Hi all. I Did fecal transplant and in remission!

Has any received side effects from fecal transplant?
4
Yes - 36.4%
7
No - 63.6%

 
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ramaNYC
Regular Member


Date Joined Apr 2011
Total Posts : 26
   Posted 8/30/2012 1:08 AM (GMT -6)   
Hey Healingwell community,

about a month ago I visited Dr. Lawrence Brandt of Montefiore Hospital in the Bronx, Ny. I just couldn't get into remission. I have been living with this disease for about two years, this past summer after another round of prednisone, I felt helpless. My gastro locally explained that Dr. Brandt is the chief of gastroenterology in the United States, he referred to him as a legend. I was definitely not sold on fecal transplant, not only of the icky part, but read up that it might or might not help people with UC. Well, after waiting about two months for a consultation, I met with Dr. Brandt and what a guy! Very straight forward and with a wonderful personality, he explained how fecal transplant has been helping people with gastro intestinal disorders tremendously. Brandt explained that the donor must not have taken any antibiotics within the last 3 months, no piercings in the last year, and other strict rules which I forget but my mother did qualify. She was tested, we were a match and here comes mommy to the rescue again! He explained that I should see results in a month or more, which all depended on how inflamed my colon was. He also explained that this works extremely well for people who are new with this disease and by new, he meant 3 years or less. So I set up a colonoscopy and he performed the first transplant that morning of the procedure. I was on my own after that and yes I still am in the process of transplanting right in my own home.

I saw results in four days as oppose to his month. Now I went from very loose, bloody stools six to eight times a day, into perfectly formed stools. Bowel movements with no pain at all, no urge to go to the bathroom and shockingly, no odor. His protocol is extremely simple and I will provide it for you all. I highly recommend trying this, better yet seeing Dr. Brandt personally. It is a very individual disease, some treatment may or may not work for others, I am just sharing that this has worked miracles.

Brandts Protocol which Dr. Borody is now following : Stool mixed with a saline solution or regular filtered water (ex. poland spring) until it looks like chocolate milk. Now put this wonderful mix, through a strainer and into an empty fleet enema bottle.

Once (or twice) daily for a week. You can take larger amounts if tolerated; to some extent the more you put in the better.
Every other day for 2 weeks.
Once weekly for 2 weeks.
Once every other week for a month.
Monthly maintenance.

Any questions feel free to ask me. I will be browsing around the forum again to help anyone in need. We are in this battle together, keep fighting! According to Dr. Brandt, I was told us "UC" sufferers are only a couple years away from receiving very good treatment for this disease.

All the best,
Rami

Conquer UC
Veteran Member


Date Joined Jan 2012
Total Posts : 1149
   Posted 8/30/2012 7:30 AM (GMT -6)   
Hey congrats thats great news...I always feel happy hearing that someone is in remission. Thanks for the protocol.
What tests did dr Brandt do to determine if your mother was a 'match'?
Also did he test her for parasites...etc?

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 1553
   Posted 8/30/2012 9:17 AM (GMT -6)   
I would be more interested to know what factors you think got you a good result. had you previously had any response from probiotics? How bad was your flare? How much of your colon involved? Someone here was turned down because their flare was too bad. Also, some here have administered dozens of daily FT to self or kids and not seen remission - maybe just some stool improvement.

It clearly does not work for everyone, and help in identifying those who it is most likely to work for - well that would be very valuable.

garylouisville
Veteran Member


Date Joined Aug 2012
Total Posts : 5945
   Posted 8/30/2012 12:35 PM (GMT -6)   
I agree with DB. From what I have read FT's can help but not many have actually gone into remission. It would be nice to know if there was anything that was different about you. One thing I did pick up from your post was that your mother was the donor. Kind of made me wonder if genetics had something to do with your success, as in "real" transplants they search for someone who is compatible or they can't do it. Many fecal transplants seem to come from family members who are not blood relatives such as a spouse, etc. Is it possible you could ask your doc about my theory? In any event, congratulations!
Asacol 400mgs 2 pills X 4; VSL#3 112.5mgs 2 pills X 4; Vitamin D 5000 ius 1 pill X 2; DGL 400mgs 1 pill X 3

Didn't do anything: Prescription - Glycopyrrolate; Natural - enteric peppermint oil, Boswellia, Pepto Bismol, Omega 3 fish oil, Beano, Lactaid

Discontinued: Slippery Elm - meds were just passing through, Immodium - making me feel constantly constipated in beginning and now have solid BMs

ramaNYC
Regular Member


Date Joined Apr 2011
Total Posts : 26
   Posted 8/30/2012 7:00 PM (GMT -6)   
@Conquer UC - Honestly, I dont know what tests he did in order to tell me my mother was a match. I assume he did check for parasites, as that would be the logical thing to do, instead of infusing parasites into me. We both took stool tests and submitted them to the hospital. I then received a phone call saying that my mom can qualify as a donor.

@DBwithUC & Gary - My flare was moderate-severe and so was my colon. At the time Brandt performed the colonoscopy , I was awake the entire time and he explained that my UC is moderate-severe. This was 3 weeks ago. I have pan colitis, however my lower track is more severe then the rest of the colon, coming from the biopsies. I have tried Probiotics and was on VSL 3 Double strength for about 6 months in 2011. That didn't help at all. Last year I was on prednisone for a month, which kicked me into remission for about 3 months, then it came right back while I was on a strict diet and taking loads of supplements (including the VSL3 DS). The meds that I have tried and failed are Lialda, Colozal, Hydrocort enemas (which worked quite well for a short period of time), Apriso, a steroid that supposedly is not absorbed (forget the name), Prednisone and Rowasa enemas. I have never tried 6mp which according to Brandt was a great drug. He did explain that it takes about two months to work, but with fecal transplant I could possibly see faster results. So I was basically trying to gain remission since january of this year. I did notice in April when I took an antibiotic for the course of 5 days to fight off strep throat, I instantly became worse. That took about a month to recover from going to the bathroom 20+ times a day, back to my usual 6-8.

It does not work for everyone with UC, which is extremely confusing however, this is a cure for people with C-diff. That is a fact. Clearly this has been this best treatment for UC I have ever received, which mind boggles me even more. I wish I knew what factors got me a good result, because I too had extreme doubts about this, praying at night, that it would work. Probiotics did not help at all, but this did? Also, in 4 days I was in a complete remission to a point where I feel completely normal? We are made up of bacteria. We have much more bacteria in us as humans, then cells. There is no doubt that something in my mothers stool is "helping me".......

Post Edited (ramaNYC) : 8/30/2012 6:04:29 PM (GMT-6)


hateuc
Veteran Member


Date Joined Jun 2010
Total Posts : 1732
   Posted 8/30/2012 7:15 PM (GMT -6)   
Wow ramanyc--this is great! Congrats on remission--hoping it lasts a looongg time! Thanks for sharing.
B
UC diagnosed in 2010 but had prob. in 2009
2 Lialda/day Rowasa nightly, periodic anucort supp, starting Cortifoam 8/12
VSL#3, slippery elm
Metamucil wafers

beanie15
Regular Member


Date Joined Apr 2012
Total Posts : 27
   Posted 8/31/2012 5:28 PM (GMT -6)   
This is great news!  Discover magazine (Oct 2012 issue) has a write-up on this very subjuct.  Others have done this and gone into complete remission. I saw posts on this board dating back to 2009. Hope they are still in remission.
Lets hope all our docs worldwide get on board with this treatment.

Old Mike
Veteran Member


Date Joined Jan 2007
Total Posts : 2368
   Posted 8/31/2012 5:41 PM (GMT -6)   
It seems the doc said that this works on people best who had the disease for 3 years or less. How about 30
or more. A wild guess might be that the colon has killed off many strains,and the ones that are still there after a long time are really intrenched. I wonder for long term people that a cleanout with antibiotics might improve the odds.
Old Mike

ramaNYC
Regular Member


Date Joined Apr 2011
Total Posts : 26
   Posted 9/1/2012 4:50 PM (GMT -6)   
Thank you all!

@ Itsalive! - Nice! Im looking forward to reading that article so thanks for the heads up.

@ Old Mike - I agree with your theory and it makes sense. I know Dr. Borody was doing something similar to this from what I have read. According to Brandt, he disagrees with the use of antibiotics because for us "UC" patients it can evidently hurt us.
Current Meds - Lialda 1.2 gm 3x daily.
Supp: Daily vitamin, Folic Acid (1MG a day) & Milk Thistle.

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 9955
   Posted 9/1/2012 6:16 PM (GMT -6)   
So happy to hear you had success. It's nice that there are some GIs out there who are willing to work with their patients through these types of treatments instead of pushing more drugs.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: 6mp (25mg) + Canasa (1g PM) + cerazette

pupluv
Regular Member


Date Joined May 2007
Total Posts : 248
   Posted 9/1/2012 9:25 PM (GMT -6)   
Hi Rami! So happy to hear you feel well and that FT's are helping! I have been doing ft's since March and do a transplant every 2 weeks..I could probably go longer now but I love feeling so well, so I am nervous to taper down more. I do use it as maintenance and have been given the go ahead to taper my Aza(Imuran), I no longer do enemas of any kind and am only taking Asacol for prevention of colon cancer not for remission. I would rather do FT enemas than so m any drugs for maintenance as they were wanting to put me on Remicade next. I also got better very quickly..I have had UC for 17..might be 18 now. I am just so happy to hear of your success! Good Luck to you!
Donna

Edbar
Regular Member


Date Joined Jan 2012
Total Posts : 290
   Posted 9/1/2012 10:08 PM (GMT -6)   
Rama, congrats and I hope you continue to improve.
Pupluv, I'm so happy you are doing well. Hopefully you can taper off Imuran for good. I would just say that the moment you see any symptoms returning you should go back to daily enemas. Hopefully you won't need that though!
8 yo son diagnosed severe UC April 2011.
Four bad flares in 9 months. Steroid dependent.
Started fecal transplant Dec 3, 2011.
Medication free for 22 weeks.

curl3d
Regular Member


Date Joined Feb 2012
Total Posts : 359
   Posted 9/2/2012 3:31 AM (GMT -6)   
Great to hear from another FTer! Thanks for sharing your experiences! I'm still a firm believer in FT as a therapeutic method. Still in remission after completing mine and feeling great so far.
Status: In remission since beginning of April 2012
Diet: SCD
Medicine: Asacol 4x100 daily
FT: Performed Fecal Bacteriotherapy at home using my wife as donor starting the 29th of February for 27 days. Please see tinyurl.com/bw5fn8g for the procedure I used

upanashad
New Member


Date Joined Jun 2012
Total Posts : 8
   Posted 9/27/2012 3:16 PM (GMT -6)   
Hi Rami and others! Rami, great to hear about your success!

I am about to start my first fecal transplant next Tuesday. It has been a long process finding a donor and getting them tested. I stool tested two people and one of them had parasites even though he has a stellar digestive system (it is called an asymptomatic carrier), so I'm really glad I did the test. The other person who I'm going to use as my donor is the 3-1/2 year old son of an acquaintance who has never been vaccinated, eaten Weston A. Price for his whole life, and was breast-fed, so I'm hoping he will be a good match for me.

My doctor (who is a regular MD and a homeopath) is the one who suggested I do the fecal transplant. I actually had never heard of the procedure before he told me about it. Because my body is so extremely sensitive we decided I should just do the transplant without doing a lavage or anything first and see how it works, and if it doesn't help then amp up from there.

Rami, I assume you had done a lavage since you had a colonoscopy before getting your first FT, but after that did you take any specific medications or do any dietary changes such as low fiber/high fiber while you continued with the transplants?

My current digestive troubles started after I took doxycycline for six weeks over a year ago. I developed chronic diarrhea that never resolved despite probiotics and diet. Right now I am managing my symptoms with a combination of the GAPS diet and Tibetan herbs. The Tibetan herbs have helped tremendously and I no longer have blood and I am only going to the bathroom 2x a day, but I still have pale stools, urgency, nausea and cramps while going to the toilet, and I am severely limited as to what I can eat, so I'm hoping the FT will take me the rest of the way towards healing.

-Sita

soystud
Veteran Member


Date Joined Jan 2004
Total Posts : 4663
   Posted 9/27/2012 4:02 PM (GMT -6)   
gary, mike, & db - just curious - have any of you tried ft - and if not, why ?
diagnosed with pancolitis december 21, 2003
currently taking: -- Astaxanthin, Ultimate Flora Critical Care, Natures Way Reuteri, Wild Harvest Inflamma Shield, Multi Vit. -
No Gluten, Limited Rice, Corn, Dairy & Sugar - -
1 x 800mg asacol/day
Lots of H2O, exercise as much as possible & enjoy this great life that God has blessed me with -

soystud
Veteran Member


Date Joined Jan 2004
Total Posts : 4663
   Posted 9/27/2012 4:04 PM (GMT -6)   
that is super-duper Rami - hope it's a long and happy remission/cure -
diagnosed with pancolitis december 21, 2003
currently taking: -- Astaxanthin, Ultimate Flora Critical Care, Natures Way Reuteri, Wild Harvest Inflamma Shield, Multi Vit. -
No Gluten, Limited Rice, Corn, Dairy & Sugar - -
1 x 800mg asacol/day
Lots of H2O, exercise as much as possible & enjoy this great life that God has blessed me with -

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 1553
   Posted 9/27/2012 5:07 PM (GMT -6)   
Won't rule it out, but not yet.

Reasons:
1) I don't have c.diff, 2) I wanted to try oral probiotics 1st, 3) all published studies have great news for c.diff and only very weak evidence for idiopathic UC, 4) many discrepancies in anecdotal accounts, 5) best results seem to be with colonscopy not enema, 6) I am improving (frustratingly slow at times) on 5asa, 7) there are about 50 other things I have not tried yet, and some of these have more evidence support

That said, my questions/focus were to the point given the mixed results folks get. Answers to questions such as I posted above could potentially move FT up in my list.

garylouisville
Veteran Member


Date Joined Aug 2012
Total Posts : 5945
   Posted 9/27/2012 5:40 PM (GMT -6)   
DB has a good list. My condition is way better than most people so I don't have as much "urgency" to go down roads that I'm not ready to go down yet. Since doing Asacol and VSL my stools are formed almost all of the time with no bleeding. I have absolutely zero symptoms of UC other than 5-10 BM's per day and urgency issues. That's a big disappointment but I am grateful for no other symptoms and formed stools with no bleeding. I have never really gone through many of the hells that many here describe, even when I was at my worst. I agree with DB that since my condition is autoimmune and idiopathic that the FT is probably not going to be a cure all. Since mainly what it does is repopulate the good bacterias in the colon and I am already taking probiotics to basically do the same thing, then I'm not sure it would be of much benefit. I won't rule it out. I haven't seen my gastro in almost a year so we don't get to talk about things hardly at all. I'm going at the end of December and will then discuss ways to decrease BM's and urgency but I'm not real crazy about pred, immunemodulators, and biologics. Other than those and his sharpened scalpel he doesn't have much left in his little black bag.

soystud
Veteran Member


Date Joined Jan 2004
Total Posts : 4663
   Posted 9/27/2012 6:19 PM (GMT -6)   
although i've only done it a few times, i can't rule out that it may have been of some benefit - i don't know -

when contemplating a new direction or protocol in my treatment of this stuff, i try to weigh the cost vs potential benefit - in the case of ft, my son was the donor, i spent less than five dollars on equipment, and the time invested was minimal depending on the time of day it was administered -

i guess what i'm trying to understand is why don't more people give it a go - the chance for any significant damage seems pretty low -

trying to find definitive answers in the search for wellness from this elusive affliction ? i don't have the time - just gotta do it sometimes - especially when the starting price is a bargain -

and who doesn't like like shooting things up the butt ?
diagnosed with pancolitis december 21, 2003
currently taking: -- Astaxanthin, Ultimate Flora Critical Care, Natures Way Reuteri, Wild Harvest Inflamma Shield, Multi Vit. -
No Gluten, Limited Rice, Corn, Dairy & Sugar - -
1 x 800mg asacol/day
Lots of H2O, exercise as much as possible & enjoy this great life that God has blessed me with -

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4320
   Posted 9/27/2012 6:37 PM (GMT -6)   
i am glad i tried FT even though it made things worse. i would've regretted not doing it so at least i know that my problem isn't bacteria related. i would not try it again though since it took up a lot of time and effort for everyone involved.
Joanna, 22
diagnosed @ 17 with proctitis, UC at 21
currently: 25 mg 6mp, 10,000 iu vit D, 1 VSL DS packet, 1 capsule krill oil, 1/2 tsp l-glutamine
tried: canasa, rowasa, entocort, prednisone, remicade, lialda, welchol, bentyl, LDN, cipro, flagyl, VSL enema, vit E enema, 8 fecal transplants, terramin clay, aloe vera, zofran
diet: started paleo 8/17/12 after 5 years as a GF vegan.

curl3d
Regular Member


Date Joined Feb 2012
Total Posts : 359
   Posted 9/27/2012 7:22 PM (GMT -6)   
great to see another FT'er doing well. I'm still here and hanging around :-) Feeling great not having any problems with my tummy at all. I'm pretty certain I'll be flaring at some point again and I'm also pretty sure I'll be doing FT when I flare again. I'm a firm believer in this method for getting into remission.

I'm still eating a restricted diet but I am becoming more and more skeptical about the SCD diet but that is an entirely different subject.
Status: In remission since beginning of April 2012
Diet: SCD
Medicine: Asacol 4x100 daily
FT: Performed Fecal Bacteriotherapy at home using my wife as donor starting the 29th of February for 27 days. Please see tinyurl.com/bw5fn8g for the procedure I used

pupluv
Regular Member


Date Joined May 2007
Total Posts : 248
   Posted 9/27/2012 9:58 PM (GMT -6)   
I am still here as well and my UC seems to be in remission as well. I totally agree with Curl and I would not hesitate to continue with FT's when flaring again. Good Luck to all!
Donna

allswell
Veteran Member


Date Joined Oct 2011
Total Posts : 667
   Posted 9/28/2012 4:33 AM (GMT -6)   
I might give it another shot, as I tried with Brandt too. We're you on steroids when tou did it? If not how bad was you flare at the time of the transplant. I was unable to retain mine. I think I lost most of it in recovery. I tried at home too, with my daughter, 8. I thought he Sid the older the better so I am wondering about the three and a half year old.
proctitis 2004, Asa sup., 2006 hydrocort sup. worked for a while when I remembered to use them, 2009 spread to left put on prednisone, asacol, then Apriso. Switched docs tried lialda, rowasa, back to hydro enema and Apriso. 2010 6mp added, 2011 pancolitis ,Remicade, bad flare after no.1,2, pred now, and rem

upanashad
New Member


Date Joined Jun 2012
Total Posts : 8
   Posted 9/28/2012 12:47 PM (GMT -6)   
allswell, I have read the older the better, too, but I had such a hard time finding an adult with a healthy digestive system who was willing to be a donor. The 3-1/2 year old was my only choice a couple of months ago when I started this process (along with my ex who failed screening). Since then I have found a couple of adults who do have really good digestive health and said they will be donors, but I already spent all the money to test the toddler, so I'm going to try him first and if it doesn't work, I will start over testing another adult.

I guess I am going through this whole process kind of backwards as it seems most people exhaust all avenues and then try the FT, but I do not do well on drugs so I'm trying this first. To me it makes more sense to do something natural before I put any more drugs in my body.

allswell
Veteran Member


Date Joined Oct 2011
Total Posts : 667
   Posted 9/28/2012 1:40 PM (GMT -6)   
Definitely, why not.
proctitis 2004, Asa sup., 2006 hydrocort sup. worked for a while when I remembered to use them, 2009 spread to left put on prednisone, asacol, then Apriso. Switched docs tried lialda, rowasa, back to hydro enema and Apriso. 2010 6mp added, 2011 pancolitis ,Remicade, bad flare after no.1,2, pred now, and rem
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