I have been unable to control my bleeding for almost 2 years on and off and have had 13 units of blood in as many months, and also over three months in Hospital on all kinds of drips, even food drips, as they stopped my food intake for three weeks.
Last month I went for my usual monthly update at Hospital and I was expecting to be kept in for blood top up, Last month they gave me Azathioprine (Imural/Imuran) to take, (1 a day which was to be increased to 3 a day after a month) It made me so very poorly I stopped taking it after two weeks, so was worried that nothing would ever stop my flaring. To my surprise she said that although my blood was bad I did not need to stay in hospital just yet, she prescribed me another drug for 30 days, she said, it had less side effects, it is called Clipper 5mg, she also gave me a Salofalk 4g 60 mil enema to take before bed.
I can not believe it, after bleeding for the best part of a year the bleeding stopped over night, I am absolutely amazed. I have also regained my lost 25kgs in weight although NOT overnight lol.
While waiting for my next appointment this month, I have had two TB tests (negative) and a chest Xray, I am going to see her next week, I can't wait to tell her how great I am feeling, I feel so normal it's truly amazing. Problem is they reckon these steroids are short term and I have 30 days on it, what do you think will happen next? Any ideas, bear in Mind I feel about
95 percent normal now for the first time in two years or more.
Has anyone else had any success with Clipper 5mg? I hadn't heard of it before, now I think it's a miracle drug, with no side effects that I can feel.
Pancolitis, Diagnosed with UP July 2009, UC October 2010, Pan Colitis August 2011, Male 55.
Prednisone tapering from 60mg at 10mg
Azathioprine 50 mg for 4 weeks then 150 mg daily
Claversol 500mg x 6 daily
Amiprazol x 1
Tremadol when required
Iron x 1
Alpha D x 1 every other day
Claversol supps x 1 @ night
Multi vitamins x 1
Omega 3 x 3
Physillium x 2
Potassium every now n again
Post Edited (lifesover) : 1/14/2012 2:08:29 PM (GMT-7)