Infectious Disease Doctor/Specialist

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Dawn89
Regular Member


Date Joined Jan 2013
Total Posts : 108
   Posted 3/8/2013 10:24 AM (GMT -6)   
Just curious! Has anyone ever went to an Infectious Disease doctor to rule out a rare bacteria? turn
My 12 yr old son:
Apriso morning, Canasa nightly when needed, 80 billion probiotic Renew Life daily, greek yogurt, L glutamine, multi, slippery elm, fish oil, aloe juice
No gluten, sugar, red meat, pork, corn, soy, cow's milk

TheAnswersYouSeek
Veteran Member


Date Joined Jan 2013
Total Posts : 2543
   Posted 3/8/2013 10:51 AM (GMT -6)   
Ive heard it better to go to a Rhematologist or Lyme literate doc. I didnt have a great experience my one time with infectious disease but have tried to get back to one but there are none on my healthplan you can self refer to. They are all attached to hospitals.

I think it is very worthwhile to rule out rare bacteria.
Current: No Dairy, Sugar, Wheat or Soy.. Olive leaf (20% Oleuoropein), Lauricidin/Monolaurin, Proteolytic and Digestive Enzymes, NA-Cysteine, CoQ10, Glucomannon, Psyllium/Apple pectin, Parasite blend, Metagenics ProBoullardi, Hemmorice
Things that have helped: Cleansing Enemas, Probiotic retention enemas, slippery elm, marshmellow root, aloe, Oil of Oregano (80%+ carvacol), Threelac

Dawn89
Regular Member


Date Joined Jan 2013
Total Posts : 108
   Posted 3/8/2013 10:54 AM (GMT -6)   
I saw a research in Japan and Australia? were they did find a rare bacteria called F. Varium in almost every patient in the study and treated it with a combo antibiotic.
My 12 yr old son:
Apriso morning, Canasa nightly when needed, 80 billion probiotic Renew Life daily, greek yogurt, L glutamine, multi, slippery elm, fish oil, aloe juice
No gluten, sugar, red meat, pork, corn, soy, cow's milk

jac91584
Regular Member


Date Joined Oct 2011
Total Posts : 379
   Posted 3/8/2013 10:58 AM (GMT -6)   
not sure if this is rare or not but before I was diagnosed with UC via colonoscopy biopsy i had a positive test for aeromonas hydrophila...
-Josh-
Currently On: Prednisone 40mg, Humira Once Weekly, VSL#3, Slippery Elm, Calcium, L-Glutamine
Failed Meds: Mesalamine (Asacol, Pentasa), Balsalazide Disodium, 6-MP
New Med Arrived: Uceris (waiting for doctor to let me start it)
Diet: Paleo (no grains or dairy)

Faithmac
Veteran Member


Date Joined Apr 2008
Total Posts : 1261
   Posted 3/8/2013 11:06 AM (GMT -6)   
I've gone to one ,not for UC. Had hand surgery for a broken finger. Had to rule out osteomyelitis . What an ordeal.
Faith
Female ,US, LMT
Balsalazide 750MG 3- 3x daily
Canasa supp, Mesalamine enema
VSL#3 DS
Armour Thyroid 60MG
Bio-identical compounded hormones,DHEA 10mg
Vit D 5000 i.u., Biotin,B12
Dicyclomine 20mg as needed
Clonazepam 0.5mg
Humira started June 2012,now weekly

TheAnswersYouSeek
Veteran Member


Date Joined Jan 2013
Total Posts : 2543
   Posted 3/8/2013 1:03 PM (GMT -6)   
Dawn89 said...
I saw a research in Japan and Australia? were they did find a rare bacteria called F. Varium in almost every patient in the study and treated it with a combo antibiotic.


There are many bacteria, viruses, Protozoa and parasites that can cause Inflammatory bowel diseases.

Roadback.org is a place I've seen for those looking for doctors more versed in stealth pathogens and their proper treatment.

Dawn89
Regular Member


Date Joined Jan 2013
Total Posts : 108
   Posted 3/8/2013 1:07 PM (GMT -6)   
I swear my son has passed a few parasites, but tests never find them.
My 12 yr old son:
Apriso morning, Canasa nightly when needed, 80 billion probiotic Renew Life daily, greek yogurt, L glutamine, multi, slippery elm, fish oil, aloe juice
No gluten, sugar, red meat, pork, corn, soy, cow's milk

TheAnswersYouSeek
Veteran Member


Date Joined Jan 2013
Total Posts : 2543
   Posted 3/8/2013 1:47 PM (GMT -6)   
Have you tried the metametrix/ Genova tests.. They at least find parasites for me, but return taxonomy unknown. I've had parasite present, taxonomy unknown 3 times now.. I just started with a new rheumy that likes the gi panels from diagnostechs. It's a 3 day stool plus saliva test.

We will see Monday, got a call that an appt opened early so I'll get the results of all my tests ( they took 14 vials of blood, urine and did ultrasound joint and muscle examination.)

I have actual microscopic slides with the worm larvae and I'm still having a hard time getting treatment. It is very hard to get them to take this seriously even tho we know nectator Americanis, ancyclostoma roundworms and taenia all show up here in America.. Some are epidemic in the south. Look into Rockefeller and hookworm..

I'm treating myself with herbs and supplements now cause I just couldn't wait another month to get into the doc when I started. I now believe I killed something and can't pass it completely. It's causing proctitis and inflammation but I feel so much better in some ways. My point is that if you Ever find yourself at the point of treating based on symptoms keep the bowels moving at all costs.

Post Edited (PathogenKiller) : 3/8/2013 11:51:44 AM (GMT-7)


Dawn89
Regular Member


Date Joined Jan 2013
Total Posts : 108
   Posted 3/8/2013 3:41 PM (GMT -6)   
Every time I give him 1000mg of biotin plus oregano oil, there they are floating in the water. Clove oil is to be even better.
My 12 yr old son: Prednisone 3/4/13 for 6 weeks
Apriso morning, started vsl#3 3/4/13, 80 billion probiotic Renew Life daily, greek yogurt, L glutamine, multi, slippery elm, fish oil, aloe juice
No gluten, low sugar, red meat, pork, corn, soy, cow's milk

TheAnswersYouSeek
Veteran Member


Date Joined Jan 2013
Total Posts : 2543
   Posted 3/8/2013 4:28 PM (GMT -6)   
There are places like Focus diagnostics that do tests on the prottogliods, which is maybe what comes out for him. What do they look like? worms or more eggs/segments?
Current: No Dairy, Sugar, Wheat or Soy.. Olive leaf (20% Oleuoropein), Lauricidin/Monolaurin, Proteolytic and Digestive Enzymes, NA-Cysteine, CoQ10, Glucomannon, Psyllium/Apple pectin, Parasite blend, Metagenics ProBoullardi, Hemmorice
Things that have helped: Cleansing Enemas, Probiotic retention enemas, slippery elm, marshmellow root, aloe, Oil of Oregano (80%+ carvacol), Threelac

Dawn89
Regular Member


Date Joined Jan 2013
Total Posts : 108
   Posted 3/8/2013 5:36 PM (GMT -6)   
Wish I new how to attach pics....we have had lots of tiny pale pink 1/4 inch, one inch white ones but very hard like a bone, and sacks that look like eggs.
My 12 yr old son: Prednisone 3/4/13 for 6 weeks
Apriso morning, started vsl#3 3/4/13, 80 billion probiotic Renew Life daily, greek yogurt, L glutamine, multi, slippery elm, fish oil, aloe juice
No gluten, low sugar, red meat, pork, corn, soy, cow's milk

Dawn89
Regular Member


Date Joined Jan 2013
Total Posts : 108
   Posted 3/8/2013 5:37 PM (GMT -6)   
And very sticky strings of candida that have to be scraped off the bowl, won't flush.
My 12 yr old son: Prednisone 3/4/13 for 6 weeks
Apriso morning, started vsl#3 3/4/13, 80 billion probiotic Renew Life daily, greek yogurt, L glutamine, multi, slippery elm, fish oil, aloe juice
No gluten, low sugar, red meat, pork, corn, soy, cow's milk

TheAnswersYouSeek
Veteran Member


Date Joined Jan 2013
Total Posts : 2543
   Posted 3/8/2013 6:56 PM (GMT -6)   
Does he have any additional dxes like Autism or asthma? I have a friend who has a DAN doctor and he has been a genius with parasites. They believe kids pick up these things cause they are playing in the dirt..
Current: No Dairy, Sugar, Wheat or Soy.. Olive leaf (20% Oleuoropein), Lauricidin/Monolaurin, Proteolytic and Digestive Enzymes, NA-Cysteine, CoQ10, Glucomannon, Psyllium/Apple pectin, Parasite blend, Metagenics ProBoullardi, Hemmorice
Things that have helped: Cleansing Enemas, Probiotic retention enemas, slippery elm, marshmellow root, aloe, Oil of Oregano (80%+ carvacol), Threelac

Dawn89
Regular Member


Date Joined Jan 2013
Total Posts : 108
   Posted 3/8/2013 7:08 PM (GMT -6)   
Just that he has always had attention/focus problems. The questionable critters all have pointy tales. Well baseball porty pots since he was 5 and we have been to a few lakes. The year before this started the lake was nasty and my other son got a staff infection on his legs. Oh and 2 months after his symptoms began, appendicitis.... too much bacteria for it to handle!!!
My 12 yr old son: Prednisone 3/4/13 for 6 weeks
Apriso morning, started vsl#3 3/4/13, 80 billion probiotic Renew Life daily, greek yogurt, L glutamine, multi, slippery elm, fish oil, aloe juice
No gluten, low sugar, red meat, pork, corn, soy, cow's milk

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10081
   Posted 3/8/2013 7:12 PM (GMT -6)   
There are quite a few past posts about triple antibiotic therapy. A few members have had luck with it.
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: 6mp (25mg) + Lialda (2400mg) + Canasa (1g PM)

TheAnswersYouSeek
Veteran Member


Date Joined Jan 2013
Total Posts : 2543
   Posted 3/8/2013 7:18 PM (GMT -6)   
I was just trying to think of alternate avenues to get him looked at, but DAN drs are about autism...

If you think it is parasites Id really keep on it.. what do your docs say about the things you see?
Current: No Dairy, Sugar, Wheat or Soy.. Olive leaf (20% Oleuoropein), Lauricidin/Monolaurin, Proteolytic and Digestive Enzymes, NA-Cysteine, CoQ10, Glucomannon, Psyllium/Apple pectin, Parasite blend, Metagenics ProBoullardi, Hemmorice
Things that have helped: Cleansing Enemas, Probiotic retention enemas, slippery elm, marshmellow root, aloe, Oil of Oregano (80%+ carvacol), Threelac

TheAnswersYouSeek
Veteran Member


Date Joined Jan 2013
Total Posts : 2543
   Posted 3/8/2013 7:20 PM (GMT -6)   
Sounds like a a hookwork or pinworm because of how small you describe
Current: No Dairy, Sugar, Wheat or Soy.. Olive leaf (20% Oleuoropein), Lauricidin/Monolaurin, Proteolytic and Digestive Enzymes, NA-Cysteine, CoQ10, Glucomannon, Psyllium/Apple pectin, Parasite blend, Metagenics ProBoullardi, Hemmorice
Things that have helped: Cleansing Enemas, Probiotic retention enemas, slippery elm, marshmellow root, aloe, Oil of Oregano (80%+ carvacol), Threelac

Dawn89
Regular Member


Date Joined Jan 2013
Total Posts : 108
   Posted 3/8/2013 7:22 PM (GMT -6)   
Ridiculous.... asked him 3x if he swallows his gum?? I already have an appointment or Tuesday with an infectious disease doc who specializes in parasites and bacteria...can't wait! My mom works on a pediatric floor in a community hospital and a few nurses think they are parasites.
My 12 yr old son: Prednisone 3/4/13 for 6 weeks
Apriso morning, started vsl#3 3/4/13, 80 billion probiotic Renew Life daily, greek yogurt, L glutamine, multi, slippery elm, fish oil, aloe juice
No gluten, low sugar, red meat, pork, corn, soy, cow's milk

Dawn89
Regular Member


Date Joined Jan 2013
Total Posts : 108
   Posted 3/8/2013 7:26 PM (GMT -6)   
Notsosicklygirl- I have read of the triple antibiotic treatment but his gi is not interested.
My 12 yr old son: Prednisone 3/4/13 for 6 weeks
Apriso morning, started vsl#3 3/4/13, 80 billion probiotic Renew Life daily, greek yogurt, L glutamine, multi, slippery elm, fish oil, aloe juice
No gluten, low sugar, red meat, pork, corn, soy, cow's milk

TheAnswersYouSeek
Veteran Member


Date Joined Jan 2013
Total Posts : 2543
   Posted 3/8/2013 7:26 PM (GMT -6)   
Dawn, I sooooo hope this doc is awesome for you guys! Im going to be sending you good vibes.

I get my test results Monday and cannot wait. Try to push for metametrix/genova or some other non labcorp stool test. you want an O&P with an actual microscopist at minimum. No computerized O&Ps. Good luck!
Current: No Dairy, Sugar, Wheat or Soy.. Olive leaf (20% Oleuoropein), Lauricidin/Monolaurin, Proteolytic and Digestive Enzymes, NA-Cysteine, CoQ10, Glucomannon, Psyllium/Apple pectin, Parasite blend, Metagenics ProBoullardi, Hemmorice
Things that have helped: Cleansing Enemas, Probiotic retention enemas, slippery elm, marshmellow root, aloe, Oil of Oregano (80%+ carvacol), Threelac

TheAnswersYouSeek
Veteran Member


Date Joined Jan 2013
Total Posts : 2543
   Posted 3/8/2013 7:26 PM (GMT -6)   
How does your son respond to pred?
Current: No Dairy, Sugar, Wheat or Soy.. Olive leaf (20% Oleuoropein), Lauricidin/Monolaurin, Proteolytic and Digestive Enzymes, NA-Cysteine, CoQ10, Glucomannon, Psyllium/Apple pectin, Parasite blend, Metagenics ProBoullardi, Hemmorice
Things that have helped: Cleansing Enemas, Probiotic retention enemas, slippery elm, marshmellow root, aloe, Oil of Oregano (80%+ carvacol), Threelac

Dawn89
Regular Member


Date Joined Jan 2013
Total Posts : 108
   Posted 3/8/2013 7:29 PM (GMT -6)   
Last year he did great on Vancomycin but after a few weeks bleeding returned. Gi doctors aren't trained in this area. Did the people who tried the triple combo stay in remission?
My 12 yr old son: Prednisone 3/4/13 for 6 weeks
Apriso morning, started vsl#3 3/4/13, 80 billion probiotic Renew Life daily, greek yogurt, L glutamine, multi, slippery elm, fish oil, aloe juice
No gluten, low sugar, red meat, pork, corn, soy, cow's milk

Dawn89
Regular Member


Date Joined Jan 2013
Total Posts : 108
   Posted 3/8/2013 7:32 PM (GMT -6)   
I will pathogenkiller thanks so much. So far he is fine on the Pred, tummy hurts a little after he eats though, which isn't his normal unless he would eat crappy fried fast food....not! nono
My 12 yr old son: Prednisone 3/4/13 for 6 weeks
Apriso morning, started vsl#3 3/4/13, 80 billion probiotic Renew Life daily, greek yogurt, L glutamine, multi, slippery elm, fish oil, aloe juice
No gluten, low sugar, red meat, pork, corn, soy, cow's milk

Post Edited (Dawn89) : 3/8/2013 5:37:33 PM (GMT-7)


Dawn89
Regular Member


Date Joined Jan 2013
Total Posts : 108
   Posted 3/8/2013 7:36 PM (GMT -6)   
I am going to try make him vsl#3 enemas with aloe juice.
My 12 yr old son: Prednisone 3/4/13 for 6 weeks
Apriso morning, started vsl#3 3/4/13, 80 billion probiotic Renew Life daily, greek yogurt, L glutamine, multi, slippery elm, fish oil, aloe juice
No gluten, low sugar, red meat, pork, corn, soy, cow's milk

emmaleechase
Regular Member


Date Joined Nov 2012
Total Posts : 35
   Posted 3/9/2013 3:03 PM (GMT -6)   
re: Infectious Diseases (ID) and rare/weird bacteria.


Didn't they do stool cultures (checks what virus/bacteria grows over 2 weeks) and O&P (ova & parasites) with you?

I had to give two vials of poop to the lab for tests.
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