CCHerbal... Is this a scam and if it is... why?

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ZeeSaffa
New Member


Date Joined Aug 2013
Total Posts : 1
   Posted 8/27/2013 9:40 AM (GMT -7)   
Hi all,
 
I'm new to the forum.
 
I've had Colitis for about 9 years now and luckily it's mostly been under control for that time (just a bit of blood & mucus) - until recently when I've had my first proper flare up and it's horrible! I'm going approx. 10x a day (urgently) and feeling very tired. This has been going on for about 10 weeks.
I've been on Prednisolone for 8 weeks (tapered down from 40mg) - and it hasn't helped :(
I'm also on Asacol / Messalazine suppositories and foam enemas.
 
I'll be going back for a consultation next week and I've been told that the next step will be Azathioprine - and it will be long term - like 5 years.
 
Also, my most recent colonoscopy showed ceacum ulceration (at the top of my colon) - so that's another worry.
 
Anyway, I've been reading a few of these threads about CCHerbal. Something I've noticed is that all the members that have posted about it working are "new" members with approximately 5 posts.
The only exception to that is a member called "Scarecrow".
 
With that in mind - can any long-term members vouch for CCHerbal?
 
I'd really be interested to know :)
 
Thanks!
 
 
 

HM Kim
New Member


Date Joined Aug 2013
Total Posts : 14
   Posted 8/27/2013 10:12 AM (GMT -7)   
I am one of the new members, and I have nothing to do with CCHerbal.
And I have purchased Qing Dai (powder) from Japan and China.

I first heard about Qing Dai 6 months ago from Korean social network.

A man posted about Hiroshima Sky Clinic in Japan that prescribe herbal medicine which mainly contains Qing Dai.
He had took that herbal medicine and he got into remission without any mesalazine or prednisolone.
Actually he was suffering from the bad side effect of prednisolone.

So I had studied about Qing Dai and started to taking it with my original(western medicine) medication : Pentasa and colon-coated prednisolone, because I could believe Qing Dai fully.
Before taking Qing Dai, I had been taking prednisolone over 2 month and it didn't work.
But after taking Qing Dai for 5 days, it started work.
After 20 days I could go into remission.

Then I posted about Qing Dai and about 20 Koreans started taking it.
For many, it works and for some, it doesn't.

I don't wanna say Qing Dai works for everyone, but it works for many people.
And it also has some bad side effect.
We also figured out that for severe pancolitis, Qing Dai works less than for other cases.

I have joined HealingWell to find out whether there are some people taking Qing Dai outside of Eastern Asia.(Japan, Korea, China)

Anyway I don't know how to end this reply....
(cuz my English is not that good...)

Thanks anyway!

freddyj
Veteran Member


Date Joined Aug 2011
Total Posts : 1190
   Posted 8/27/2013 10:25 AM (GMT -7)   
First off, out of desperation, i bought the product. After taking one look, i threw it out. Admittedly, i didnt take it (well, i did once).

First, there were no scientific names listed, only chinese names. Second, nothing is standardized. Reputable herbal products are standardized so you know you are getting a gauranteed amount of any given extract or what have you in a product. Ccherbal is not standardized, just a blend of mystery things thrown into a capsule.. Lastly, the pills appeared to have a blueish powder in them, which seemed odd. It just rang of garbage. Not to mention the fact that China is such a polluted crap hole i would hesitate nowadays to consume anything grown there given the stewardship they have demonstrated to their environment.

garylouisville
Veteran Member


Date Joined Aug 2012
Total Posts : 6974
   Posted 8/27/2013 10:40 AM (GMT -7)   
It has apparently helped some people but I can't really say much more than what you have already discovered through your searches. Why did these people take the supplement and then disappear off this forum? Who knows? Were they cured and didn't come back? Again, that's anybody's guess. The only thing I can say is if it were some magical cure that worked well in a lot of people then it would be widespread knowledge, which it isn't. I am also afraid to take anything that doesn't say on the bottle what exactly it is.
Asacol 800mgs 1 pillsX3; VSL#3 112.5mgs 1 pillX2; Prescrip Assist Probiotic 1 pill X 2;Vitamin D3 5000 ius 1 pillX2;Bentyl;DAO;Folic acid

Discontinued: Robinul; Natural - peppermint oil, Inflaguard (Boswellia), Pepto Bismol, Omega 3 fish oil, Imodium, Beano, Lactaid;Zymactive, Renew Life Probiotic 80 billion, Florastor, DGL, Monolaurin, slippery elm;black cherry concentrate

freddyj
Veteran Member


Date Joined Aug 2011
Total Posts : 1190
   Posted 8/27/2013 10:47 AM (GMT -7)   
Not to mention that the people who have been miraculously "helped" are few and far between, and most just happen to be new posters! Go figure.
currently on:
Asacol 1.6 g/3X per day
Transdermal LDN 4.5 mg/day
Various supplements
And no Quincy, Im not on mesalamine enemas.
didnt work for me.

freddyj
Veteran Member


Date Joined Aug 2011
Total Posts : 1190
   Posted 8/27/2013 10:49 AM (GMT -7)   
If I were seriously interested in Chinese medicine, I would try to find a good, recommended person, who dealt in organic herbs, and maybe take that route. Much more expensive and time intensive than buying a pill, which of course the people selling pills understand.
currently on:
Asacol 1.6 g/3X per day
Transdermal LDN 4.5 mg/day
Various supplements
And no Quincy, Im not on mesalamine enemas.
didnt work for me.

HM Kim
New Member


Date Joined Aug 2013
Total Posts : 14
   Posted 8/27/2013 7:43 PM (GMT -7)   
At first, I bought Qing Dai(indigo naturalis) from Japan, because the article about Qing Dai says that the participants bought it from Japan. After then, I bought it from China, through Korean herbal medicine company to eliminate radiation risks.

If your medication works well, go with it. But if your medication doesn't work well, you just can consider to take qing dai. And if you are suffering from side effects of steroid or something, you can consider it.

However unfortunately, there were some people experiencing side effects of Qing Dai, such as light headache, stomach pain and decline in liver function. (stomach pain and decline in liver function is rare though.)
When people cut their dose by half, most people could control the side effects but some doesn't.
So they stopped taking Qing Dai and the side effects have gone away.

Thus, it didn't work for everybody. For example, one of my friend have been on mesalazine, steroid, Humira, Remicade and Tofacitinib(clinical trial) and none of those ever worked for him. Then, before he goes with colectomy(actully his physician suggested him to go with it), he took Qing Dai but it didn't work and even he experienced side effects of Qing Dai. Now he is in the hospital.

As some of you guys mention about risks about Ccherbal, I also have a feeling of doubt and uncertainty.
Because, even in Korea, there is no one who have taken that tablet.
Most of us(Koreans) bought Qing Dai powder indivisdually, from Japan, China and Korea herbal market in Seoul.

Here's my suggestion.
If somebody wanna try herbal medicine, just buy Qing Dai powder. Because there is only Qing Dai in it, it could be safer than the Ccherbal thing.
And before buying it, try to read all the articles about Qing Dai for UC medication. And you can go to the Chinese herbal clinic and ask them what Qing Dai is.

Sorry for my English is not that good, if I was good at English, I could give you better explanation about this matter.

Post Edited (HM Kim) : 8/27/2013 7:47:14 PM (GMT-6)


tap
Regular Member


Date Joined May 2008
Total Posts : 472
   Posted 8/28/2013 7:27 AM (GMT -7)   
freddyj said...
Lastly, the pills appeared to have a blueish powder in them, which seemed odd.


Every picture of Qing Dai (indigo naturalis) that I have seen shows that the powder is blue so you were probably just seeing the Qing Dai in the pills.

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 2930
   Posted 8/28/2013 8:04 AM (GMT -7)   
did not work for me.

CutieMila
New Member


Date Joined Jan 2014
Total Posts : 6
   Posted 3/7/2014 9:30 AM (GMT -7)   
I never signed up and would just read the forums and after Qing Dai worked for me, i signed up and basically put my input on it.
It says 2 grams a day, i took 1/4 of a gram a day, sometimes twice a day...so 1/8 of the recommended dose. I was in a flare up that I could not get under control and basically was working from home because I was always in pain. After 3 weeks I noticed a big difference, now I am taking 1/4th of a gram twice a week, just because I don't want to end up having side effects.
My dad is actually taking it as well, but he does not have UC, he thinks it is clearning toxics .
@freddyj
I think you should have given it a chance, just because it is from China, doesn't mean anything. I think pills are far worse and have so many bad side effects and never actually fix anything, just cover up it up. I tried Asacol and it just covered up the pain for a bit and thats all. Alot of pills are FDA approved and they shouldn't be. I never took Qing Dai as a pill, I found the powder and just take it with a spoon and water.


Honestly I had no life because of this UC, I felt so home bound all the time and it has helped me alot, but I do have bad days when I eat something stupid I know I shouldn't.

Scarecrow
Regular Member


Date Joined Aug 2010
Total Posts : 222
   Posted 3/7/2014 3:55 PM (GMT -7)   
I have been taking CCherbal with great success for 3-4 years now.  So, no, it is not a scam.  However I don't know of anything that works for everyone (no matter what the disease is).  Mary
 
I have had this disease for 15 years now. Tolerable at first as I went into remission with drugs like prednisone and finaly Remicade. A few years ago, all of these drugs stopped working for me and my UC became much worse. I am currently on Chinese herbs and doing great. Good bye prescription drugs! Daily regiment of supplements:

CCherbal
Metamucil
Ultimate Flora Probiotics

franny19
Regular Member


Date Joined Mar 2012
Total Posts : 230
   Posted 3/7/2014 6:10 PM (GMT -7)   
I've posted on it and I'm not new. My son tried it, thought it helped for a bit but now stopped it.
Diagnosed 2010. Prednisolone, asacol. Major flare year later hospital for 4 weeks. IV hydro-cortisone then IV ciclosporin, ciclosporin tablets, azathiaprin. Ciclosporin affecting kidney function and azathiaprin no good. Another flareup. Hospital for 2 weeks. Remicade for 5 infusions. Stopped working. Adacolumn trial 10 weeks to xmas 2012. LDN since June 2012. Vit D3, biokult, epa, zinc. Mezavant

dinkydonuts
Regular Member


Date Joined May 2012
Total Posts : 81
   Posted 3/7/2014 6:51 PM (GMT -7)   
I bought Qing Dai from Acupuncture Atlanta and tried it while in the midst of a very bad flare up (still flaring).

I took approx. 1 gram at around 11PM on a Friday night. The next day I felt surprisingly stable. I was still passing mucous, but the usual tension I have in my colon that makes me think I constantly need to BM was gone. For having been in the middle of a bad flare up, I was surprisingly OK. I took another 1 gram with some water that night, but the next day (Sunday) I was in pain because by then I had eaten enough food that I was needing to pass a fair amount of stool. I guess too much time on the toilet and I was hurting again from having to defecate so much.

I think my experience doesn't mean anything because the Japan studies indicated that results were seen after long term usage.

I still have 2 bottles worth and will try it when I am not in a flare. I have doubts that it can get someone from -1 to 0, but it may provide enough gut stability to keep you at 0 (on top of 5ASAs and rectal meds).
Lialda 3.6g daily

CutieMila
New Member


Date Joined Jan 2014
Total Posts : 6
   Posted 3/10/2014 1:08 PM (GMT -7)   
@dinkydonuts
if you are in a flareup, keep taking it for awhile, I was in a flareup and after a few weeks i felt better.
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