does hydrocodone help anyone?

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moose2012
Regular Member


Date Joined Jun 2012
Total Posts : 20
   Posted 7/22/2012 3:16 AM (GMT -6)   
hey everyone i got a quick question, so i just busted my ankle about 2 days ago and i was proscribed hydrocodone5-500 2 pills a day. that being said my UC has not gotten any better in the 5 months since i was dx (pancolitis). FAILED: asacol, liadla, prednisone, entocort, and hydrosomethin suppository still going 8-10 times a day with blood and D. However since i have been taking the hydrocodone 1 in the morning and 1 on my lunch break, i have been feeling great. during the day i don't have any bowel problems and feel completely fine. now on day 3 of taking the hydrocodone i have only been going about 2-3 times a day with semi-formed stools but still blood. And I'm not getting any stomach cramps and that queezy feeling i have in my stomach all day is gone. I didn't see on any posts of people using hydrocodone for UC, so i was wondering if it just masking the symptoms of my ulcerative colitis. My doc said these might slow down my colon function, is this why my stools are starting to form a bit? Has anyone else had a similar experience to this. Thanks
22male
dx pancolitis
was on asacol hd 2@3xdaily wasn't helping
bad reactions to pred and entocort
probiotics, iron, slippery elm, vitamin c 1000mg, l-glutamine
currently just taking lialda 1.2g 3 a day

Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/22/2012 3:47 AM (GMT -6)   
It does slow down your digestive system. It will not help your UC. You also have to watch out for addiction. I have been taking it for two years. I look forward to not needing it.
Diagnosed 1987 with lower left ulcerative colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011. First j-pouch surgery March 8, 2012. Six other damaged organs removed at that time. Ileostomy reversal June 26, 2012. Aiming to go white water kayaking in August!

Christine1946
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Date Joined Aug 2008
Total Posts : 5915
   Posted 7/22/2012 5:36 AM (GMT -6)   
    I agree with Subzero.  Hydrocodone was prescribed for me by my family doctor following my hospitalization for UP (proctitis) in 2008.  My GI doctor never prescribed any type of pain killer for me.  However, the inflammation in my rectum was sooooo bad that the pain actually travelled from my rectum down the insides of both my legs.  I can remember walking the floors night and day trying to seek relief because the pain was worse when lying down.   I believe I took it every six hours or so.  I hate to take pain killers but my doctor told me to not wait until the pain started because it took awhile for the medication to kick in.
     Hydrocodone will slow the transit time somewhat.  It will NOT stop bleeding or heal ulcerations.
     I had surgery in 2010, total colectomy with end ileostomy.  I still take hydrocodone on occasion for the three back fractures I suffered because I have osteoporosis.....thanks to prednisone dependency from my UP days rolleyes .

Mary A.
Regular Member


Date Joined Dec 2011
Total Posts : 217
   Posted 7/22/2012 5:39 AM (GMT -6)   
Moose,
that drug is great for pain and it WILL slow down the gut, but it is not for long term, trust me.
Its making you high dude, that's why you feel so great!!! I love that drug for my joint pain when its
really bad. I take it only when I'm miserable as it makes it hard for me to drive, stay focused, all that.

And when my rectal pain is super bad and nothing will touch it, I might take one of the Percocet/Vicodin (those
are the brand names for hydrocodone)
My Dr. Intestine also told me that Valium can really help some folks with bad rectal pain. Again, use sparingly and short term as its addicting as all get out.

Seriously, have you used the enema's to help with the bleeding?? It worked really well for me!! And I was on the flare from hell.....Cortisone enemas to start and then to Rowesa?? Check it out for real.

lol?
Regular Member


Date Joined Mar 2009
Total Posts : 53
   Posted 7/22/2012 10:35 AM (GMT -6)   
Addition with any narcotic takes time. We prescribe it under many circumstances. I am currently taking Roxicet with Percecet following my surgery. Yes it makes you feel good but 40-70 pills, or a 2-3 week supply, is not going to cause a dependance unless you fake pain symptoms to get more of them or get them off the street.

I was given a week's supply of Dilaudid 8MG tablets following surgery. Now THAT is some serious pain medication. Still have 5 left :\

Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/22/2012 12:57 PM (GMT -6)   
I was told by a friend now in addiction recovery that the amount ingested is an important factor in developing an addiction. A friend was prescribed 150 mg every four hours for back pain. She had no idea that 5 mg every four hours was the normal dosage. After two years she was unable to stop taking it even though her pain was gone due to surgery. I do not understand how doctors get away with such stupidity.
Diagnosed 1987 with lower left ulcerative colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011. First j-pouch surgery March 8, 2012. Six other damaged organs removed at that time. Ileostomy reversal June 26, 2012. Aiming to go white water kayaking in August!

moose2012
Regular Member


Date Joined Jun 2012
Total Posts : 20
   Posted 7/23/2012 12:50 AM (GMT -6)   
I know about the threat of becoming addicted, hell i feel addicted right now because i haven't had any uc symptoms since taking them only about 5 days now lol. But do you think it is relaxing my colon enough for it to start healing? This has been by far my best week as far as UC symptoms since being dx 5 months ago. I am only going 1 maybe 2 a day with formed stools and only some with minimal blood. My LDN is supposed to arrive this week so I'll have to quit taking the hydrocodone and then give it a couple of days to make sure its completely out of my system so i guess I'll find out if the hydros were helping or if they were just masking the symptoms. We shall see!!! anyways I'm stoked to start LDN hopefully it does some good for me.
22male
dx pancolitis
was on asacol hd 2@3xdaily wasn't helping
bad reactions to pred and entocort
probiotics, iron, slippery elm, vitamin c 1000mg, l-glutamine
currently just taking lialda 1.2g 3 a day

quincy
Elite Member


Date Joined May 2003
Total Posts : 29623
   Posted 7/23/2012 12:54 AM (GMT -6)   
No, it won't heal your colon.


I wouldn't say it masks symptoms.... it just slows down your colon enough to not be spasming out.
So in effect, you're not freaked out by some of the symptoms that are still there, just don't be fooled.

Why are you not on rectal meds?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

moose2012
Regular Member


Date Joined Jun 2012
Total Posts : 20
   Posted 7/23/2012 1:02 AM (GMT -6)   
I have asked, almost begged my doctor to start the mesalamine enemas, but he refused saying he wants to give the other medication a chance to work. Didn't make sense to me either so my family doctor who also thought that adding rectal meds wasn't going to counter act the other meds and thought they would be beneficial to me went ahead and referred me to a new GI. So right now I'm in the process of waiting for the new GI to call me to set up an appointment.
22male
dx pancolitis
was on asacol hd 2@3xdaily wasn't helping
bad reactions to pred and entocort
probiotics, iron, slippery elm, vitamin c 1000mg, l-glutamine
currently just taking lialda 1.2g 3 a day

Mary A.
Regular Member


Date Joined Dec 2011
Total Posts : 217
   Posted 7/23/2012 8:22 AM (GMT -6)   
Moose,
That is BS that the doctors won't give you enemas.
I'd call those (expletive) and DEMAND that they give them to you.
WTH? Ask them if they'd like to bleed out their rectum!!! What can it hurt??

What jerks.
I'm so sorry you have to deal with this.
Mary A.

quincy
Elite Member


Date Joined May 2003
Total Posts : 29623
   Posted 7/23/2012 10:19 AM (GMT -6)   
Good to year your GP is on the ball....let us know how it goes.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

xeekk
Regular Member


Date Joined May 2010
Total Posts : 256
   Posted 7/23/2012 2:58 PM (GMT -6)   
It slows down the colon, which doesn't directly heal it, but a less active colon tends to heal a little better. I'm sure the constant movement of the colon by going to the bathroom all day doesn't help the inflammation.

Aldohux
New Member


Date Joined Jul 2012
Total Posts : 1
   Posted 7/27/2012 11:18 AM (GMT -6)   
Moose - I had stomach issues since around 19-20, now 33 and I've been taking opiates (hyrdocodone, oxycotin, oxycodone, you get the picture) to get the much needed relief since i was about 27. Thats 6 years of opiate addiction/relief - whatever you want to call it. NOTHING i've ever taken (Cansana, Lomotil, enema's etc) worked NEARLY as well as optiates. I tried quitting opiates  several times but always ended up back on them because of flare ups and REALLY bad pain in my back which I went to a Physical Therapist for but they couldn't fix it. I'm trying to be good again and change my life around TODAY - I've been off the opiates for about a weak and a half again and I really don't know what to do because I'd rather be addicted to pain killers than feel like I do now. I was diagnosed with Proctitis and will have Ulcertive Colitis probably within 10 years, if I follow in my mothers footsteps which my GI dr. has said I am doing (minus the pain killers).I was NEVER once sick from withdrawals because I either wound down or used Suboxone - but my stomach would remind me that I needed to take opiates if I wanted to feel good.
 
So if you want to be conflicted everyday, buying drugs on the street, and having a VERY VERY expensive habit, do what I did and take opiates such as you are doing. They make you feel normal and THEN high...which is what is exactly how it sounds for you. Trust me - Its VERY easy to say "I deserve these meds because I want to feel normal just like everyone else". Its been my excuse for the last 6 years.

Post Edited (Aldohux) : 7/27/2012 11:21:20 AM (GMT-6)


Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/27/2012 2:32 PM (GMT -6)   
In Europe doctors often prescribe tincture of opium to help. You only take a few drops in the morning and at night. Has anyone heard of that being used in North America? It supposedly creates the same colon slow down but without a risk of addiction.
Diagnosed 1987 with lower left ulcerative colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011. First j-pouch surgery March 8, 2012. Six other damaged organs removed at that time. Ileostomy reversal June 26, 2012. Aiming to go white water kayaking in August!

Subzeromambo
Veteran Member


Date Joined Sep 2009
Total Posts : 1143
   Posted 7/27/2012 2:35 PM (GMT -6)   
Aldohux, I am sorry you are experiencing so much pain. Is it your stomach or abdomen that is hurting?
Diagnosed 1987 with lower left ulcerative colitis. Hospitalized often. Mega toxic pan colitis Dec. 1999. Perforated colon and total colectomy April 2011. First j-pouch surgery March 8, 2012. Six other damaged organs removed at that time. Ileostomy reversal June 26, 2012. Aiming to go white water kayaking in August!

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5915
   Posted 7/27/2012 2:39 PM (GMT -6)   
     Subzero...OMG...150 mgm of hydrocodone every 4 hrs???  And this person lived????  WOW...I take one 5mgm pill every other day..lol and I'M worried I may become addicted?  I just need it to take the edge off my back pain.  I have three back fractures from osteoporosis and when I am on my feet a good deal of the day, that old back can become prettttty painful.

James uc
New Member


Date Joined Aug 2014
Total Posts : 1
   Posted 8/28/2014 10:50 PM (GMT -6)   
Even though this thread is not very recent, I felt the need to voice my thoughts based on my experience.
I was diagnosed left sided UC in 99. Probably like most, I have been a guinea pig of many many medicines in hopes of finding a miracle drug that achieves remission for any period of time.
In 2009, I began Remicade treatments. For almost 3 years this was my miracle drug. I was finally symptom free and seemed to be on the right track. After around 2 yrs of what I considered happy results, things started to slowly go downhill. I started having many of the side effects associated with Remicade and It was no longer maintaining remission and prognosis went from left sided to pancolitis, basically entire colon now a train wreck.
At the time my options other than Remicade were azathioprine or 6mp. I was interested in Humira but it was not approved for UC yet.
Long story shortened- several times though out the years I had taken hydrocodone and almost coincidentally while I was taking it my uc was kept at bay. I spoke with several Drs about this and to no surprise this was not really entertained. After some long and hard thinking and I decided I was going to pursue getting a prescription to either prove or disprove. I opted out of all biological type drugs and when I was able to get a prescription, I was taking 4 hydrocodone asacol hd, and Prevacid. For 2 solid years, I never seen a flare and I never seen blood in my my stool. But all good things come to an end, the Dr giving me the script moved from a private practice to hospital so I lost my prescription. Needless to say, I am in the middle of fighting one the worst flares I've had. I've lost 30 plus pounds in a couple of weeks with no end in site.
3 days ago I started Humira but from what I gather it does not work immediately.
My point- hydrocodone was doing something for me whether it was placebo or all in my head I could care less. I had quality of life of which is now gone. I look at the downsides and risks associated with biological treatments and it seems ridiculous that we are willing to chance lymphomas, cancers, and no immune system but rule out hydrocodone due to the risk of addiction. I would much rather worry about the addiction than the laundry list of risks associated with biologicals.
I am currently on 80mg pred, asacol hd 3x a day, lomodil 3x day, azathioprine 100mg a day, and just started loading dosages of Humira but no signs of remission right now. Keeping hopeful though.

JiujitsuLogan
New Member


Date Joined Aug 2015
Total Posts : 2
   Posted 8/10/2015 10:32 PM (GMT -6)   
Really interesting to see somebody have very similar results to me. I've had UC for about 3 years now, and very little has worked for me. (Only preds for a little while worked) but when I got my wisdom teeth taken out, I was prescribed Hydrocodone. I took it for about 2-3 weeks and it actually sent me into remission for about 3 MONTHS! Man it felt so great. I eventually fell back into a flare up and have been AWFUL for a couple of months now. I'm currently injecting simponi once a month and it's done nothing.

Dikid
Veteran Member


Date Joined May 2015
Total Posts : 2233
   Posted 8/10/2015 11:00 PM (GMT -6)   
Hydrocodone does not make the UC better it slows down your GI tract which masks the symptoms and gets rid of the pain. It can actually be quite dangerous and possibly cause megacolon.
What meds have you tried aside from simponi
20 year old female
Diagnosed with severe uc on 4/27/15
Remicade 10 mg/kg
Imuran 50 mg
Multivitamin, biotin, calcium, and vitamin d
Low residue diet (transitioning to regular diet)

BRUXXUS
New Member


Date Joined Jul 2015
Total Posts : 7
   Posted 5/2/2016 2:31 PM (GMT -6)   
Reviving an old thread here.

Diagnosed with moderate to severe pan colitis in 2008. Been on everything. Remicade was amazing until new job insurance made it cost like $12,000 per infusion. Been on Humira since and it only seem to be holding me at about 50% remission.

For some reason about 2 years ago my GI changed his stance on not prescribing pain meds for IBD. Maybe realized it's true the only thing that can help some people live somewhat normally. I've been on norco 7.5/500, about twice a day for like a year, although I've been on and off opioids for a few years.

For me, when I'm not 100% in remission the opioids are the only thing that allows me to operate like a normal human. Cramps, urgency, diarrhea, bleeding, and fatigue are all gone while taking them. Although, I have to agree about the risk of addiction. Even taken as directed you will have withdrawal when stopping. The part that really sucks is that withdrawal symptoms are very similar to UC symptoms.

I've been feeling better and tapered off the pain meds. Still feel okay, but the bleeding has returned which is not a withdrawal symptom. I'm going to give it another week and see what happens, but like many have mentioned, the risk of being addicted to opioids is well worth the alternative in many cases. Especially compared to the side effects of biological and steroids.

Chillin24g
New Member


Date Joined Dec 2015
Total Posts : 3
   Posted 12/26/2016 10:50 AM (GMT -6)   
Take the Hydrocodone if it puts and keeps you in remission, dont screw around! I was dealing with severe UC for 15 years and have had 8 scopes all of which came back showing active inflammation. Since adding hydrocodone along with remicade and lialda I FINALLY had a scope come back showing ZERO inflammation. It shuts your colon up and allows it to heal once and for all. It's your life, crapping blood all day everyday is no way to live.

platinumpixie
Veteran Member


Date Joined Oct 2014
Total Posts : 728
   Posted 12/26/2016 9:30 PM (GMT -6)   
Many GIs won't rx opioids including mine because of opioid induced hyperalgesia (OIH) which is a fancy way of saying a patient taking opioids can have a paradoxical reaction to long term use of opioids and have even more pain. There are several scientific articles written about OIH and can easily be found online.
44 yo female dx 2001 left sided UC
asacol max dose for several years
prednisone and rowasa when flaring
remicade since 2009; zofran, canasa
Factor V Leiden-blood clots x3
gabapentin, cymbalta for neuropathy in feet most likely from humira. Insurance denied lyrica so now on low dose methadone

Chillin24g
New Member


Date Joined Dec 2015
Total Posts : 3
   Posted 2/3/2017 5:52 AM (GMT -6)   
The real reason GIs wont prescribe opioids is due to liability and strict laws. What they will do, however, is refer you to a pain management clinic. Talk with your GI and have them recommend, then bring pics of your last colonoscopy with you. That's your proof, no one can deny visual pictures of your bleeding colon. After that, just follow the laws and clinic policies going forward. The goal is to achieve and maintain remission, not catch a buzz. Anyone who's been through the brutal months of a full on flare will appreciate simply going #2 pain free and solid again.

lydclrk
New Member


Date Joined Feb 2014
Total Posts : 7
   Posted 9/4/2017 7:57 PM (GMT -6)   
Hydrocodone ABSOLUTELY cures my colitis! I am so glad to see this discussion! I am like many posters here in that the regular meds were not working. I would get some relief but I never went back to normal. The best that the typical UC drug regimes would do is stop my bleeding and get me down to 6 BMs and daily D.

I NEVER had a day that the rest of the world would consider normal.

Then I had dental surgery... From about my second Lortab I had no UC symptoms. I didn't connect it to the Lortabs at the time but I keep a really detailed food /mood/exercise/water/habits diary and have for years. I feed the data into a analytic program trying to make sense of why I get sick/sicker/sickest... Most of the time I get common sense answers; days I stress or drink less water I will bleed or be sicker, sneaking a sip of wine gets me sick, eating chocolate will put me into a flare I can't get out of easily, things I love like swordfish get me sick, etc... That is not news to UC sufferers...

Then I wrecked my knee a couple years later. A few Lortabs later I was COMPLETELY SYMPTOM FREE! I still didn't connect it to the lortabs but my data analysis program did. All the sudden I saw a new connection for a well day... It said Lortab. How weird I thought... It must be from pain relief or something. I am usually in some degree of pain but the Lortabs take it all away.

So fast forward another year. I have cosmetic surgery and get a Lortab prescription again. Two pills in my uc was cured... This time I remembered the connection and I started researching it.

I actually hate Lortabs, I hate pain killers in general but Lortabs just make me feel spacey. I usually take half or 1/4 of the prescription. Because of that I had a few extra pills to test my theory.

Sure enough, if I was taking a Lortab my UC went away. It is not from the fact that Lortab change the absorption or water in your intestines because I tried the same thing with Loperamide which is prescribed solely to change the water absorption in your intestines and while loperamide would reduce BMs I would still be bleeding and in pain. Also, the minute I stopped loperamide my UC returned. With Lortab, I could take it at bedtime and once in the day for about 7 days and live normal. If I did 14 days I would be cured for about 4 weeks after stopping. No uc drugs at all, just cured.

So I brought all my research and information to my Dr. Who, while he acknowledged he had heard of this from other patients, felt that hydrocodone is too dangerous to play with for off label prescribing. I agree, I don't get addicted to it but we have a friend who was the most normal, never done a drug in his life guy, until his knee surgery... He became addicted physically to Lortab from the second pill. It was horrible. He didn't take them for more than 90 days and he had full detox symptoms. Anyhow, I wanted the cure from hydrocodone but not the opioid.

I started to research it and I found that the cure from hydrocodone for UC may come from the endorphin receptors. Hydrocodone ties up the endorphin receptors fooling your body into making more endorphins- or at least that's one of the things it does. Low dose naltrexone does the same thing without the addictive opioid history of hydrocodone. Neuropeptides play a huge role in inflammatory bowel disease and are both present in the intestinal tract as well as regulate immune responses of both the large and small intestine. Low dose naltrexone reduces the inflammatory interlukins and has been show to CURE both UC and crohns in 24 weeks. In simple speak, low dose naltrexone does stuff that stops your body from attacking itself. All of the UC and crohns drugs on the market do not address the endorphin and opioid receptors but work on reducing white blood cells in various methods. Reducing your white blood cell count is the reason why most UC have reduced immune systems and become susceptible to other diseases.

I showed all of my stuff to my doctor but he said that low dose naltrexone being prescribed for uc is still off label and he wouldn't do it but he has referred me to a couple of physicians who work with naltrexone. Unfortunately, one is a methadone clinic for recovering users and the other is a pain management firm where they tried to get me to keep taking my Lortabs for my knee even when I said I didn't want to. (they threatened to cut off my physical therapy).

I am looking for a Doctor who is familiar with low dose naltrexone for UC as I have heard great things. If anyone e has any more tips about hydrocodone, naltrexone and UC please let me know.

Casey_LB
Regular Member


Date Joined Mar 2015
Total Posts : 172
   Posted 9/5/2017 12:13 AM (GMT -6)   
lydclrk said...


Then I had dental surgery... From about my second Lortab I had no UC symptoms. I didn't connect it to the Lortabs at the time but I keep a really detailed food /mood/exercise/water/habits diary and have for years. I feed the data into a analytic program trying to make sense of why I get sick/sicker/sickest...

/quote]

lydclrk,

I am curious as to what analytic program you use. I have years of data in a spreadsheet, and could use a good way to analyze it.
Male 54
Dx'd w/ UC 2013, flare since 4/14
Asacol HD 800mg, 6/day
Start Remicade 12/14, nonresponsive, DC'd 3/15
Start Humira, 8/15, nonresponse, DC'd 12/15
Hydrocortisone enemas helped, regressed after stopping,

Start Entyvio 12/2015.
Restart hydrocortisone 12/2015
Start UMass IBD_AID diet 12/2015
Improved w/ Entyvio, hydrocortisone, IBD-AID
Colonoscopy showed clinical remission in 1/2017.
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