Whether it is a symptom of something larger probably doesn't matter too much, since whatever it would be a symptom of is clearly unknown and untreatable at the moment. Hopefully in the future there is more that can be done to treat the "whole person" instead of removing the organ. That said, perhaps it is just the colon.
I know a lot of people said the moment they were back to being free of surgical pain, they noticed increased energy from being free of the inflammation caused by the diseased organ. I personally was fatigued before I had UC, and I still struggle with fatigue. I have my entire life. I didn't expect colon surgery to solve all of my problems.
I've heard people say surgery for UC is trading one set of problems for another, and while to some extent, it's true, my only problem since surgery is going ~5x a day, with no pain, urgency/blood. I don't know if that's a problem since i have some friends who go that much and do not have colon disease. I was a once a day goer before UC, so for me, it's an inconvenience. Going once a day after my diagnosis was becoming less and less likely the longer I dealt with the condition. I also traded some problems in a positive way, no more drugs, no more doctors, no more medical expenses - so it's not all bad trade-offs, no more anxiety about
accidents. In fact, i'd say the majority of the trades, in my case, have been beneficial to me, with the exception of more trips and occasional butt burn.
This board is really anti-surgery to some extent. People would rather use a diaper, or drive around with a plastic bowl in their car than have surgery - so I hope you understand if you receive some negative comments, that's what you're going against here
You also have to take into consideration that surgical results aren't always the same and nothing is guaranteed. There is also no turning back. it's a big risk no matter how you slice is. Not something to be taken lightly.
Co-moderator: Ulcerative ColitisDiagnosed with Pancolitis, Laryngopharyngeal Reflux & Migraines. Battling Extreme Exhaustion.
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!
Post Edited (notsosicklygirl) : 1/10/2017 2:20:44 PM (GMT-7)