What to eat during a flare-up?

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ManhattanMama
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Date Joined Jan 2012
Total Posts : 450
   Posted 1/27/2012 12:25 PM (GMT -7)   
My doctor suggested chicken and white rice but after 2 weeks on 40mg of Prednisone there has been little relief. I am trying 2 slices of toast and yogurt for breakfast but with all of the posts regarding a gluten-free and dairy-free diet I am wondering if I am causing more harm than good. Are cooked vegetables okay? During my first flare 7 years ago I was on 60mg of Prednisone and gained 20lbs in 2 weeks so I am also worried about eating too much this time. Are there really foods/supplements to avoid during flare-ups or is it really based on the individual?

Also, what are some good resources to start looking at gluten-free diets and the SCD?
Diagnosed with Pancolitis in May of 2005 at age of 33
Maintenance Plan: 2 (750mg) Colazal three times a day
Vitamin C, Probiotic, Multivitamin, 400mg of Folic Acid
Treatment during Flare-Up : Cortifoam, Rowasa Enemas & Prednisone (40mg & taper)
Tried Lialda with terrible side effects in Dec 2008- went back to Colazal
Tried balsalazide disodium Nov2011-led to flare-up-back on Colazal
Mother of 2

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 3320
   Posted 1/27/2012 3:38 PM (GMT -7)   
This will be different with everyone but when I was in a bad flare I would eat chicken and rice, plain baked potato, soups, turkey sandwiches, bananas. Dairy would send me over the edge...couldn't do it. There was very little I could eat when I was in a bad flare. Rice was always a staple for me. It was the one food that didn't cause me pain.
Marianne

DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked-wanted my life back!
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery-got my life back! :)

ManhattanMama
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Date Joined Jan 2012
Total Posts : 450
   Posted 1/27/2012 3:44 PM (GMT -7)   
Does anyone have any results using Activia or other yogurts with probiotics? Or should I just stay away from dairy?

:( I love ice cream!
Diagnosed with Pancolitis in May of 2005 at age of 33
Maintenance Plan: 2 (750mg) Colazal three times a day
Vitamin C, Probiotic, Multivitamin, 400mg of Folic Acid
Treatment during Flare-Up : Cortifoam, Rowasa Enemas & Prednisone (40mg & taper)
Tried Lialda with terrible side effects in Dec 2008- went back to Colazal
Tried balsalazide disodium Nov2011-led to flare-up-back on Colazal
Mother of 2

notsosicklygirl
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Date Joined Dec 2008
Total Posts : 10625
   Posted 1/27/2012 3:46 PM (GMT -7)   
I tried eating a lot of yogurt. I even made my own yogurt following the SCD protocol and I didn't see improvement in my UC. When I flare, anything I eat causes problems. I usually stick to soups and toast with preserves. Boring but less is more when I am flaring.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (3200mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

ManhattanMama
Regular Member


Date Joined Jan 2012
Total Posts : 450
   Posted 1/27/2012 3:48 PM (GMT -7)   
What kind of bread is best for making toast? Wonder White Bread? Whole Wheat? Should I stay away from multi-grain? You would think that I would be losing weight but the prednisone makes me so hungry all I can think about is eating!
Diagnosed with Pancolitis in May of 2005 at age of 33
Maintenance Plan: 2 (750mg) Colazal three times a day
Vitamin C, Probiotic, Multivitamin, 400mg of Folic Acid
Treatment during Flare-Up : Cortifoam, Rowasa Enemas & Prednisone (40mg & taper)
Tried Lialda with terrible side effects in Dec 2008- went back to Colazal
Tried balsalazide disodium Nov2011-led to flare-up-back on Colazal
Mother of 2

janey47
Veteran Member


Date Joined Sep 2010
Total Posts : 740
   Posted 1/27/2012 3:51 PM (GMT -7)   
I know what you mean about weight gain and concerns about diet. I'm definitely in the same boat. What I had to say to myself is that before I could do what is needed to lose weight or get/stay in shape, I first needed to heal my body enough so that I could exercise or eat vegetables again. Oooh I missed vegetables. I pretty much ate no vegetables from mid-October to about a week ago. BROCCOLI IS THE TRUTH when you're not in a flare. Anyway, I ate a lot of potatoes, rice, and noodles, each with butter or gravy. I've gained weight and I know it, and I refuse to get on a scale because now that my flare is easing I can do the right thing as far as weight goes. I'll weigh myself in 4 to 6 weeks and I am simply not going to beat myself up about it before then.

I'm one of those people who don't lose weight due to UC.
dx 4/09 (1 week before breast cancer dx) with mild to moderate UC through mid-transverse colon
4.2 g Lialda
10g prednisone as of 1/24/12
RenewLife Ultimate Flora 80 billion
Psyllium Husk; Psyllium Seed Powder; L-Glutamine; Florastor
RenewLife DigestMore; fish oil, cal/mag, multi vitamin

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10625
   Posted 1/27/2012 4:12 PM (GMT -7)   
Mama, the non-gluten folks will say no bread but it was one of the only things I could tolerate while flaring because everything sent me to the toilet multiple miserable times. I usually eat sourdough toast but I think anything you can tolerate is good. Little grains probably arent the best for us. I wouldn't go with wonder bread, look for breads that are good quality without high fructose corn syrup and additives. I believe http://www.arnoldbread.com/ makes breads without syrups.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (3200mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10625
   Posted 1/27/2012 4:18 PM (GMT -7)   
Oh and I know all about wanting to eat while on prednisone. It's awful. I ate from 40mg to 3mg! I lost the majority of the weight pretty easily but the last 10 pounds are still hanging around. I feel like I will never get back to my goal weight.

How long have you been on 40mg?

One thing I can tell you is that I regret waiting instead of figuring out where I was going with my treatment. My GI kept mentioning 6mp and I didn't want to accept that I had to take that step so I put it off. I tried to taper down and relapsed. The relapse came on like a trainwreck, it was more powerful than the original flare and a dose increase of pred wouldn't nip it. I had to start over completely which extended my pred course significantly. I still wasn't willing to accept I needded 6mp until I tapered down to a lower dose and my symptoms started appearing again. It was at the point that I was ready. If only I had started it earlier, maybe I wouldn't have put on so much weight & I could haev gotten off the evil drug sooner.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (3200mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

Post Edited (notsosicklygirl) : 1/27/2012 3:22:22 PM (GMT-7)


imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 3865
   Posted 1/27/2012 4:36 PM (GMT -7)   
Also, what are some good resources to start looking at gluten-free diets and the SCD?

Well you can look on this forum by searching for those terms "SCD" and "gluten-free". Diet modification has given me remission that Rx meds never gave me. I tried many different diets with no improvement but when it came down to either going on stronger biologic drugs or surgery I gave diet mod. one last try, thankfully it worked.

By reading posts from people who have been successful with diet you'll see that there is no one diet that works for all. Yes, many of us began with gluten-free and dairy-free plus other food restrictions and IMO that is a very good place to start.
I never would have believed I was gluten-sensitive because I never had any bad reactions to it, it seemed like a safe food for me. However when I removed it I started to see improvement.

Besides removing gluten and dairy it is also important to remove sugar, and sugar comes in many many forms like fruit, starchy veggies (including potatoes). Fake sugar should also be removed along with caffeine (coffee, tea, sodas).

This is not easy to accomplish. I did it because my back was to the wall. It is not an overnight fix.
Start by keeping a daily food/symptom journal. Memory is unreliable.
Protein is your friend when it comes to food. Also green veggies. You'll have to figure out what your colon likes and dislikes. Chicken broth is wonderful. Drink lots of water.

P.S. I love ice cream too but in the early diet mod. days my colon replied with gas and urgency. Now after 2 years I can eat it again in small amounts. Yay. :-) Yogurt? Not so much, colon still out on that.

Give yourself 30 days to discover whether food makes your symptoms better. If so then you get to decide personally whether to pursue it further. It is a personal decision and can only be made by you.
In remission April 2010 after 10 years of UC with no remission ever
Jan 2010 began SpecCarbDiet (modified to remove dairy, fruit & juices,)
Gluten-free=bleeding stopped in 3 days, 95% remission in 5.5 months on SCD
SCDiet: Gluten/grain-free, low starch, low carb, honey as sweetener
(9)Balsalazide+(6)Citrucel, mesalamine enema as needed
(1) VSL#3 nightly-adding fruit back in small quantity 2011

ManhattanMama
Regular Member


Date Joined Jan 2012
Total Posts : 450
   Posted 1/27/2012 4:40 PM (GMT -7)   
With initial diagnosis 7 years ago I took 60mg of Prednisone and the symptoms cleared up significantly with days. By the end of the week I was functioning pretty normally. With this last flare (started in December 2011) I have been homebound for 3 weeks. One week of 20mg with symptoms getting worse and now 2 weeks of 40mg with very slow progress. I have lower back pain and a constant ache in my tailbone. BMs 10-12 times a day that are painful and straining at times. Bleeding is a little less each day but I think I am a bit desensitized to seeing blood after so many weeks. Trying to reach my doctor to see if I should continue with 40mg through the weekend.

My face is puffy now and I have headaches and dizziness from the prednisone but I just want to get better. Can't seem to hold in an enema. Not sure where to go from here...
Diagnosed with Pancolitis in May of 2005 at age of 33
Maintenance Plan: 2 (750mg) Colazal three times a day
Vitamin C, Probiotic, Multivitamin, 400mg of Folic Acid
Treatment during Flare-Up : Cortifoam, Rowasa Enemas & Prednisone (40mg & taper)
Tried Lialda with terrible side effects in Dec 2008- went back to Colazal
Tried balsalazide disodium Nov2011-led to flare-up-back on Colazal
Mother of 2

tournevice
Veteran Member


Date Joined Mar 2008
Total Posts : 713
   Posted 1/27/2012 5:53 PM (GMT -7)   
Well im wheat free. I can't go gluten free now im not ready for it.
However like notsosickly said some poeple can tolerate gluten and wheat well. And toasts are something easy to assimilate when you dont feel well.

However a good alternative if you are ready for some baking action is to make your own bread. I do my own loaf out of spelt flour. Spelt is a wonderful flour that once cooked can be crumbly but its very easy to digest as it breaks down easily.

Its super easy to do as it takes so little time of rising so bigg fuss.
450gr of spelt flour
1.5 teaspoon of dried yeast
1.5 teaspoon of salt
2 teaspoons of olive oil
2 teaspoons of honey

mix all the ingredients and add 350ml of lukewarm water. Mix well. Work the dough a bit. Then leave it to rest with a damp towel on top for an hour. Then rework the dough and put in a oiled loaf tin and leave it to rest for about 30 minutes with a damp towel on top. those are average time and you can improvise a bit longer if you wish.

then cook in the oven at 375-400 for about 35-40 minutes. Mind you it mind take longer. The crust has to be firm. The good thing about spelt flour is that its very gewy and damp so een if you leave it longer the middle will always be nice and moist.

This saves my mornings to be honest.

ManhattanMama
Regular Member


Date Joined Jan 2012
Total Posts : 450
   Posted 1/27/2012 6:40 PM (GMT -7)   
Thanks Tournevice! I am hoping to have the energy tomorrow to give it a try.
Diagnosed with Pancolitis in May of 2005 at age of 33
Maintenance Plan: 2 (750mg) Colazal three times a day
Vitamin C, Probiotic, Multivitamin, 400mg of Folic Acid
Treatment during Flare-Up : Cortifoam, Rowasa Enemas & Prednisone (40mg & taper)
Tried Lialda with terrible side effects in Dec 2008- went back to Colazal
Tried balsalazide disodium Nov2011-led to flare-up-back on Colazal
Mother of 2

InSoFla
Veteran Member


Date Joined Jan 2011
Total Posts : 4686
   Posted 1/27/2012 6:59 PM (GMT -7)   
Mama, everyone is different true enough. But many folks on this forum have had a decrease in symptoms, including joint pains that came with UC, while being on a dairy, gluten, wheat free diet.
 
You could try a food journal so you can see what connections come forth.
You could substitute almond milk instead of regular milk - tastes great and is non-dairy.
 
And then there's the food mis-combining which IMO is a major factor. Mixing the wrong foods together will create bloating, distention, cramping, D, gas, pain, and even blood. Here's some info on that:  http://cureforulcerativecolitis.com/step-1-methodology-to-eating
 
As for yogurt, it always upsets my stomach. So I stay away from dairy in general, although have no problems with goat or sheep dairy (it's because it's a different protein than cow dairy).
 
I think if you start a food journal, it might be very helpful to you.
What do you think?
Dx - UC 09/2010.Tried various Mesalamine enemas/suppos/pills with Prednisone for several rounds without any help.PaleoDiet of proteins,veggies,salads, fruits, & protein shakes w/almond milk, Liquid Minerals& Vitamins,Maca powder,L-Glutamine 15g, D-Ribose 5g,L-ArgEthylEster,chia seeds,VSL#3,K2,VIt. D3 100,000 IU every 10 days.Transdermal LDN put me remission!

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4589
   Posted 1/27/2012 7:05 PM (GMT -7)   
when i am sick, nothing i eat seems to relieve my pain or symptoms. i was basically living off of chicken and veggie broth, juice, protein shakes, and hummus. i was still in pain and having bowel movements 30x a day though. nothing relieved my symptoms until i got on meds.
Joanna
22
severe pancolitis
previous meds:sulfa/mesal/cortico enemas, lialda, prednisone, canasa supps.
meds: 50 mg 6mp and remicade.
healthy stuff: 1 packet of VSL#3, 3000-5000 iu of Vit D, one multi vitamin, zinc.

remicade infusion aug 29, 2011, sept 12, oct 10, nov 30, jan 30.

my goal is to get off 6mp by march and remicade at the end of the year.

ManhattanMama
Regular Member


Date Joined Jan 2012
Total Posts : 450
   Posted 1/27/2012 7:42 PM (GMT -7)   
Bananagirl,

Did you start 6mp and Remicade together? How long did you take 6mp for? It looks like this is the route I may have to take next week. Any suggestions on how to prepare for Remicade infusion or how to deal with side effects? I thought taking it for a long time could have long term side effects? Some people seem to have a positive effect right away. Does treatment still involve 6-8 weeks of weekly/monthly treatments?

Food Journal sounds great but at the moment I am afraid of what I may find out. How am I going to prepare separate meals for me and my family? How am I going to give up all of my favorite foods? I know I did it once before 7 years ago when I was first diagnosed but I was spoiled by 6 years of remission. The biggest thing I cut out was coffee and it still seems to be the biggest contributing factor when I feel a flare coming on. I need some self-discipline to get out of this.
Diagnosed with Pancolitis in May of 2005 at age of 33
Maintenance Plan: 2 (750mg) Colazal three times a day
Vitamin C, Probiotic, Multivitamin, 400mg of Folic Acid
Treatment during Flare-Up : Cortifoam, Rowasa Enemas & Prednisone (40mg & taper)
Tried Lialda with terrible side effects in Dec 2008- went back to Colazal
Tried balsalazide disodium Nov2011-led to flare-up-back on Colazal
Mother of 2

Malkavian
Veteran Member


Date Joined Mar 2009
Total Posts : 1439
   Posted 1/27/2012 9:18 PM (GMT -7)   
Out of curiosity, what kind of probiotic are you taking? That can make a difference. Yogurts are good, however if you have lactose intolerance you may want to try a soy or coconut milk based one instead. Diet is really iffy in terms of effect, for some people it's about comfort, for some it has no effect, and some people swear by certain diets. However current research indicates that the gut flora is much more important. I personally find that eating low fiber foods makes me more comfortable when flaring, but doesn't affect me otherwise. Also, you don't need to prepare separate meals for yourself and your family-they can learn to adjust to new foods, and you can make tasty meals on all but the most restrictive diet plans. This is coming from someone marrying a person with multiple food allergies, with a future father in law with celiac's disease.

"I need some self-discipline to get out of this."

Don't blame yourself. It is not your fault that you are sick.

Anyway, let us know if you start new meds and if they are working for you. I'd be surrprised if your doc starts remicade without trying 6-mp/aza first, but hopefully you find something that gives you some relief.
Heather, 23 year old grad student
Ulcerative colitis from rectum to mid transverse colon, diagnosed 3/6/2009, symptoms for 2 years beforehand
In remission! <3
Currently on lialda 4x/day, azithioprine 150 mg/day
Allergies: penicillin, sulfa, bee stings, environmental (especially ragweed!), OTC meds as needed

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4589
   Posted 1/27/2012 9:21 PM (GMT -7)   
manhattan, i started 6mp because prednisone wasn't doing anything but bad for me. i was on prednisone for maybe 3 weeks with no improvement so my doctor wanted to add 6mp and remicade together. i was able to taper off the prednisone and am still on 6mp and remicade. i spoke with my doctor on monday and she says that these don't have to be long term drugs. i am getting off 6mp in march and i can taper remicade in august if my colonoscopy is clear. after that, i plan on going on a less severe drug or, if i can manage, nothing at all.
Joanna
22
severe pancolitis
previous meds:sulfa/mesal/cortico enemas, lialda, prednisone, canasa supps.
meds: 50 mg 6mp and remicade.
healthy stuff: 1 packet of VSL#3, 3000-5000 iu of Vit D, one multi vitamin, zinc.

remicade infusion aug 29, 2011, sept 12, oct 10, nov 30, jan 30.

my goal is to get off 6mp by march and remicade at the end of the year.

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 3865
   Posted 1/28/2012 6:55 PM (GMT -7)   
Food Journal sounds great but at the moment I am afraid of what I may find out. How am I going to prepare separate meals for me and my family? How am I going to give up all of my favorite foods?

I don't understand asking "what to eat during a flare" and then saying you really don't want to change your diet.
In remission April 2010 after 10 years of UC with no remission ever
Jan 2010 began SpecCarbDiet (modified to remove dairy, fruit & juices,)
Gluten-free=bleeding stopped in 3 days, 95% remission in 5.5 months on SCD
SCDiet: Gluten/grain-free, low starch, low carb, honey as sweetener
(9)Balsalazide+(6)Citrucel, mesalamine enema as needed
(1) VSL#3 nightly-adding fruit back in small quantity 2011
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