SMECTA - has anyone used this for diarrhoea?

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franny19
Regular Member


Date Joined Mar 2012
Total Posts : 230
   Posted 4/14/2013 1:19 PM (GMT -6)   
Just seen a note in the Colitis UK magazine re SMECTA. Someone said he had it prescribed by his UC Dr in France and it has really helped him with the runs. I have googled it and it seems worth a try. Anyone tried it?
Diagnosed 2010. Prednisolone, asacol. Major flare year later hospital for 4 weeks. IV hydro-cortisone then IV ciclosporin, ciclosporin tablets, azathiaprin. Ciclosporin affecting kidney function and azathiaprin no good. Another flareup. Hospital for 2 weeks. Remicade for 5 infusions. Stopped working. Adacolumn trial 10 weeks to xmas 2012. LDN since June 2012. Vit D3, biokult, epa, zinc.

Harry92
New Member


Date Joined Apr 2013
Total Posts : 5
   Posted 4/22/2013 7:02 AM (GMT -6)   
Hi!

Wow also just read about the SMECTA in Crohns and Colitis UK magazine! Went to google to see what it is and here I am!

@Franny19 Did you start the SMECTA? And did it help in any way? Please reply I would love to hear your exp !

How is it that I've had Crohns since 1997 and Ive never heard of it till today! I do regualar checks to see what new/old/complementary there are out there.

Harry.

franny19
Regular Member


Date Joined Mar 2012
Total Posts : 230
   Posted 4/22/2013 7:25 AM (GMT -6)   
i Harry
No he hasn't tried it yet. It's quite hard to get hold of here in the UK. It's available on ebay but I'm not sure about buying it from there. Am seeing if anyone I know is going to France! Will let you know when we get it. Let me know if you get it first. Thanks
Diagnosed 2010. Prednisolone, asacol. Major flare year later hospital for 4 weeks. IV hydro-cortisone then IV ciclosporin, ciclosporin tablets, azathiaprin. Ciclosporin affecting kidney function and azathiaprin no good. Another flareup. Hospital for 2 weeks. Remicade for 5 infusions. Stopped working. Adacolumn trial 10 weeks to xmas 2012. LDN since June 2012. Vit D3, biokult, epa, zinc. Mezavant

neilfisk
New Member


Date Joined Apr 2013
Total Posts : 1
   Posted 4/22/2013 1:11 PM (GMT -6)   
 
Hey, I have also just read this article. Sounds very interesting. I have not had a proper 'poo' for many many years, its always diarrhoea, so this sound like a god send!
 
Has anyone tried this or got it prescribed in the UK?
 
Think I will get in touch with my GI and ask about this.

London Lurker
Veteran Member


Date Joined Feb 2013
Total Posts : 592
   Posted 4/22/2013 1:27 PM (GMT -6)   
I read a bit about it and it seems to have a clay base? Certainly seen posts on here from people using clay.
Proctitis 1984
Pan Colitis 1988
No major flare ups since, many well years between mild to moderate flares, some years without meds
No special diet other than low fibre and rare alcohol
Currently Mezavant XL x 2 per day
Salofalk Enema x 1 per day
B complex sublingual
Vit D (ceased K2)
Probiotics sometimes - started Mutaflor, VSL#3 March '13, good results so far

March '13 10 days on Flagyl

Harry92
New Member


Date Joined Apr 2013
Total Posts : 5
   Posted 4/23/2013 5:58 AM (GMT -6)   
The Brand name is SMECTA but the actual name of this is 'Diosmectite'.

If you search Diosmectite, there is a bit more information online, and some studies conducted.

-> Good explanation of what it is: http://www.wisegeek.com/what-is-diosmectite.htm

Why are we never informed of these type of meds! My consultant didnt even say a word about VSL#3 when I told him im taking it. Then later on I found he'd been doing extensive research on it for several years!

Im seriously questioning the standard meds in this country. I don't think immuno suppressants are the way forward. But every new med they introduce, its stronger and stronger immunosupps. Ive had Crohns since I was 4 and now im 20. Ive pretty much exhausted most of the meds.

Post Edited (HarryK) : 8/9/2013 1:58:13 PM (GMT-6)


InSoFla
Veteran Member


Date Joined Jan 2011
Total Posts : 4679
   Posted 4/23/2013 6:45 AM (GMT -6)   
neilfisk, Harry K
 
Welcome to the forum.
 
Harry, you bring up some good points.
But in my experience docs like to push: 1)  big pharma drugs which come with alot of side effects and lots of $$$ and 2) surgery.
 
It's rare you can find a doc who will actually suggest diet modification, probiotics - both of which are important.
 
Harry, have you ever heard of LDN, low dose naltrexone?
It's not a big pharma drug, has almost no side effects, and it put me in remission. Yet it's hardly prescribed - because big pharma can't make money on it. You'd need to get it prescribed through a holistic type doc. BTW, if you are interested in LDN, there's a post on the UC resources  page about it.
 
And then there are great supplements which help too: slippery elm powder, l-glutamine amino acid powder, and vitamin d3 ( if your blood levels show you are in need).
 
Anyway, if you are interested in going in a more natural route, there are things IMO that you can control, which will have a direct impact on your disease, the symptoms you experience and their severity.
I was able to control my UC into remission through various supplements, probiotics, diet modification, and LDN , low dose naltrexone.
 
For more info on the protocol which has put me into remission, please go to this link: http://www.healingwell.com/community/default.aspx?f=38&m=1666318 , and look at the 11th post.
I hope you feel better and let us know how we can help you.

Rx meds didn't help me. But 4.5 mg LDN +Paleo diet +supplements=REMISSION.Protein shakes w/almond milk,Maca powder,L-Glutamine,D-Ribose,chia seeds.VSL#3,K2,VIt. D3,slippery elm bark powder.For more info,my protocol is the 11th post at this link: http://www.healingwell.com/community/default.aspx?f=38&m=1666318
If you have any questions, you can find my email address at my profile.

franny19
Regular Member


Date Joined Mar 2012
Total Posts : 230
   Posted 4/23/2013 7:18 AM (GMT -6)   
Yes. My son takes ldn and Harry, it's definitely worth a try. I think it is keeping him well - his crp has gone down and going to the loo a bit less. In the UK you can get it through Prescribe4Me. You have a telephone consultation and Dicksons in Glasgow send it to you. Google it and you will find the various websites.
Diagnosed 2010. Prednisolone, asacol. Major flare year later hospital for 4 weeks. IV hydro-cortisone then IV ciclosporin, ciclosporin tablets, azathiaprin. Ciclosporin affecting kidney function and azathiaprin no good. Another flareup. Hospital for 2 weeks. Remicade for 5 infusions. Stopped working. Adacolumn trial 10 weeks to xmas 2012. LDN since June 2012. Vit D3, biokult, epa, zinc. Mezavant

Harry92
New Member


Date Joined Apr 2013
Total Posts : 5
   Posted 4/23/2013 8:05 AM (GMT -6)   
Wow Thank You guys :)

Fanny, do you receive the Naltrexone (50mg) tablet or is it a specific Low dose powder?

And you live in the UK right? Have you ever tried asking your GP about it and whether they'll prescribe it? If yes how did you go about the conversation?

Ive read up a bit about it seems like its pretty harmless so definately going to give it try. Thanks InSoFla !!! Im really hoping this is the one. Been ill for so long, I won't know what to do with myself when im well !

InSoFla
Veteran Member


Date Joined Jan 2011
Total Posts : 4679
   Posted 4/23/2013 10:20 AM (GMT -6)   
Harry, my pleasure.
Please do let us know as you proceed, the ease or not in terms of getting LDN, etc. ..
Rx meds didn't help me. But 4.5 mg LDN +Paleo diet +supplements=REMISSION.Protein shakes w/almond milk,Maca powder,L-Glutamine,D-Ribose,chia seeds.VSL#3,K2,VIt. D3,slippery elm bark powder.For more info,my protocol is the 11th post at this link: http://www.healingwell.com/community/default.aspx?f=38&m=1666318
If you have any questions, you can find my email address at my profile.

cherchezlafemme
Regular Member


Date Joined Aug 2010
Total Posts : 213
   Posted 4/23/2013 10:47 AM (GMT -6)   
Haven't tried Smecta, but it's available on Amazon. I plan on buying some and will report back once I've tried it.

deltaforce
Veteran Member


Date Joined Jun 2010
Total Posts : 1841
   Posted 4/23/2013 3:26 PM (GMT -6)   
I don't understand why SMECTA, most likely that amount of activated charcoal will give you same effect.
Diagnosed March 2007 with left sided UC.
Currently on daily dose of,
Sulfasalazine 3gm, Imuran, 200mg, Vit. B12, 1mg, Multivitamin, 1 tablet, Fish oil 2400mg , Vit D 2000 IU, Benebiotics 2caps, Folic acid 1mg

Verapamil 320mg, Nortryptyline 20mg for migraine, Migraine episode now at least 4X a month,
Nabumetone 750mg as an abortive, so far so good with GI side effects.

andys
New Member


Date Joined Aug 2013
Total Posts : 1
   Posted 8/14/2013 11:16 PM (GMT -6)   
hi guys,

just to let you know. I have used smecta and it's really good for all ages. no worries. go ahead. just, do not use too much otherwise your number 2 will be too hard :-))) Allthebest and good luck

franny19
Regular Member


Date Joined Mar 2012
Total Posts : 230
   Posted 8/15/2013 2:36 AM (GMT -6)   
Hi all - I started this thread - the smecta didn't seem to help my son - should it help straightaway if it's going to work or is it something you have to build up? He took it for about 2 days,
Diagnosed 2010. Prednisolone, asacol. Major flare year later hospital for 4 weeks. IV hydro-cortisone then IV ciclosporin, ciclosporin tablets, azathiaprin. Ciclosporin affecting kidney function and azathiaprin no good. Another flareup. Hospital for 2 weeks. Remicade for 5 infusions. Stopped working. Adacolumn trial 10 weeks to xmas 2012. LDN since June 2012. Vit D3, biokult, epa, zinc. Mezavant

Laserman
New Member


Date Joined Jan 2014
Total Posts : 1
   Posted 1/8/2014 9:33 AM (GMT -6)   
Hi guys, I was diagnosed with IBS 10 years ago. in Russia doktors prescribed me to take smecta between meals in case of diahrea. 3 sachets per day. It helps in 2-3 days. You should take it for few days more to calm down your bowels. Smecta is aluminum silicate , it is not absorbed by the body, just protects your intestines from irritants- fiber or bacteria, or salts etc..You can take it up to 28 days...but dont take it for longer period, since it may absorb some nutrients. I have been taking it 2-3 course of 7-10 days in a year for the past 10 years. It helps
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