I know this is properly a question for jpouch.org and the ostomy board at healingwell, but this forum is where I feel I know everyone- and as I increasingly stare diwn the surgery precipice, I was wondering what you perm ileo and jpouchers on the forum do, if anything, for probiotic therapy, eg to prevent / minimize the occurence of pouchitis or cuffitis, and/or insure against developing crohn's (since a certain percentage of even "100% confirmed UC" patients end up rediagnosed as crohn's years later, post colon, which means presumably they had crohn's colitis mimicking UC all along- one of my many pre-surgery fears). Does the probiotic strategy change a lot post colon- I would guess it would be more optimized towards the probiotic bacteria that populate the small gut, although the cuffitis issue (if a rectal cuff is not stripped) presumably could still require probiotic enemas say. Though I didnt do well on most worm therapies, it makes me winder also if perhaps hookworm therapy might be one way to try and prevent an eventual crohn's attack.
Another question- its said again and again that much of our immune system resides in the colon- does that mean our immunity is weakened without a colon, or is the colon immune system
basicallly there just to protect (unsuccessfully, to say the least, in
the case of active UC) the colon, i e largely irrelevant once the colon is gone? If its the latter, it seems to me a bit of an over compartmentalizing of the immune system as far as an explanation goes- not that this should or would in any way dissaude me from surgery for a colon that is a nonstop nuisance.
Post Edited (Probiotic) : 8/21/2012 6:19:46 PM (GMT-6)