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lifesover
Regular Member


Date Joined Nov 2011
Total Posts : 73
   Posted 1/14/2012 2:46 PM (GMT -7)   
Hi,

I have been unable to control my bleeding for almost 2 years on and off and have had 13 units of blood in as many months, and also over three months in Hospital on all kinds of drips, even food drips, as they stopped my food intake for three weeks.

Last month I went for my usual monthly update at Hospital and I was expecting to be kept in for blood top up, Last month they gave me Azathioprine (Imural/Imuran) to take, (1 a day which was to be increased to 3 a day after a month) It made me so very poorly I stopped taking it after two weeks, so was worried that nothing would ever stop my flaring. To my surprise she said that although my blood was bad I did not need to stay in hospital just yet, she prescribed me another drug for 30 days, she said, it had less side effects, it is called Clipper 5mg, she also gave me a Salofalk 4g 60 mil enema to take before bed.

WOW.

I can not believe it, after bleeding for the best part of a year the bleeding stopped over night, I am absolutely amazed. I have also regained my lost 25kgs in weight although NOT overnight lol.

While waiting for my next appointment this month, I have had two TB tests (negative) and a chest Xray, I am going to see her next week, I can't wait to tell her how great I am feeling, I feel so normal it's truly amazing. Problem is they reckon these steroids are short term and I have 30 days on it, what do you think will happen next? Any ideas, bear in Mind I feel about 95 percent normal now for the first time in two years or more.

Has anyone else had any success with Clipper 5mg? I hadn't heard of it before, now I think it's a miracle drug, with no side effects that I can feel.
Pancolitis, Diagnosed with UP July 2009, UC October 2010, Pan Colitis August 2011, Male 55.
Prednisone tapering from 60mg at 10mg
Azathioprine 50 mg for 4 weeks then 150 mg daily
Claversol 500mg x 6 daily
Amiprazol x 1
Tremadol when required
Iron x 1
Alpha D x 1 every other day
Calcium
Claversol supps x 1 @ night
Multi vitamins x 1
Omega 3 x 3
Physillium x 2
Potassium every now n again
Aloa Vera

Post Edited (lifesover) : 1/14/2012 2:08:29 PM (GMT-7)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10483
   Posted 1/14/2012 5:23 PM (GMT -7)   
I have never heard of it but I did a search and I found this thread:
http://www.healingwell.com/community/default.aspx?f=38&m=1681855

It seems like it's a new steroid but since you can only be on it for a short period of time, you need to figure out what will maintain your remission. Hpoefully you're able to stay in remission without adding new medication but considering the TB test and the chest Xray, I am willing to bet your GI is considering a biologic for you next.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (3200mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

hateuc
Veteran Member


Date Joined Jun 2010
Total Posts : 1808
   Posted 1/14/2012 6:03 PM (GMT -7)   
Are you sure it was the clipper? Could it be the enema that you have now been doing? I have found the most success w/ the rectal meds. Let us know how it goes when you meet w/ your Dr. I agree w/ nssg that she must be considering Remicade for your next treatment.
Proctosigmoiditis
2 Lialda/day  Rowasa nightly
VSL#3
Metamucil wafers

lifesover
Regular Member


Date Joined Nov 2011
Total Posts : 73
   Posted 1/15/2012 1:30 PM (GMT -7)   
Yes, I think it may have been the 4g enema that did it over night, but she only gave me a week of them, when I renew them my Doc only gives me the 1 g aerosol type, these IMO are not as good as the liquid ones, they fill you up with air too and you feel you have to go

After reading on here I thought it might be Remicade on the cards next. Notsosickgirl, what is this Biologic?

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10483
   Posted 1/15/2012 1:35 PM (GMT -7)   
Remicade is biologic.
 
They should really give you more refills for your rectal meds. My GI gives me enough that I can use them nightly indefinitely.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (3200mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

lifesover
Regular Member


Date Joined Nov 2011
Total Posts : 73
   Posted 1/15/2012 3:35 PM (GMT -7)   
Thanks for that,

But I am feeling on top of the world now, will I still need Remicade to keep me in remission, do you think?

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10483
   Posted 1/15/2012 6:39 PM (GMT -7)   
Are you taking any other medication right now? The majority of us remain on medication in hopes of maintaining remission.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (3200mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

lifesover
Regular Member


Date Joined Nov 2011
Total Posts : 73
   Posted 1/16/2012 11:03 AM (GMT -7)   
Yes loads see my sig below
Pancolitis, Diagnosed with UP July 2009, UC October 2010, Pan Colitis August 2011, Male 55. Spain.

Clipper 5mg x 1 daily
Salofalk 1g Enema x1 evenings
Claversol 500mg x 6 daily
Amiprazol x 1
Tremadol when in Pain as needed
Iron x 1
Alpha D x 1 every other day
Calcium
Zinc, sometimes
Multi vitamins x 1 daily
Omega 1 to 3 daily
Physillium sometimes
Potassium every now n again

lifesover
Regular Member


Date Joined Nov 2011
Total Posts : 73
   Posted 4/26/2012 2:55 PM (GMT -7)   
Well, stopped taking Clipper 5g overnight, I did ask Doc if it would be ok after 3 or 4 months and she said yes.

I have been having this last week the worst headaches I have ever had also chest discomforts arm aches and itching all over, this is my third week without the tabs. I now take Iron Mesaline 6 a day and one to stop acid, the others I take are mostly vitamins like Calcium and Omega 3.

I had a little slight bleed for a day or two but touch wood I am doing well apart from the other discomforts, oh and my Blood pressure has hit the roof at over 190/110 some days.

I am in to see the doc in hospital next week.

Fot to say, my hair has gone very thin so am taking Vitamin B6, it worked last time.

Post Edited (lifesover) : 4/26/2012 3:00:06 PM (GMT-6)

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