Fecal transplant at Bright Medical Clinic?

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EqualsTwo
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Date Joined Apr 2009
Total Posts : 45
   Posted 1/31/2012 6:27 PM (GMT -6)   
Has anyone done fecal transplant at Bright Medical Clinic or know someone who has? I'd prefer to get it done somewhere rather than try it at home and this seems to be one of the only places I could find in the US.

Or do you know another place in the US or Canada where I could get fecal transplant for Ulcerative Colitis and not have to do it at home?

ItsAlwaysSomething
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Date Joined Oct 2011
Total Posts : 1407
   Posted 1/31/2012 7:27 PM (GMT -6)   
Where is Bright Medical Clinic?
I tried googling "Hospitals that do fecal transplants" and the results seem to indicate that more is being done in Canada than here.
That being said, maybe some of the teaching hospitals in the Boston area (MA) have experimented with the treatment for cdiff which I guess is the more commonly recognized application.
Sometimes it's surprising that doctors are become more flexible regarding treatment.
I was very surprised when my GI agreed to prescribe LDN for me.
Hope you fiind what you're looking for.............
Female, Pat
Diagnosed UC 2002, Colazal generic (balsalazide), Mesalamine and/or Colocort enemas as needed.
Benebiotic and S Boulardii probiotics, vitamins, slippery elm bark and starting LDN.
Working toward a more organic, gluten-free, lactose-free diet.
Planning trip to Las Vegas in June.

EqualsTwo
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Date Joined Apr 2009
Total Posts : 45
   Posted 1/31/2012 7:31 PM (GMT -6)   
Oh, I'm in the Boston area! Yeah the issue I guess is finding someone who will do it for stuff other than CDiff

Bright Medical Clinic is in Oregon which is not ideal but fortunately I can get there if I decide it seems worthwhile.
Female, 26 years old
Diagnosed with Left-sided Colitis in 2008
Maintenance drug - 4 Lialda per day
Currently flaring and trying not to take Presnisone again

ItsAlwaysSomething
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Date Joined Oct 2011
Total Posts : 1407
   Posted 1/31/2012 7:40 PM (GMT -6)   
My GI in Springfield, MA has mentioned Dr. Mark Peppercorn, a GI at one of the Boston Hospitals (maybe MA General).
Would it hurt to call and ask if anyone there will do the treatment?

You're young and if having the treatment means you won't go through years of fighting UC with dangerous drugs, it might be worth it.
Best of luck...
Female, Pat
Diagnosed UC 2002, Colazal generic (balsalazide), Mesalamine and/or Colocort enemas as needed.
Benebiotic and S Boulardii probiotics, vitamins, slippery elm bark and starting LDN.
Working toward a more organic, gluten-free, lactose-free diet.
Planning trip to Las Vegas in June.

EqualsTwo
Regular Member


Date Joined Apr 2009
Total Posts : 45
   Posted 1/31/2012 7:42 PM (GMT -6)   
Thank you! I really appreciate it!
Female, 26 years old
Diagnosed with Left-sided Colitis in 2008
Maintenance drug - 4 Lialda per day
Currently flaring and trying not to take Presnisone again

Edbar
Regular Member


Date Joined Jan 2012
Total Posts : 290
   Posted 1/31/2012 8:04 PM (GMT -6)   
The doctor there is Dr Mark Davis. He is a naturopath and I think he held a retreat for patients at the end of January. He does FTs by enemas and then you have to follow up at home with your own doner.

notsosicklygirl
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Date Joined Dec 2008
Total Posts : 9945
   Posted 1/31/2012 8:19 PM (GMT -6)   
I read the protocol that is used at the facility in oregon and it doesn't seem like it would be any more effective than doing at-home treatments. It's not done by colonoscopy (which would be the main benefit of doing it in a medical facility imo). I wouldn't pay all that money to have someone else mix the solution for me. That's pretty much all you're paying for.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (2800mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

Edbar
Regular Member


Date Joined Jan 2012
Total Posts : 290
   Posted 1/31/2012 8:22 PM (GMT -6)   
you're right notsosickgirl.......and I believe you have to supply your own doner anyways so you may as well do it at home after finding and testing your own doner.

EqualsTwo
Regular Member


Date Joined Apr 2009
Total Posts : 45
   Posted 1/31/2012 11:01 PM (GMT -6)   
It says they do have a donor bank, I'm not sure how they ensure freshness though...

http://fecalmicrobiotatransplantation.com/FMT/donor_bank.html

Although honestly, I'm grossed out enough that I'm willing to pay quite a bit for someone to prepare it for me. I'm used to talking about poop and I'm used to my own poop but handling someone else's poop is another story.
Female, 26 years old
Diagnosed with Left-sided Colitis in 2008
Maintenance drug - 4 Lialda per day
Currently flaring and trying not to take Presnisone again

allswell
Veteran Member


Date Joined Oct 2011
Total Posts : 667
   Posted 2/1/2012 6:03 AM (GMT -6)   
I heard montefiore in NYC.
proctitis 2004, Asa sup., 2006 hydrocort sup. worked for a while when I remembered to use them, 2009 spread to left put on prednisone, asacol, then Apriso. Switched docs tried lialda, rowasa, back to hydro enema and Apriso. 2010 6mp added, 2011 pancolitis ,Remicade, bad flare after no.1,2, pred now, and rem

trojen
Regular Member


Date Joined Oct 2011
Total Posts : 288
   Posted 2/1/2012 7:14 AM (GMT -6)   
I know a GI at Montefiore (NY)...they can't do FT for UC or children yet. However, they are doing it for cdiff and have completed a fairly large study showing the effectiveness with cdiff. That said, they do recongnize the potential with FT for UC and are in the process of bringing it mainstream. In fact, there are several GIs around the country who have submitted paperwork to the "powers to be" to get the ball rolling.  Unfortunately, that could take years?

For now, yes, there is this 5 day "retreat" in Oregon. Like Edbar said, they do enema only, but do have a protocol. Sounds like the big hurdle for many on our board contemplating this procedure, is finding a donor. This is something that is supplied to you at this retreat as well.

Without knowing the credibility of the clinic, I'm with EqualsTwo, I want to hear from someone who goes through the clinic so we can hear about their experience. Any feedback would be great, anyone?

Post Edited (trojen) : 2/24/2012 3:18:02 PM (GMT-7)


trojen
Regular Member


Date Joined Oct 2011
Total Posts : 288
   Posted 2/24/2012 9:57 AM (GMT -6)   
Bright Medicine, thanks for posting an update about your retreat.  I think it would be great to hear from some patients as well, that can speak on behalf of their experience with you.  Also, I think the colonoscopy training makes a lot of sense for the initial FMT.  Lastly, in my research I've found UC to have better success odds using FMT with an ongoing protocal of 6-12 months.  As I'm sure you know, some of Borody's patients have symptoms up to 4 months during the FMT protocol before finally subsiding into long term remission.  
 
Thanks so much for posting, please continue to do so.  It will be good for your business and good for so many people who need it.  Not to get off point, but we also have people with cdiff infections...this is almost impossible to get rid of using abx while also having UC.  Have you treated any cdiff patients yet? 
 
 
 
  

tcf5010
Regular Member


Date Joined Mar 2011
Total Posts : 106
   Posted 2/24/2012 1:43 PM (GMT -6)   
I'm going in for a consultation on march 8th in PA for FT via colonoscopy. I think the place is called JacksonGI. They have only done this for two patiens so far - one with C diff, and one with UC. I already tried the at home FT, didn't have obvious results. So I'm most likely going to give this a try depending on how the LDN works out that I just started taking.
Male, 24, Greensboro, NC: UC since 08'

Currently on the recovering side of a 5 month flare (8-10 Bms/day)

Meds: (4)1.2gm Lialda, VSL #3, L-Glutamine Powder, Rowasa nightly 4g, SCD multivit, Calcium Carbonate
Diet: Gluten-Free, Diary-Free, Low Sugar

killcolitis
Veteran Member


Date Joined Dec 2009
Total Posts : 2396
   Posted 2/24/2012 1:48 PM (GMT -6)   
Trojen do you have any links to any of the more recent Borody studies using the long term protocol?
Thanks!

trojen
Regular Member


Date Joined Oct 2011
Total Posts : 288
   Posted 2/24/2012 5:29 PM (GMT -6)   
I don't know of any recent posted studies per say, but I do know Edbar can provide an interview link with Borody's former nurse who talks about the necessity of a longer protocol for UC and what that would look like. The one I describe: daily for a week or longer, weekly for a few months, bi-weekly for a few months, and monthly for the remainder of the year...is what instructions I've been given from a trusted GI in NY. He is in contact with Borody, has conducted large studies using FMT for Cdiff, and is now in collaboration with a few other US GI's to put together a case study for UC. Until then, you know the drill....they have to be careful with what they say or do...for liability reasons.

Edbar, are you able to post the link you sent me...I can't find it?

Killcolitis, how is the little one doing?

Post Edited (trojen) : 2/24/2012 3:40:00 PM (GMT-7)


trojen
Regular Member


Date Joined Oct 2011
Total Posts : 288
   Posted 2/24/2012 5:38 PM (GMT -6)   
IMO, Borody and his clinic are so busy they can't see straight. I'm guessing a lot of what they do has changed with regards to the best UC protocol. That said, his clinic is extremely expensive and I'm sure he is in no hurry to publish any new study results. His business and reputation is set, now its time for someone in the US to step up!

Edbar
Regular Member


Date Joined Jan 2012
Total Posts : 290
   Posted 2/24/2012 8:19 PM (GMT -6)   
Hi Trojen,
Here is the transcript link of the interview with Borody's former nurse.
She doesn't specifically say what her protocol is for FTs though.
 
I noticed the Bright Medicine post was deleted.

trojen
Regular Member


Date Joined Oct 2011
Total Posts : 288
   Posted 2/25/2012 7:26 AM (GMT -6)   
Thanks Edbar.

Yeah, what happened to the Bright post???? hmmmm. Did we scare him off asking for patient testimonials.
 
Just to clarify on FMT protocol for UC:  Point being with cdiff, you can treat with FMT once or twice and be almost 100% certain to get rid of it.  UC will need daily, then weekly, then monthly....for how long is probably not totally known?  Regardless, it proves UC is a tougher nut to crack and will need some persistance. 

Post Edited (trojen) : 2/25/2012 5:35:25 AM (GMT-7)


BrightMedicine
New Member


Date Joined Oct 2011
Total Posts : 3
   Posted 2/25/2012 1:10 PM (GMT -6)   
I think my post must have been deleted because it seemed self-promotional to the moderators, who I'm sure are just trying to keep the forum to conversation and not sales. That being said, I'm happy to answer any questions from my FMT knowledge base as long as it doesn't lean too much towards me talking about what I do. IF you're interested in what we do at the clinic, you could email me off of this forum.

trojen
Regular Member


Date Joined Oct 2011
Total Posts : 288
   Posted 2/26/2012 11:56 AM (GMT -6)   
You can still post results and encourage your patients to leave a testimonial. I'm sure the moderators will NOT have any issue if your patients talk about the success they have had with you....or the experience for that matter. Everyone here knows how valuable relevant info is on this topic.

Without knowing you or your practice, I applaud your efforts with regards to FMT.
5yr old (Jack) Diagnosed UC in Aug/Sept, 2010.
Diagnosed 8/10: Inpatient for one month.
Cdiff infection from inpatient stay.
Remicade since 10/10
Severe relapsing cdiff and uc flares until: 10/11
Bacteria (fecal) transplant 10/11: Remission?
Current maintenance: 7 wk, remicade

trojen
Regular Member


Date Joined Oct 2011
Total Posts : 288
   Posted 2/28/2012 7:41 AM (GMT -6)   
UPDATE: I spoke with Dr. Mark Davis....the person running the FMT clinic/retreat. He has had 6 UC patients so far, including one pediatric. All have shown improvement, but he is waiting for follow up colonscopy reports before publishing his results.

Kudos thus far....keep up the good work.
5yr old (Jack) Diagnosed UC in Aug/Sept, 2010.
Diagnosed 8/10: Inpatient for one month.
Cdiff infection from inpatient stay.
Remicade since 10/10
Severe relapsing cdiff and uc flares until: 10/11
Bacteria (fecal) transplant 10/11: Remission?
Current maintenance: 7 wk, remicade

Edbar
Regular Member


Date Joined Jan 2012
Total Posts : 290
   Posted 2/28/2012 9:26 PM (GMT -6)   
Thanks for the update trojen. I think his retreat was at the end of January so hopefully Dr Davis can post some results soon.

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4317
   Posted 2/28/2012 10:18 PM (GMT -6)   
do you know if this clinic takes insurance? $7,000 is kind of ridiculous just to get somebody else to administer a poop enema.
Joanna
22
current meds: 50 mg 6mp every other day and remicade.

my goal is to get off 6mp by march and remicade at the end of the year.

killcolitis
Veteran Member


Date Joined Dec 2009
Total Posts : 2396
   Posted 2/28/2012 10:46 PM (GMT -6)   
I'm pretty sure it doesn't unless your insurance covers naturopaths but it would not likely cover the "retreat". Is it that much? that is a lot of money, almost as much to fly to australia for a week or two and get treated by Dr Boroday himself.

trojen
Regular Member


Date Joined Oct 2011
Total Posts : 288
   Posted 2/29/2012 6:40 AM (GMT -6)   
No, the cost is around $3k, for the 5 day "retreat". I don't think that is an unreasonable cost given it includes the treatments, food, lodging, care, etc. Davis' first patient followup colonoscopy is scheduled for mid March....he intends to report results after that.
5yr old (Jack) Diagnosed UC in Aug/Sept, 2010.
Diagnosed 8/10: Inpatient for one month.
Cdiff infection from inpatient stay.
Remicade since 10/10
Severe relapsing cdiff and uc flares until: 10/11
Bacteria (fecal) transplant 10/11: Remission?
Current maintenance: 7 wk, remicade
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