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freddyj
Veteran Member


Date Joined Aug 2011
Total Posts : 1162
   Posted 8/27/2012 3:44 PM (GMT -6)   
I have been trying to synthesize this in my head for a while. What if we came up with a score for foods regarding their beneficial/harmful qualities for UC. Im thinking this would be a benefit to new people especially, but also to the older vets.

Now, I know, everyone is very different. However, if we were to come up with a list of foods that has a score (not like the scd where it is legal or illegal), then sufferers could browse the list and see what their best go-to options are.

For example, pick the top 5 foods for you during a flare, maybe salmon, almond milk, bananas, apples, and spinach. Now, certainly, some people may have adverse reaction s to some of these foods, but they are mostly well tolerated. So, you could end up getting a consensus score like so:

salmon 9.3
almond milk 9.0
bananas 8.9
apples 8.7
spinach 8.5

My point is that there would be a list that people could go to, based on actual sufferers experiences, and try to find nutritious things that work for them

Obviously, it could be difficult logistically, and the mods would have to update it, etc.

I dont know just a thought, my brain isnt firing on all cylinders currently so forgive me. Perhaps a supplement list would also work?

Like I said, just a thought.

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 6827
   Posted 8/27/2012 4:28 PM (GMT -6)   
I think you'd have to have a scale that has both positive and negative values, like -5 is a horrid reaction and +5 is really good. Zero is neutral.

Then you have people like me who didn't notice any changes related to food.
Symptomatic remission as of May 2009
Colonoscopy in Oct. 2011 showed no inflammation
Symptoms began in Nov. 2008, about 4 weeks after birth of first child
Diagnosed with pancolitis in Jan. 2009
Apriso (Four 0.375 g pills once daily), Mesalamine enema twice weekly, multivitamin, vitamin D, probiotic
Currently expecting second child, due in early March 2013

bootstrap
Veteran Member


Date Joined Nov 2009
Total Posts : 579
   Posted 8/27/2012 9:22 PM (GMT -6)   
Sounds like a fabulous idea, but not sure how to get it started?
Follow my story: ronnielee-fightingforit.blogspot.com

32-year-old single female (teacher)
Dx mild/moderate UC 1995
Dx severe pancolitis 2011
Remicade (intolerant), Wellbutrin (100mgs x2), Asacol HD (4800mgs), Rowasa, probiotocs, L-glutamine, omegas, vitamin D, MMJ. No wheat, meat, dairy, caffeine, alcohol, chocolate, processed foods... totally CLEAN diet.
Scheduling surgery.

freddyj
Veteran Member


Date Joined Aug 2011
Total Posts : 1162
   Posted 8/27/2012 10:05 PM (GMT -6)   
I agree with the negative values, but am not so sure how to get it started either. Maybe compile a long list of foods and have people vote? I dont know how one would account for someone voting several times, changing ones mind, or other variables... Maybe it would be useless, maybe a good guide.

quincy
Elite Member


Date Joined May 2003
Total Posts : 25652
   Posted 8/28/2012 4:08 PM (GMT -6)   
I don't get the harmful part of your list.
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

freddyj
Veteran Member


Date Joined Aug 2011
Total Posts : 1162
   Posted 8/28/2012 5:24 PM (GMT -6)   
Suppose a food causes a worsening of symptoms across the board, for almost everyone. Then that food would have a really negative value, indicating the likelihood that it is harmful to someone with UC.

I dont know, the more I eat the more I think there is so little rhyme or reason to this, it may be really tough to come to a consensus.

soystud
Veteran Member


Date Joined Jan 2004
Total Posts : 4796
   Posted 8/28/2012 5:27 PM (GMT -6)   
harmful = not good
diagnosed with pancolitis december 21, 2003
currently taking: -- Astaxanthin, Ultimate Flora Critical Care, Natures Way Reuteri, Wild Harvest Inflamma Shield, Multi Vit. -
No Gluten, Limited Rice, Corn, Dairy & Sugar - -
No Meds (not that there's anything wrong with them)
Lots of H2O, exercise as much as possible & enjoy this great life that God has blessed me with -

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4407
   Posted 8/28/2012 5:42 PM (GMT -6)   
i don't think this would ever work to be honest. everyone on here is so individual with what we can eat and how it affects us. there are just so many foods to vote on and think of. this would take a long time.
Joanna, 22
diagnosed @ 17 with proctitis, UC at 21
currently on: 25 mg 6mp, zofran, 10,000 iu vit D, 1 tsp terramin clay, renew life probiotics
failed: canasa, rowasa, entocort, prednisone, remicade, lialda, welchol, bentyl, LDN, cipro, flagyl, l-glutamine, vit E enema, 8 fecal transplants, VSL
diet: started paleo 8/17/12 after abandoning almost 5 years as a GF vegan. hoping for remission!

stereofidelic89
Veteran Member


Date Joined Sep 2011
Total Posts : 1923
   Posted 8/28/2012 6:08 PM (GMT -6)   
I see what you're going for freddy.

The results would be like a poll almost that someone compiles together. And for those that don't necessarily react to certain foods regardless of symptoms, need not apply, unless they can pinpoint.

It would be very different though for some. For example, I know apple might be a hit or a miss because aguywithuc finds fruit pectin helpful in controlling symptoms, while for me, apple pectin is like deadly d haha.
22 Male Grad Student - Diagnosed Crohns-Colitis Sept 2011
Gluten Free, VSL#3, InflaGuard, Zyflamend, Asacol
Metametrix Labs stool testing reveal yeast overgrowth/parasite
Two Month Protocol: Candida Control Diet, Phytostan, ParaGuard, ADP

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 6827
   Posted 8/28/2012 6:10 PM (GMT -6)   
Yes, to be completely honest, I think it would be a lot of work for very little benefit. I don't think you'd find even one food that works for most. Besides, there are plenty of diet plans already out there for people who are interested to try and modify.
Symptomatic remission as of May 2009
Colonoscopy in Oct. 2011 showed no inflammation
Symptoms began in Nov. 2008, about 4 weeks after birth of first child
Diagnosed with pancolitis in Jan. 2009
Apriso (Four 0.375 g pills once daily), Mesalamine enema twice weekly, multivitamin, vitamin D, probiotic
Currently expecting second child, due in early March 2013
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