Will I ever get to eat ice cream again?

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CoLah
Regular Member


Date Joined Feb 2012
Total Posts : 52
   Posted 6/20/2012 4:25 PM (GMT -7)   
Or Steak 'n' Shake? Or kettlecorn? Or a stinkin' huge Dr. Pepper? Or a long, tall, ice-cold glass of milk? Or chocolatey, fudgey cake?

I haven't eaten these things for almost a year. Still not in remission, but 1000% better than I was in February. But I find that I'm downright terrified to have a go at "no-no" foods that I don't seem to be able to tolerate anymore...mostly any sort of fast food, things high in sugar, dairy (except for cheese)...so, you lovely remission folks, what's the deal with yummy, tasty, bad-for-you food? Never again?

Really, more than anything, what I want is to go to Dairy Queen with my 3 year old and join her in enjoying ice cream. That's part of summer, right? Ice cream with your children? Will I ever get to experience that again?

Ta,
Lisa
Diagnosed with pancolitis (October 2011) after long-term antibiotic use during pregnancy wiped out my colon!
Homemade kefir daily
Apriso daily
Prednisone 7.5 mg daily (tapering by 2.5 every 7-10 days)
L-Glutamine Powder daily
VSL#3 DS packet daily
Florastor daily
Rowasa enemas nightly
Remicade
Imuran 100mg daily
Immodium nightly
Bentyl as needed

uc-logic
Regular Member


Date Joined Oct 2010
Total Posts : 155
   Posted 6/20/2012 5:24 PM (GMT -7)   
Just start slow and don't mix things up. Like have a spoon of ice cream and see how that goes after a few days. If that goes well try 2 spoonfuls and see what happens. What ever you do though don't go crazy and have a bowl/cone and have a blow out. Also don't try mixing things up, 1 thing/item at a time, you don't want to be second guessing what made you feel worse (ie; was it the pop, ice cream or something else).

I don't really seem to have problems with any foods, my colitis was crazy and it didn't matter what I ate or didn't eat for that matter. Everything in moderation though!
Starting Remicade March 5th 2012
Multi Vitamins

Been on: Asacol, Sulfasalazine, Prednisone, Imuran

Somedude
Veteran Member


Date Joined Jul 2011
Total Posts : 3393
   Posted 6/20/2012 6:12 PM (GMT -7)   
Get on remicade....and then try what you want and see what's up.
DX Ulcerative Colitis (panchocolitis) - May 2011.

"Life is like a box of chocolates; you never know what you' gonna get. " by Forrest Gump

kloe0038
Regular Member


Date Joined May 2012
Total Posts : 226
   Posted 6/20/2012 6:24 PM (GMT -7)   
+1 on trying things slowly. Any major diet change can have weird effects on digestion, whether the foods are actually bad for you or not.

I don't have issues with foods (except greasy/spicy) when I am doing well. I am making a batch of chocolate ice cream as we speak! Even if you do turn out to have some food sensitivities, there are decent substitutes out there. Coconut milk and soy ice cream are awesome- you can also make a sugar-free "ice cream" from bananas that is quite satisfying:

http://www.thekitchn.com/how-to-make-creamy-ice-cream-w-93414

Have you ever tried a quality vegan dessert? They can be amazing if they are done correctly. Look for French Meadow Bakery products:

http://www.frenchmeadow.com/
Left-sided UC diagnosed October 2009.

Current meds: Imuran, Remicade, Canasa taper, Wellbutrin, flax/fish oil, multivitamin

Failed meds: Asacol, Rowasa

stereofidelic89
Veteran Member


Date Joined Sep 2011
Total Posts : 1928
   Posted 6/20/2012 6:41 PM (GMT -7)   
CoLah, I feel for you. Ice cream is my favorite food. Instead of diving deep into the sugary havens of Dairy Queen, maybe try frozen yogurt first and start out with small portions, and supplement really well with L-Glutamine. I would suggest other herbs and supplements but it looks like your on a lot. What type of symptoms are you dealing with? Pain? Loose bowels? Blood?
Meds: 2400mg Asacol daily
Dietary: L-Glutamine, Omega3, Gluten-Free, VSL#3 Probiotic, Vit. D 5000iu, Boswellia caps
Amazing Herbs: Slippery Elm, Licorice & Marshmallow Root / Peppermint & Chamomile

College grad, diagnosed severe Crohns/UC - Sept. 2011
Remission achieved in february by the SCD!

Hopeful Heart
Regular Member


Date Joined Apr 2012
Total Posts : 48
   Posted 6/20/2012 7:16 PM (GMT -7)   
CoLah, my heart goes out to you.  I hope you enjoy a remission asap.
 
Many great suggestions here! smilewinkgrin
 
If you find an alternative to ice cream you can tolerate, you might share that option with your 3 year old, too!  I wish I was introduced to ice cream alternatives as a child!  I'd learned to like most foods at that age, especially if I saw my mother or father enjoying them! (I even then loved liver and onions because I saw my dad enjoying them!  I wanted them because he'd liked them! Lol!) 
 
My point is your child will likely love any alternative you can tolerate and that is palatable, simply because a large part of the experience is about sharing and further bonding with one another! smilewinkgrin
 
I understand the food restrictions can feel like a bit much, especially as we each sort out our own individualized reactions to different foods.
 
I hope you find delicious alternatives to share with your beloved child, especially those which can stand in for some of the fun foods and fun times we share with family, like ice cream, etc.
 
Also, consider using some digestive enzymes if/when you want to try something new or want to add something back into your diet!  InSoFla has an interesting thread going on this topic of utilizing enzymes.  It is here on the first page today, as well!
 
Again, I hope you enjoy a remission very soon!
Enjoy the Summer! smilewinkgrin
In Gratitude~
 

Post Edited (Hopeful Heart) : 6/20/2012 7:20:01 PM (GMT-6)


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2806
   Posted 6/20/2012 7:35 PM (GMT -7)   
I miss that kind of stuff too- but compared to UC, deprivation of junk food is a walk in the park. And I'd rather spare myself the heavy hitter drugs if possible, and the hassles of surgery and complications that come with surgery- even if that would allow me to eat junk food (though I suspect that some of those who eat that kind of food again after surgery are setting themselves up later for things like chronic pouchitis) - as it stands, I have reacted to most all of those drugs anyway so I have no choice but to avoid sugary junk, which isn't great for health anyway. Personally, I could be just fine without ice cream if I could enjoy SCD or FAGE Greek Yogurt again- alas I definitely do better by avoiding all dairy. Everyone is different though and if one can eat ice cream, chocolate etc without consequences UC-wise, more power to you.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18186
   Posted 6/21/2012 12:27 AM (GMT -7)   
As far as the ice cream goes, you could get checked for lactose tolerance....I found out I became lactose intolerant but my IBD was kinda masking it since symptoms are very similar, so maybe try some lactaid pills with your ice cream and/or get a lactose tolerance test done to know for sure.

Good luck!
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 3856
   Posted 6/21/2012 8:16 AM (GMT -7)   
Really, more than anything, what I want is to go to Dairy Queen with my 3 year old and join her in enjoying ice cream. That's part of summer, right? Ice cream with your children? Will I ever get to experience that again?

You've hit on why so many people would rather remove their colon than use diet modification (I'm not dissing them for doing this, I can understand the decision). Food is such an emotionally charged factor in our lives. Sharing food with our family and friends makes us feel happy, makes us feel like we bond together in a very basic way. It's very primal.

I can answer your question with "Yes". Yes, you will be able to eat ice cream again, if your recovery is like mine or other peoples. I've been able to eat many, many foods that 3 years ago would just set my gut off. Can I eat ice cream every day? No. Chocolate? Not every day but now and then is fine.

What diet modification has shown me is that there are other foods that are better for me than the Standard American Diet based on pasta, bread and dairy. You are actually helping your family to better health by lowering (not eliminating) their intake of these three foods. It has nothing to do with UC in their case, it's a healthier way to eat and they will avoid obesity, diabetes and many other diseases.

InSoFla found an enzyme pill Gluten Relief that lets her eat gluten and dairy with no bad results. You could try this as long as you don't go overboard adding these back into your daily diet.

So much of our food enjoyment is emotional and we probably can't even remember why because it starts in childhood. Of course the fat and sugar high of ice cream blended with happy memories is a winning combination. Make new memories with your family using foods that are good for you and them. There are a lot of good recipes such as carrot cake (or cupcakes) made with nut butters. And maybe coconut milk based ice cream is a possibility as suggested.

Every now and then a small Haagen-Daz is my buddy and I'm still in remission :-)
Current diet=SCD+Paleo modified (some fruit+dairy OK now)
In remission April 2010 after 10 years of UC with no remission ever
Jan 2010 began SpecCarbDiet (modified to remove dairy, fruit & juices,)
Gluten-free=bleeding stopped in 3 days, 95% remission in 5.5 months on SCD
(9)Balsalazide+(2)Citrucel, mesalamine enema as needed (1) VSL#3 nightly

Post Edited (imagardener2) : 6/21/2012 8:57:50 AM (GMT-6)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 22177
   Posted 6/21/2012 8:21 AM (GMT -7)   
When I am flaring, I can not do dairy at all. So I take a Lactaid pill and I can enjoy my ice cream again :) But in remission, I can have dairy again - just in moderation.

Now that I am in remission, food is not much of an issue for me anymore. I still have to watch what I eat due to diverticulosis but for the most part I can enjoy all those no-no foods again.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
Diagnosed Left sided UC in '92 - meds: 6mp, Colazal, Remicade and Bentyl*Unable to tolerate ALL mesalamines*, in '11 diagnosed with IBS, Diverticulosis, Fibromylagia..I also have Sacroiilitis, Scoliosis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

MaxMilian
Veteran Member


Date Joined Dec 2010
Total Posts : 1236
   Posted 6/21/2012 8:52 AM (GMT -7)   
I tend to avoid all the no-no foods regardless of my status out of habit. For me really, the only things I out right avoid are deep fried foods and anything really high in sugar. Everything else (gluten, lactose, low sugar, processed foods) I take either on 'special' occassions or on rare events.
Mar 10: Symptoms (blood + coccyx pain)
Oct 10: DX proctitis and cecum inflammation
Nov 10: DX IBS
TREATMENT: 1g Pentasa supp (1 per 2 nights), 1g Salofalk granule sachet (2 daily). Avoid lactose, deep fried foods, caffeine. Limit sugar, gluten, red meat, chilli, processed foods
STATUS: In 'clinical' remission

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 4608
   Posted 6/21/2012 2:18 PM (GMT -7)   
Moderation is the key that helps one achieve remission (if meds kick in) & stay there long-term. You can try Lactaid ice cream or soy/rice substitutes, but better not to indulge in a large serving 'til you test how your gut reacts. The bottom line is: a whole lot of sugar & saturated fat really is not good for anybody. My cholesterol level would probably have blown off the chart from hot fudge sundaes & such if UC had not obliged me to eat more carefully. / Old Hat (31 yrs with left-sided UC; presently in remission taking brandname Colazal)

stereofidelic89
Veteran Member


Date Joined Sep 2011
Total Posts : 1928
   Posted 6/21/2012 3:46 PM (GMT -7)   
I love ice cream. It's my favorite food. But the heavy cream which is harsh on our stomachs, and all of the dairy sugar is pretty inflammatory, and I've found this out several times throughout this last year as I wanted to abandon some of my healthy eating habits.

When I was first diagnosed, even at 21 years old, I still felt like my life was over and that I would stay in a miserable diseased state for the rest of my life. As time went by, I realized my situation would change for the better, if i continued to heal.

I would give your body a little rest, depending on when you were last having a flare, to when you start to notice improvement, and then add in small amounts.

I just got a scoop of handmade maple ice cream, and I usually experience some sort of achy feeling when eating, not the case this time. :)
Meds: 2400mg Asacol daily
Dietary: L-Glutamine, Omega3, Gluten-Free, VSL#3 Probiotic, Vit. D 5000iu, Boswellia caps
Amazing Herbs: Slippery Elm, Licorice & Marshmallow Root / Peppermint & Chamomile

College grad, diagnosed severe Crohns/UC - Sept. 2011
Remission achieved in february by the SCD!

uc_free
Veteran Member


Date Joined May 2007
Total Posts : 645
   Posted 6/22/2012 6:24 PM (GMT -7)   
This disease can be a tough adjustment when you are first diagnosed. I had sensitivities to alcohol, dairy, very spicy foods, and some other things. I dropped popcorn. I was 22 when diagnosed, and we were still enjoying summers at the shore with friends, late nights out at the bar, etc. I wasn't a big drinker by any means, but I was a normal 22 year old. I had to sacrifice a lot to get into remission. I had not enjoyed an ice cream with my kids



At first it was really tough. As I felt better, the foods I gave up seemed like an easy sacrifice for feeling well. When I started not feeling well, that's when the sacrifices bothered me. In the 14 years I had UC, I tried once to have ice cream after taking Lactaid. Within 20 minutes I was in agonizing pain and barely made it to the bathroom. There are good substitues for ice cream, and I have had them all. Lactaid makes a 100% dairy free ice cream in chocolate and vanilla. It tastes almost like the real thing. Doctor it up with some toppings and it's great. My favorite was a product by So Delicious called Peanut Butter Zig Zag. This is a chocolate frozen soy dessert mixed with peanut butter and chocolate flakes. It comes in a pint, and I always found it in the local health food store, or some grocery stores even have it.
36 year old mother of three
Diagnosed with pancolitis in 1998
Tried everything but Remicade over a 14 year period and Imuran was really the only drug that worked before it stopped in 2010
Proctocolectomy with permanent ileostomy 11/29/11
Stoma revision surgery 5/31/12 to rectify supposed hernia, stoma, and ongoing skin conditions
Finally on the road to recovery

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10589
   Posted 6/22/2012 7:26 PM (GMT -7)   
I think you will be able to enjoy ice cream again. I've had periods of flare up where I thought I would never be able to eat some of the things I love but when I am in remission, I eat whatever I want without consequence.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: 6mp (25mg) + Canasa (1g PM) + cerazette

Girly Girl
Regular Member


Date Joined Apr 2012
Total Posts : 46
   Posted 6/23/2012 5:49 AM (GMT -7)   
I have had UC for 11 years, been in remission almost 5, and was diagnosed when I was 14. I too could not tolerate dairy and did not eat it and many of the other foods you have mentioned for a long, long time. I would pick not eating them over making things worse or entering a flare.

Take your time and slowly try things again and see how they go. You may find that once you get used to your "UC diet" you don't eat some of the bad-for-you-foods even if you can. I have not had a glass of regular, 2% chocolate millk in 11 years, but I still will take my Silk over it now. I don't want to risk anything. I have eaten ice cream a few times in remission, but it always made me feel bloated, kinda upset my stomach. I would rather have italian ice or a popcicle over that. Frozen yogurt is a good substitude. I have had success in eating fast food, and eating at restaurants, but I am aware of what I order. I never eat enough to get really full and grilled chicken or french fries are always safe now. I used to fear eating at new places, but now I am able to, but I try to stay away from foods that I know could possibly be a problem.

I think you will find success in eating some of your old favorite foods, just take it slow.

Good luck!
A.
Primary Sclerosing Cholangitis- September 1999
Ulcerative Colitis- December 2000
Pyoderma Gangrenosum- October 2011

FromChaos
Regular Member


Date Joined Aug 2011
Total Posts : 73
   Posted 6/23/2012 8:36 AM (GMT -7)   
I miss it too, but certain foods are just not worth the pain and agony that follows. You just never know what will set off a flare. I can tolerate frozen yogurt, have you tried that? it is a good substitute.
UC left sided since 1996
Asacol 400 mg 12 tabs daily

probiotics iron fish oil L-Glutamine
no soy no artificial sweetners
low carb

"stay positive and love your life"
311

ColitisMastery
Regular Member


Date Joined Oct 2011
Total Posts : 188
   Posted 6/24/2012 7:49 AM (GMT -7)   
Nope. Why worsen colitis? Why spike blood sugar and triglycerides? Many people never eat ice cream and their life is just as fulfilling.

First question you can ask yourself is, "do I want to the healthiest I can possibly be?" and then do the correct options from there. If your answer is no, than dig into the ice cream and other unhealthy foods.

Simple eh :P hard to do if you want to cut out ice cream, but simple.
Diagnosed at age 12 with ulcerative colitis in 2002. 21 years old with recent gallbladder surgery!.
Current daily meds
5-ASA
Vitamin D 6000 ui
Calcium 600 mg Magnesium 300 mg
1 packet of VSL #3
Vitamin B12 1000 mcg once a week
Raw kale/collard greens juice daily :D
Avoids: Eggs, gluten/wheat, aspartame, sucralose, food colouring and larges amounts of meats

quincy
Elite Member


Date Joined May 2003
Total Posts : 25881
   Posted 6/24/2012 9:49 AM (GMT -7)   
Maybe make your own ice cream...you'll at least control what's in it.

It won't make your UC worse...but I would think it would most probably give you lots of gas and possibly looser stool, depending on how much you eat.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 822
   Posted 6/24/2012 2:58 PM (GMT -7)   
Are you lactose intolerant? I never have issues with ice cream.
36 yrs female
Dx 2006 right after the birth of my daughter
Had baby #2 in August 2010!
Imuran 150mg
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