Platlette count at 47,000 should be aout 147,000

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therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 2930
   Posted 9/27/2012 2:30 PM (GMT -6)   
Well I can't start Imuran, I have to see why my platlette count is low.
 
Before it was because of phenomia. Maybe I will have my spleen check. I see oncologist tomorrow.
 
Do UCER;s usually have low platelettes?
UC since '05 and DX with chronic Lyme's in 2010, (get tested by Igenix Lab) colozal,l,DHEA, Iron. You have to be your own advocate in your health. I've been to 18 dr's in 7 years. I'm doing so much better after being treated for Lyme's disease, tons of antibiotics.Try triple combo antibiotic therapy it has put some in remission. I personally, never remission.....yet

quincy
Elite Member


Date Joined May 2003
Total Posts : 25764
   Posted 9/27/2012 2:44 PM (GMT -6)   
I've never had mine being low as a concern that I remember. But yours are definitely low.
You do have a LOT going on. Hope further testing will confirm why. Have you been referred to an oncologist? or are you seeing one anyway?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 2930
   Posted 9/27/2012 2:55 PM (GMT -6)   
HI! Yes I saw one last year, they were 35,000 at the time went to 65,000 then 85,000 then 116,00 on the rise but now they are low again. I see the oncologist tomorrow.
UC since '05 and DX with chronic Lyme's in 2010, (get tested by Igenix Lab) colozal,l,DHEA, Iron. You have to be your own advocate in your health. I've been to 18 dr's in 7 years. I'm doing so much better after being treated for Lyme's disease, tons of antibiotics.Try triple combo antibiotic therapy it has put some in remission. I personally, never remission.....yet

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4482
   Posted 9/27/2012 5:15 PM (GMT -6)   
i don't think UC people generally have low platelets. last time mine were checked, i'm at 644,000. it's in the high range, not sure why. they have been high since i was diagnosed.
Joanna, 22
diagnosed @ 17 with proctitis, UC at 21
currently: 25 mg 6mp, 10,000 iu vit D, 1 VSL DS packet, 1 capsule krill oil, 1/2 tsp l-glutamine
tried: canasa, rowasa, entocort, prednisone, remicade, lialda, welchol, bentyl, LDN, cipro, flagyl, VSL enema, vit E enema, 8 fecal transplants, terramin clay, aloe vera, zofran
diet: started paleo 8/17/12 after 5 years as a GF vegan.

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 7470
   Posted 9/27/2012 5:33 PM (GMT -6)   
I think the 5-ASAs can lower your platelets a bit, but that's a lot of difference btwn normal and you. Sulfazine can definitely lower platelets - mine are bordering on the low edge of normal after a few years of this med. Hopefully you will find the answer soon!
*******************
50 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day)Colazal (96 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), mesalamine enema as needed. Gluten free as of 5/30/11. Colonoscopy found no evidence of inflammation on 8/16/12.

aguywithuc
Veteran Member


Date Joined Jun 2010
Total Posts : 2503
   Posted 9/27/2012 5:35 PM (GMT -6)   
Rising platelet is a sign stroke/DVT risk is increasing. Over the last 10 years I can see each hospitalization was predicted by 600-800 levels in the month leading up to admission. Normally I am 250, most recent directlabs.com was 300.


TESTS RESULT FLAG UNITS REFERENCE INTERVAL
Platelets 300 x10E3/uL 140-415

bananagirl
Veteran Member


Date Joined May 2011
Total Posts : 4482
   Posted 9/27/2012 5:43 PM (GMT -6)   
aguywithuc, that sucks haha i figure it's because i'm anemic and have UC since those both increase it. hoping i don't have a stroke or blood clot. that's the last thing i need.
Joanna, 22
diagnosed @ 17 with proctitis, UC at 21
currently: 25 mg 6mp, 10,000 iu vit D, 1 VSL DS packet, 1 capsule krill oil, 1/2 tsp l-glutamine
tried: canasa, rowasa, entocort, prednisone, remicade, lialda, welchol, bentyl, LDN, cipro, flagyl, VSL enema, vit E enema, 8 fecal transplants, terramin clay, aloe vera, zofran
diet: started paleo 8/17/12 after 5 years as a GF vegan.

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 2930
   Posted 9/28/2012 3:08 PM (GMT -6)   
My hematologist said my platelette count is low, but not scarey low and she doesn't see why I couldn't start Imuran. It's called ITP what I have, they just fluctuate high and low, so peeps....I'm going to start Imuran ! Yeah!
UC since '05 and DX with chronic Lyme's in 2010, (get tested by Igenix Lab) colozal,l,DHEA, Iron. You have to be your own advocate in your health. I've been to 18 dr's in 7 years. I'm doing so much better after being treated for Lyme's disease, tons of antibiotics.Try triple combo antibiotic therapy it has put some in remission. I personally, never remission.....yet

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 2930
   Posted 9/28/2012 3:38 PM (GMT -6)   
however I forgot to say if they dip much lower I have to go on prednisone! Hate it! But I don't think it will be that route, I'm going to start Imuran.
UC since '05 and DX with chronic Lyme's in 2010, (get tested by Igenix Lab) colozal,l,DHEA, Iron. You have to be your own advocate in your health. I've been to 18 dr's in 7 years. I'm doing so much better after being treated for Lyme's disease, tons of antibiotics.Try triple combo antibiotic therapy it has put some in remission. I personally, never remission.....yet

aguywithuc
Veteran Member


Date Joined Jun 2010
Total Posts : 2503
   Posted 9/28/2012 11:30 PM (GMT -6)   
bananagirl said...
aguywithuc, that sucks haha i figure it's because i'm anemic and have UC since those both increase it. hoping i don't have a stroke or blood clot. that's the last thing i need.


bananagirl, I have been really anemic, after stroke was really bad. Turmeric is cheap blood thinner and ECGC is cheap too - both have numerous health benefits and I do not worry as long as I stay hydrated. I bought 2 gallon jugs of water today just to kick me the arse and get me back on the hydration plan. Must down at least one per day.

I posted my normal range for the testing lab which is 140-415.

What is the normal range for this ? "they were 35,000 at the time went to 65,000 then 85,000 then 116,00"

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 2930
   Posted 10/1/2012 8:32 AM (GMT -6)   
Well I started Imuran on Friday and as we know it takes time to get into the system. I will be going for weekly blood tests this friday. My UC is flaring bad because I'm not on any meds right now and Imuran as not kicked in. I'm on a high steamed cooked veggie diet right now. That did work well when I was doing the vitamin E enemas. But right now because of my fissure surgery, nothing is going up the butt! Ouch!
UC since '05 and DX with chronic Lyme's in 2010, (get tested by Igenix Lab) colozal,l,DHEA, Iron. You have to be your own advocate in your health. I've been to 18 dr's in 7 years. I'm doing so much better after being treated for Lyme's disease, tons of antibiotics.Try triple combo antibiotic therapy it has put some in remission. I personally, never remission.....yet
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