda 4 a day
proctofoam as needed
Humira every two weeks
http://mysite.verizon.net/vzewor6c

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 7479
   Posted 11/7/2011 8:01 PM (GMT -6)   
Entocort is primarily active in the terminal ileum. I don't know that it will be effective at all in the lower portions of the colon, and rowasa (or any mesalamine enema) is exactly what you need if you have inflammation in the rectum or sigmoid colon.

I'm sorry you're struggling so much. Prednisone is not a crutch you should lean on except for the rare emergency.
*******************
49 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)Colazal (9 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11.

sak147
Regular Member


Date Joined Dec 2010
Total Posts : 29
   Posted 11/7/2011 8:56 PM (GMT -6)   
Thanks for the replies. I am trying not to rely on prednisone because I know i is not good but I also know it works and when I am feeling like crap I just  want it to end as quickly as possible so I can go on living normally. I just get very impatient. I know I need to try to be more patient. It is also hard because my husband thinks that if I don't get on the prednisone fast enough I will end up back in the hospial, he thinks I waited to long that time to call my doctor. so now he is always on me about it.
 
Thanks again
Shawna
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