When do prednisone side effects stop?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Brian Legacy
Regular Member


Date Joined Mar 2012
Total Posts : 142
   Posted 3/16/2012 11:41 AM (GMT -7)   
Hey all,

Right now I am at 30MG prednisone and tapering down 5mg a week. When can I stop the side effects to stop? Last time they really slowed down around 20 and stopped around 15 but I was going up and down for around 7 months so it is a much different experience than it has been during this course on prednisone.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10590
   Posted 3/16/2012 12:24 PM (GMT -7)   
I think it's individual. I had mine until I was completely off prednisone and for months after finishing the course. I was on it for the greater part of the year. The longer you're on it, the longer the side effects hang around.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (2800mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4578
   Posted 3/16/2012 1:06 PM (GMT -7)   
my side effects are still here from being off it since mid november. i think it depends how severe your side effects were from it. mine were really bad so my body is still trying to adjust.
Joanna
22
current meds: remicade every 8 weeks- not working at all.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10590
   Posted 3/16/2012 2:53 PM (GMT -7)   
I am still not back to normal and I've been off for a LONG time. I think the last of the weight is here to stay :(
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: Asacol (2800mg) + 6mp (25mg) + Pristiq (50mg) + prilosec (40mg) +Canasa (1g PM) + cerazette

bootstrap
Veteran Member


Date Joined Nov 2009
Total Posts : 579
   Posted 3/16/2012 11:54 PM (GMT -7)   
My first round (June-August), many of the side-effects disappeared pretty quickly, with the moon-face taking the longest. My second round (September-December), I had even more side-effects than the first time, and they took longer to go... but each side-effect died out at a different time, which makes it an impossible question to answer. The irregular heartbeat went away when I got down to around 15mgs, but the acne stayed with me until a couple months after I was off my last dose, and then there was everything in between. My hair is just starting to grow back.

What was almost worse than the side-effects, though, was that after being on it for so long, when I got down to the really low doses and especially after I finished my last dose, I had really bad withdrawal symptoms, which were completely different effects altogehter: extremely lethargic, dizzy/light-headed, very shaky, and major hair-loss (about half the hair on my head).

After that last round, I swore to myself that I would never go back on it. Unfortunately, I don't seem to have a choice in the matter... I just started it up again for the third time this year, and I'm afraid of what will happen this time around.

Bottom line: Prednisone sucks, but you should expect to be clear of all the side-effects & withdrawals within two to three months after your last dose.
Dx mild/moderate ulcerative colitis 1995
Dx severe ulcerative pancolitis 2011

Currently flaring and taking:
Imuran (tapering on), Prednisone (40mgs), Asacol HD (4800mgs), Mesalamine Enema, MMJ.

Have tried:
Lialda, Endocort, Prednisone (dependent), Canasa, Cortico-foam, Probiotics, L-Glutamine, Licorice, other supplements, Specific Carbohydrate Diet, FODMAP Diet, other dietary changes.

aquafly79
Regular Member


Date Joined Aug 2007
Total Posts : 317
   Posted 3/17/2012 9:25 AM (GMT -7)   
Yeah, I remember my dr told me to expect the side effects to last at least half time I was on pred. Sadly, the way I lost the last of the pred weight(and more) was by getting sick enough again in January and February to warrant a hospital stay.

Prednisone, a necessary evil.

Hope you get off the rollercoaster soon, its a rough one.
Meredith

33 years old
Left side colitis/possible Crohn's colitis
Currently on Asacol, Cimzia
Imuran failed, can't take 6mp, Humira failed
Mesalamine enemas as needed
Vitamin D, VSL#3, fish oil, calcium, magnesium, multivitamin, slippery elm bark powder tea and turmeric
Diagnosed with many food intolerances including dairy, oats, lime, squash, etc.

bootstrap
Veteran Member


Date Joined Nov 2009
Total Posts : 579
   Posted 3/17/2012 11:04 AM (GMT -7)   
Haha, this thread inspired me to write a blog about it. Anyone who's interested in hearing my story (and successes) with UC, prednisone, and Imuran, check me out at ronnielee-fightingforit.blogspot.com.
Follow me: ronnielee-fightingforit.blogspot.com

Dx mild/moderate ulcerative colitis 1995
Dx severe ulcerative pancolitis 2011

Currently flaring and taking:
Imuran (tapering on), Prednisone (40mgs), Asacol HD (4800mgs), Mesalamine Enema, MMJ

Have tried:
Lialda, Endocort, Prednisone (dependent), Canasa, Cortico-foam, Probiotics, L-Glutamine, Licorice, supplements, SCD, FODMAP

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5533
   Posted 3/17/2012 2:16 PM (GMT -7)   
     Which side effect are you referring to?  I will forever have osteoporosis even though I hope I never have to take prednisone again since I had my colon and rectum removed in 2010.  I suffered with UP for twelve years and was on prednisone more often than not.  For the first two years, my GI doctor never explained the severe side effects of prednisone and failed to mention to take calcium while on it and I was several years post menopause.  Oh well, live and learn.  The moonface took a few months to leave.

ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 3/17/2012 2:58 PM (GMT -7)   
I agree with notsosicklygirl that pred's sides are very individual. Everyone's body chem is diff and therefore any chemicals you put in have diff reactions. As long as you don't have the 'betes or liver issues, sides should pass on its own.. or so says the docs. Well, that's not good enough for me, I want that crap out asap and I dont like it hangin around.

Here's the skinny on pred from my personal experiences: Pred is a precursor n isn't active until betahydroxyblahblah turns it into prednisolone (sp?) in the liver. So That's where I feel it needs the most attention. I posted something about milk thistle on a milk thistle post here last night and this is why I take milk thistle now. Mostly anyway. It targets the liver. Get the standardized stuff.

I hate pred and take it as rarely as poss so the day after my last pill I start getting pred out of me. 2 pills milkyT in am, pm and a gal of room temp distilled h20. Distilled bc it has low water memory and is devoid of blah blah and is great for stripping out toxins too. Often it will yellow out your urine like a b12 shot. normal.

Caution: I take x2 the dose of a liquid multi (yay more yellow pee) when doing this for a week or so bc you dont want to overstrip the good stuff. Also I drink pounds of raw carrots thru my juicer during flares and raw carrot juice has tons of the best Ca in it for osteoporosis help. That osteo mess is perm so I dont play around. I feel raw carrot juice is the best thing you can take during flares in conjunction with a liquid amino and coco oil. Just my opinion. Do your own research on it, or ask me, and you will be doing it too. I still drink it often but I'm lazier in this department when not flaring.

Peace and Love
35 yrs old, had this thing since 95 blah blah I hate it
in remission -I know what I'm doing, college grad, researcher, more blah blah
Been away for awhile and didn't die yet, now stronger faster bigger smarter
Coconut Oil, Tons of multi-strain Probiotic Yogurt, lactose n fatfree protein shakes, Metamucil, Hi Glycemic sugars, raw foods, AAKG, oysters, MCTs, wanna know more? just ask

rebeccak87
New Member


Date Joined Mar 2013
Total Posts : 7
   Posted 3/17/2013 6:47 PM (GMT -7)   
Hi all, I was just wondering the same thing. I was on prednisone roughly 40mg-20mg from August to December and my hair began falling out I think in December. It was very bad, over 90 strands just from brushing it alone. I have probably lost 1/4 of my hair. It's now been 3 months since my last dose of it and I am just wondering if anyone else has gone through this and when they think it may stop? I've also seen a dermatologist who thinks it is from the prednisone and said he thinks I am at the end of it, but, it's still happening, not as bad but still going on. I am also taking amitriptyline 25mg which I began in November. My big concern was if the amitriptyline is also partially causing the hair loss- however- I don't want to get off of it as it is the only thing that helps my migraines. If it doesn't stop soon though I will probably be forced to try to get off it. Every doc thinks its the prednisone, but wondering if anyone else can relate or has had any experience like this. Thank you.

journey2health
Veteran Member


Date Joined Oct 2009
Total Posts : 2696
   Posted 3/17/2013 8:50 PM (GMT -7)   
The worst side effect I had was "steroid psychosis" and it occurred well after I tapered.
Pancolitis since 8/09. In remission since 6/10 - Asacol 2400 mg. daily; Rowasa 2 nights a week, calcium supplements. No gluten, corn, soy, peanuts, alcohol, processed foods -- eggs, dairy and sugar, only if unavoidable and in tiny amounts. Can't kick caffeine. Bipolar/anxiety/depression: lamictal 75 mg Lexapro 7.5 mg.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2838
   Posted 3/18/2013 8:19 AM (GMT -7)   
My side effects, mostly appetite but apparently a short fuse too (according to my husband), stop at about 15 mg. But the moon face and facial fuzz take another month or two to go away.

Fortunately I have had no long term effects, despite using it as needed for more than 20 years. My bone density remains very good, but I also stay active which probably helps.
53 year old female attorney, diagnosed UC/pancolitis 1985.
Asacol for 20+ years with Prednisone & Rowasa for flares (But nothing since Remicade).
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some.
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow

rebeccak87
New Member


Date Joined Mar 2013
Total Posts : 7
   Posted 3/18/2013 8:31 AM (GMT -7)   
Did you have hair loss? If so how long did that take to stop?

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2838
   Posted 3/18/2013 8:35 AM (GMT -7)   
I have very thick hair, didn't notice any loss! I definitely grew some peachfuzz on my face.
53 year old female attorney, diagnosed UC/pancolitis 1985.
Asacol for 20+ years with Prednisone & Rowasa for flares (But nothing since Remicade).
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some.
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow

MNBeachgal
Veteran Member


Date Joined Jun 2008
Total Posts : 733
   Posted 3/18/2013 7:08 PM (GMT -7)   
I agree, its very individual. Also, I think it depends how long you were on the Pred.  Last year January when I started Pred, I was only on it about 2 1/2 months. The side effects, including moon face and any extra fat disappeared pretty quickly once I got down under 10mg.  Also the side effects weren't too bad except on the really high dose (above 20mg).  But I did start shedding hair back then and it never stopped until I had to go back on the Pred a month after being off (for me I lose almost no hair, barely a strand, when on 12.5mg or above of Pred. Below that it comes out like mad until its all out of my body). 
 
So this time, being back on Pred since last May (I was almost off in November though), the effects seem to be taking longer to go away. I'm also tapering very, very slowly right now so the effects of the taper don't see as severe this time.  The hair shedding is happening now but not as extreme when I have a faster taper. Although I'm just down to 10mg now so we'll see if it picks up. I hope not as its very thin already.
 
 
--------------------------------
UC - diagnosed 1994, in remission for 10 years, currently trying to get over a flare
Meds: Prednisone 10mg; Colazal 3 pills/3x day, 1 mesalamine enema a day, VSL #3 DS 1/2 packet/day, Align probiotic, Ultimate Flora 30 billion, iron, calcium, folic acid, L-lysine, Zyrtec, Yasmin, multi-vitamin, evening primrose oil, zinc
Tried Imuran but it affected my pancrea

PinkBible
Regular Member


Date Joined Jul 2009
Total Posts : 34
   Posted 3/21/2013 10:59 PM (GMT -7)   
I was on 40mg for about 5 months then did a slow taper (like 5mg every 2 weeks!). Things got better with the side effects at around 10mg, but that's also when my UC would start acting up again. I lost about half of the water weight and my face went down a tiny bit by the time I stopped, but it still took about 5 months (maybe 6?) for my facial swelling to go down but only a couple on months for the water weight to come off.

Good luck! It really sucks :-( I got engaged 2 days after I took my last dose but I still had the puffy face so pictures of me after the engagement are happy and sad at the same time.

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2806
   Posted 3/21/2013 11:57 PM (GMT -7)   
Well, they stop almost (obviously not jnstant,y since you have to taper pred for the adrenals to carry the slack again) right away the jnstant one switches to uceris because the latter drug more or less has the local colon benefit of 40 mg pred with the systemic effect of 5 or maybe 2.5 mg pred (whichs to say phsyiologic dose)- I say that because I am just eight days into uceris and it has had that sort of effect on symptoms while having zero nada zip effect on face, joints, insomnia etc. wish that drug was around years ago because it would have meant negligable impact from countless quick spurts for flares- however it still isnt technically a maintenance drug. i honestly think if they made it in smaller doses that it could for all practical purposes be, though.

The fact that uceris has no tapering regimen whatsoever and that one is allowed to go cold turkey to zero on it when done, says it all re. Just how non systemic itis, even if technically it has skme tiny systemic effect.

Post Edited (Probiotic) : 3/22/2013 12:03:14 AM (GMT-6)


NewGrandma
New Member


Date Joined Jun 2014
Total Posts : 1
   Posted 6/20/2014 6:06 AM (GMT -7)   
I have read many of the posts concerning side effects while weaning off of Prednisone. The one I have copied below is the only one that mentions the side effects I have been experiencing. I was on Prednisone for approx. 4 weeks (the dose was increased twice) and just took my last pill three days ago. I am still feeling "waves" of dizziness/light-head, numbness in my arms and legs, and occasionally notice that my eyesight isn't as clear. Is this normal? How long should I expect this to continue? Will these symptoms go away?

Response to "bigalial" from 2011:

I was taking Prednisone 10mg for an unknown sudden severe allergic reaction that I had. Possibly iodine poison from seafood although never been allergic to seafood. Anyhow, my dosage instructions were as followed: 3 tablets 2x/day- 2 days, 2 tablets 2x/day- 3 days, 2 tablets twice/day 3 days, 1 tablet /day- 3 days. I ended up back in the ER twice due to the prednisone. I experienced almost every side-effect there is. I loss feeling in my arms and legs last thurs 2/24/10 while at work, couldn't walk, couldn't feel my tongue and had to be taken away by ambulance. The headaches are like no other. I have to take 3 exedrine extra strength and acid reflux, upset stomach, weight gain, slow movement, blurred vision everything has dam near weakened me. I can't sleep and I experience lightheadedness. The blurred vision is really scary. I had to stop taking the medicine before the last 3 days. Too many effects on me. I wasn't able to use the bathroom for about 5 days.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 18, 2014 12:14 PM (GMT -7)
There are a total of 2,298,893 posts in 255,273 threads.
View Active Threads


Who's Online
This forum has 159734 registered members. Please welcome our newest member, anxietyandpanicsucks.
349 Guest(s), 20 Registered Member(s) are currently online.  Details
ShutterGy, jpjr50, Katebirch, MissGigi, pictureofhealth, Inchoation, timcebu, pb4, sdodson, Pirouette, Daesin, opugirl, Griffygill, Eph, Todd1963, ISU-CycloneFan, happyagain, Traveler, Amanda_Leigh09, sharron19


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer