Remicade and shingles

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Poopypantalones
Regular Member


Date Joined Mar 2013
Total Posts : 29
   Posted 7/16/2013 11:25 AM (GMT -6)   
I had my third induction dose of Remicade  last Friday and then Sunday I noticed these red dots on the back of my neck.  I also had a spot on the side of my neck that was starting to swell.  The side of my neck kind of reminded me of cystic acne or something like that. 
 
Of course, me being scared of going on Remicade in the first place, I started to freak out a bit and I made an appointment with my doc (general practicioner) the next day (Monday).  She quickly diagnosed it as shingles and gave me antiviral meds and painkillers and sent me on my way.  Good thing I went in quickly since apparently the antivirals work best if you start them within 72 hours of becoming symptomatic. 
 
Has anyone else had shingles while on Remicade?  Does the fact that we are immune suppressed down the recovery process pretty significantly?  My doctor told me that I probably ended up with shingles because my immune system is weak.  I also learned that people on immunosuppressants apparently can't get the shingles vaccine so that's too bad for me.
 
Anyway... for anyone thinking about going on Remicade, you might want to ask your doc if the shingles vaccine would be a good idea beforehand.  Shingles is no fun.
33 years old - UC diagnosed in 1999

Current Meds:
Asacol HD 2 tablets 3x daily
2 packages of VSL #3 daily
Rowasa nightly
Prednisone 10 mg (at tail end of my second taper since February )
Remicade (first infusion 5/31/2013)

ScienceGirl
Veteran Member


Date Joined Oct 2012
Total Posts : 511
   Posted 7/16/2013 11:36 AM (GMT -6)   
I haven't asked about the shingles vaccine, but I was told that I could get flu and pneumonia vaccines while on Remicade (just not the nasal version of the flu vaccine).

My father-in-law had shingles last fall/winter. He was very miserable :( I hope you feel better soon, and I'm so sorry you're dealing with this!
26yo female
Diagnosed with moderate pancolitic UC 10/07, severe 2/13
Flares: 8/07-12/07, 7/10-1/11, 2/12-ongoing
Currently taking: 6MP (50mg/day), Remicade (10mg/kg every 6 weeks), hydrocortisone enemas (nightly)

jc1973
Regular Member


Date Joined Feb 2010
Total Posts : 269
   Posted 7/16/2013 11:43 AM (GMT -6)   
I actually had shingles right after getting over a flare... no remicade. Of course, I didn't realize what it was until I had it for 2 days and then it was X-mas eve so I didn't get the antiviral.
 

Levi
Veteran Member


Date Joined Nov 2009
Total Posts : 1537
   Posted 7/16/2013 11:51 AM (GMT -6)   
I had shingles on my scalp after pred and 6mp combo. It was awful.
29 years old
Diagnosed 2009 proctosigmoiditis, 2010 Crohn's colitis, 2011 ileocolitis
Symptoms since 10.2007
Pentasa, 3g/day, 6mp 50 mg/day
Rowasa enema every other night
99.98 pc pure DMSO one teaspoon every day
VSL#3 DS two packet/day
Turmeric, boswellia, cat's claw, fish oil, vitamins D&E
Liver-Milk Thistle; Heart-Hawthorn, sometimes

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 3062
   Posted 7/16/2013 12:11 PM (GMT -6)   
I had shingles while on remicade. One of the gifts of a compromised immune system. That was really painful.
Marianne

DX Pancolitis in 2005. Family history of UC.
Tried every drug-even Remicade & Cyclosporine (nasty!)-Tried diets-nothing worked-wanted my life back!
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC and no more drugs!! Very happy j-poucher!! :)

vitaka
Veteran Member


Date Joined Jun 2006
Total Posts : 706
   Posted 7/16/2013 12:21 PM (GMT -6)   
That's really interesting... after my first Remicade infusion, I developed a red rash on my arms and also a few bumps on the side of my neck the started to swell. Some of them looked a bit like heat rash (that just didn't go away) and some looked more like poison ivy. I saw my GI after a few days and she didn't seem too concerned. I assumed that in my case it wasn't shingles as I didn't receive any treatment. My GI was completely baffled as to what it was as it was a bit late to be an allergic reaction (the rash started 2+ days after the infusion).
30-something female. Crohn's ileocolitis dx 2/06. Inflammatory arthritis dx 9/09. GERD dx 1/13. Asthma dx 4/13. Chronic headaches+migraines. Chronic chest pain. Currently taking Remicade (first infusion 4/13), 225mg Lyrica, 50mg Trazadone, 1mg Klonopin, 100mg topamax, Zyrtec, Miralax daily for constipation, Maxalt/Sumavel for migraine, Pentasa, Entocort, Gralise, Zantac

jc1973
Regular Member


Date Joined Feb 2010
Total Posts : 269
   Posted 7/16/2013 12:49 PM (GMT -6)   
If it was shingles... you would have known. That was two full weeks of the worst pain I have ever experienced, followed by severl more weeks of wierd sensations.
I had the rash on the left side of my stomach wrapping around to the back. Of course, those who have had shingles know the rash isn't the true source of the pain.

I still get wierd tingly electrical shocks if my shirt touches my skin the wrong way.
 

quincy
Elite Member


Date Joined May 2003
Total Posts : 25589
   Posted 7/16/2013 1:57 PM (GMT -6)   
Good you went to the doctor and are now on meds to help deal with shingles. I hope you only get it once in your lifetime. I know of some who have had it a few times..yikes.

The shingles vaccine is no guarantee we won't ever get it...it's protective for some, but for others it mayor can at least lessen the symptoms. So, it's a crapshoot basically.

You were on prednisone...are you finally tapered off?
 
One thing you might consider taking for a while is L-Lysine, 500mg twice a day.  But do the research on it first to see if you want to consider it.

Feel better soon,
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Andrina
Veteran Member


Date Joined Aug 2011
Total Posts : 2176
   Posted 7/16/2013 2:02 PM (GMT -6)   
I had shingles while on Remicade. I believe it's connected.

Get better soon.
Diagnosed with UC in '02
Past treatments: Prednisone, Mesalazine, Azathioprine (1.5 year semi-remission), MTX, Sulfasalazine, Remicade (2 year remission), Humira, Entocort, LDN, Uceris (symptom-free within 3 weeks), Colazal
Currently on 150 mg Azathioprine (Imuran)
Last coloscopy on 2/28/2013 showed pancolitis

ByeByeUC
Veteran Member


Date Joined Feb 2011
Total Posts : 3062
   Posted 7/16/2013 2:09 PM (GMT -6)   
Andrina said...
I had shingles while on Remicade. I believe it's connected..
Anyone who has had the chicken pox has the virus dormant within them. When the immune system is weakened (Remicade weakens the immune sysyem) the virus can come alive again in the form of shingles. That's why you hear of the elderly mostly coming down with shingles.
Marianne

DX Pancolitis in 2005. Family history of UC.
Tried every drug-even Remicade & Cyclosporine (nasty!)-Tried diets-nothing worked-wanted my life back!
Step 1: J-pouch surgery (Laparoscopic restorative proctocolectomy w/ temporary diverting loop ileostomy) 6-25-10
Step 2: Take down surgery (Ileostomy reversal) 10/8/10
No more UC and no more drugs!! Very happy j-poucher!! :)

Poopypantalones
Regular Member


Date Joined Mar 2013
Total Posts : 29
   Posted 7/17/2013 8:22 AM (GMT -6)   
Yeah I have been off of the pred for about a month now. I should have updated my signature block. THanks for the advice on the L-Lysine. I've hard vitamin C (and D perhaps?) might help me get over this quicker. It just itches like hell.

Hey... at least I'm getting to telework this week. :-)
33 years old - UC diagnosed in 1999

Current Meds:
Asacol HD 2 tablets 3x daily
Remicade (first infusion 5/31/2013)

soystud
Veteran Member


Date Joined Jan 2004
Total Posts : 4688
   Posted 7/17/2013 8:26 AM (GMT -6)   
from what I've heard about shingles. i'd rather be toiling away in a coal mine w/o shingles than telyworking with !
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, July 28, 2014 5:30 PM (GMT -6)
There are a total of 2,181,797 posts in 242,626 threads.
View Active Threads


Who's Online
This forum has 153793 registered members. Please welcome our newest member, Pauninthegut.
539 Guest(s), 20 Registered Member(s) are currently online.  Details
Mom of 2, Agent9er, yk, RobW521, deborahscinder, Scaredy Cat, Jonny_Murray, ByeByeUC, bertb, Judy2, NiceCupOfTea, kechase, adjust, Franklen, Somedude, dennis h, Gord-on, Garden Peace, Kalman, newtothis09


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer