My update on using clay for UC -PART II

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lookforcure
Veteran Member


Date Joined Apr 2012
Total Posts : 513
   Posted 10/3/2013 7:59 AM (GMT -6)   
Sarav84,
yes,
pancolitis, especially severe should response faster to Living clay to stop the diarrhea. He could switch to Pascalite later for maintenance. Right now it is important to get control over the symptoms and calm the body down, decrease the inflammation as fast as possible.
For you, I think, Pascalite is more fitting since you do not have much of inflammation or bleeding. You can take it for a long time without fear of constipation. Basically Living clay is for an emergency, to get fast result and take it for a limited time to get control over the situation. This is from my experience.

UC-Wife
Regular Member


Date Joined Jul 2011
Total Posts : 23
   Posted 10/3/2013 10:47 PM (GMT -6)   
Ok, he seems more open to CCherbal than the clay, so I'll see if he will start with that once it arrives.

For years now, he typically has between 10-15 bathroom trips a day, with no visable blood, but with loose stool and lots of urgency. He's tried strict diets and has given up on them but I do agree that it plays a huge role, and I know he realizes that too. Since he's been dealing with this for so long I think he feels he might as well eat what he likes. I will try to see if he be willing to try it again even for a few weeks, just to see.

Thanks so much for your help. It's so nice to know that there are people who care and share their experiences and knowledge to help others. I really appreciate it.
Hubby has UC Since 2002 and in a constant flare for 9 years with severe pancolitis. Tried all meds 5ASAs, Imuran, Remicade. Bad reaction to Imuran and Remicade. Currently on Probiotics and colostrum.

lookforcure
Veteran Member


Date Joined Apr 2012
Total Posts : 513
   Posted 10/4/2013 9:08 AM (GMT -6)   
Hello UC-Wife,
it is good that he is open at least to CCHerbal. No blood is a very good news, it means his pancolitis is not severe, it is more irritated than ulcerated. When I was diagnosed with UC 7+ years ago I had a little more than 1/3 of my colon ulcerated and the rest had some irritation and dark spots (I have the copy of my colonoscopy). I was running to the bathroom day and night, could not leave the house, was in constant pain, horrible cramps and so much blood that I was afraid I could die just from the blood lost.... Believe me, I do understand his frustration. I tried many different supplements, about 15 different probiotics, a few diets (from SCD to a very strict vegan). I could not take drugs because of the bad reactions to 3 of them I just gave up on the drugs all together, especially because the doctor said they will just "maintain my symptoms under control" and not cure me.
I want to get rid off this horrible disease and forget about it like a bad nightmare.
I have started on the Chinese formula Ban Xia Xie Xin Tang (Sun Ten brand), made of 7 herbs, one of them the same as CCHerbal.
Ban Xia Xie Xin Tang formula was mentioned in the research I have posted before. I will take it slowly and see how I am doing. I still taking Pascalite clay and some probiotics. I still have some bleeding and dull pain after BM, so there is some inflammation in my colon and some food makes me nauseous. What is interesting this formula should be taking with a glass of Warm water in between the meals. I think it is more proper way to take it. I think it is better not to take it with anything else, even probiotics. Give it 1 hour, than he can take probiotics and colostrum together because they work together.
As for the Living clay, I think it is good if you and your husband listen to some of the teleseminars about Living clay. It is free and the lady who wrote a book about this clay answering questions and gives a lot od useful info about this clay and in general about how healing clays work in the body and how they can help the body to heal itself. You can ask her a question too or even call her. You can also call the Living clay company and ask them questions. By the way in Texas Living clay brand is sold in majority Whole Food stores. This how safe and well known this clay is.
Here is the link to teleseminars:
http://www.aboutclay.com/clay_info.htm#audio

spoonclay
New Member


Date Joined Oct 2013
Total Posts : 5
   Posted 10/6/2013 6:24 PM (GMT -6)   
Hello lookforcure. I have enjoyed reading your posts particularly as it relates to clay. In fact I'm going to try some pascalite. The one thing that I am curious about is why you dropped terramin from your arsenal especially since you were so high on it early on. That is the only clay that I have used. Also please know that fortunately I do not have uc as far as I know. My trouble is with yeast and believe me it is trouble.

spoonclay
New Member


Date Joined Oct 2013
Total Posts : 5
   Posted 10/6/2013 6:48 PM (GMT -6)   
Pascalite is no longer for sale for internal use.

TheAnswersYouSeek
Veteran Member


Date Joined Jan 2013
Total Posts : 2543
   Posted 10/6/2013 6:55 PM (GMT -6)   
Lookforthecure, I think you should attack the fungus/bacteria too and you might get better results. I'm currently debating between zeolite and activated charcoal.. So I do think you are on to something with this.

spoonclay
New Member


Date Joined Oct 2013
Total Posts : 5
   Posted 10/6/2013 8:28 PM (GMT -6)   
I was looking for source to buy pascalite and came across fda recall back in March 2013 for excessive lead in product. This may be why it is now only sold for external use. I hope not to scare anybody here but you should know the facts.

sarav84
Regular Member


Date Joined May 2013
Total Posts : 186
   Posted 10/7/2013 5:00 AM (GMT -6)   
Oh my God. Spoonclay, you are correct.
http://www.food.gov.uk/news-updates/news/2013/mar/pascalite-powder#.UlKTiFCviOU

I thought clay is the hope for me, sounds like I may have to stop? I don't know.

@lookforcure, what are your thoughts on the excessive lead?
Dx Proctosigmoiditis in Oct'12 - Predmet 24/16/8/4mg, Balacol 2250mg, Folvite, Livogen
Dx Sigmoiditis and mild inflammation in the Cecum in May'13 - Prednisolone 40mg/35/30/20/15/10/5, Mesalamine(Pentasa) 4g. Prednisolone ended on 17th Jul.
IBS
Current medication -
Pentasa 4g,
Salofalk rectal enema 4g(nightly),
Mutaflor Probiotics (Morning and Night)
Metamucil

Post Edited (sarav84) : 10/7/2013 5:23:27 AM (GMT-6)


spoonclay
New Member


Date Joined Oct 2013
Total Posts : 5
   Posted 10/7/2013 5:58 AM (GMT -6)   
Sarav, I sincerely hope that you don't take this as a condemnation against clay. Pascalite maybe but not all clay. need to look into that uk news release further and certainly the details. There are product recalls across the board every day on one thing or another. I took my clay this morning already without hesitation. Let's see what lookforcure has to say.

lookforcure
Veteran Member


Date Joined Apr 2012
Total Posts : 513
   Posted 10/7/2013 10:03 AM (GMT -6)   
Hello everybody,
like everybody here I am concerned about lead in Pascalite. I am waiting from the company to call me back. I have done some  reading on this subject. Here is original FDA site:
 Important factors:
1)it is "Voluntary: Firm Initiated" tests
2)only some lots/batches are  recalled
For Pascalite powder "Lot numbers imprinted or hand written include: 2010M; and D10 through 12 with a noted OT,U,V, or W. The code information is found on the bottom of the product."
I have A13 written on the bottom of the bottle. I had 6 bottles, now 2,5 bottles left, 16oz each.
I am still worried somewhat and definitely will investigate this issue for my own peace of mind.
I still think it is a very good clay and since I am one of very the few people (at least on this forum), who used 5 different clays and can compare them, how effective each of them are and how they work for colitis specifically.
Terramin clay is a very good clay also but specifically for colitis, at least for me, I think Pascalite is more effective. Living clay is even stronger, especially for a severe diarrhea. Another good clay is French Green Illite clay.  One thing everybody need to understand, we are all different and have some other factors and health issues accompanying our colitis. It could be infections, yeast/fungus overgrowth, low immune system caused by other diseases or steroids/immunosuppressant drugs, mineral/vitamin deficiency.... All of these will effect the result of using clay and which clay will work better. Just as different drugs work better for different people, different diets are better for some and not others, different herbal supplements effect differently everybody, just as clays will give different results....
As for the clay or activated charcoal for yeast/fungus.
Yes, it will work very well.  I have used both. I would not use Zeolite though, it is the most processed, heated clay from all and the least effective. At least according to what I have read about it.
Please, do more research on this subject.
The best activated charcoal is from coconut shell for removing toxins/fungus. At one point I mixed 1 teaspoon of Pascalite with 1 teaspoon of activated charcoal powder with 16oz of water, let it settle and drank this clay-charcoal water during the day. It made me feel better, since I was in a bad flair at that time.
 
As soon as I hear from Pascalite company I will post the result  of my conversation.

sarav84
Regular Member


Date Joined May 2013
Total Posts : 186
   Posted 10/7/2013 10:56 AM (GMT -6)   
Hi lookforcure,

Appreciate your post.
Please share the information when you hear from the Pascalite company.

I have the code H13 written on the bottom of the bottle.
Any idea, what does this code signify?
Dx Proctosigmoiditis in Oct'12 - Predmet 24/16/8/4mg, Balacol 2250mg, Folvite, Livogen
Dx Sigmoiditis and mild inflammation in the Cecum in May'13 - Prednisolone 40mg/35/30/20/15/10/5, Mesalamine(Pentasa) 4g. Prednisolone ended on 17th Jul.
IBS
Current medication -
Pentasa 4g,
Salofalk rectal enema 4g(nightly),
Mutaflor Probiotics (Morning and Night)
Metamucil

lookforcure
Veteran Member


Date Joined Apr 2012
Total Posts : 513
   Posted 10/7/2013 2:00 PM (GMT -6)   
Update on Pascalite.
I have talked to the lady in Pascalite company and asked her about the lead in the clay and FDA. She said that FDA did a test on the small sample of Pascalite clay in March 2013 and said that there is lead in it that acceded the allowed levels but never provided the actual number of how much lead is in it. The Pascalite company recalled voluntarily the batch of the clay powder and clay products that was claimed to have higher lead in it. The lady said that Pascalite clay is a small company and could not fight FDA and do the testing of every single batch of clay, so they decided to change their marketing of the clay and suggest it only for external use. BUT. She also have said that in 50+ years of this company existence nobody ever got poisoned or sick from Pascalite clay or from lead in it and only have positive results.
Even according to the FDA site some Pascalite clay products (mentioning only some lot #) " MAY contain violative levels of lead." without saying actual number of the lead in it and what is allowed level is.
EPA's action level for lead in water delivered to users of public drinking water systems is 15 µg/L.
Also, the way clay works in the body, it does not release the minerals into the body but actually absorbs the toxins, viruses, parasites, fungus and heavy metals like lead, antimony, arsenic, bi****h, cadmium, cerium, chromium, cobalt, copper, gallium, gold, iron, manganese, mercury, nickel, platinum, silver, tellurium, thallium, tin, uranium, vanadium, and zinc.
Read this:
http://www.naturalnews.com/025854_clay_body_detox.html

I have my own opinion about FDA, since this guys blocked the sell of probiotic Mutaflor in the USA (the best one for colitis and IBS) for no reason. After my a little investigation and my personal usage of Pascalite clay for more than 1 year, it looks like a "witch hunt" to me than a legitimate problem with Pascalite clay. Pascalite company is a very small, family run company, they just can not fight a big FDA. I have read the testiomonials that Pascalite company sent to me with my first order, I was very much impressed. A few pages of internal use of Pascalite clay, many for IBS, a few colitis and Crohn's, a lot of food poisonings and dysentery form the trips abroad to Mexico, India..... If it is so bad clay, that is packed with lead, how in the world it can be so healing at the same time?!
You can make you own decision whether or not use this clay internally, I will continue to use it internally. Use you own judgment.

sarav84
Regular Member


Date Joined May 2013
Total Posts : 186
   Posted 10/7/2013 2:32 PM (GMT -6)   
Hi lookforcure,

Thank you so much for sharing.
I'm a kind of taking a breathe now... I'm so disappointed with the politics the FDA is playing.
But one question - Will Pascalite company be able to provide the mineral contents the clay has got and the %Daily value?
This will definitely help in understanding better. Nevertheless by reading all the articles I should stay on the positive side.
Dx Proctosigmoiditis in Oct'12 - Predmet 24/16/8/4mg, Balacol 2250mg, Folvite, Livogen
Dx Sigmoiditis and mild inflammation in the Cecum in May'13 - Prednisolone 40mg/35/30/20/15/10/5, Mesalamine(Pentasa) 4g. Prednisolone ended on 17th Jul.
IBS
Current medication -
Pentasa 4g,
Salofalk rectal enema 4g(nightly),
Mutaflor Probiotics (Morning and Night)
Metamucil

lookforcure
Veteran Member


Date Joined Apr 2012
Total Posts : 513
   Posted 10/7/2013 3:29 PM (GMT -6)   
Sarav84,
remember that Pascalite clay is located at elevation of 9,000 feet above sea level in the underground shaft away from any civilization, so it is a very clean clay. I have visited Wyoming a few years ago. It is a very big state with very few people. This state has one of the cleanest air and water in the country according to the EPA. Whatever Pascalite clay has in it, is natural and not a result of the pollution and it was used by many people during a very long time.
Here is very important information about Pascalite clay:
 
Check these sites also:
 
For those who are too worried about taking Pascalite clay internally, you need to know that this clay is very effective for skin problems, any insect bites like bees and yellow jackets ( I personllay used Pascalite for it. Just put some "clay paste" on the bite site and put a bandaid over it, (pain is gone in a few minutes and 30-40min later no sign of the sting), for burns and cuts, clay will heal without a scar (just make some paste of the clay with water and re-apply a few times per day), face masks ( will lighten the dark spots)....
And for internal use you can choose between Terramin, Living clay or French Green Illite clay (marine clay), if you do not want Pascalite.
Redmond clay I am not quite sure if I like it for UC or not. Still have some left and maybe I will retry it later.
Like I have said before I have used Pascalite, Terramin, Living clay, French Green Illite, Redmond and 1 more off brand from local health food store (it looked and acted similar to Teramin clay).
I still think for me, for my body and my ulcerative colitis, Pascalite was the most gentle (no extreme from diarrhea  to constipation), most soothing and most healing for the colon.
French Green Illite clay would be right after Pascalite and for some things like a topical infection it is even better. My mother have said it is the best for very inflamed and painful gums. Also, French Green clay is extensively used in the  Horse industry for very severe injuries and infections for internal and topical applications. In Europe French Green clay is very well known for its healing properties.
Terramin clay is the best for people who have mineral deficiencies, bone/joint problems and arthritis. I would take this clay even if I did not have any health issues, just as the health supporting and disease preventive supplement.

spoonclay
New Member


Date Joined Oct 2013
Total Posts : 5
   Posted 10/9/2013 7:28 AM (GMT -6)   
Big difference btwn man made substances and naturally occurring in clay. I can tell you of my own experience with iron. Man made supplements with 15 or 20 mg of iron bind me up and I don't take them. Terramin has 118 mg of iron per tsp and has no negative effect on me whatsoever. I have just increased dosage for couple weeks and will see if anything changes in that regard.

sarav84
Regular Member


Date Joined May 2013
Total Posts : 186
   Posted 10/10/2013 7:26 AM (GMT -6)   
I think I'm going in a flare direction?
Today morning, had a BM - not formed stools kind of pieces of mashed potato. After that I had a glass of Pascalite clay water.
Visited my GI as a planned appointment. I explained him, he said its normal IBS.
I returned home and had an avocado. Immediately started the cramps, abdominal pain, right sided pain(around cecum) and then entire colon as well.
I sensed a lot of movement in the colon. I felt like I need to open my bowel. I went to the toilet, I had a little BM some 5 to 6 stools unformed - ribbon like, one stool was bit formed.

I suspected a little blood, so using the toilet paper I kind of broke the stools(I know this is nasty but...) and I noticed mucus and tiny blood spots on the mucus. But the mucus was inside the stool i.e the mucus was not on the stool, the stool covered the mucus.

Could this be due to the clay? I read the Pascalite why it works URL (http://www.wolfgang.ca/pascalite/whyitworks.html)

A remarkable book, "COMPILED NOTES ON CLINICAL NUTRITIONAL PRODUCTS," by Dr. Walter H. Schmitt, Jr.. states: "PASCALITE - A sea-bed product very high in mineral content, but also very valuable as a tool in cleaning out the intestinal tract. (It) is an incredible substance which is small enough to act as a scrubbing agent in the intestinal intervillous spaces. These areas often get plugged up with mucus, thereby decreasing the absorptive surface of the small intestine and leading to mal-absorption of varying degree.

The substances thus mobilized often show up in the stool. Long strings of mucus (which the patient sometimes thinks are tapeworms) occasionally with a little blood, are very common. The patient must be warned that this is a good sign the G.I. tract is cleaning out. Cautioned ahead of time, it will prevent them from becoming needlessly upset .... "

I have been using the Pascalite clay for 20 days and this is the first time I have this symptom - severe abdominal pain and cramps all over the colon.
I hope I'm not flaring.


Or may be this is due to the overdosage of the pascalite? I'm taking little more or one tsp of Pascalite.
I will reduce the dosage and see.

Yesterday I had Millet bread with Peanut butter for breakfast, Rice with Carrot curry for lunch. I prepared the carrot curry with one whole tomato. May be due to that the flare started? or
its Pascalite cleaning??? If its not Pascalite, then obviously I'm flaring which means clay is not helping me :-(

I'm also stopping Peanut butter, millet bread, tomatoes. Today I ate Avocado and banana. Now going to have rice with sweet potato curry. Hope the abdominal pain and cramps don't return and I don't return to flare.
Dx Proctosigmoiditis in Oct'12 - Predmet 24/16/8/4mg, Balacol 2250mg, Folvite, Livogen
Dx Sigmoiditis and mild inflammation in the Cecum in May'13 - Prednisolone 40mg/35/30/20/15/10/5, Mesalamine(Pentasa) 4g. Prednisolone ended on 17th Jul.
IBS
Current medication -
Pentasa 4g,
Salofalk rectal enema 4g(nightly),
Mutaflor Probiotics (Morning and Night)
Metamucil

lookforcure
Veteran Member


Date Joined Apr 2012
Total Posts : 513
   Posted 10/10/2013 8:25 AM (GMT -6)   
If you are taking 1 teaspoon of Pascalite, you are not overdosing. I was taking 6 teaspoons per day and did not have any negative side effects.
Did not you say that you are allergic to peanut butter? Tomato could be irritating because of the acid in it, especially if you eat it with the skin on. Another thing is the spices. Curry spice (at least 5 spices?), I am personally allergic to at least 2 spices in the curry. You could be too, just do not know it.
You need to really look at your diet.
I highly doubt that Pascalite causes your problems, especially at 1 teaspoon dose. It looks like you do not get any improvements even with Mutaflor and Pascalite (I would increase the dose to 4 teaspoons for 1 week to see if it will get better). Because you do not get improvements, it is your diet. Remove ALL RAW fruits and vegetables for 2 weeks, eat only the cooked ones and maybe ALL DAIRY, like yogurt and the spices (like curry...) and stop the peanut butter and beans of any kind.
Millet is a pretty hard to digest too, it could be your reason of feeling bad too. Try brown rice or well cooked barley or buckwheat. I would not eat any bread, especially with yeast and sugar in it. What do you drink? Do you drink coffee or black tea or any soft drinks? Any of them can cause a problem like cramps.

sarav84
Regular Member


Date Joined May 2013
Total Posts : 186
   Posted 10/10/2013 12:00 PM (GMT -6)   
Hi lookforcure,

I was referring, one tsp per time - one in the morning and one in the night before bed.
I'm just adding turmeric powder, salt and a pinch of asafoetida powder(to remove gas) to the curry which I'm preparing.
I also add tomato to the curry, so that the tomato will be cooked.

Yes it was my mistake to take millet bread which I have never tasted, and peanut butter as well.
I think these two were new for this week. I thought peanut as a whole is hard at my gut, so I thought of trying peanut butter. I have decided to drop this as well.

I don't know about carrot, its not the biological one.

I think the inflammation in the sigmoid is still there. I don't know about the rectum because its sigmoid area which is causing hell lot of pain. when I press that sigmoid area with my thumb, I hear krrrrkkk sound which could either be gas or liquid stool.
And the area of cecum as well.

I drink only plain water. That too I boil the tap water and let it cool and then I drink.
I don't drink anything else.

Are you saying I shouldn't eat avocado as well?
Dx Proctosigmoiditis in Oct'12 - Predmet 24/16/8/4mg, Balacol 2250mg, Folvite, Livogen
Dx Sigmoiditis and mild inflammation in the Cecum in May'13 - Prednisolone 40mg/35/30/20/15/10/5, Mesalamine(Pentasa) 4g. Prednisolone ended on 17th Jul.
IBS
Current medication -
Pentasa 4g,
Salofalk rectal enema 4g(nightly),
Mutaflor Probiotics (Morning and Night)
Metamucil

Post Edited (sarav84) : 10/10/2013 12:04:30 PM (GMT-6)


lookforcure
Veteran Member


Date Joined Apr 2012
Total Posts : 513
   Posted 10/10/2013 7:14 PM (GMT -6)   
I do not think avocado is a problem. Dairy can cause problems, though, as well as any raw fruits. Also, remove all nuts and beans, they are very hard to digest.

sarav84
Regular Member


Date Joined May 2013
Total Posts : 186
   Posted 10/11/2013 12:46 AM (GMT -6)   
Hi lookforcure,

It has been 6 months since I stopped beans. I'm going to stop Dairy as well.
Oh yes, I forgot to mention - I ate red grapes(seeded) day before yesterday and two days before. Because I read somewhere red grapes is anti-inflammatory. But seems like inflammatory on me.

Today I'm going to keep sipping the clay milk all day and will just eat avocados. Let me see how I feel.

I couldn't sleep yesterday whole night due to the roaring sigmoid.
Today morning again I noticed tiny blood clots absolutely wasn't visible until I broke the stool like I did yesterday. I noticed mucus with tiny blood spots.

Thank you for keep replying, I feel I have someone to talk to. Thanks again lookforcure.
How are you feeling now? Stopped bleeding?
Dx Proctosigmoiditis in Oct'12 - Predmet 24/16/8/4mg, Balacol 2250mg, Folvite, Livogen
Dx Sigmoiditis and mild inflammation in the Cecum in May'13 - Prednisolone 40mg/35/30/20/15/10/5, Mesalamine(Pentasa) 4g. Prednisolone ended on 17th Jul.
IBS
Current medication -
Pentasa 4g,
Salofalk rectal enema 4g(nightly),
Mutaflor Probiotics (Morning and Night)
Metamucil

lookforcure
Veteran Member


Date Joined Apr 2012
Total Posts : 513
   Posted 10/11/2013 8:47 AM (GMT -6)   
I can not eat grapes at all, they give me a lot of gas and feeling bloated. Grapes have a lot of sugar in them, plus the skin is irritating to the inflamed colon. It could be the reason you are feeling worse.
Peanuts are not actually nuts but they belong to the bean family, so technically you do eat beans if you eat peanut butter, try almond or sunflower butter instead, only the creamy kind, not chunky with pieces of the nuts/seeds in them. Remove ALL raw fruits and veggies (avocadoes are exception), do not eat the skin, peel all of the veggies before cooking (tomatoes, zucchinis.....).
I am OK, still some bleeding. Taking Chinese formula, probiotics, magnesium and Pascalite clay.
I would recommend you to take valerian root liquid extract with passion flower liquid extract, 2-3 times per day. A little in the morning, in the afternoon and a full dose before bed. These herbs help to calm down, relax, relive the stress/anxiety and help to sleep better. I think you do not handle stress well and it causes your colon to act up. Valerian root is very good for spasms  in GI tract too. Please, check it out. It is better to take them together for faster and better result.

TheAnswersYouSeek
Veteran Member


Date Joined Jan 2013
Total Posts : 2543
   Posted 10/11/2013 8:53 AM (GMT -6)   
Sarav, the diet you are describing is pretty high in carbs and would feed any dysbiosis in the gut. When flaring I would have never successfully tolerated bread, banana, rice and grapes within a couple day period.

sarav84
Regular Member


Date Joined May 2013
Total Posts : 186
   Posted 10/11/2013 10:49 AM (GMT -6)   
@lookforcure, my bad I just remembered and ran towards my kitchen to see the peanut butter I was taking. It is a biological one - OK, but it contains chunks i.e not fully creamy. Which means these chunks had gone in and triggered the symptoms. I wanted to give Sunbutter a try but amazon don't ship to
The Netherlands and in Netherlands I couldn't find it. I found sunbutter.nl but there is no option for online shopping. This is just a crazy country :)

Yes you are right, I'm very bad in handling the stress. I will give this Valerian root a try - amazing I just found in google there is a seller in my Native in India :)

I'm going to start from basics - boiled pumpkin, white rice and avocado. That is it!!
May be peeled boiled sweet potato as well but not now. Let me see how this goes.

I'm sorry to hear that you are still bleeding. But how many BM you have? all bloody? and how about about urgency?

@Pathogenkiller, We can't eat carbs? I'm already skinny from muscular. I feel like I want to eat eat eat, I'm starving that much.
Last Saturday I was in a biological shop called Ekoplaza, I saw Cinnamon cookies - hmmm Cinnamon good anti-inflammatory and almost my hands went to take it to buy. I pulled myself and said NO cookieS NOOOOOOOOO COOOOOOKIESSSSSSS at all.
Bloody after turning around 50 years, I'm going to eat anything I like. 50 years is fine for me :)
darn it stupid disease.

I see in one of your posts you suggested to try
http://www.amazon.com/Ultra-InflamX-Chocolate-Orange-Ounces/dp/B001ECXG8G/ref=pd_sbs_hpc_2

How was it for you?
Dx Proctosigmoiditis in Oct'12 - Predmet 24/16/8/4mg, Balacol 2250mg, Folvite, Livogen
Dx Sigmoiditis and mild inflammation in the Cecum in May'13 - Prednisolone 40mg/35/30/20/15/10/5, Mesalamine(Pentasa) 4g. Prednisolone ended on 17th Jul.
IBS
Current medication -
Pentasa 4g,
Salofalk rectal enema 4g(nightly),
Mutaflor Probiotics (Morning and Night)
Metamucil

lookforcure
Veteran Member


Date Joined Apr 2012
Total Posts : 513
   Posted 10/11/2013 1:19 PM (GMT -6)   
I have 1-3 BMs per day , no urgency. Boiled/baked pumpkin, rice (you can try brown rice, oats, barley too for more fiber, if your stool is not well formed), avocadoes and any peeled, cooked veggies, baked/boiled white or sweet potatoes- very good plan to me.
I, like you, could not follow SDC or low carb diet. I was too skinny, very weak, dizzy and was loosing weight too much without any carbs. I think removing sugar, yeast, breads and very low fruits, combined with a lot of cooked veggies and the whole graines could do a lot of good. For me eating meat and fish did not help and I could not digest animal protein well during my flare. Everybody is different. When I was diagnosed with UC 7+ years ago, for about 1 year I was trying to "kill" bacteria/virus/fungus/yeast, whatever it is I thought caused my colitis. I was taking many natural antibiotics, antifunglas I could think of, like oil of oregano in oil and capsule form, grapefruit seed extract, colloidal silver, uva-ursi, olive leaf extract, clove oil, goldenseal extract, garlic, caprilic acid, ate raw coconut oil.....took a lot of different probiotics to replenish the good bacteria (lactic base, soil based, prebiotics, colostrum (from cow and goat).....

I did not have any dramatic results. Mutaflor helped more than any probiotics out there, put me in remission while I took it, but it did not cure me. None of the natural antibiotics-antifungals gave me remission of my UC. Watching what I eat helps a lot, especially during a flare: no breads, sugar, nuts, dairy, beans, spices, no acidic foods like tomatoes or citruses, no vinegar (or anything with it), no raw fruits/veggies/greens, no greasy/fried foods, no eating anything out, only home cooked meals (this is one of the most important one). After trying different diets anything from SCD to no gluten, to strict 100% vegan for 2 years, I came with this simple to follow eating plan, it is not a diet just a restriction untill the inflammation comes down and then slowly re-introduce one food at the time. I do eat some chicken, boiled eggs and a little fish now.
My diet: a lot of veggies (raw and cooked but all are peeled) with some rice,pasta, potatoes, buckwheat, some oats. Animal protein I eat 2-4 times per week in small portions.

I got tested for gluten intolerance (negative), I do not have any problems with pasta (I buy organic, non bleached) but have a problem with bread (during a flare) because of yeast and sugar in it. I bake my own French bread without sugar and I do not have any problems. Real French bread should not have any sugar or corn syrup in it. I really believe majority people do not have a problem with gluten but with yeast+sugar combo in the breads because it causes fermentation in the gut. During severe flare I do not recommend eating any bread though.
Also, no coffee, black tea, any fruit juices or soft drinks. Some weak green tea with jasmin is OK, at least for me. A lots of herbal teas like peppermint, camomile, ginger....are very good for the GI tract.

Right now after trying many many different things, I think there are a few things are worth trying, based on my personal opinion:
Mutaflor (probiotic), activated charcoal (helps with diarrhea/gas/cramps/yeast), clay (Pascalite, Terramin, Living, French Green Illite clay) (calms the GI tract, pulls the infection/bactea/yeast out, alkalizes the GI system and helps to heal ulcers), Chinese herbal formulas (I took CCHerbal-stopped because of constipation, now I take Pinellia Combination 628 by SunTen (Ban Xia Xie XinTang-this formula was tested in China to heal ulcers in UC patients)-very happy with this one, relieves pain, heavyness in the GI system, no headaches, no cramps, no constipation.....
Also, taking valerian root extract with passion flower extract before bed, will help to sleep much better and relieve the stress and relax the GI system, antispasmotic.

UC-Wife
Regular Member


Date Joined Jul 2011
Total Posts : 23
   Posted 11/2/2013 10:22 AM (GMT -6)   
Hi, I want to give you all an update on how hubby is doing. He's been taking CCHerbal for 4 weeks now, 3 pills a day, and is feeling better... He says about 30-40% improvement! I'm so excited by this because he hasn't really said that about anything in over 10 years! He's still not watching his diet and hasn't started the clay yet, but I think he's warming up to maybe trying the clay.

I want to thank you so much for your posts and help... Your advise has been so helpful, and has given me and hubby some hope... I can't thank you enough.

I am going to see if he will try living clay in the next few days.

Thanks!
Hubby has UC Since 2002 and in a constant flare for 9 years with severe pancolitis. Tried all meds 5ASAs, Imuran, Remicade. Bad reaction to Imuran and Remicade. Currently on Probiotics and colostrum.
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