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potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 3/8/2012 4:37 PM (GMT -6)   
Hi all,
 
It's been awhile since I've posted here and lots has happened on my UC journey.  I changed my sig line to reflect some of what I'm currently doing, and seem to be at a low level of disease, although I wouldn't consider it remission. 
 
Since I was last here, I was in the hospital in May/June 2011 for 16 days, and while there I spoke to one of the GIs on my IBD team.  He suggested that those of us with IBD will also likely have IBS symptoms and that there is a connection with trauma stored in the nerves, especially in the GI system.  His explanation was more involved, but what he said seemed logical to me, and I'm wondering what others with UC think.  Do you see a link to IBS symptoms in your own symptoms? 
 
Thanks! 
 
 
 
 

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10356
   Posted 3/8/2012 5:11 PM (GMT -6)   
My GI has suggested that I may have IBS along with UC but every time I think I am having UC symptoms, it turns out that I have inflammation (seen with a scope).
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (2800mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 3/8/2012 5:21 PM (GMT -6)   
I may be set for a scope in June again, and it will be interesting to see the results. In the meantime I'm doing gobs of things to address the trauma/IBS aspects, including diet/nutrition (mostly lactose free, glutein free, corn and soy free), meditation, reducing stress techniques and somatic therapy.

The GI reminded me that the vagus nerve is highly connected with the nerves in the colon, and the vagus is directly connected to the primitive part of the brain.

In my own case, since I'm not bleeding, but still having those bad mornings, occasional day of D, I'm wondering if my symptoms are sort of remnants of the past four years of progressing from mild left sided UC to severe pancolitis, leaving what I have now to be more IBS than UC.

But as you say, in the end, only a scope will tell. Thanks for responding, notsosicklygirl!

(BTW, I noticed my sig line didn't update, and I've been on Remicade since May 2011, and finally tapered off pred in Jan.)

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10356
   Posted 3/8/2012 8:02 PM (GMT -6)   
When did you update it? They don't always update instantly it seems.

I notice that my UC improved when I started an antidepressant for migraines. I have also heard that they use these types of medications to treat IBS. It's very curious to me that I improved around that time but I am also on 6mp so I can't be sure what happened but I am thankful to be feeling well. I was on 6mp for a long time before the antidepressant and I was struggling to get into remission the whole time... I hope your scope goes well. June sounds so far away but it will be here before we know it.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (2800mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

ColitisMastery
Regular Member


Date Joined Oct 2011
Total Posts : 188
   Posted 3/8/2012 9:59 PM (GMT -6)   
IBS also displays inflammation in the colon but doesn't ulcerate (that would be ulcerative colitis then), might have to dig in some medical journals to get the exact details but its a true. Like some colitis, IBS involves an increased pain perception in the GI tract and altered bowel frequecny with inflammtion. Both greatly benefit from melatonin as a result!

Food sensitivities are common with both and both improve with dietary changes. If you're skeptical, try something as drastic as eating no food and see your symptoms resolve! Fasting isnt always realistic in a busy world though... Different diets work for people, make one work for you!

I was told I have IBS and colitis but my guts only ever get bad when they get inflammed... IBS is only a syndrome too dont forget, theres no markers of disease. So, everyone can have IBS if they have a pattern of symptoms without a detectable disease.
Diagnosed at age 12 with ulcerative colitis in 2002. 21 years old with recent gallbladder surgery!.
Current daily meds
5-ASA
Vitamin D 6000 ui
Calcium 600 mg Magnesium 300 mg
1 packet of VSL #3
Vitamin B12 1000 mcg once a week
Raw cabbage apple juice daily :)
Avoids: Eggs, gluten/wheat, aspartame, sucralose, food colouring and larges amounts of meats

Gonk
Veteran Member


Date Joined Jan 2012
Total Posts : 578
   Posted 3/9/2012 10:07 AM (GMT -6)   
My GI suggested that I have a "touch of IBS" (LOL) along with my UC when I told him that the VSL#3DS was giving me D because of the maltose. For whatever reason, my latest flare came with an intolerance to artificial sweeteners - maltose, sucralose etc. When I consume those things, my bowel goes to pure liquid, but once I go it's done - and it does not aggravate my UC either which is why I believe that I may indeed have IBS too now. Interestingly, my GI left it at that, did not suggest any treatment, nothing at all. Just "sounds like you have a touch of IBS", OK thanks dude.
41 Year Old Male, married, 2 kids, 3 & 5 yo
First flare up in 1998, dx 2001, mild UP
Asacol for first 10 years, now Lialda 4/day, plus Canasa and Rowasa as needed. LDN as of Feb 24, 2012.
Supplements include: Bosswellia, Resveratrol, Fish and Krill Oil, L-Glutamine, Probiotics, Psyllium,
Vitamins C, D & E, DHEA, Pancreatic Enzymes, Seacure

ledaebel
Regular Member


Date Joined Jul 2006
Total Posts : 339
   Posted 3/9/2012 2:52 PM (GMT -6)   
My GI diagnosed IBS about 20 years ago but this was something I could manage with dietary restrictions especiallyhigh fiber and eliminating most dairy. 6 years ago I pesented with severe bleeding and pain, then he diagnosed a combinationn of severe UC and IBS. The low fiber, low residue diet helped me out of my last flare. Life can be complicated.
Linda

____________________________
Ulcerative Colitis, FM, osteoarthritis, retinal skesis, hypothyroid,

potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 3/9/2012 3:06 PM (GMT -6)   
Basically, I think the GI was telling me that if we have ulcerative colitis, we also have IBS.

I had IBS diagnosed many years ago, too, took bentyl for awhile, etc., but most of the time did ok, just missed some events, etc. and chalked it off as a irritable tummy kind of thing.

I do think my UC was beginning to show symptoms (or was it IBS?) after I quit smoking and had my gall bladder out in 2001. Maybe my 33 years of smoking kept both problems manageable.

I don't know if there's anything I or anyone else could do to improve the symptoms if IBS is a part of the picture, other than what we UCers already do. I'm open to any ideas.
Potato... Female, 62, dx 11/07 mild left sided ulcerative colitis (50 cm), 10/09 progressed to pancolitis

Remicade, Asacol, Hydrocortisone enemas
Supplements: Gall bladder support (gall bladder removed 9/01), Ashwaghanda, Multi vitamin, Caltrate, Probiotics, Fish Oil

Imuran caused liver function tests off the chart

[color=black>





Gonk
Veteran Member


Date Joined Jan 2012
Total Posts : 578
   Posted 3/9/2012 3:21 PM (GMT -6)   
Is IBS like UC in that it is different for everyone? Spicy food is an irritant for some, for me it's artificial sweeteners.
41 Year Old Male, married, 2 kids, 3 & 5 yo
First flare up in 1998, dx 2001, mild UP
Asacol for first 10 years, now Lialda 4/day, plus Canasa and Rowasa as needed. LDN as of Feb 24, 2012.
Supplements include: Bosswellia, Resveratrol, Fish and Krill Oil, L-Glutamine, Probiotics, Psyllium,
Vitamins C, D & E, DHEA, Pancreatic Enzymes, Seacure

potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 3/9/2012 3:36 PM (GMT -6)   
I think it is different for everyone, Gonk. My GI team seems to focus on dairy as an irritant, so I pretty much avoid it and I miss cheese! Honestly, as much as I'd like to identify one food, one stress, one anything that irritates me, I can't.

I agree with you though on artificial sweeteners. I totally avoid them.
Potato... Female, 62, dx 11/07 mild left sided ulcerative colitis (50 cm), 10/09 progressed to pancolitis

Remicade, Asacol, Hydrocortisone enemas
Supplements: Gall bladder support (gall bladder removed 9/01), Ashwaghanda, Multi vitamin, Caltrate, Probiotics, Fish Oil

Imuran caused liver function tests off the chart

[color=black>





Jacey86
Regular Member


Date Joined Mar 2012
Total Posts : 124
   Posted 3/13/2012 11:56 PM (GMT -6)   
IBS does not or should not have inflammation. It is only a function of the bowel and how it "spasms", hence the previous term, spastic colon.

I've had IBS for almost 30 yrs and that was one of the diagnosing markers, the lack of inflammation. There is no damage being done with IBS to the colon.

Maybe things have changed a bit, but that has always been what I've been led to believe and have continued to read. If my information is incorrect, I apologize. I'd check into it though.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5419
   Posted 3/14/2012 10:41 AM (GMT -6)   
My GI also felt that if one had UC, they also had IBS. I know I had IBS long before it was given a name. I think my first symptoms of IBS occurred when I was 9 years old; UC was diagnosed at age 31.

Sue
Moderator, Ostomy Forum

Ulcerative Colitis- 1987-2001
2001- opted for j-pouch surgery

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18012
   Posted 3/14/2012 12:04 PM (GMT -6)   
IBS does not = inflammation, that's what seperates IBS from IBD which does = inflammation.

My GI also beleives that I developed IBS along with my IBD (he's one of the top lead researchers for IBD in Canada) and I have faith in what he says (which isn't easy for me since I'm generally more skeptical by nature). He explained that it's only natural that when one has been suffering with IBD for a long period of time with little to no remission that IBS would develop due to the stress the bowels are constantly having (with having long/severe flares).

He says anyone can get IBS and that just because you have IBD doesn't mean you can't have IBS since they are 2 seperate conditions. He also stated that one does not "turn" into the other.

IBS can also be better controlled in general by the following daily routines....fibre to the diet (or in supplement form) and exercise were 2 big keys in aiding with IBS. Of course it can be individual like with IBD but they do say that in general IBS is more easily controlled by diet and exercise.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

bootstrap
Veteran Member


Date Joined Nov 2009
Total Posts : 579
   Posted 3/14/2012 8:42 PM (GMT -6)   
My GI explained that often people with UC who have gone through a drastic flare (i.e. intense trauma to the colon) will also end up with IBS. One does not "turn into" the other, but the trauma of a big flare can trigger an irritable bowel. Pretty much all the symptoms of IBD and IBS are the same except one: blood. So if I'm bleeding, I know it's UC. If not, I assume it's likely IBS.

If you really want to be sure, there is a blood test called "C Reactive Protein" that measures the amount of inflammation going on in your body. Normal results are anywhere from 0-9, the lower the better. (When I was in the middle of my biggest flare ever, mine was 49, and now it's 23. When I had things more or less under control with Prednisone, it was 3.8.) If you are having symptoms but no bleeding and showing no inflammation in the labs/blood test, it is IBS. If you are having higher than norm inflammation, it is UC.

Personally, I am not really worried about the IBS. It is basically harmless and does not require the same intense drug therapies, so therefore it's all about symptom tolerance and management. I am fine with having a bit of loose stool, a little gas, maybe occasional constipation - that is totally liveable, as it is NOTHING compared to the horror of a full-blown pancolitis flare. However, if the symptoms are bothersome then of course there are things you can do: food restrictions, FODMAPS diet & trials, metamucil, mild prescriptions, etc.
Dx mild/moderate ulcerative colitis 1995
Dx severe ulcerative pancolitis 2011

Currently flaring and taking:
- Imuran (tapering on)
- Prednisone (40mgs)
- Asacol HD
- Mesalamine Enema
- Medical MJ

Have tried:
Lialda, Endocort, Prednisone (dependent), Canasa, Cortico-foam, Probiotics, L-Glutamine, Licorice, other supplements, Specific Carbohydrate Diet, FODMAP Diet, other dietary changes.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18012
   Posted 3/14/2012 10:48 PM (GMT -6)   
Except 2, blood and inflammation (neither are symptoms of IBS and having a bleeding hemmie with IBS doesn't count).

My daughter has severe IBS and I know people that have severe IBS with constipation that have had issues with bowel obstructions due to impacted stool they just can't get out.

Neither is pleasant by any means, there are some people that are more dibilitated with severe IBS compared to mild IBD.

Gas and bloating are also very common symptoms with IBS which is why exercise and fibre aids greatly with IBS for most.

Bottom line, same crap, different pile.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5509
   Posted 3/15/2012 10:27 AM (GMT -6)   
     I suffered with IBS since childhood but didn't develop IBD (ulcerative Proctitis) till I was 52yrs old.

potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 3/15/2012 1:52 PM (GMT -6)   
I think bootstrap has expressed more closely what I understood from my GI. He did NOT say that IBS causes UC in any way or that there is necessarily a link that because someone has IBS, no matter how long, it will develop into UC.

He did suggest that trauma stored in the gut, with its vast nerve network, as bootstrap suggests, for example from a severe flare, will stay in the nerves, and there will be after effects like IBS symptoms. After reading your post, bootstrap, I realized that I may be in remission but left with the IBS symptoms. My last C reactive protein was normal for the first time in a couple of years, I'm not seeing any blood, but I still have cramping, sometimes D and sometimes urgency... maybe more suggestive of IBS than active UC. Basically, trauma is stored in the nerves.

I think I'll be having a scope in May/June, so it'll be interesting to see what's going on.
Potato... Female, 62, dx 11/07 mild left sided ulcerative colitis (50 cm), 10/09 progressed to pancolitis

Remicade, Asacol, Hydrocortisone enemas
Supplements: Gall bladder support (gall bladder removed 9/01), Ashwaghanda, Multi vitamin, Caltrate, Probiotics, Fish Oil

Imuran caused liver function tests off the chart

[color=black>





bootstrap
Veteran Member


Date Joined Nov 2009
Total Posts : 579
   Posted 3/15/2012 11:11 PM (GMT -6)   
Good to hear, potato. Yes, that does indeed sound like IBS rather than IBD. (I would do a little victory dance if I were you!) So now it is just about IBS symptom management: lower stress levels, meditation, metamucil, avoiding trigger foods, maybe some mild drugs to manage cramping and/or D... I've also heard medical marijuana (MMJ) can be extrememly effective on all the symptoms you list. (Am I even allowed to mention that on this site? I guess I'll find out if my comment gets deleted, LOL.) I know it is a controversial topic and not available in all areas, but any treatment is at least worth knowing about! If you do a quick websearch, you can see there are valid studies showing that not only does it help manage symptoms, but it actually actively treats IBD with very promising results.

I like the "throw everything at it but the kitchen sink" approach myself, LOL... which is what I'm currently doing with my UC.
Dx mild/moderate ulcerative colitis 1995
Dx severe ulcerative pancolitis 2011

Currently flaring and taking:
Imuran (tapering on), Prednisone (40mgs), Asacol HD (4800mgs), Mesalamine Enema, Medical MJ.

Have tried:
Lialda, Endocort, Prednisone (dependent), Canasa, Cortico-foam, Probiotics, L-Glutamine, Licorice, other supplements, Specific Carbohydrate Diet, FODMAP Diet, other dietary changes.

Post Edited (bootstrap) : 3/15/2012 10:15:29 PM (GMT-6)


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 3/16/2012 12:11 AM (GMT -6)   
IBS exhibit irregular patterns of colon motility yet lack the damage/ inflamm associated with IBD. So yep thats me, even in remission. There's nothing normal about my bowel habits and it's been a mystery every day for the past 17 or so years of what my funhouse of guts have in store for me day to day. Even in full remission a bout of D or Consti can lurk around every corner. Add a sprinkle of anxiety and stress from school, work or family and viola! Instant IBS that can unfortunately lead to IBD if I don't watch my butt. Literally. So, off the top of my head, I would assume every person who has IBD has some measure of IBS. Not necessarily the other way around. My opinion.

I also agree that there is a form of memory stored in the nerves of one's gut walls. The 1st, 2nd, 3rd chakras can produce and store vast amounts of chi.

The bottom line is that physicians, whether they tend to agree with each other or not on this controversial topic, need to be very careful in managing treatment- so IBS is not overtreated with immunosuppressives while IBD is not undertreated with antidiarrheals and antispasm meds.

Peace and Love
35 yrs old, had this thing since 95 blah blah I hate it
in remission -I know what I'm doing, college grad, researcher, more blah blah
Been away for awhile and didn't die yet, now stronger faster bigger smarter
Coconut Oil, Tons of multi-strain Probiotic Yogurt, lactose n fatfree protein shakes, Metamucil, Hi Glycemic sugars, raw foods, AAKG, oysters, MCTs, wanna know more? just ask

TotesMagotes
Regular Member


Date Joined Mar 2013
Total Posts : 152
   Posted 3/11/2014 12:09 PM (GMT -6)   
I would like to resurrect this post.
 
I've been in remission since 9/5/13. Took me 15 months to get there and it was my first flare. I still get occassional cramping and D and even C every once in awhile. Back pain is a big one right now but I may have pulled something since it comes and goes and gets better when I lay down. Plus a little acid indigestion/burning.
 
I of course bug out and think...here we go UC...and then things calm down. I haven't had blood since 5/8/13 (knock on all wood). But I do get these random symptoms.
 
My GI has mentioned IBS a few times. And as I look back to my pre-UC days I can defnitely see a pattern of IBS - C and D happening throughout my life. Especially food, stress, anxiety related.
 
These days I seem to have a reaction to a food a couple days after eating it - usually 2. And especially around my ovulation/menstruation. As crazy as this sounds having IBS would make me elated. I could remove that stress of here we go into a flare every time something isn't "perfect" bm wise.
 
Plus I have a GI appt on 3/24 and I don't know if I should get a flex sig to double check for inflammation. I have no other symptoms. Cramping is random throughout the day and not related to a bm, no urgency, no mucus, no blood. And even when I have D I am still only going 1-2 times (3 max) and then I'm done for the day. I have anal soreness but I think thats my hemmies acting up when I am C. I don't want to do a flex sig and mess anything up if its unecessary.
 
Does anyone have any insight on IBS and UC and my situation. Man do I LOVE this forum.
 
 
Diagnosed November 2012, Left sided UC
4 Lialda
Enemas/suppositories
VSL#3 DS, multi vitamin, biotin, b-complex, vit d, l glutamine, psyllium
Tried: colazal, apriso, 6 mp

Post Edited (TotesMagotes) : 3/11/2014 11:24:05 AM (GMT-6)


garylouisville
Veteran Member


Date Joined Aug 2012
Total Posts : 6776
   Posted 3/11/2014 12:44 PM (GMT -6)   
Once diagnosed with UC, if the diagnosis was correct, you will always have UC for the rest of your life, whether it is flaring or in remission. You can't ever look at it like you are cured of the UC and that any problems you experience can just be labeled IBS. I was diagnosed with both (IBS after UC). Many people will disagree with me but I have always believed, in my case and some others, that IBS is really just a BS diagnosis. IBS is basically a diagnosis of exclusion with no real facts to back up the diagnosis. While I do understand that they are two accepted diseases, it is my belief that they are related to some degree, maybe like second cousins or something and that if a cure was discovered for one it would also be the cure for the other. I just hate it when you're having UC type problems and either the patient or the doctor just blame IBS. I don't think it's automatic. I blame ALL of my problems on UC and none on IBS, even though I was diagnosed with both. That's just my two cents.
Lialda 1 pillX2; VSL 1 pillX2; Prescrip Assist Probiotic 1 pill X 2;Vitamin D3;Grape seed extract 400mg X 3; Canasa every other night;Levsin & DAO as needed

Discontinued: Robinul; Zymactive, Renew Life Probiotic 80 billion, Florastor

UCyousee
Regular Member


Date Joined Feb 2014
Total Posts : 128
   Posted 3/11/2014 1:54 PM (GMT -6)   
My GI suggested at one point that I had IBS as well as IBD.

I wasn't buying it because when I'm in remission I have a completely normal bowel pattern.

I'm sure there are people that do have both as IBS is common, but I don't agree that I have IBS although I do have a degree of lactose intolerance.

TotesMagotes
Regular Member


Date Joined Mar 2013
Total Posts : 152
   Posted 3/11/2014 2:36 PM (GMT -6)   
@gary - yes I am fully aware that my UC isn't ever going away...unless I have my colon removed and even then its not 100%. I will never stop taking my meds. I will never play around with the disease in any manner.
 
My question was more along the lines of if you are in remission (no inflmmation) and you have symptoms here and there that should you have a few mornings of D or some random cramping that it doesn't mean that you are going to start flaring. That the D could be related to something you ate and upset your stomach for a few days. In my life I have never paid so much attention to my gut and butt until I was diagnosed (via c-scope and biopsy), plain and simple. I am still new to this with only one (horrendous, hospitalizing flare). So I automatically jump the gun and fall into the paralyzing fear of here we go again when my stomach gurgles or I have more gas than usual or anything out of the norm.
 
I find some solace in knowing that I could just be having some IBS symptoms - that will not progress...know what I mean?
 
@UCyousee - For me I am in remission. And I still do not have a completely normal bowel pattern. They are about 90% there but every so often things just get a little off for a couple days. Granted after flaring - bad - for 15 months and only being in remission for 6 it will take some time. But as of now I was hoping for some insight from people who do think that IBS can affect someone with IBD.
 
I don't know what to look for in regards to my signs of flaring because I was 5 months pregnant when it all started. So I wasn't my usual bm self to start with. In my head it really came out of no where but who knows if thats true since I could have passed some symptoms off as pregnancy.
 
I know for me that anxiety, stress and fear play a huge role in my mental and physical symptoms. So if I could know that...hey something didn't agree with you, it's ok to have D here and there as you add foods back into your diet or the like it would relieve some stress, some worry, some fear that it all doesn't mean FLARE.
Diagnosed November 2012, Left sided UC
4 Lialda
Enemas/suppositories
VSL#3 DS, multi vitamin, biotin, b-complex, vit d, l glutamine, psyllium
Tried: colazal, apriso, 6 mp

Post Edited (TotesMagotes) : 3/11/2014 1:39:23 PM (GMT-6)


garylouisville
Veteran Member


Date Joined Aug 2012
Total Posts : 6776
   Posted 3/11/2014 2:53 PM (GMT -6)   
If I were you in your shoes, I would think that I was not in total remission and that I was indeed having some recurrent UC symptoms that may or may not get worse. As I said, I blame all of my symptoms on UC and none on IBS. Personally, I don't think you are 100% in remission, but that's just my opinion. I think I was wrong once in my life. Maybe this is the second time.
Lialda 1 pillX2; VSL 1 pillX2; Prescrip Assist Probiotic 1 pill X 2;Vitamin D3;Grape seed extract 400mg X 3; Canasa every other night;Levsin & DAO as needed

Discontinued: Robinul; Zymactive, Renew Life Probiotic 80 billion, Florastor

TotesMagotes
Regular Member


Date Joined Mar 2013
Total Posts : 152
   Posted 3/11/2014 3:02 PM (GMT -6)   
So going 2 weeks with 1 bm a day no symptoms at all and then having 2 or 3 days with only looser stool and possibly some D and random cramping and then back to normal again...cycle continues...would keep me in the category of the disease having active inflammation?

What would be needed further at this point to push me into full on remission? Should I get the flex sig to verify?

The weirdest part is that when my GI last did a flex sig (9/5/13) and it showed no inflammation, my symptoms at that time were unstable. How can this be?
Diagnosed November 2012, Left sided UC
4 Lialda
Enemas/suppositories
VSL#3 DS, multi vitamin, biotin, b-complex, vit d, l glutamine, psyllium
Tried: colazal, apriso, 6 mp
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