Are any of you part of the 84% ?

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ushippedyourpants?
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Date Joined Jul 2015
Total Posts : 240
   Posted 8/21/2015 3:18 PM (GMT -6)   
MilkyChocoxD said...
I find that getting lots of sleep helps the most, otherwise I'm just tired all day and that makes me more stressed. Though the truth is sometimes when I'm flaring no matter then amount of sleep I get I'm still tired.

I read a statistic somewhere that said 84% of people who have UC or Crohns are anxious and introverted.







Before UC, Were you a Extrovert or Introvert ?
I was chatting with a friend recently, and we were talking about musical interests and we both liked music that was a little dark, and it made me think that my taste in music has always been a little a part from the normal, and then it got me to thinking about my personalliy in general, and that I some times tended to me on the quiet side. I don't know if I would have called myself an introvert but maybe. I know that since a came down with uc I have become less social.

Do you think there is a corroltion between uc and personality type ?

iPoop
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Date Joined Aug 2012
Total Posts : 10562
   Posted 8/21/2015 4:18 PM (GMT -6)   
I'm an introvert for sure, always have been. I tend to think uc forces one to be less social, unfortunately.
Moderator ulcerative colitis
John, 37, uc proctosigmoiditis in remission
Rx: Remicade 5mg/kg/8 weeks and 6MP 50mgs/day
Diet: Diet mods and supplements haven't done a thing for me
Only taxes and prednisone side effects are a certainty in life.

pb4
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Date Joined Feb 2004
Total Posts : 20577
   Posted 8/21/2015 4:30 PM (GMT -6)   
I don't think there's a whole lot of correlation, I was an extrovert before getting sick, since getting sick I've slowly turned into more of an introvert in a public social level, but I still speak my thoughts for the most part as I did when I was an extrovert type personality...I don't want to be "noticed" since getting sick, where as before I didn't care if I was "noticed" or not and I was much more social...if anything, it was getting sick that changed me to the degree it has but it didn't change me 100%.
DX with Crohn's Disease in 1991 shortly after becoming ill. CD was affecting small and large bowel & anus (perianal crohn's skin tags) & rectum for first 2 yrs of becoming sick, CD remained constant in colon (Crohn's colitis) & anus with anal tags, intolerant to oral meds. Currently on Humira (Feb 2014) once a week and B12, Vitamin A and Omega's daily. In remission but trying to combat IBS D/C.

Alice22
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Date Joined Jul 2015
Total Posts : 595
   Posted 8/21/2015 4:38 PM (GMT -6)   
Interesting. I definitely tend to be more introverted and so is my brother, who also has UC. For those who are interested and have never done so, the Meyers-Briggs Personality test can be taken online and it measures personality on 4 points, introversion-extroversion being one.

I also wanted to start a study to see 1) what states people with UC grew up in and if they swam frequently in an ocean or lake as children and 2) what their ancestry is. I'm also trying to find correlations. But I'll wait a few days on that.

Looking forward to seeing the results of your question!
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use Bentyl, peppermint oil capsules and Gas-X which all help with various UC symptoms during a flare. VSL3 didn't work for me.

sherbear46
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Date Joined Jun 2011
Total Posts : 3316
   Posted 8/21/2015 4:43 PM (GMT -6)   
I've always been more introverted. Most people just tend to tick me off which is why I work at a vet and do animal rescue. But this year, I am VP of my daughters school PTA so I think I have just lost my mind altogether!
Moderator UC and Breast Cancer forums
Sheri-42 years old

Diagnosed UC/IBS 04/09-Left sided 01/13 Endo showed gastritis and Colonoscopy showed only 2 cm of rectal inflammation 2015 Flex Sig showed everything clear and biopsy were clear too.
Diagnosed in Jan 2013 with Chronic Uticartia
Meds-2 Lialda, Aciphex, Allegra, Singulair, Vitamin D3, Hydroxyzine (as needed), probiotics, Canasa 3xwk

London Lurker
Veteran Member


Date Joined Feb 2013
Total Posts : 1039
   Posted 8/21/2015 4:46 PM (GMT -6)   
I work in mental health. All research that tried to prove a "personality type" for IBD had been discredited as far as I know. There was a particularly dominant theory in the past that UC was a disease of fearful people with overbearing mothers. However, this research was based on hospital populations, it was a biased population based on those who were very ill with families desperately trying to help them. It noted that the siblings of the sufferers were less worried and more carefree - well these siblings had not experienced a life full of pain, the shock of passing blood and the exclusion from normal activities due to fecal urgency.

Newer research seems to demonstrate that people with childhood adversity definitely have a higher vulnerability to raised inflammatory markers in adulthood but this spreads across all diseases, from heart disease to autoimmune classed conditions.

My personality has changed over the years with IBD, I am less outgoing and confident than I was, that is partly down to multiple steroid courses that have had a marked effect on my mental health and partly down to the physical limitations UC has brought to my life such as not wanting to cr*p myself in the middle of a big office meeting, which has happened more than once.

Only recently I was speaking to a psychiatrist involved in mental health research for people with IBD. In conducting their research they are not including information about use of steroids meds, these have such a strong effect on many users' mental health, I believe that any research that tries to draw conclusions about personality that does not rule out steroid effects is deeply flawed. Someone may only have had one course of steroid meds but if that happened at a pivotal point in their life and their change in behaviour led to loss of friends or jobs, that can have lasting effects, let alone those of us who have had to go through many ups and downs due to the drug induced effects.

notsosicklygirl
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Date Joined Dec 2008
Total Posts : 15138
   Posted 8/21/2015 4:58 PM (GMT -6)   
I was an introvert well before UC :)
Co-moderator: Ulcerative Colitis
Diagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: no meds. Step One J-pouch Surgery Complete!

NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 9930
   Posted 8/21/2015 6:31 PM (GMT -6)   
notsosicklygirl said...
I was an introvert well before UC :)


This, except I was an introvert well before Crohn's >_>.

If anything has increased since diagnosis, it's my anxiety. I don't think that is solely down to Crohn's, but I think it has played a part. Also, the people I've known irl with IBD have tended towards extroversion, including my brother who is nothing like me in personality. As far as I know introversion/extroversion is a fundamental aspect of personality, set before birth. Sickness and pain can make anyone withdraw, but as soon as an extrovert starts to feel better, they draw their energy from other people again. They have not been turned into a permanent introvert. Likewise, there is nothing on earth which would turn me into a life and soul of the party sort.

kiptyn
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Date Joined Jul 2013
Total Posts : 607
   Posted 8/21/2015 7:49 PM (GMT -6)   
I've always had anxiety (and depression) but am becoming more introverted over time. I think that's because I'm getting older and realizing I've always been introverted but thought I was "supposed to" be an extrovert. I definitely don't believe the change has anything to do with UC.
F, mid-40s. Diagnosed early 30's. Grandfather and 1st cousin also had UC.

Daily: 3 grams Doctor's Best Curcumin (6 g while flaring), 4 TBSP resistant starch as potato starch, vit D, folic acid, vit B6, Wellbutrin 450 mg/day, Prevacid 2x/day, Olympian Labs 400 mg grape seed extract 2x/day, Align, Culturelle, 5 oz of yogurt.

Bad reactions to 5-ASAs/mesalamines, Remicade, psyllium seed powder

UC prisoner
Regular Member


Date Joined Oct 2013
Total Posts : 85
   Posted 8/21/2015 8:44 PM (GMT -6)   
Don't buy that this is an illness caused by stress either.
55 y/o female
Acute proctitis dx in 1991 - progressed to left sided then pancolitis
Also suffer from exhaustion, degenerative arthritis, osteopenia, fibromyalgia, and anxieties
Current RXs asacol HD 4-5/day
Previous asacol, rowasa & dipentium
Steroid enema treatment severely exasperated bleeding

ushippedyourpants?
Regular Member


Date Joined Jul 2015
Total Posts : 240
   Posted 8/21/2015 9:18 PM (GMT -6)   
Stress causes bridges to fall.
Stress causes relationships to fail.
There is no question that stress can bring on all sorts of health issues.
Why not UC ?

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/21/2015 9:42 PM (GMT -6)   
Fact is, stress of all kinds will affect health, it's the mind-body connection and if you don't have great coping skills and/or have a lot of emotional/mental stress you will in fact have some form of physical stress at some point in the form of some type of illness, it's not just all genetics that cause illness/disease.

Some people choose not to believe it but it is true.
DX with Crohn's Disease in 1991 shortly after becoming ill. CD was affecting small and large bowel & anus (perianal crohn's skin tags) & rectum for first 2 yrs of becoming sick, CD remained constant in colon (Crohn's colitis) & anus with anal tags, intolerant to oral meds. Currently on Humira (Feb 2014) once a week and B12, Vitamin A and Omega's daily. In remission but trying to combat IBS D/C.

Sick Puppy
Regular Member


Date Joined Feb 2015
Total Posts : 32
   Posted 8/22/2015 1:20 AM (GMT -6)   
I've always been an introvert. Although I think you might be getting a biased sample by asking this question on an Internet forum - most of us here probably tend towards being introverts :)
35 year old female. Diagnosed with severe UC/pancolitis November 2014.
Current meds: Balsalazide 6.75g, Uceris 9g, Mercaptopurine 100 mg, Omeprazole 20mg

Tried: Asacol HD (insurance switched to Colazal), Colazal (new insurance switched to generic), Prednisone (worked but got every side effect in the book), Entocort (didn't work and got every side effect in the book)

malaika
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Date Joined Feb 2014
Total Posts : 524
   Posted 8/22/2015 3:06 AM (GMT -6)   
I have depression and anxiety, but even without that I'm still extremely introverted
Pancolitis since May 2013.
Hospitalised due to severe reaction to mesalazine in September 2013.

Currently: Simponi, 50mg azathioprine, ferrous sulphate, Vitamin D, coconut oil, and anti-histamines.
Discontinued: Dexamethasone, various mesalamines, prednisolone, fish oil, turmeric, hemp seed oil, l-glutamine, VSL#3.

UC prisoner
Regular Member


Date Joined Oct 2013
Total Posts : 85
   Posted 8/22/2015 3:43 AM (GMT -6)   
Perhaps stress (or maybe it was just genetics) was a factor that prevented our bodies from the ability to fight whatever caused our UC (be it a virus, bacteria, environmental exposure, etc) but stress, independent of the possible exposure did not cause our UC. Sure, now stress exasperates our symptoms but I actually find a little bit of stress is a good motivation to accomplish things.

I'm more a selective socializer than an introvert - rather be social with the people I prefer than waste my time making conversation with people I don't like.
55 y/o female
Acute proctitis dx in 1991 - progressed to left sided then pancolitis
Also suffer from exhaustion, degenerative arthritis, osteopenia, fibromyalgia, and anxieties
Current RXs asacol HD 4-5/day
Previous asacol, rowasa & dipentium
Steroid enema treatment severely exasperated bleeding

aguywithuc
Veteran Member


Date Joined Jun 2010
Total Posts : 3005
   Posted 8/22/2015 8:15 AM (GMT -6)   
I have been an extrovert. I was not the captain of the football team or some stud jock which caused me to not have friends easily but as I went from school to school I became more athletic. Usually I was really good at an individual sport like skiing and busting off backflips or handstands on skateboards and only so-so as a team sport player. I began to have many many friends always calling or knocking on the door. My parents contrasted this with my sister who had few friends. When I needed rides to the ski slopes on weekends I would be working the phones and always going fri/sat/sun and once I had a drivers license I would 'meet myself' coming and going thru the front door per parents.

Now much later in life and after getting UC around 40 I am busy raising child by myself and the rest of my time is spent trying to be in top shape while also battling this disease. I notice other people look for ways to 'kill time' but I have no spare time. At the office I used to basically keep my head down as a consultant but now as a manager I have to talk to be people all day long and when my energy is low it is hard. I take stimulants to get the energy up but it makes me edgy. Driving home for an hour with daughter if a car ramps on near us at high speed I INSTANTLY feel a jolt of adrenaline flow from the core of my body out to my limbs. Seems excessive, too much stimulant consumption. The only reason things are going well is that I am chowing through bags of Warrior blend Chia/maca and that seems to really really help the gut. I bet if I won the lottery and chilled out and slept more I would have no UC at all.

L Rachel
Regular Member


Date Joined Mar 2015
Total Posts : 204
   Posted 8/22/2015 11:54 AM (GMT -6)   
I would say I've always been sort of introverted, but had an active social life before UC, meaning that I went out with friends a lot, but always needed down time afterwards because it made me tired.

Since UC, my social life has totally collapsed. I don't leave the house unless I have to, and I take drugs for anxiety and depression. Before I started the anti-anxiety drugs, I was having panic attacks on a daily basis. One was so severe that I lost consciousness in a grocery store.
Left-sided UC and rapid gastric emptying
Currently: Klonopin as needed, Wellbutrin, supplements (NAC, zinc, fiber).
Unsuccessfully tried: all of the 5 ASAs, Flagyl, Cipro, hydrocortisone suppositories, prednisone (the only thing that's offered some relief), Uceris, Entocort, and FODMAP and SCD diets.
Mesalamine intolerant. Waiting for new maintenance meds.

lealee
Regular Member


Date Joined Sep 2013
Total Posts : 139
   Posted 8/22/2015 12:17 PM (GMT -6)   
I was an extrovert before I got so sick. Now I don't want to go around the block, nevermind out into the public eye to meet new people. I have a friend who won't talk to me right now because I told her I was too sick to have her over. People can be weird.
I have anti-anxiety drugs but I don't take them unless I absolutely have to because I take so many other drugs that keep me alive.
This is not an easy thing to have and I feel fortunate to have found a site that is both informative and understanding.
I'm always tired - worse during a flare. I have fibromyalgia so I'm no stranger to fatigue, but this disease has me (almost) beat.
Diverticular associated colitis, fibro, arthritis, diabetes, high blood pressure, 2 different "female" cancers, ptsd and other assorted maladies too numerous to list.
Herbal Remedies:
Probiotic - Bio-K
Oil of Oregano - when flaring
Fish Oil
Unable to continue the Salofalk-lowers BP
Entocort
Various other medication - 17 in total
--------------------
I've changed and I am over it
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