What happens if I bleed for months??

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Regular Member

Date Joined Jun 2017
Total Posts : 21
   Posted 6/19/2017 11:04 PM (GMT -6)   

I was diagnosed with ulcerative colitis and the past year I was in remission for maximum 2 weeks, every 4 months basically. My bowel movements have increased and bleeding per rectum daily. I'm on asacol (mesalazine )1600 mg 2 times a day and imuran 100 mg daily. I'm supposed to be using the asacol enemas but they're so uncomfortable that i skip it all together.

I'm worried why the medications aren't working and the bleeding diarhea still won't stop. Is it even normal to bleed for so long and only stop for few days every few months? sad

My doctor also wants to do an MRE. Has anyone tried it? (if yes please tell me how it went and how painful is it)

24 year old diagnosed with Ulcerative colitis in 2014
Not in remission sad

Forum Moderator

Date Joined Aug 2012
Total Posts : 10549
   Posted 6/20/2017 3:50 AM (GMT -6)   
Is it normal to bleed for months? No. Can it happen with UC? Absolutely. You're certainly undertreated and that's what's causing your symptoms. Have biologics been discussed (remicade, humira, etc)?
Moderator Ulcerative Colitis
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; 75mgs 6MP, 4.8g Lialda, and rowasa

I swore to myself that once i was off of prednisone that I'd burn both the pills and bottle with great hedonistic enjoyment: booze, food, and dance. And if I ever need a colectomy... ;-)

Veteran Member

Date Joined Jan 2004
Total Posts : 7962
   Posted 6/20/2017 10:02 AM (GMT -6)   
Hoda said...

I'm supposed to be using the asacol enemas but they're so uncomfortable that i skip it all together.

24 year old diagnosed with Ulcerative colitis in 2014
Not in remission sad

uncomfortable how exactly ? how often did you use them ?
dx'd with pancolitis 12/21/03
current supplements:vit D, cal/mag, Psyllium Seed powder/Heather's Acacia fiber/ L-Glutamine/Hemp powder slurry 1x/week - grain free/paleoish diet that includes 100% grass fed beef, raw goat milk, & local organic free range eggs, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with !

Veteran Member

Date Joined Feb 2011
Total Posts : 3883
   Posted 6/20/2017 10:52 AM (GMT -6)   
the asacol does not appear t be a strong enough med for you.

keep a watch on anemia

Regular Member

Date Joined Feb 2017
Total Posts : 175
   Posted 6/20/2017 12:43 PM (GMT -6)   
How much blood are you losing per day, can you tell? I was passing blood and mucus alone once my UC got bad, before diagnosis. I probably bled overall for close to a year, but it was a decent amount of bleeding (1-2 tbs per day) for probably 4-5 months. Do keep a close eye on anemia, as DB said. And you may need something stronger to treat with. Perhaps a biologic like Remicade?
F, 40. Diagnosed Feb. 8, 2017 - mild to moderate left-sided UC.
Finally off prednisone as of 5/15! Remicade 5mg/kg since 4/3/17.
Mesalamine intolerant.
Diet: dairy free.
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