Yellow/white spots in stool..?

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Dan93rowe
Regular Member


Date Joined Aug 2017
Total Posts : 37
   Posted 9/11/2017 11:53 AM (GMT -6)   
An update to the ct scan..

My IBD nurse couldnt say anything over telephone (which is standard) but said what they have found is 'what they expected to see"..

Said il get a copy in the post.. question is how detailed is the CT scan report i get sent?

Theyve booked me in for a colonoscopy in October..

Not sure whether to be worried or relieved yet.

In regards to the stool sample, my IBD nurse again said she would send the results via post, as she couldnt express on the abnormalities that they've found , on telephone..

Bulmanboi123
Regular Member


Date Joined Aug 2017
Total Posts : 52
   Posted 9/11/2017 2:06 PM (GMT -6)   
Good to hear from you Dan !

Are you in the U.K. ?

My IBD nurse , I actually rang today because I'm still passing darker blood on occasions !

She basically told me everything about my last stool and blood tests ...

Showed high inflammation in the stool
Blood tests normal apart from a possible Liver issue

I am in South Wales , and whenever I've spoken over the phone with them they have told me straight

Colonoscopy to follow shortly

Dan93rowe
Regular Member


Date Joined Aug 2017
Total Posts : 37
   Posted 9/11/2017 3:16 PM (GMT -6)   
Im near south wales! I live in Hereford!

Your IBD nurse sounds better than mine haha.

Hope you get decent results from your colonoscopy
Diagnosed with Ulcerated Colitis in December 2016.

Currently using; Pentasa 1G x2, morning and night, 9mg Budesilone.

Bulmanboi123
Regular Member


Date Joined Aug 2017
Total Posts : 52
   Posted 9/11/2017 4:25 PM (GMT -6)   
You should just ring back and ask , I've never been sent anything in the post ! Feel free to look me up and add me on Facebook - Luke Bulman

Bulmanboi123
Regular Member


Date Joined Aug 2017
Total Posts : 52
   Posted 9/13/2017 2:42 PM (GMT -6)   
Any news Dan ?

FlowersGal
Regular Member


Date Joined Feb 2017
Total Posts : 338
   Posted 9/13/2017 6:48 PM (GMT -6)   
Ummmmm. As far as those white specks. (TMI follows):

After getting up close and personal after a slightly small accident in my undies I can report that these are teeny tiny little "pearls". I've never opened one of my mesalamine capsules but I imagine that's what I'd find inside. (Capsules are blue so can't see through them).

I'd guess why I sometimes see more/less is dependent on how well my digestion/gut is doing what its supposed to be doing.
UC pancolitis DX March 2016, Partial Colectomy for diverticulitis Sept 2014
Apriso .375 g x 4/day, Canasa & Uceris foam as needed
Supplements: Zinc, L-glutamine, Probiotics: Reuteri pearls, VSL #3, Folic Acid, CoQ10, turmeric, boswellia, milk thistle, NAC, reservatol, colostrum, glycine
Started Entyvio 3/29/17 (Constant flares since March 2016 only relieved by Prednisone)

MarjieKay
Veteran Member


Date Joined Jun 2017
Total Posts : 592
   Posted 9/14/2017 12:37 PM (GMT -6)   
FlowersGal said...
Ummmmm. As far as those white specks. (TMI follows):
After getting up close and personal after a slightly small accident


L M A O !

I've got your back FlowersGal, I have the same blue Pentasa capsules and just opened one up(they slide open and closed again easily)----sure enough WHITE PEARLS !

So iPoop called that one out turn
F, 51
2008 colitis, 2016 chronic UC, 2017 quiescent UC
Current pharms: Pentasa 3g day, mesalamine enema (1 x per wk)
Anti-inflammatory diet :IBD-AID from U of Mass

Extras:
Advanced gut health probiotics, Primadophilis Reuteri, water & milk kefir
Digestive enzymes (big protein meals only now), Psyllium seed powder, Ginger Tea
Vitamins D, C & K, fish oil, cal/mag

Dan93rowe
Regular Member


Date Joined Aug 2017
Total Posts : 37
   Posted 9/15/2017 9:26 AM (GMT -6)   
Still waiting for the consultant to pass the report onto my GP.

Bulmanboi123
Regular Member


Date Joined Aug 2017
Total Posts : 52
   Posted 9/15/2017 10:40 AM (GMT -6)   
Dan you need to ring the IBD nurses or the consultants secretary and ask them to tell you the results , my GP would have no clue about UC or CD , they wouldn't even give me and emergency prescription of pentasa before , despite having had this for almost 6 5 years !

MarjieKay
Veteran Member


Date Joined Jun 2017
Total Posts : 592
   Posted 9/15/2017 10:45 AM (GMT -6)   
Yes, I'm curious, too.......so even though the tiny white pearls aren't anything sinister, they led to the discovery of something abnormal in your poo so that you can get that corrected.
F, 51
2008 colitis, 2016 chronic UC, 2017 quiescent UC
Current pharms: Pentasa 3g day, mesalamine enema (Tapering-1 x per wk now)
Anti-inflammatory diet :IBD-AID from U of Mass

Extras:
Advanced gut health probiotics, Primadophilis Reuteri, water & milk kefir
Digestive enzymes (big protein meals only now), Psyllium seed powder, Ginger Tea
Vitamins D, C & K, fish oil, cal/mag

Dan93rowe
Regular Member


Date Joined Aug 2017
Total Posts : 37
   Posted 9/20/2017 6:38 AM (GMT -6)   
CT scan has shown that i have inflammation through out the small bowel, which is promising as theres no mention of the c word.

Apparenty Pentasa has stopped working for me, therefore im on balsalazide instead..

Waiting for follow-up colonoscopy to come through post.

How can inflammation in small bowel produce so much bleeding? Iv been told to wean off the pred (now 30mg) even though im bleedimg heavily and having 8 BMs a day.
Diagnosed with Ulcerated Colitis in December 2016.

Currently using; Pentasa 1G x2, morning and night, 9mg Budesilone.

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 10327
   Posted 9/20/2017 7:29 AM (GMT -6)   
Inflammation within the small bowel is Crohn's disease, Celiac, or an infection like SIBO. I'd follow up with your gasteroenteroligist on that one! You might need more tests to see exactly what is causing said inflammation.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

My wallet is fat not due to money but rather my emergency toilet paper. Never be caught without tp in a bathroom stall, or even the patch of woods by the road...

Dan93rowe
Regular Member


Date Joined Aug 2017
Total Posts : 37
   Posted 9/20/2017 7:37 AM (GMT -6)   
Maybe thats why theyve followed up with a colonoscopy

Positive to take out of it is that theres no abnormalities from my CT scan though right?

quincy
Elite Member


Date Joined May 2003
Total Posts : 29510
   Posted 9/20/2017 11:49 AM (GMT -6)   
Do you have UC? And where is the location?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression) 
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 15 billion @ bedtime)
~Metamucil capsules 7 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!

Dan93rowe
Regular Member


Date Joined Aug 2017
Total Posts : 37
   Posted 9/20/2017 1:19 PM (GMT -6)   
Uc located in the rectum and sigmoid
Diagnosed with Ulcerated Colitis in December 2016.

Currently using; Pentasa 1G x2, morning and night, 9mg Budesilone.

MarjieKay
Veteran Member


Date Joined Jun 2017
Total Posts : 592
   Posted 9/20/2017 1:22 PM (GMT -6)   
Hey wow, so no strange infections were found in the sample then?

I don't think UC ever affects the small bowel though......like was mentioned up there, sound like Crohn's or another issue. Hey maybe if it's SIBO there may be an easy & permanent fix?

I guess you'll have to wait for more conclusive info, Dan.....good luck on this !
F, 51
2008 proctitis, 2016 chronic UC rectum/sigmoid, 2017 quiescent UC
Current pharms: Pentasa 3g day, mesalamine enema (Tapering-1 x per wk now)
Anti-inflammatory diet :IBD-AID from U of Mass

Extras:
Advanced gut health probiotics, Primadophilis Reuteri, water & milk kefir
Digestive enzymes (big protein meals only now), Psyllium seed powder, Ginger Tea
Vitamins D, C & K, fish oil, cal/mag

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 10327
   Posted 9/20/2017 1:35 PM (GMT -6)   
Yeah a colonscopy with biopsies can help determine UC or crohn's. UC is shallow inflammation, continuous in nature, and limited to the large intestine. Crohn's has deep tissue inflammation, has skip lesions (healed areas, inflammed areas, healed areas), and might exhibit clear giveaways unique to crohn's like aphthous ulcers, cobblestone patterning, and inflammation of the terminal ileum. Crohn's can impact the esophagas, small intestine and anywhere within the gasterointestinal tract.

The colonscopy can only peak a little into the small intestine, no biopsies there. So you're relying on what the large intestine tells you.
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

My wallet is fat not due to money but rather my emergency toilet paper. Never be caught without tp in a bathroom stall, or even the patch of woods by the road...

Dan93rowe
Regular Member


Date Joined Aug 2017
Total Posts : 37
   Posted 9/20/2017 1:37 PM (GMT -6)   
No its quite strange :-/

Yeah il have to wait and see from the colonoscopy, but to be fair, just relieved it isnt cancer, as that wouldve shown on the CT scan, right? smile

quincy
Elite Member


Date Joined May 2003
Total Posts : 29510
   Posted 9/21/2017 9:54 AM (GMT -6)   
Depends on the person who reads the scan, but one cannot see precancer cells.

hopefully, there will be no problem getting into the Terminal Ileum during the c-scope. Didnthe results say ALL of the small intestine were inflamed? Or a part? And which part?
.
Have you been tested for h. Pylori?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression) 
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 15 billion @ bedtime)
~Metamucil capsules 7 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!

Post Edited (quincy) : 9/21/2017 9:59:02 AM (GMT-6)


Dan93rowe
Regular Member


Date Joined Aug 2017
Total Posts : 37
   Posted Yesterday 3:52 AM (GMT -6)   
Says small.patches of inflammation found in small bowel limited to rectum only, no other abnormalities were found. medication changed from Pentasa to Balsalazide as Pentasa has become ineffective, once started on Balsalazide to wean off Predisolone.

Sigmoidscopy to be followed up.

Iv got UC limited to rectum and sigmoid, diagnosed last December.
Diagnosed with Ulcerated Colitis in December 2016.

Currently using; Pentasa 1G x2, morning and night, 9mg Budesilone.
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