Anyone with UC and heart palpitations/problems?

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ucinmtl
New Member


Date Joined Apr 2012
Total Posts : 15
   Posted 5/18/2012 10:52 PM (GMT -7)   
I just woke up from a racing heart, and thought I would ask the question: does anyone else with UC also have any heart problems?

I only started having heart issues 4 months after being diagnosed with UC. I get a racing heart beat and palpitations and often this is accompanied with skipped beats too. My cardiologist has diagnosed me with SVT, super ventricular tachycardia.

The episodes really scare me, and I often feel like I'm going to die, but I know I won't. Just one more problem on top of ulcerative colitis. Wondered if others experienced this too...

quincy
Elite Member


Date Joined May 2003
Total Posts : 25832
   Posted 5/18/2012 11:18 PM (GMT -7)   
Wow, that would be very scary. I do sometimes have an irregular heartbeat where it feels like it thumps hard and skips a few beats, but the only thing I seem to have is a mild heart murmur.

I wouldn't say this is related to UC, but it doesn't mean that one can't have other issues with having UC as well.

What medications are you on?

Are there any familial issues with heart?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5521
   Posted 5/19/2012 1:13 PM (GMT -7)   
     I had a lot of that during the time I went through the change at age 44.  My family doctor told me it was hormonal imbalance.  I didn't develop UP until I was 52 and past the change.  I did have palpitations from prednisone though.

pmedic
Veteran Member


Date Joined Nov 2009
Total Posts : 1459
   Posted 5/19/2012 2:34 PM (GMT -7)   
I have the same problems with SVT and PVC's. These were actually early symptoms of my disease before I was diagnosed with UC first then Crohns later. I go into SVT when I take certain medications and when I am very sick during a flare. My cardiologist originally had me on Metropolol but since I didnt need it all the time, I only take it in times of need. I hate SVT and get very nervous when it happens because I am a Paramedic and know that the first line drug that is used for SVT is a drug I am allergic to. It will make my heart rate triple so if I go into SVT and someone gives me the "medication of choice," Adenosine, it will kill me. I have to carry my long list of allergies everywhere I go, just in case :)

Take care!
Dx:Ulcerative Colitis March 2008
Dx: Crohns May 2008
Avascular necrosis bilateral knees from Prednisone. Surgery on left knee was Oct 2011,
No colon surgeries yet but I am desperately trying to keep my colon.
8 blood transfusions, SVT due to low H&H, Anxiety during new medication injections due to past reactions.
Currently on Lialda, Ambien, xanax(prn) D3, probiotic, Rowasa, B12, fish oi

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18102
   Posted 5/19/2012 3:30 PM (GMT -7)   
I have heart palpatations...since I was in my 20's (hahaha, man my 20's really sucked!). My GP told me that everyone gets them but a small percentage actually notice the effects of it when it happens....for me; heart beats super fast, you can see my chest moving up and down quickly and very noticably, I get a pain in my neck that goes up into the back of my head, feel weak, and hard to catch my breath...he told me he could give me meds for it, but I learned to take control of it by taking in really deep breaths and letting them our really slowly...works like a charm and all the symptoms disappear quickly.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

tinyfrog
New Member


Date Joined Feb 2013
Total Posts : 11
   Posted 2/15/2013 9:46 PM (GMT -7)   
Hi Im new here. I was diagnosed with UC last month after struggling with c-diff for 4 months. Having c-diff for so long was what caused the UC. They did more lab tests to test for Crohn's but the tests came back non-definitive, which they said meant it may develop into Crohn's later but for now they are going with ulcerative colitis. I stumbled across this forum when looking up heart palpitations & UC. Doctors have given all kinds of vague guesses as reasons for my heart palpitations but nobody thinks its related to this, even though I never had any heart problems before all this other stuff started. I've had at least 2 ekgs but it never happens when Im there of course. There is way more to this story but mostly I just wanted to say thank you for posting this because in some round-about way it gives me hope.

jse
Regular Member


Date Joined Sep 2009
Total Posts : 200
   Posted 2/15/2013 10:13 PM (GMT -7)   
I suffer with palpitations and have since my early 20's.
Have had multiple tests and it's the same thing you have.
Cardio Dr. told me to drink a lot of water when it happens frequently and cough! Really hard! Not sure what that does, but it works!!
Female/Diagnosed with mild distal UC/30cm up in May 2009

Canasa - 1 suppository a day (2 when flaring)
Asacol - 4 tabs 2x day
Prednisone - Started taper at 40mg in early September, down to 20mg
Probiotic - Renew Live Critical Care - 50 billions
Diet - Gluten Free, Sugar Free and Dairy Free - basically a root veggie, sour fruit, and meat diet.

tap
Regular Member


Date Joined May 2008
Total Posts : 472
   Posted 2/16/2013 7:54 AM (GMT -7)   
I don't recall having a racing heartbeat but my GI had noticed an irregular heart beat on more than one occasion.

Since the beginning of the year I have determined that both almonds and Brazil nuts cause me both skipped and premature heart beats with the almonds being much more intense (3 skipped and 1 premature heart beat per minute). I have eliminated both from my diet and now my heart cruises along merrily with a nice constant beat. I was having one Brazil nut a day for the selenium and that was sufficient to cause an irregular heartbeat throughout the day. I was using almonds on my spinach salad and having almond flour muffins for breakfast before I stopped eating them.
47 - male - Diagnosed with pancolitis in 1998
Status: 1 stool a day
Vitamin D3 - 10000 IU three times per week (Status: 65 ng/ML);
Asacol - 2 400mg pills 3 times per day

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 22154
   Posted 2/16/2013 7:59 AM (GMT -7)   
I have a mild MVP and when I flare, sometimes it feels like my heart is going to flutter right out of my chest. It scares me on occasion. I've had holtor monitors and a stress test/tilt table test. The mild MVP barely registers on the testing but my heart skips beats or has an extra one here or there. I find it gets worse when I become dehydrated or if I become anemic.
SHERRY
Moderator-Allergies/Asthma, Alzheimer's, IBS, Co-moderator-UC
Diagnosed Left sided UC '92 - meds: Colazal, Remicade (6mp discontinued due to neuropathy)*Unable to tolerate ALL mesalamines*, IBS, Diverticuliar Disease, Fibro, Sacroiilitis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

sore_guts
Regular Member


Date Joined Jun 2007
Total Posts : 185
   Posted 2/17/2013 6:00 PM (GMT -7)   
irregular heart beat started for me a few years before I was diagnosed with UC, but I was also anemic at the time so I think the UC was just not manifesting yet.  I have since been diagnosed with a benign heart murmur.  I notice that when I flare is when I really feel it the most.  Sometime I wonder if my heart will stop beating because it gets fast, then slow hard beats.  It can be really scary at times.  I believe my flares are brought on by low magnesuim levels in my body.  When I eat a lot of high magnesuim food my flares dissipate along with the heart irregulaties.   

tinyfrog
New Member


Date Joined Feb 2013
Total Posts : 11
   Posted 2/24/2013 6:56 AM (GMT -7)   
Ironically I was told a couple days ago that maybe I have a sensitivity to magnesium. I used to eat a lot of chocolate before I got sick, and I mean really a lot, way too much for anyone. After 3-4 months of not being able to eat it at all, the addiction slowly crept back in although not nearly as much. Ive been really careful to not over do it but maybe my body just cant handle it anymore. In doing a bit of research on foods/drinks with magnesium, Im really hoping Im wrong because it seems like magnesium is in everything, just sometimes hidden under different names.

garylouisville
Veteran Member


Date Joined Aug 2012
Total Posts : 6988
   Posted 2/24/2013 11:36 AM (GMT -7)   
I also wonder what meds you might have been on.
Asacol 400mgs 2 pillsX3; VSL#3 112.5mgs 1 pillX3; Vitamin D3 5000 ius 1 pillX2;Bentyl & Swanson DAO with meals;black cherry concentrate

Discontinued: Robinul; Natural - peppermint oil, Inflaguard (Boswellia), Pepto Bismol, Omega 3 fish oil, Imodium, Beano, Zymactive, Renew Life Probiotic 80 billion, Florastor, DGL, Monolaurin, slippery elm

tinyfrog
New Member


Date Joined Feb 2013
Total Posts : 11
   Posted 3/25/2013 8:05 PM (GMT -7)   
After a 24 hour echo and several other tests they now say I have PVC's. Premature ventriculat contractions. I basically have a couple extra partial heartbeats several times a day. Some people have PVC's and cant even feel them but some people can. The Dr said it is probably unrelated to my UC. Just odd timing. They gave me a choice of meds for my heart or waiting 6 months to see if it gets better on its own with a few diet changes. I chose to wait since they said PVC wont kill you, you just feel like you're dying when it happens.

My Lialda got changed to Asacol 800mg 5x per day. Its taken until this week but I think the UC is finally slowing down. (Hopefully going into remission bit I dont want to jinx myself lol). Still not great but its about cut in half from how bad its been for so long.
Sept. 6, 2012 - Brain surgery - removal of colloid cyst of 3rd ventricle causing hydrocephalus
Sept. 26, 2012 - Hospitalized for C.Diff. w/ sepsis
January 2013 - diagnosed w/ Ulcerative Colitis
Meds: asacol, aplenzin, xanax
Recently Discontinued Meds: Lialda

Old Mike
Veteran Member


Date Joined Jan 2007
Total Posts : 2715
   Posted 3/25/2013 10:13 PM (GMT -7)   
Back in 2000 I had some PVC's went to ER,they said no problem go home.
Had a few since then but they went away. You sure can feel them.
Old Mike

skyej70
New Member


Date Joined Jul 2014
Total Posts : 10
   Posted 7/27/2014 7:49 PM (GMT -7)   
Did you notice if the beats came after you started taking the meds for your condition? I have always had extra beats being a woman and caffeine but the meds made them constant and lasted for a week even after I stopped the meds! Dr doesnt believe me...I know its the mesalmine.

Sicktree
Regular Member


Date Joined Jul 2007
Total Posts : 82
   Posted 7/28/2014 11:53 AM (GMT -7)   
I've been experiencing irregular heart beats and racing heart the last several years, but I couldn't tell if it was related to UC or the various meds I'm on. The last several months I've had a lot of problems with this, but I think it's related to Welbutrin (which I take to help my UC, in addition to my mental health).
Diagnosed with left-sided UC in 2006
35 years old
No alcohol, coffee, dairy, fried foods, artificial sweeteners
On Balsalazide 9 pills/day, probiotics, iron, fish oil, zinc. Was able to control UC through diet and supplements before I had my baby in 2009
Have taken TSO (as part of a clinical trial. Loved it), Rowasa (Allergic. Made me insanely sick) prednisone (hated it, obviously)

skyej70
New Member


Date Joined Jul 2014
Total Posts : 10
   Posted 7/28/2014 12:03 PM (GMT -7)   
Sounds like me u bet its the uc meds...go off for a couple of weeks ..if you can? I use immodium of all things when trying this..and see what happpens..it can take a couple of weeks to leave your system. I just tried lialda this morning. ..was fine until one pm and they happened again:( this is my fourth time eliminating mesalmine and then adding it back im always fine until I add it back. I believe your med is in the same family as mesalmine? So many men accuse us women of having anxiety. ..I know for sure now its not in my mind
Readybto switch to female dr...and if you didnt have them before I doubt its havingbcolitis itself causing the beats. I had NONE until the meds! Let me know how u make out
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