Pain in tailbone. No injury. Random.

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Cadillac Lover
Regular Member


Date Joined Feb 2009
Total Posts : 235
   Posted 12/20/2011 4:12 PM (GMT -6)   
The past few days ive been having a lot of pain in my tailbone. Its only felt when getting up, sitting or trying to hold in gas or a bowel. It doesnt hurt as bad if i put pressure on it with my fingers but i can feel pain when i do that. It just started randomly. No injury, lifting or anything like that. Just wondering if anyone else has had this happen. I searched this pain and came up with a condition called "coccyx injury" where the bones at the end(tail) get inflamed or broke. Wondering if my flare is causing the pain, it never has before with any flare. Going to make an appt. for xrays but wanted to see if anyone had any insight. It goes away by its self unless severe then you have to have surgery. Really hope im not dealing with this injury on top of my uc issues. :(
Male. 31. Tattoo Artist. Diagnosed with UC summer of 08.
Diagnosed with severe uc 1-3-11 from 2nd cscope.
Currently in a light weight flare.
Tapered off pred 12-17-11. 6mp 125mg, AsacolHD (2 @3 x a day). Canasa + enemas daily. Vitamins, vsl3, turmeric, medicinal herb :)

Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 1476
   Posted 12/20/2011 6:04 PM (GMT -6)   
How long have been taking Asacol? I had that exact tailbone pain when I was taking Asacol. Never had it before... never had it since as soon as I went off the med.
Female, 45, Vancouver BC
Currently in remission

journey2health
Veteran Member


Date Joined Oct 2009
Total Posts : 2639
   Posted 12/20/2011 6:33 PM (GMT -6)   
Rectal pain, maybe from flaring?
In remission --pancolitis since 8/09. Asacol 3200 mg. Rowasa nightly, Canasa if forget Rowasa, Probiotic, vitamins, calcium, l-acetyl carnitine. Limit dairy, red meat, citrus, sugar, carbs, no alcohol. Bipolar/anxiety/depression: lamictal 200 mg, Lexapro 10 mg; wellbutrin 200 mg, Sleep-(ZMA) zinc-magnesium-B6, occasional Zyprexa 2.5 mg.

kate22
Regular Member


Date Joined May 2009
Total Posts : 214
   Posted 12/20/2011 6:36 PM (GMT -6)   
i have that too...i have had it over the years since i had uc. when i mentioned it to my ex-doctor, he said "well, you don't have as much padding there anymore" because i'd lost weight. i KNOW that is not why i have the pain. what a stupid answer. i have never been able to figure it out, but it comes and goes.
i am not currently taking asacol. however i am using rowasa. maybe it could be mesalamine related. hmmm...
UC since 1994

75 mg mercaptopurine, rowasa enemas, delayed release lecithin capsules, folic acid, vitamin D, Renew Life Ultimate Flora Critical Care Probiotic, vegetarian diet

Cadillac Lover
Regular Member


Date Joined Feb 2009
Total Posts : 235
   Posted 12/20/2011 7:06 PM (GMT -6)   
serenity & kate22: I've been on asacol a year now. Before that I was off for about a year. I thought maybe it was because I just got off prednisone. I have been using rectal meds more than ever in the past 2 months. I hope it goes away because I sit for a living (tattooer) :(

journey: It's not really in my rectum, I have no pain taking enemas/suppositories.

However, I do really feel the pain when i'm having a bowel & my rectum does the "cut off" feeling (i don't really know how to classify this lol)
Male. 31. Tattoo Artist. Diagnosed with UC summer of 08.
Diagnosed with severe uc 1-3-11 from 2nd cscope.
Currently in a light weight flare.
Tapered off pred 12-17-11. 6mp 125mg, AsacolHD (2 @3 x a day). Canasa + enemas daily. Vitamins, vsl3, turmeric, medicinal herb :)

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21917
   Posted 12/20/2011 7:18 PM (GMT -6)   
I have Sacroiilitis. This is pain and inflammation in the Sacroiliac joint - the joint that holds your hips in alignment with your spine. The pain sometimes just affects my tailbone....makes me miserable! This is something that you might want to look into as well. I am not sure what caused mine.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
Diagnosed Left sided UC in '92 - meds: 6mp, Colazal, Remicade and Bentyl*Unable to tolerate ALL mesalamines*, in '11 diagnosed with IBS, Diverticulosis, Fibromylagia..I also have Sacroiilitis, Scoliosis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

sconnie
Regular Member


Date Joined Mar 2011
Total Posts : 42
   Posted 12/20/2011 8:03 PM (GMT -6)   
I had coccyx pain very briefly a couple of months ago. It only lasted a couple of days. It was a very strange feeling because it didn't feel like it was coming from my colon at all - it really felt like the pain was just radiating from the bone. I was on prednisone at the time (I was either in the process of increasing or decreasing my dose...can't recall) so I suspected it was joint pain as a side effect of the pred. I don't take mesalamines so I can't really comment on whether it could be a side effect of that...

Regardless, hopefully yours will come and go as quickly as mine did!
21yr old female college student
Dx'd October 2010 with moderate pancolitis
Intolerant to all 5-ASAs
Back on pred... no remission just yet. Trying an increased does of Aza

2.5mg Prednisone daily
125mg Azathioprine daily
multivitamin
1200mg Calcium + 800IU Vitamin D Daily

Cadillac Lover
Regular Member


Date Joined Feb 2009
Total Posts : 235
   Posted 12/20/2011 9:17 PM (GMT -6)   
Red: Oh i hope not. How old were you when diagnosed with sacro?

Sconnie: This is exactly what i'm feeling, what you described. God I hope it's just a weird pred taper side effect. I've never had a problem with mesalamine rectals or asacol ever.
Male. 31. Tattoo Artist. Diagnosed with UC summer of 08.
Diagnosed with severe uc 1-3-11 from 2nd cscope.
Currently in a light weight flare.
Tapered off pred 12-17-11. 6mp 125mg, AsacolHD (2 @3 x a day). Canasa + enemas daily. Vitamins, vsl3, turmeric, medicinal herb :)

Cadillac Lover
Regular Member


Date Joined Feb 2009
Total Posts : 235
   Posted 12/20/2011 9:19 PM (GMT -6)   
I'm done with prednisone. If I get bad sick again, I guess it's time for remicade.
Male. 31. Tattoo Artist. Diagnosed with UC summer of 08.
Diagnosed with severe uc 1-3-11 from 2nd cscope.
Currently in a light weight flare.
Tapered off pred 12-17-11. 6mp 125mg, AsacolHD (2 @3 x a day). Canasa + enemas daily. Vitamins, vsl3, turmeric, medicinal herb :)

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21917
   Posted 12/20/2011 10:07 PM (GMT -6)   
I was about 35 or so...I'm 41 now.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
Diagnosed Left sided UC in '92 - meds: 6mp, Colazal, Remicade and Bentyl*Unable to tolerate ALL mesalamines*, in '11 diagnosed with IBS, Diverticulosis, Fibromylagia..I also have Sacroiilitis, Scoliosis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

allswell
Veteran Member


Date Joined Oct 2011
Total Posts : 667
   Posted 12/21/2011 6:56 AM (GMT -6)   
I have it too right now and thought it was weird but only notice it when I am sitting, mentioned it doc and got no comment. I am in a flare also and on 10 pred.
proctitis 2004, Asa sup., 2006 hydrocort sup. worked for a while when I remembered to use them, 2009 spread to left put on prednisone, asacol, then Apriso. Switched docs tried lialda, rowasa, back to hydro enema and Apriso. 2010 6mp added, 2011 pancolitis ,Remicade, bad flare after no.1,2, pred now, and rem

Cadillac Lover
Regular Member


Date Joined Feb 2009
Total Posts : 235
   Posted 12/21/2011 11:30 AM (GMT -6)   
Well i was in a lot of pain last night but woke up today feeling a lot better. Its still a bit sore an the more i walk around i can feel it but hopefully its passing. It almost feels like spasms at certain times.
Male. 31. Tattoo Artist. Diagnosed with UC summer of 08.
Diagnosed with severe uc 1-3-11 from 2nd cscope.
Currently in a light weight flare.
Tapered off pred 12-17-11. 6mp 125mg, AsacolHD (2 @3 x a day). Canasa + enemas daily. Vitamins, vsl3, turmeric, medicinal herb :)

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21917
   Posted 12/21/2011 11:39 AM (GMT -6)   
If it hurts to sit down, try using a donut. I works great for any type of tailbone pain. Also, ice can help as well. 15 minutes on, 15 off thru out the day.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
Diagnosed Left sided UC in '92 - meds: 6mp, Colazal, Remicade and Bentyl*Unable to tolerate ALL mesalamines*, in '11 diagnosed with IBS, Diverticulosis, Fibromylagia..I also have Sacroiilitis, Scoliosis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

Cadillac Lover
Regular Member


Date Joined Feb 2009
Total Posts : 235
   Posted 12/21/2011 1:01 PM (GMT -6)   
Thx! Just drove my kid to school with no problem :) yea im getting a donut pillow today.
Male. 31. Tattoo Artist. Diagnosed with UC summer of 08.
Diagnosed with severe uc 1-3-11 from 2nd cscope.
Currently in a light weight flare.
Tapered off pred 12-17-11. 6mp 125mg, AsacolHD (2 @3 x a day). Canasa + enemas daily. Vitamins, vsl3, turmeric, medicinal herb :)

MmeMulot
Regular Member


Date Joined Apr 2006
Total Posts : 106
   Posted 1/4/2012 9:22 PM (GMT -6)   
I just woke up today with tailbone pain, too. Totally out of the blue, with no discernible reason for it. It really hurts with standing up or sitting down. confused I've had low back pain and mid-buttock pain before, but never tailbone pain. Very odd.
Ulcerative proctitis, diagnosed about 1998
Rowasa nightly, Canasa suppository in morning
Taken off Asacol under suspicion it caused low white-cell count
Fish oil, magnesium, multivitamin, Align probiotics
Allergies to dust, molds, penicillin, some trees and grasses, and cats (but I still have three!)
Occasional migraines
Pescetarian (eat fish but no other meat)

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4320
   Posted 1/4/2012 10:53 PM (GMT -6)   
do you think it could be a cyst?? i had one one my tailbone when i was sick this year. i'm pretty sure it was from pushing too hard when i was going to the bathroom. it eventually went away after i got better.
Joanna
Age:22
severe pancolitis
previous medications:sulfa/mesal/cortico enemas, lialda, prednisone, canasa supps.
medications: 50 mg 6mp and remicade.
healthy stuff: 1 packet of VSL#3, 3000-5000 iu of Vit D, 1/2 tsp barley powder, 2-3 Tbsp slippery elm powder, Vit B-12, zinc.

remicade infusion aug 29, 2011, sept 12, oct 10, nov 30, jan 25.

my goal is to get off 6mp and remicade next year.

MmeMulot
Regular Member


Date Joined Apr 2006
Total Posts : 106
   Posted 1/4/2012 11:54 PM (GMT -6)   
I don't know. There's no swelling or redness or anything. Would I be able to tell if there's a cyst?
Ulcerative proctitis, diagnosed about 1998
Rowasa nightly, Canasa suppository in morning
Taken off Asacol under suspicion it caused low white-cell count
Fish oil, magnesium, multivitamin, Align probiotics
Allergies to dust, molds, penicillin, some trees and grasses, and cats (but I still have three!)
Occasional migraines
Pescetarian (eat fish but no other meat)

jabby826
New Member


Date Joined Jan 2012
Total Posts : 9
   Posted 1/6/2012 8:11 PM (GMT -6)   
last year when I was on asacol- I would wake up every morning with severe lower back pain. I thought I needed a new bed. I was also loosing my hair. Once I stopped the asacol the back pain went away and my hair started coming in fuller. I love remicaide- its a life changer!
27 F
Left side UC 2000

Current Meds: Remicaide (10 mg/kg) every 8 weeks, 75 mg Azasan daily

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4320
   Posted 1/6/2012 8:37 PM (GMT -6)   
it's called a pilonidal cyst. mine was just a tender little bump that you can kind of get confused with your actual tailbone. mine was right above my butt crack. mine didn't break through the skin and wasn't red.
Joanna
Age:22
severe pancolitis
previous medications:sulfa/mesal/cortico enemas, lialda, prednisone, canasa supps.
medications: 50 mg 6mp and remicade.
healthy stuff: 1 packet of VSL#3, 3000-5000 iu of Vit D, 1/2 tsp barley powder, 2-3 Tbsp slippery elm powder, Vit B-12, zinc.

remicade infusion aug 29, 2011, sept 12, oct 10, nov 30, jan 25.

my goal is to get off 6mp and remicade next year.

greenuc
Regular Member


Date Joined Sep 2011
Total Posts : 151
   Posted 1/6/2012 8:58 PM (GMT -6)   
Pretty random that this topic is on the front page today. I woke up this morning and my tailbone was killing me. Still hurts now and it feel like its on the bone cuz I can feel around it and if I push on a certain area on the bone its very painful. Slightly painful to walk, standing up is particularly painful....was hoping I had bumped it somehow and it would heal in a day or two, but given this thread, I guess its somehow related to UC or the medication I'm on :(
"Victory is always possible for the person who refuses to stop fighting."
-Napoleon Hill

Diagnosed: Moderately Severe UC in September '11
Medication: Lialda 4x once daily
Other: Anti-inflammatory diet, fish oil (3g), BCQ, Curcumin (2g), L-glutamine (8g), Slippery Elm Bark (6 capsules, 3x day), VSL #3DS (1 sachet, 3x day)

Current UC Remission Status (1 Bad, 5 Perfect): 1 2 3 4 5
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