How to umm... get hungry? on prednisolone?

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solitudent
Regular Member


Date Joined Apr 2016
Total Posts : 71
   Posted 1/9/2017 6:12 AM (GMT -6)   
I weight around 61 kgs these days. My symptoms became more tolerable for the last week but I have problems with my appetite. I've been losing weight since August. I force myself to eat so I don't lose even more. Is there anything I can take to get hungry? I'm on prednisolone(10 mg per day) but it doesn't seem to make me hungry at this dosage. I'm also on 150 mg Imuran & mesalamines(Salofalk).

WorriedUCer
Regular Member


Date Joined Jul 2014
Total Posts : 224
   Posted 1/9/2017 6:38 AM (GMT -6)   
I always found that prednisone made me ravenous, as a side effect of the medication and as a side effect of actually feeling better. I tend to lose my appetite too when I don't feel well, and usually just cut back to one meal a day to give my colon a chance to rest, so the weight falls off me quite badly. But once I start feeling better, it returns. Could the insurance be doing it? Do you find that you're nauseous? Do yo think that you're absorbing your food?

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 9030
   Posted 1/9/2017 9:58 AM (GMT -6)   
You're only at 10mgs of pred and that's unlikely to increase appetite (often 20mgs or 40mgs will). MJ will increase appetite.

I know Imuran can initially cause nausea in some, and some it does persist longer.

Do you feel nauseous? Does your abdomen hurt or ache? I know when we flare badly we have a negative association with eating and food (as the more we eat the more and painful bms we have) and that it might take a bit to beat once we feel better. As it becomes habit to eat little...
Moderator Ulcerative Colitis
John
, 38, in a minor flare, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 50mgs 6MP, 4.8g Mesalamine DR, 5mgs pred (tapering)

Tips for surviving UC: learn to laugh as it helps, get a good pair of running shoes for bathroom runs, and appreciate the small things.

solitudent
Regular Member


Date Joined Apr 2016
Total Posts : 71
   Posted 1/10/2017 5:48 AM (GMT -6)   
Well, the thing is I get hungry but I feel the need to stop eating soon after starting my meal. At one time, I can eat so little, I get the feeling that I'm full, too quickly. I don't have nausea, I started taking Imuran in May and I always take it before I go to bed. It's like my stomach shrinked so much I can't gain weight. That's why I'm asking for something to give me an appetite, if there is such a thing.

Kevin Watson
Regular Member


Date Joined Aug 2012
Total Posts : 299
   Posted 1/10/2017 9:03 AM (GMT -6)   
I would listen to your gut for the time being and eat less until your body adjusts and your appetite naturally returns. Our bodies are clever machines and yours could be suppressing your appetite while your gut is healing. Maybe just accept a little more weight loss as being part of the deal for now, knowing you can put some back on later on later.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 9030
   Posted 1/10/2017 9:11 AM (GMT -6)   
How bad are your current symptoms? I was only able to regain weight once I got my daily bms 4 or less per day, and at least semi-formed. It was a steep, uphill climb to regain weight with some lingering/simmering symptoms remaining: I drank whole milk, ate lots of carbs, made protein shakes (whole yogurt, peanut butter, and a banana in the blender), and snacked and ate a lot. Still I was only able to gain about 1/2 a pound every 3 weeks or so, despite pounding on the calories. The closer you are to a remission, the easier it is to gain weight.

Regarding class, ideally, you get your Ulcerative Colitis under control. Realistically, it takes many months to heal. So certainly tell your teacher/professor about your illness so if you need to leave the class suddenly for a bathroom run then it will be okay. Similarly, some of us have been given special accommodations for tests, like taking it by yourself in a room with a close bathroom.

There's always things like Imodium you can use to slow down your bowels. Skipping caffeine and alcohol can help some of us (caffeine can stimulate bms, alcohol can aggravate/inflame the GI tract). Limiting eating before or during class can help reduce bms (eating can stimulate bms), eat bigger afterward classes. It's tough, we all have tricks and techniques that help us get by when UC is at it's worst. Just want the struggling to be as infrequent and limited as is possible.

If you can't tame your UC with your current treatment, has biologics like Remicade or Humira been discussed? They're pretty quick working medications that often work within a few to 6 weeks. If you're still struggling as you taper the pred then you might need something much stronger as a maintenance medication...
Moderator Ulcerative Colitis
John
, 38, in a minor flare, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 50mgs 6MP, 4.8g Mesalamine DR, 5mgs pred (tapering)

Tips for surviving UC: learn to laugh as it helps, get a good pair of running shoes for bathroom runs, and appreciate the small things.

Post Edited (iPoop) : 1/10/2017 8:28:08 AM (GMT-7)


solitudent
Regular Member


Date Joined Apr 2016
Total Posts : 71
   Posted 1/10/2017 12:46 PM (GMT -6)   
I'm not tapering pred. I've been taking 10 mgs per day for the last 4 months or so and before that I was taking it in bigger doses. Only in the last two weeks my bleeding stopped completely and my stool became semiformed. I sadly can't stop taking coffee because I am a translator, I got a job that needs to be completed at the end of the month and it's really hard for me to concentrate. Which has been a big problem for me during the last year. I think it's related to me being prednisone dependent for a long time, I'm a long time user. Due to some reasons, biologics are not a option for me but that's just for now. I will consider them in the future.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 9030
   Posted 1/10/2017 1:19 PM (GMT -6)   
Yeah prednisone brain fog sucks... I've been contending with it since summer.

Bull101
Regular Member


Date Joined Feb 2015
Total Posts : 307
   Posted 1/11/2017 1:36 PM (GMT -6)   
Exercise will get your appetite going.....
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