Should I start smoking?

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Brian Legacy
Regular Member


Date Joined Mar 2012
Total Posts : 142
   Posted 3/4/2012 10:12 AM (GMT -6)   
Hello everyone -

I want to give a little bit of background about myself before posing the question. I am 18 years old, I have been a "lurker" on these forums since June of 2010 when I was initially diagnosed with Ulcerative Colitis. They started me on Lialda twice a day and Align probiotic and within 2 days I was fine, I thought the disease was a joke. Oh boy do I miss those days. Around late August of 2010 I had another flare, they started me on Court Enemas and again 2 days later i'm in the wind. In November of 2010 I started bleeding again, started the enemas and no improvement. It continued and continued for a month+ and started spiraling out of control. I was placed in the hospital on January 1st 2011 and did leave the door until January 28th. I had what my doctor referred to as one of the most severe cases he had ever seen. I was in the bathroom with puddles of blood 20+ times a day. I was started on remicade while in the hospital which allowed it to improve enough for me to continue treatment at home. I missed my senior year of high school from December on. I had an allergic reaction to the remicade in March and was upped again on the prednisone to 60mg and started on 6mp/allopurinal. Around June I was in remission. The side effects of the prednisone never fully waned until around November and that is about when I felt I had my life back, I am attending college with a 4.0 GPA.


UC begins to rear it's head again.. In January I had blood again, spoke with my doctors started on enemas etc;. It didn't improve. I had a colonoscopy about a week ago which showed moderate UC. I was started on Prednisone and upped my VSL3 to 3x packets a day from 1x. I have seen very little improvement which has made me scared, I know what the prednisone will do to me longterm and I hated those side effects as I am sure you all can understand.

I have done an abundance of research and from what I have seen Smoking = No UC in nearly all cases. I have spoken with my doctor who said "Smoking and nicotine do show promise, but we don't treat with it." No doctor will say "brian, go smoke.". Which is understandable but to me the health concerns of smoking are far outweighed by the concerns of taking cocktails of drugs everyday combined with the UC itself. What would you all recommend? Anyone have experience with smoking/nicotine?

Thank you all,
Brian.


Medicines on:
VSL3 DS. 3X packets a day.
6MP 25Mg
Allpurional 50Mg
Prednisone 40mg
Court Enema 1x a day
Melasamine Enema 1x a day
Canasa Suppository 1x a day
Multivitamin
Fish Oil
Ativan as needed
Ambien 5mg nightly.

sobroken
Regular Member


Date Joined Sep 2010
Total Posts : 184
   Posted 3/4/2012 10:44 AM (GMT -6)   
I don't see the point of smoking if you've never smoked before. You would have to quit sometime which would put you in a bad flair not to mention all the new problems smoking might start.

I'm sorry to hear you're doing so poorly. Perhaps it's time to discuss more permanent options with your doctor.

paula
41 year old female
quit smoking Dec 2009. First flare Feb 2010.
Hospitalized for 9 days and diagnosed with pancolitis April 2010.
mesalaminex4 day,Salofalk enema(rowasa)x2 week, Salofalk suppositories(Canasa)x1 day and pantoprazole magnesium.
ENTOCORT 1 DAILY FOR 2 WEEKS, SOLOFALK ENEMA 1 NIGHTLY FOR 2 WEEKS

Brian Legacy
Regular Member


Date Joined Mar 2012
Total Posts : 142
   Posted 3/4/2012 10:46 AM (GMT -6)   
sobroken said...
I don't see the point of smoking if you've never smoked before. You would have to quit sometime which would put you in a bad flair not to mention all the new problems smoking might start.

I'm sorry to hear you're doing so poorly. Perhaps it's time to discuss more permanent options with your doctor.

paula

I guess I should have added this:

My goal is to push this back until after this semester so that I could explore having surgery over the summer. At my age I believe I have a good chance of it ending up well and being done with this disease but I can't go from now until late May as sick as I presently am. Nearly my entire extended family are smokers and the only uncle who is not has UC.

Dsm4life
Regular Member


Date Joined Jul 2010
Total Posts : 445
   Posted 3/4/2012 10:49 AM (GMT -6)   
Your body is already fighting one issue so why would you want to complicate that by introducing another?

Brian Legacy
Regular Member


Date Joined Mar 2012
Total Posts : 142
   Posted 3/4/2012 11:33 AM (GMT -6)   
Dsm4life said...
Your body is already fighting one issue so why would you want to complicate that by introducing another?


A ton of research shows that Smoking and Nicotine are huge assets in treating UC.

hateuc
Veteran Member


Date Joined Jun 2010
Total Posts : 1802
   Posted 3/4/2012 11:42 AM (GMT -6)   
Hi Brian,
Sorry you are not feeling well. This is an extremely hot button issue...but you can get more info from typing smoking and UC in the search box. There is a Dr. (Dr. Stephen Hanauer ) who is well respected and he recommends to ex smokers that if they can't be controlled by asa drugs, he recommends 3-5 cigarettes a day. (Although note it is ex smokers not non smokers ) Obviously smoking can cause a whole host of other health problems, so you may want to try nicotene gum or e-cigs first if you decide to try. There is a debate whether it is the CO in smoke or the nicotine, but some members have been helped by the nicotine alone.

I am not saying you should start smoking but do you research and than make your own decision. Good luck in whatever you decide and expect alot of strong answers.
B
Proctosigmoiditis
2 Lialda/day  Rowasa nightly
VSL#3
Metamucil wafers

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 3257
   Posted 3/4/2012 12:04 PM (GMT -6)   
In my opinion in one word....NO! (I'm an ex smoker...don't do it)
Marianne

DX UC - in 2005 when I was 37
Tried every drug-even Remicade-Tried diets-nothing worked-wanted my life back!
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC!!! Very happy with my results of this surgery-got my life back! :)

Sibby
Veteran Member


Date Joined Apr 2010
Total Posts : 1248
   Posted 3/4/2012 12:53 PM (GMT -6)   
Sure, if you think that lung cancer, throat cancer and god knows what kind of cancer is better than UC. Good luck.

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4485
   Posted 3/4/2012 12:58 PM (GMT -6)   
i don't think it's a good idea to treat a bad disease with a bad habit. you want to heal your body, not hurt it. smoking is one of those things that might cover up the issues, but it'll destroy your body in the process.

with that said, my dad has UC, smokes, and has been in remission for 23 years. no diet modification, drinks a good amount of alcohol, and doesn't exercise. he feels fine.
Joanna
22
current meds: 50 mg 6mp every other day and remicade.

my goal is to get off 6mp by march and remicade at the end of the year.

JayGuitar
Regular Member


Date Joined Feb 2012
Total Posts : 188
   Posted 3/4/2012 1:05 PM (GMT -6)   
I can understand why you would want to start smoking -- I have thought about it myself, but it is just too much risk for other health issues.

See if your GI will give you an Rx for nicotine patches. Mine did -- I never ended up using them, but he thought it was worth a try.

J
1200-1600mg. Magnesium; 4g Vit. C --
2 to 4 Nordic Naturals
2 B-Balance 100 caps.
1 to 2 Healthy Trinity
2000 IU Vit. D-3
Canasa supp. morning and night
Bellicon Rebounder 30-40 min/day

Brian Legacy
Regular Member


Date Joined Mar 2012
Total Posts : 142
   Posted 3/4/2012 1:37 PM (GMT -6)   
bananagirl said...
i don't think it's a good idea to treat a bad disease with a bad habit. you want to heal your body, not hurt it. smoking is one of those things that might cover up the issues, but it'll destroy your body in the process.

with that said, my dad has UC, smokes, and has been in remission for 23 years. no diet modification, drinks a good amount of alcohol, and doesn't exercise. he feels fine.


I understand it would mask it. I know it's not the greatest of options but like your father I have heard so many stories that my thought process is "yeah I may have lung cancer in 30 years, but I have blood in my stool now. I have cramping now." is that the best way to look at it? Not really, but it seems reasonable to me. My father is 58 and has smoked since 14, he has no smoking related ailments. I know that is not the norm but that surely gives me more hope than does chocking down another 40mg of prednisone.

deltaforce
Veteran Member


Date Joined Jun 2010
Total Posts : 1945
   Posted 3/4/2012 5:06 PM (GMT -6)   
The way my GI told me, it helps to ONLY those who got UC after stopping smoking. If non-smokers start smoking, there is hardly any chance (i.e. close to zero), it will work. Secondly, in the 'hope' of helping yourself with UC, you are exposing yourself to more hazardous form of toxin which will have detrimental effect, not only on lungs but on various body parts. My GI is also against nicotine patches.

If I were you, I would not bother with smoking. Its not worth it.
Diagnosed March 2007 with left sided UC at the age of 30.
Currently on,
Colazal 9 daily, Imuran, 200mg daily, Vit. B12, 1mg, Multivitamin, 1 tablet daily, Fish oil 2400mg daily, Vit D 2000 IU daily, Butterbur 150mg daily.

Verapamil 240mg for migraine, Migraine episode now at least twice a month,
Ibuprofen 400mg is the only solution (but leads to bleeding). Looking for alternatives.

deltaforce
Veteran Member


Date Joined Jun 2010
Total Posts : 1945
   Posted 3/4/2012 5:07 PM (GMT -6)   
Brian Legacy said...
Dsm4life said...
Your body is already fighting one issue so why would you want to complicate that by introducing another?


A ton of research shows that Smoking and Nicotine are huge assets in treating UC.


Seriously? Please cite relevant scientific research, not from some website..
Diagnosed March 2007 with left sided UC at the age of 30.
Currently on,
Colazal 9 daily, Imuran, 200mg daily, Vit. B12, 1mg, Multivitamin, 1 tablet daily, Fish oil 2400mg daily, Vit D 2000 IU daily, Butterbur 150mg daily.

Verapamil 240mg for migraine, Migraine episode now at least twice a month,
Ibuprofen 400mg is the only solution (but leads to bleeding). Looking for alternatives.

sobroken
Regular Member


Date Joined Sep 2010
Total Posts : 184
   Posted 3/4/2012 5:49 PM (GMT -6)   
I have to stick up for him. There is proof that smokers are less likely to have uc and it helps symptoms in some ppl.
They don't know why tho.
41 year old female
quit smoking Dec 2009. First flare Feb 2010.
Hospitalized for 9 days and diagnosed with pancolitis April 2010.
mesalaminex4 day,Salofalk enema(rowasa)x2 week, Salofalk suppositories(Canasa)x1 day and pantoprazole magnesium.
ENTOCORT 1 DAILY FOR 2 WEEKS, SOLOFALK ENEMA 1 NIGHTLY FOR 2 WEEKS

Judy2
Forum Moderator


Date Joined Mar 2003
Total Posts : 9474
   Posted 3/4/2012 5:50 PM (GMT -6)   
As I sit here with reactive airway disease (asthma) caused by God knows what part of my immune system, I'd say no.
Ulcerative colitis diagnosed in 2001; symptoms as early as 1992. In remission since 2006 with Remicade.
Inflammatory osteoarthritis; osteonecrosis from steroids
Grave's disease successfully treated with radioactive iodine and now on Levothyroxine.
Type II diabetes induced by steroids.
Meds: Remicade, Colazal, Levothyroxine, Mobic, Metformin

Moderator, thyroid forum

Michelejc
Forum Moderator


Date Joined Jan 2011
Total Posts : 1207
   Posted 3/4/2012 5:52 PM (GMT -6)   
ByeByeUC said...
In my opinion in one word....NO! (I'm an ex smoker...don't do it)


I agree!! Don't do it! You will be introducing a whole mess of new issues to your body.
MODERATOR-UC FORUM
53, female - diagnosed with ulcerated proctitis/mild colitis
Canasa - stopped for now
Lialda - once a day
Zocor - 40 mg
Acidophilus
Boniva - once a month
Calcium with Vitamin D
Glucosamine
Magnesium
Herbs -
Valerian - when needed for sleep
Horsetail, Stinging Nettle, RedYeastRice, St. John's Wort, Turmeric, Cinnamon, Echinacea

ColitisMastery
Regular Member


Date Joined Oct 2011
Total Posts : 188
   Posted 3/4/2012 7:17 PM (GMT -6)   
So I started smoking (never smoked before) to help my mild colitis. Lots of research saying how smoking and nicotine directly benefit colitis. It helped, and I was happy to light up. But I developed reallly bad gastritis from it (which I've never had before) and had emergency gallbladder surgery after being in hospital for 2 weeks. I picked up smoking again but it just hurt my gastritis wayy to much.

You're better off treating it with diet and lifestyle. I had to cut out all food coloring, sticked to a whole food rice based diet. Made raw apple and cabbage juice daily (lots of research on apple polyphenols and vitamin U from raw cabbage in mucousal healing), and cut out my B vitamins and switched to only B12 (cause I recently learned that B6 is detrimental to colitis, its not on google, its in the medical books) and yeah, I feel a ton better doing that stuff now. Tried the 7 mg patch but that honestly made me wayyy to jittery... Did not like it at all.

So try smoking, its a lousy gamble to try and improve ones health, and hella addicting. I still crave smokes and I only went through 10 packs, 3 -4 cigs a day. Not mention, now I'll spend a whole life time craving a cig... I only plan to have a light at special occasions as a treat but definitly not worth it for me.
Diagnosed at age 12 with ulcerative colitis in 2002. 21 years old.
Current daily meds
5-ASA
Vitamin D 6000 ui
Calcium 600 mg Magnesium 300 mg
1 packet of VSL #3
Vitamin B 100 complex
Melatonin 3mg
Avoids: Eggs, High gluten foods, Aspartame & sucralose, Larges amounts of meats

Post Edited (ColitisMastery) : 3/4/2012 5:21:15 PM (GMT-7)


Brian Legacy
Regular Member


Date Joined Mar 2012
Total Posts : 142
   Posted 3/4/2012 8:07 PM (GMT -6)   
ColitisMastery said...
So I started smoking (never smoked before) to help my mild colitis. Lots of research saying how smoking and nicotine directly benefit colitis. It helped, and I was happy to light up. But I developed reallly bad gastritis from it (which I've never had before) and had emergency gallbladder surgery after being in hospital for 2 weeks. I picked up smoking again but it just hurt my gastritis wayy to much.

You're better off treating it with diet and lifestyle. I had to cut out all food coloring, sticked to a whole food rice based diet. Made raw apple and cabbage juice daily (lots of research on apple polyphenols and vitamin U from raw cabbage in mucousal healing), and cut out my B vitamins and switched to only B12 (cause I recently learned that B6 is detrimental to colitis, its not on google, its in the medical books) and yeah, I feel a ton better doing that stuff now. Tried the 7 mg patch but that honestly made me wayyy to jittery... Did not like it at all.

So try smoking, its a lousy gamble to try and improve ones health, and hella addicting. I still crave smokes and I only went through 10 packs, 3 -4 cigs a day. Not mention, now I'll spend a whole life time craving a cig... I only plan to have a light at special occasions as a treat but definitly not worth it for me.

Thank you for posting. I see it did help your colitis but I guess in your case the negatives outweighed the positives. I know this is far from an easy decision and I am quite torn, I just can't allow this to effect my grades. I am willing to forego the fall 2012 semester and have a surgery and get rid of this once and for all but I need to be able to study now, I need to.

ColitisMastery
Regular Member


Date Joined Oct 2011
Total Posts : 188
   Posted 3/4/2012 8:20 PM (GMT -6)   
Now Brain, make sure you exhaust your natural treatments and diet adjustments before you resort to surgery. Smoking helped a little, kept my appetite down and reduced pain and frequency. Didn't pull me out of a flare for the time I smoked.

Try juicing cabbage, apples, kale, what ever cheap greens you got. Get on vitamin D, kick all wheat and ALL junk food. Make rice or potatos your staple. Not even a small taste of the junk. Try taking melatonin for a month and get your sleep schedule from 10pm to 7am... These are the biggest benifits to colitis with real scientific research, not old wives tales. I don't know if you're aware but colon surgery, or any surgery for that matter is miserable. And pretty darn risky for colitis colon surgery.

Melatonin will help a ton more then ambien, 5 or 6 mg nightly works like magic. And I'd get off the multivitamin, the iron and B6 will aggravate your guts more than it will help.

Hope this scientific backed up advice helps bro. If you aren't convinced than go to pubmed and search each suggestion I gave with colitis in the search.
Diagnosed at age 12 with ulcerative colitis in 2002. 21 years old with recent gallbladder surgery!.
Current daily meds
5-ASA
Vitamin D 6000 ui
Calcium 600 mg Magnesium 300 mg
1 packet of VSL #3
Vitamin B12 1000 mcg once a week
Raw cabbage apple juice daily :)
Avoids: Eggs, gluten/wheat, aspartame, sucralose, food colouring and larges amounts of meats

Post Edited (ColitisMastery) : 3/4/2012 6:23:08 PM (GMT-7)


beatUC
Veteran Member


Date Joined Mar 2010
Total Posts : 1127
   Posted 3/4/2012 8:22 PM (GMT -6)   
hey -"panama red" could have been referring to radishes!
haha

But seriously, smoking seems like not the way to go. It would be like an alcoholic taking up heroin to stop the boozing.
Imuran
Asacol
prednisone as needed

bhb5764
Regular Member


Date Joined Nov 2009
Total Posts : 105
   Posted 3/4/2012 9:06 PM (GMT -6)   
Brian,
Believe me, I understand the temptation. I am an ex-smoker who has struggled with flaring when I am not smoking and I HATE being on prednisone. However, I wouldn't recommend smoking, even in the short term, because it is incredibly addictive (not to mention the medical ramifications). I don't consider myself as having an "addictive" personality, but quitting smoking is one of the hardest things I have ever done. What if it doesn't have a positive effect on your UC and all you get is a terribly unhealthy new habit that is going to be very difficult to break? Also, smoking doesn't work to bring people out of flares (it is more "preventative"), so using it as a treatment while in a flare may not be effective. I didn't flare while I was smoking; however, smoking alone never brought me out of a flare (the only thing that does that for me is prednisone)

I am currently using nicotine patches as part of my treatment plan. It is difficult to say whether they have contributed to my remission (I am also on Humira and prednisone), but I think they might be helping. Here is an abstract of an article that summarizes some of the research on UC and patches: http://www.ncbi.nlm.nih.gov/pubmed/15495126. You could always give them a shot. It would be easier to wean off patches than quit smoking (in my opinion).

Also, I read the following article that postulates that drugs like Humira and Remicade do not work as well for smokers or even ex-smokers than they do with non-smokers (this in reference to people using this drugs for arthritis, however): http://www.arthritistoday.org/news/smoking-drug-benefits.php. I see that Remicade is off the table for you, but you might want to try Humira (or some soon-to-be developed biologic)at a later date; it would suck if cigarrettes ruined that for you.
I completely understand how desperate you feel. I had a horrible flare when I was finishing my dissertation and I probably would have tried anything to make sure I didn't get derailed. That being said, I think it will just compound your issues in the long run.
I wish you the best of luck! Keep us posted on what you decide.
B
11 years of UC
Currently taking: Asacol, Rowasa, Canasa, Humira (started 4/11), tumeric, ginger, boswellia, slippery elm, VSL#3
Discontinued: Remicade

Gonk
Veteran Member


Date Joined Jan 2012
Total Posts : 578
   Posted 3/4/2012 10:44 PM (GMT -6)   
Brian,

Why don't you give LDN a shot. There is really no downside to trying it and it has worked wonders for some people. Like all other uc treatments it does not work for everyone, but there really isn't any reason not to try it. I would do that before taking up smoking.
41 Year Old Male, married, 2 kids, 3 & 5 yo
First flare up in 1998, dx 2001, mild UP
Asacol for first 10 years, now Lialda 4/day, plus Canasa and Rowasa as needed. LDN as of Feb 24, 2012.
Supplements include: Bosswellia, Resveratrol, Fish and Krill Oil, L-Glutamine, Probiotics, Psyllium,
Vitamins C, D & E, DHEA, Pancreatic Enzymes, Seacure

deltaforce
Veteran Member


Date Joined Jun 2010
Total Posts : 1945
   Posted 3/5/2012 5:56 AM (GMT -6)   
@ ColitisMastery,

All suggestions you have given to the OP are good and correct. IMO, all he should do for a week is go through as many posts as he can through UC and Crohns sub forum, make his notes and helps himself with a plan. (I did that and it helped me GREATLY)

But melatonin, NO, No. OP is just a kid, how old is he, 18? The guy has a long life ahead of him, why get him melatonin so quickly? Once his flare is under control, he won't even be thinking of it. In Jan, I was going through a bad flare and I was SERIOUSLY considering surgery, even posted here about it. Now that I am not in the flare (but still on Pred with a BIG moonface), I am not thinking of surgery anymore.
I would put melatonin for my rainy days when I am 40+ or very occasional use (begin with lowest doses, don't begin with 5mg dose). I could explain more if it needs but for time being, thats my message.
Diagnosed March 2007 with left sided UC at the age of 30.
Currently on,
Colazal 9 daily, Imuran, 200mg daily, Vit. B12, 1mg, Multivitamin, 1 tablet daily, Fish oil 2400mg daily, Vit D 2000 IU daily, Butterbur 150mg daily.

Verapamil 240mg for migraine, Migraine episode now at least twice a month,
Ibuprofen 400mg is the only solution (but leads to bleeding). Looking for alternatives.

Wooky
Regular Member


Date Joined Sep 2007
Total Posts : 41
   Posted 3/5/2012 6:02 AM (GMT -6)   
Hi Brian,

I haven't read all the reply posts. But I wouldn't recommend taking up smoking. I once had a Doctor tell me that smoking was good for my condition * after putting in the clause that he was in no way advising I take it up.

I do occasionally smoke ( say once every month, if that ), but I find I am left with more problems then it's worth. The only thing I have ever gotten from the occasional cigarette is it relaxes me. Which ultimately makes me go to the toilet instantly, and have worse symptoms the next day.

Like all the drugs smoking just masks the symptoms creating bigger problems down the track.

The only thing that has ever worked for me as all drugs give me acute pancreatitis pain. Is Traditional Chinese Medicine. Which I did not believe would make any difference to my condition until I used it. This approach, like all natural remedies takes a long time to kick in. But I would highly recommend this before smoking or surgery. Because there is no undoing surgery. I myself have held out on surgery for as long as I've had this condition ( 5yrs ). It just never seems right to me.
I guess thats the best bit of advice I can give you. Do as much research and find out as much about your condition, related conditions, your options for surgery, for not having surgery, natural and non natural remedies. But just always go with your gut ( no pun intended )
This is extremely hard when you have doctors telling you what they have seen, what they know etc. But only you, the person with the disease, can tell if it's right for you, and as hard as it is, you have to trust you will make the right decision.

ColitisMastery
Regular Member


Date Joined Oct 2011
Total Posts : 188
   Posted 3/5/2012 9:08 AM (GMT -6)   
@Deltaforce

Melatonin is not addictive and does not alter ones natural production of melatonin due to the fact that oral supplements of it are rapidly metabolized in the liver. He's on another sleeping pill which I think, most sleeping pills make you dependent? Theres no long term effect of melatonin either... I dont take it anymore (and im perfectly fine after using it for a few weeks) unless Im wide awake at 10pm and regret listening to adreniling music too late :P
Diagnosed at age 12 with ulcerative colitis in 2002. 21 years old with recent gallbladder surgery!.
Current daily meds
5-ASA
Vitamin D 6000 ui
Calcium 600 mg Magnesium 300 mg
1 packet of VSL #3
Vitamin B12 1000 mcg once a week
Raw cabbage apple juice daily :)
Avoids: Eggs, gluten/wheat, aspartame, sucralose, food colouring and larges amounts of meats
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