Ulcerative Proctitis, lower colon inflammation?

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dinkydonuts
Regular Member


Date Joined May 2012
Total Posts : 81
   Posted 5/26/2012 12:00 AM (GMT -6)   
So I just realized that I've been reading HealingWell for quite some time now, but just now decided that I should register and start posting. idea

I was diagnosed in May of 2011 with Ulcerative Colitis after my GI doctor performed a colonoscopy on me at the age of 25. His diagnosis at the time was that most of the damage was limited to the lower portions of the colon and was quite mild. He did find a few polyps during the examination that were cleaned up.

After that, I was prescribed Lialda (3 x 1.2mg) daily, which I have been maintaining for a little over a year now. I occasionally use Canasa suppositories or occasionally will use Anucort suppositories when things are especially bad.

Fairly standard stuff I know, but here's where I find myself different than most:

I often perceive my BMs as constipation, and did so for a while, but I recently became more aware of my body. I believe for the most part, my stools are formed, but during my UC flares my rectum and lower colon become so inflamed that it becomes physically painful to pass stools. I've never encountered diarrhea during my UC that wasn't caused by some other known factor (such as antibiotics when I had a cold, etc).

What makes me even more aware of this is that I was recently in remission, and during that time, I had no inflammation and my BMs were a pure JOY. I was on daily metamucil and I was probably passing the most healthy stools in my life. No effort, no pain, and afterwards you feel like you can go out and conquer the world.

So, I guess my body decided it was time to flare again, and I find myself needing a warm tub soak after my BMs at home. The heat helps to calm down the lightning storm that goes off in my lower colon. I'm keeping on with the metamucil and my diet remains unchanged, besides trying out foods that are purported to relieve inflammation.

Just wondering if anyone else is the same, or if perhaps I'm wrongly diagnosed?

SWA
Regular Member


Date Joined Apr 2012
Total Posts : 27
   Posted 5/26/2012 4:19 AM (GMT -6)   
I was diagnosed with proctitis about five months ago and have the total opposite symptoms. I would kill for a solid BM!! All of mine are very loose unfortunately. The way my doc explained it to me was that when your rectum is inflamed, it loses its ability to hold the stool and make it form together. So basically as soon as whatever I ate makes it down there, it has to make an emergency exit because I can't hold it for long at all. I don't know if you've been mis diagnosed, I know there are different symptoms. Hope you feel better!

zdenka
Regular Member


Date Joined Nov 2011
Total Posts : 211
   Posted 5/26/2012 10:41 AM (GMT -6)   
I was diagnosed with proctitis 8 years ago ,over a year ago had a scope that showed proctosigmoiditis,never ever had deahhrea other then when put on mesalamines,got a horrible reaction to them,Sometimes wonder the same thing from the stories I read,just recently had a scope that showed no sign of colitis but still suffer from the symptoms, which are little bit of bllody mucus on stool or just little bit of blood.Still confused.

RH_Texas_Gal
Regular Member


Date Joined May 2009
Total Posts : 367
   Posted 5/27/2012 12:10 PM (GMT -6)   
I was diagnosed a few years ago with UC and then in the past 6 months have developed proctitis. I know what you are going through! The "normal-looking"BMs despite feeling like you are giving birth each time you head to the potty, the aches alleviated by hot baths (and for me heating pads) ... I also started squirted out watery mucus too. Because of the inflammation, I could never empty fully so I often went to the bathroom about 5-8 times within a 3 hours period just to eliminate the BMs. After that, my day would be fine, until the next time ...

I have to say that I just got some steroid enemas two day ago and almost immediately have seen a change! If you have not tried them yet, do so. It will bring you some great relief. Once I finish the hydrocortisone enemas, then I will go back to the mesalamine enemas while still maintaining the oral meds. I am looking forward to getting my energy levels back. I have noticed that my workouts were shorter because I got tired so quickly. Ironic since my cardio workout on the elliptical brought some minor relief to the aches from the inflammation!
8 Sulfasalazine a day
melasamine enemas (3x a week or as needed)
aloe vera juice 2x a day
slippery elm (capsules and enema-as needed)
Fiber supplements (as needed)
probiotics - 2 capsules a day (each 40 billion count)
vitamin D-3 supplements
Fish oil capsules
Citrical calcium supplements
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