Imuran- C diff

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Deacon Blues
Regular Member


Date Joined Oct 2006
Total Posts : 282
   Posted 6/19/2017 9:03 AM (GMT -6)   
Just wanted to chime in with my $.02. I have been on Imuran now for 2 years or so, and it has been the best!!! However, I am currently diagnosed with my 2nd bout of C-Diff :-(
The first time with C-Diff was March 2016, and it was horrific! The pain in my stomach, and it felt as though my stomach was going to burst wide open. This time, it has been 2 weeks of diarrhea, orange-ish c diff looking stools, stomach pain, but nothing like the first time around with this stuff.
anyone else here get C-Diff regularly with Imuran?

Deacon

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 10527
   Posted 6/19/2017 10:37 AM (GMT -6)   
Sorry to hear you've had multiple c diff episodes. Any sort of immunosuppressant is going to make you a little more prone to it, whether that's imuran/6MP or biologics like remicade/humira. C diff is prone to being reoccurrent once you have it. Have you considered FMT? Do you take probiotics?
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Lialda, and rowasa

I swore to myself that once i was off of prednisone that I'd burn both the pills and bottle with great hedonistic enjoyment: booze, food, and dance. And if I ever need a colectomy... ;-)

Deacon Blues
Regular Member


Date Joined Oct 2006
Total Posts : 282
   Posted 6/19/2017 11:26 AM (GMT -6)   
iPoop said...
Sorry to hear you've had multiple c diff episodes. Any sort of immunosuppressant is going to make you a little more prone to it, whether that's imuran/6MP or biologics like remicade/humira. C diff is prone to being reoccurrent once you have it. Have you considered FMT? Do you take probiotics?


I have not considered FMT, and I do not take probiotics regularly. Get this; I am a cyclist and I ride often, far, and am pretty darn healthy. When the D started a few weeks ago, then the hemorrhoids started in, then I developed this terrible red rash onmy groin, which turned out to be yeast, then the hemorrhoids again, now the Dx of C-Diff. My crotch area has been through absolute hell over this past month-ish...
Should I expect yeast infections to be more common as well?

D

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 10527
   Posted 6/19/2017 12:31 PM (GMT -6)   
Sounds like your gut flora is all out of whack if yeast and c diff are taking over. The normal goodies are getting over run by the baddies. I'd say Yes on being more likely with yeast or bacteria taking over while suppressed.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Lialda, and rowasa

I swore to myself that once i was off of prednisone that I'd burn both the pills and bottle with great hedonistic enjoyment: booze, food, and dance. And if I ever need a colectomy... ;-)

Deacon Blues
Regular Member


Date Joined Oct 2006
Total Posts : 282
   Posted 6/19/2017 1:15 PM (GMT -6)   
Looks like I will be forced into Probiotics. I did used to make my own yogurt back 14-15 years ago. Back then I tried SCD diet, yogurt, and so on, and zero worked for me. I lived with flares and misery on Asacol only for 15 years, then Imuran turned things around, now I get to catch whatever bug I touch...nice...I have learned to live with and tolerate a lot of pain, which is not good, or fun, but that is what it is.

What Probiotic would you recommend???

Thanks
D
Dx of UC in Dec 1999
Lialda 2.4g bib
Started 100mg Imuran BID on 8/7/14
Reached therapeutic Imuran level, doing pretty well

sfc425
Veteran Member


Date Joined Jul 2010
Total Posts : 701
   Posted 6/19/2017 1:20 PM (GMT -6)   
I would recommend vsl #3

Hope that works for you and you're able to get back on the bike soon

Deacon Blues
Regular Member


Date Joined Oct 2006
Total Posts : 282
   Posted 6/19/2017 1:33 PM (GMT -6)   
VSL #3. Where do I find this?

And, I never got off the bike. I have had this disease long enough to know that, if I want to live while I am here, then I need to be able to function through pain and sickness...
Thank You
D

FlowersGal
Regular Member


Date Joined Feb 2017
Total Posts : 363
   Posted 6/19/2017 3:20 PM (GMT -6)   
I've bought vsl #3 through amazon and it comes with an ice pack to keep it cool during transit. I've also heard that Culturelle is good for c-diff, or to keep from getting it?
Partial Colectomy for diverticulitis Sept 2014
UC pancolitis DX March 2016
Apriso .375 g x 4/day,
Canasa & Uceris foam
Supplements: Zinc, L-glutamine, Probiotics: Reuteri perals, VSL #3, Folic Acid, CoQ10, turmeric, boswellia
Started Entyvio Wed., 3/29/17
Constant flares since March 2016 only relieved by Prednisone

sfc425
Veteran Member


Date Joined Jul 2010
Total Posts : 701
   Posted 6/19/2017 3:43 PM (GMT -6)   
I buy it off their website: https://vsl3.com/

If you order before Wednesday they usually get it to you within 2 days
32 yr old Male. Diagnosed with UC in early 2006. DX change to CD ileitis in 2017. Also living with Hiatal Hernia and GERD.

Taking: Imuran (150mg), VSL#3 Tablets, Librax, Rowasa nighty.

countess18
Regular Member


Date Joined May 2016
Total Posts : 72
   Posted 6/19/2017 6:36 PM (GMT -6)   
Florastor probiotic is recommended for yeast infection and C Diff. My ID doc told me that Kefir was better than any oral probiotic for C Diff prevention, but I am not sure if you are aware that Canasa has also been shown to help prevent C diff. Dr Borody had an article about it. C Diff is horrible! FMT is probably the way to go if you keep getting it back.

T
Thanks

T

diagnosed April 2016 s/p a c diff infection age 53
very mild proctitis 5cm-20cm per sig scope in December-
currently on Rowasa enema in PM, Canasa in AM, cannot tolerate Lialda

past meds- tried cortifoam and canasa for 8-9 weeks since December but its Rowasa recently started that actually worked
felt amazing on just Canasa last summer till flare in October
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