Update---Hydrocortisone Enema

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angee23
Regular Member


Date Joined Nov 2013
Total Posts : 32
   Posted 1/7/2014 10:14 AM (GMT -6)   
My GI dr. prescribed me hydrocortisone enemas and uceris for flare-ups after my colonoscopy in November. They found some polyps, thankfully the results came back benign. However, they also found some abnormal cells; which means I have to go back every 3 months for a colonoscopy until they can figure out what's going on. I'm currently in the middle of a flare-up, and I'm a little afraid to try the enema. I've never used them before, and I was told there is a burning, stinging, and sometimes painful sensation when using the enema. I was also told there are horrible side effects to it.

Can anyone that have used or is using hydrocort enemas shed some light for me please?

 
 
 
 
 

Post Edited (angee23) : 1/10/2014 8:15:14 PM (GMT-7)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 22057
   Posted 1/7/2014 10:17 AM (GMT -6)   
I've never had any stinging or burning when I used them. I do however have some cramping after administering the med. But the cramping subsides after a while. As for side effects, it's not like an oral steroid where the side effects can be see fairly soon. Only a small percentage of steroid actually enters the blood stream. Over time it can accumulate tho. I didn't actually start seeing bad side effects until I was on them for almost a year.
SHERRY
Moderator-Allergies/Asthma, Alzheimer's, IBS, Co-moderator-UC
Diagnosed Left sided UC '92 - meds: Apriso, Remicade (6mp discontinued due to neuropathy)*Unable to tolerate ALL mesalamines*, IBS, Diverticuliar Disease, Fibro, Sacroiilitis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry Eye and allergies controlled by Zyrtec and Singular

Limitless
Regular Member


Date Joined Aug 2013
Total Posts : 80
   Posted 1/7/2014 10:33 AM (GMT -6)   
I used a hydrocortisone enema for 2 1/2 months (I think) and never experienced any pain, cramping, or side effects at all. If any side effects were there they were so minimal that I didn't even notice.

Don't be afraid to try it. It's probably not as bad as you think it will be. It definitely wasn't as bad as I thought it would be. I HATED the idea of enemas before I used them, but after using them I began asking my doctor for more enemas.
Diagnosed Ulcerative Colitis April 2013. Symptoms since December 2012.

Present: Balsalazide, VSL #3 DS, mega polyzyme, activated charcoal capsules, fish oil, vitamin d3, and calcium magnesium w/ vitamin d.

Past: S. Boulardii, cortenema, uceris

Gonk
Veteran Member


Date Joined Jan 2012
Total Posts : 578
   Posted 1/7/2014 10:53 AM (GMT -6)   
I use these. Enemas are nothing to be afraid of. However, as Red said, when you are in a flare up, the enemas can be difficult to retain in those first few minutes after putting it in. On the other hand, you may not experience any discomfort. If you do, try your best to get through it. If you have to let it go, don't worry about it. Try again, usually if that happens the second one is easier.
Oh, and there are normally no side effects to using hydrocort enemas. You would have to use them for a very long time for there to be a concern. In my experience, these enemas are usually prescribed for 2-4 weeks.
Good luck with them, you'll get used to putting stuff up your butt! And they work too.
43 Year Old Male,
First flare up in 1998, dx 2001
Current Meds: 6MP, Uceris
Past Meds: Asacol, Hydrocort enemas, LDN, Uceris, Lialda, Canasa, Rowasa (stopped all mesalamine 10/24/13), Prednisone.
Supplements include: Fish Oil, Psyllium, Bosswellia, Turmeric, Vitamins D, DHEA

angee23
Regular Member


Date Joined Nov 2013
Total Posts : 32
   Posted 1/7/2014 10:55 AM (GMT -6)   
Thanx...I know it probably sounds crazy that I was afraid to give it a try. I have to admit, last night I was willing to try it without giving a crap about the burning or stinging.
35 year old female
Left side colitis
Diagnosed 2011
Uceris 9mg
Asacol HD
Vitamin D

Gonk
Veteran Member


Date Joined Jan 2012
Total Posts : 578
   Posted 1/7/2014 11:39 AM (GMT -6)   
Not crazy! It is totally normal to not want to put things up there! You can get used to just about anything.
43 Year Old Male,
First flare up in 1998, dx 2001
Current Meds: 6MP, Uceris
Past Meds: Asacol, Hydrocort enemas, LDN, Uceris, Lialda, Canasa, Rowasa (stopped all mesalamine 10/24/13), Prednisone.
Supplements include: Fish Oil, Psyllium, Bosswellia, Turmeric, Vitamins D, DHEA

embersglow1
Veteran Member


Date Joined Nov 2013
Total Posts : 1543
   Posted 1/7/2014 1:26 PM (GMT -6)   
I tried my first enema last night. I was scared too! It was so where near as bad as I thought. .. like, at all.

Glad to have the first one out of the way... and now I know! :)
Katie - 27
Diagnosed UC July 11th, 2013
Currently Flaring.

Current medications:
balsalazide 3 750mg caps × 3x a day.
Prednisone 20mg (tapering)
Zoloft 200mg.

Past meds: Lialda 4.8g - nope. Prednisone - 20mg, 40mg, 60mg, 30mg - nope.

Allergic to Sulfas.

angee23
Regular Member


Date Joined Nov 2013
Total Posts : 32
   Posted 1/7/2014 1:34 PM (GMT -6)   
I think I'm going to have to put on my big girl panties and try it tonigt. I definitely need to get this flare-up controlled.
35 year old female
Left side colitis
Diagnosed 2011
Uceris 9mg
Asacol HD
Vitamin D

quincy
Elite Member


Date Joined May 2003
Total Posts : 25773
   Posted 1/7/2014 1:42 PM (GMT -6)   
Hi...is this the first retention enema the doc's given you? I'm surprised that the mesalamine wasn't first on the list...but start with the steroid enemas and consider switching to the mesalamine.

The same goes with the oral mesalamine...was UCeris the first oral topical med as well?

Where exactly were the abnormal cells in the colon? and what was the degree/grade of abnormality?

Every 3 months for a c-scope seems a bit extreme unless it's actually cancer....

I hope you have a copy of the pathology results for your records and research.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

angee23
Regular Member


Date Joined Nov 2013
Total Posts : 32
   Posted 1/7/2014 2:05 PM (GMT -6)   
Yes; this is the first rentention enema he's perscrided. I didn't know there were different ones available until I started looking at some of the threads on here.

The Asacol HD is the first mesalamine he perscribed. He had me taking the Uceris in addition to my Asacol HD.

He didn't explain were in the colon the abonormal cells were at yet, as well as explain the degree/grade of the abnormality. That's a good question. I have a follow-up appointment on Thursday and I'll definitely be addressing it with him. I had my colonoscopy in November and was told the details of the results would be dicussed during the follow-up.

I think I'm just going to have to find a different GI doc from a different office.
35 year old female
Left side colitis
Diagnosed 2011
Uceris 9mg
Asacol HD
Vitamin D

quincy
Elite Member


Date Joined May 2003
Total Posts : 25773
   Posted 1/7/2014 3:19 PM (GMT -6)   
Oh, missed the Asacol HD...what's the dosage (you can add that to the siggie)?

You do need to ask and please, please, please get a copy of the pathology report so you know EXACTLY what's going on in there. Do make a list of questions so that your appointment is efficient and not leaving you forgetting something.

I'd question the why of every 3 months for a c-scope.....but, if the abnormal cells are within only needing a sig-scope, that would be better for the every 3 months. Find out where, and then request the appropriate screening for it. But the degree/grade is most important.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

angee23
Regular Member


Date Joined Nov 2013
Total Posts : 32
   Posted 1/7/2014 5:51 PM (GMT -6)   
Heather,

I'll definitely be asking the GI doc all those questions. Those are questions I never would've asked. I'll give an update on how it went Thursday after the appointment. I just love this forum.

Has anyone had the side effect of the weight gain with the enemas?
35 year old female
Left side colitis
Diagnosed 2011
Uceris 9mg
Asacol HD
Vitamin D

Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2031
   Posted 1/7/2014 7:17 PM (GMT -6)   
Only burning or stinging I have experienced has come from defects in the tips that make parts of them a little sharp on an inflammed rectum. I ALWAYS have A&D ointment now and use that on the tips before I even attempt to use.
38 y/o M, Proctitis DX 1999, Pancolitis DX 2008
Remicade
Psyllium (palm full twice daily)
Probiotis/VitD3 5000IU+Ca/1000mg DHA

nightside of eden
Veteran Member


Date Joined Sep 2009
Total Posts : 520
   Posted 1/7/2014 7:44 PM (GMT -6)   
They don't sting at all! I think they are soothing when my butt is burning
32 yr old Male
Diagnosed when I was 15
8 sulfasalizine a day
50 mg of Prednisone
Klonopin

Tornado6
Veteran Member


Date Joined Mar 2013
Total Posts : 1149
   Posted 1/7/2014 7:51 PM (GMT -6)   
I found them soothing as well, just like putting hydrocortisone cream on a rash would be.
Ulcerative colitis / 36 / female

Allopurinol - 100 mg
Imuran – 50 mg M - F / 25 mg weekends
Remicade - 7.5 mg / kg @ 8 weeks

angee23
Regular Member


Date Joined Nov 2013
Total Posts : 32
   Posted 1/8/2014 4:12 AM (GMT -6)   
I tired the enema again...this is my third time. How do I know if I'm doing it right? I feel as if I'm doing it wrong.
 
I also spoke with the physician assistant for my GI doc. He said that the polyps they removed were flat. And that I have to have another colonoscopy because of how inflamed by colon was in November. He said they also saw some internal hemorrhoids. So my next one is scheduled for the end of February.
 
I asked about pain management...he recommended I stick with the Tylenol.

Post Edited (angee23) : 1/10/2014 8:09:26 PM (GMT-7)

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