Off Prednisone - Now what, weight loss.

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Brian Legacy
Regular Member


Date Joined Mar 2012
Total Posts : 142
   Posted 4/29/2012 4:38 PM (GMT -6)   
Friday was my last day taking 5MG. I am now off prednisnoe. yeah

When I started on 2/27 I weighed 172 pounds, today I weighed 193 pounds. What can I do to lose this weight, how long can I expect for it to take to come off?
VSL3 DS - 3X a day
6MP - 25MG
Court Enema - 1X a day.
Allopurinol- 100MG
LDN - 4.5MG (Started on 3/23/12)
Fish Oil 3X a day
Liquid Multivitamin
Prilosec
Ambien 5mg per night.
Prednisone 5MG Daily - Tapering 2.5MG every 3 days (Tapered down to 5 on 4/19/12)

fredflats
Regular Member


Date Joined Mar 2012
Total Posts : 34
   Posted 4/29/2012 5:13 PM (GMT -6)   
Congrats and hope you're feeling better. I don't think there's any magic to losing weight, you said before that you work out and I assume you eat healthy. You may not have to do anything new, just have patience and your body will return to its previous equilibrium. Prednisone has a drastic effect on metabolism, so just eliminating it makes a huge difference,probably much bigger than anything else you could try.

That said, I do use coming off prednisone as an extra incentive to work out/eat healthy. For me it's just part of being thankful about my return to general healthiness overall. Extended steroid free remission is quite elusive to many people here.

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4492
   Posted 4/29/2012 5:58 PM (GMT -6)   
Brian Legacy, do you work out and eat healthy? Weight doesn't just magically come on and off unfortunately. Even if a medication is causing you to eat more, it is not the actual prednisone that is making you gain (fat) weight. Cutting calories or eating bigger volumes of low calorie foods will help you lose the unwated pounds. You will probably lose some water weight because prednisone definitely increases water storage and I'd definitely do some yoga and body massage to get your limbs moving again so they don't get achy. You may also want to consider dry skin brushing every morning. This helps cleanse your lymphatic system and loosen up any fat deposits you may have.
Joanna, 22
no meds. doing fecal transplant soon.
i'm taking- earth powder, probiotics, vit d, marshmallow root
tried- canasa, pred, 6mp, remicade, rowasa, lialda, cortico enemas, l-glutamine, vit e enema, VSL enema, aloe vera, NAG, prilosec, zofran, psyllium
diet- no meat, dairy, eggs, gluten. include-fresh juices, fruits, veggies, greens, grains, soy, beans, nuts/seeds

Brian Legacy
Regular Member


Date Joined Mar 2012
Total Posts : 142
   Posted 4/29/2012 6:52 PM (GMT -6)   
fredflats said...
Congrats and hope you're feeling better. I don't think there's any magic to losing weight, you said before that you work out and I assume you eat healthy. You may not have to do anything new, just have patience and your body will return to its previous equilibrium. Prednisone has a drastic effect on metabolism, so just eliminating it makes a huge difference,probably much bigger than anything else you could try.

That said, I do use coming off prednisone as an extra incentive to work out/eat healthy. For me it's just part of being thankful about my return to general healthiness overall. Extended steroid free remission is quite elusive to many people here.


This is the most I have ever weighed and combined with coming off the prednisone I find myself very depressed however the bright side is I am infact off the prednisone. I do eat somewhat healthy and I do infact workout however not nearly as much as I would like - Last year when I came off the predinsone the weight fell off over the course of a few months with very minimal effort on my behalf.
VSL3 DS - 3X a day
6MP - 25MG
Court Enema - 1X a day.
Allopurinol- 100MG
LDN - 4.5MG (Started on 3/23/12)
Fish Oil 3X a day
Liquid Multivitamin
Prilosec
Ambien 5mg per night.
Prednisone 0MG Daily (Off 4/27/2012, 2 months from 40mg to 0mg)

Brian Legacy
Regular Member


Date Joined Mar 2012
Total Posts : 142
   Posted 4/29/2012 6:56 PM (GMT -6)   
bananagirl said...
Brian Legacy, do you work out and eat healthy? Weight doesn't just magically come on and off unfortunately. Even if a medication is causing you to eat more, it is not the actual prednisone that is making you gain (fat) weight. Cutting calories or eating bigger volumes of low calorie foods will help you lose the unwated pounds. You will probably lose some water weight because prednisone definitely increases water storage and I'd definitely do some yoga and body massage to get your limbs moving again so they don't get achy. You may also want to consider dry skin brushing every morning. This helps cleanse your lymphatic system and loosen up any fat deposits you may have.


Some of this information is in my previous post... My doctor assured me that the weight will fall off with minimal effort on my behalf within a few months however I always thought a majority of the weight gained is water, especially considering how short of a run I had on prednisone (2 months) that most of it should come off quickly.
VSL3 DS - 3X a day
6MP - 25MG
Court Enema - 1X a day.
Allopurinol- 100MG
LDN - 4.5MG (Started on 3/23/12)
Fish Oil 3X a day
Liquid Multivitamin
Prilosec
Ambien 5mg per night.
Prednisone 0MG Daily (Off 4/27/2012, 2 months from 40mg to 0mg)

ManhattanMama
Regular Member


Date Joined Jan 2012
Total Posts : 450
   Posted 4/29/2012 7:08 PM (GMT -6)   
Congrats on getting off the pred! Hope remission is long and lasting :)
Dx with Pancolitis in May 2005, Severe Proctitis Jan 2012
Maintenance Plan: 2 Colazal three times a day
Vitamin C, Probiotic, Multivitamin, Fish Oil, Folic Acid
Treatment during Flare-Up : Cortifoam, Mesalamine Enemas & Prednisone (40mg & taper) increase Probiotics
Other Supplements: L-Glutamine with almond milk, Peppermint Tea & honey with Chia Seeds
Mother of 2

fredflats
Regular Member


Date Joined Mar 2012
Total Posts : 34
   Posted 4/30/2012 1:34 AM (GMT -6)   
Brian Legacy said...

This is the most I have ever weighed and combined with coming off the prednisone I find myself very depressed however the bright side is I am infact off the prednisone. I do eat somewhat healthy and I do infact workout however not nearly as much as I would like - Last year when I came off the predinsone the weight fell off over the course of a few months with very minimal effort on my behalf.


Hang in there man. My second round of pred was about a year after my first and it sucked to go through it all again. But then I was in complete remission for almost 3 years, and got in great shape in the meantime. And now just finished my third round and am feeling weak and flabby again. But by now I am pretty confident that I can get back to where I want to be (even if I won't look like Arnold Schwarzenegger). This thing keeps kicking you down, and it's extremely frustrating, but you gain confidence every time you get back up. If the day comes when I feel like I can't "get back up", then I'll opt for surgery.

N.b. I actually gained less weight this time, and had fewer side effects in general, than during the previous courses. But I am not sure if that was a blessing or a curse, since the drug just seemed less effective overall and I'm not sure how durable this remission will be. If I end up back on pred in 6 months, then it clearly will be a worse outcome than gaining 20 pounds (heck...40 pounds, maybe even 60!) but attaining a remission that lasts 3+ years.

And yeah it sucks in the meantime to feel less attractive than you're used to feeling, but we're still far from obese. And someone who is obsessed with a perfect body is probably not the right mate for me, since my body is clearly far from perfect, even if it's not obvious on the outside.

Also, prednisone effects catabolism, plus many other biological processes, so significantly that I would not be surprised if a person who managed to eat exactly the same diet and get the same amount of exercise would not gain (or maybe even drop?) weight during a course of the drug. I can think of a lot of variables, so I am not sure that the standard "food intake minus calories burned" principle is not violated in this case. So the point is I think you may find that a lot of the weight will come off without trying really, since your body is just finding its previous equilibrium.

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4492
   Posted 4/30/2012 11:15 AM (GMT -6)   
brian, your weight could be water storage but i don't think it's too likely if you are already off of it. when i was on prednisone last year, i started at 40 mg and gained 40 lbs in two days. i stayed at 40 mg for 2 weeks and as soon as i dropped to 35 mg, i lost 40 lbs again in 2 days. it was insane but that's because it was all the water being stored in my tissues. the rest of my prednisone experience i had a little muscle gain from lifting weights but that was it.
Joanna, 22
no meds. doing fecal transplant soon.
i'm taking- earth powder, probiotics, vit d, marshmallow root
tried- canasa, pred, 6mp, remicade, rowasa, lialda, cortico enemas, l-glutamine, vit e enema, VSL enema, aloe vera, NAG, prilosec, zofran, psyllium
diet- no meat, dairy, eggs, gluten. include-fresh juices, fruits, veggies, greens, grains, soy, beans, nuts/seeds
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