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PattC
New Member


Date Joined Aug 2016
Total Posts : 5
   Posted 1/11/2017 8:42 AM (GMT -7)   
Feeling so frustrated: Dx: ulcerative colitis,
IBD, proctitis. Been awake 2 hrs. So far 10 bowel
Movents in 1 1/2 hrs. Currently taking
Humira bi-weekly. Need to be near rest room at all times
Will I ever get in remission??

*added a title to your post*

Post Edited By Moderator (Red_34) : 1/11/2017 10:20:19 AM (GMT-7)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23494
   Posted 1/11/2017 10:20 AM (GMT -7)   
Can you tell us more of your history? What meds you are on and what have you tried?
SHERRY
Moderator-Allergies/Asthma, Alzheimer's, IBS, Co-moderator-UC
Diagnosed Left sided UC '92 - meds: Apriso, Remicade) Unable to tolerate MOST mesalamines* Currently in Remission, IBS, Diverticuliar Disease, Fibro, Sacroiilitis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry eye syndrome (which caused a blockage -had the DCR surgery 2015 success!), allergies-Zyrtec

PattC
New Member


Date Joined Aug 2016
Total Posts : 5
   Posted 1/11/2017 10:38 AM (GMT -7)   
I have tried prednisone, lialda, uceris and canasta.
Now just doing Humira bi-weekly

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 3415
   Posted 1/11/2017 3:37 PM (GMT -7)   
make sure you do not have a c-diff infection. not responding to pred is a red flag.
11/08: ischemic colitis and scope perf colon. 12cm colon/ileocecal resected. IV antib:sepsis.
01/10: Dx: Mod. UC pancolitis. Rx: Lialda 3x.
02/11: Major flare w/antib:sinus. Rx: 40mg Pred taper. 6mp.
07/11: Histol remiss rt/trans; worse sigmoid. Rx: Rowasa & hydrocort
---
Curr: 1-2 soft-formed stool, no urgency: Lialda 2x, NO PRED, probiotics, Vit-D/C

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 8487
   Posted 1/11/2017 5:13 PM (GMT -7)   
If you're only on humira then I'd suggest you get on multiple medications simultaneously as that produces the best results with ulcerative colitis. Perhaps consider adding rowasa enema and/or an immunomodulator like Imuran/6mp.
Moderator Ulcerative Colitis
John
, 38, in a minor flare, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 50mgs 6MP, 4.8g Mesalamine DR, 5mgs pred (tapering)

Tips for surviving UC: learn to laugh as it helps, get a good pair of running shoes for bathroom runs, and appreciate the small things.

Doggiedo
Regular Member


Date Joined Jan 2014
Total Posts : 385
   Posted 1/11/2017 6:43 PM (GMT -7)   
I second you getting a stool test for c diff. I had it once and didn't know it- thought it was a severe flare. C diff has a horrrible smell and a yellow type color. I went almost 20'tikes in a few hours and was severely dehydrated. I'd see if that's it. Keendribking liquids and call the doc.
Diagnosed 2003, hospitalization in 2006, currently sever proctitis.
Current meds: Flortistor 2 pills/daily & Entyvio (since August 2016), hydrocortisonefoam in am, canasa mid-day, hydrocort enema in pm (if can't retain, I use foam). Pred 40 mg. Colonoscopy scheduled in two weeks.

PattC
New Member


Date Joined Aug 2016
Total Posts : 5
   Posted 1/12/2017 7:30 PM (GMT -7)   
Thanks for all the info. Going to get checked for C-dif
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