Those three amazing words from my GI!

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Kulinarykidz
Regular Member


Date Joined Aug 2015
Total Posts : 424
   Posted 10/12/2017 8:24 AM (GMT -6)   
Here I sit 4 years post diagnosis. After rounds of testing different medicine combos, trying every diet modification, multiple hospital stays, following my colonoscopy yesterday ....my doctor finally told me those 3 words we all wait for "You're in Remission". 100% healed, zero inflammation, and a few pseudo polyps I'm waiting for biopsy results.

I'm not sure what tomorrow, next week or next year will be but today I'll celebrate a victory. Like many others, I still have unexplained days of diarrhea, gas, cramping that I may finally agree with my doctors as being IBS. I had years of IBS before my uc diagnosis so I guess it can be there after as well.

Wishing you all healing and remission as well whether through diet, meds or surgery. WE ALL HAVE TO BATTLE THIS DISEASE IN OUR OWN WAY. LETS JUST SUPPORT EACH OTHER AND RECOGNIZE OUR INDIVIDUAL BATTLES. I personally can't spend my life on a limited diet. That doesn't mean I don't believe diet can work, it's just not for me. Perhaps I lack the same willpower as others. I choose medicine. Perhaps that means I'm more of a risk taker. If I choose surgery in the future perhaps that makes me brave. We all have a dozen adjectives individual to our own life experiences. They can be interchanged for any person in any combination.

As always thanks for everyone's support and motivation.
Female 45 years old- uc diagnosed 7/13
Remicade every 6 weeks since 8/15
Imuran 150 mg, viramin d, probiotic, estrogen, pepcid ac
*hysterectomy, endometriosis and ovarian cysts removed---made a world of difference with uc symptoms!!

Michelejc
Forum Moderator


Date Joined Jan 2011
Total Posts : 1903
   Posted 10/12/2017 8:26 AM (GMT -6)   
That's great!!!!
MODERATOR-UC FORUM
59, female - diagnosed with moderately severe proctitis/mild diverticulosis
Lialda - one a day
6mp - 50 miligrams
VSL#3 DS - 1 pack a day or as needed
Zocor - 40 mg
Calcium with Vitamin D
Glucosamine
Magnesium
B-Complex

"Fly under the radar" - Dad -

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 10557
   Posted 10/12/2017 8:30 AM (GMT -6)   
Congrats and I hope this is a long remission!
Moderator Ulcerative Colitis
John
, 39, UC Proctosigmoiditis
Rx: Remicade @5mgs/kg/6wks; daily 75mgs 6MP, 4.8g generic-Lialda, and rowasa

Don't you hate it when your legs fall asleep after sitting on the toilet too long? Nothing as ungraceful as walking funny out of the bathroom due to it!

TotesMagotes
Veteran Member


Date Joined Mar 2013
Total Posts : 739
   Posted 10/12/2017 8:30 AM (GMT -6)   
Kkidz I'm sooooooooo happy for you. Congratulations!!!!!!!!!!!
Diagnosed Nov 2012 after birth of first child, Left sided UC
Remicade, 6mp
Visbiome 450 billion, prenatal vitamin, vit D, biotin, fiber, enemas only if needed

You gotta learn to dance in the rain

Kulinarykidz
Regular Member


Date Joined Aug 2015
Total Posts : 424
   Posted 10/12/2017 8:33 AM (GMT -6)   
Thanks all! Totes---you're next!!
Female 45 years old- uc diagnosed 7/13
Remicade every 6 weeks since 8/15
Imuran 150 mg, viramin d, probiotic, estrogen, pepcid ac
*hysterectomy, endometriosis and ovarian cysts removed---made a world of difference with uc symptoms!!

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15137
   Posted 10/12/2017 9:52 AM (GMT -6)   
Happy to hear it. Hope you stay in remission forever.
Co-moderator: Ulcerative Colitis
Currently: no meds. 6/15 Step One J-pouch Surgery Complete! 9/15 Step Two Complete! 11/15 Step 3 Complete!

Give a man a fish and he will eat for a day; teach a man to fish and he will eat for a lifetime; give a man religion and he will die praying for a fish.

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 3885
   Posted 10/12/2017 10:24 AM (GMT -6)   
good for you!!
11/08: ischemic colitis and scope perf colon. 12cm colon/ileocecal resected. IV antib:sepsis.
01/10: Dx: Mod. UC pancolitis. Rx: Lialda 3x.
02/11: Major flare w/antib:sinus. Rx: 40mg Pred taper. 6mp.
07/11: Histol remiss rt/trans; worse sigmoid. Rx: Rowasa & hydrocort
---
Curr: 1-2 soft-formed stool, no urgency: Lialda 2x, NO PRED, probiotics, Vit-D/C

quincy
Elite Member


Date Joined May 2003
Total Posts : 29650
   Posted 10/12/2017 11:08 AM (GMT -6)   
Awesome news!!!
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression) 
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Genuine Health Advanced Gut Health 15 billion @ bedtime)
~Metamucil capsules 7 @ 2x daily with meals; Vitamin D 4500 IU
~URSO 500mg @ 2x daily for Primary Biliary Cholangitis
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!

momto2boys
Veteran Member


Date Joined Jun 2013
Total Posts : 1827
   Posted 10/12/2017 11:36 AM (GMT -6)   
That's awesome!
42 yrs old diagnosed with proctosigmoiditis 6/13/13
meds- 2 Lialda + sfRowasa every other night- supplements: probiotics (1 VSL3 cap, 1 culturelle and 1 reuteri) 1 gram krill Oil, 1TBSP p. seed powder, 2 g curcumin. Allegra for seasonal allergies as needed. Allergic to sulfites. Currently gluten/dairy free (except yogurt) and eating lots of RS.

FlowersGal
Regular Member


Date Joined Feb 2017
Total Posts : 367
   Posted 10/12/2017 2:54 PM (GMT -6)   
WooHoo! Hoping to hear those same words from my GI at the end of the month.
UC pancolitis DX March 2016, Partial Colectomy for diverticulitis Sept 2014
Apriso .375 g x 4/day, Canasa & Uceris foam as needed
Supplements: Zinc, L-glutamine, Probiotics: Reuteri pearls, VSL #3, Folic Acid, CoQ10, turmeric, boswellia, milk thistle, NAC, reservatol, colostrum, glycine
Started Entyvio 3/29/17 (Constant flares since March 2016 only relieved by Prednisone)

newme22
New Member


Date Joined Sep 2017
Total Posts : 12
   Posted 10/12/2017 9:14 PM (GMT -6)   
Great news!
Wishing you many happy days ahead!
Diag: UC rectosigmoiditis+diverticulosis
Tests: 9/1/17 last colonoscopy was incomplete due to severe inflammation and tightly twisted narrow colon, showed chronic severely active colitis.
Past: Humira weekly 10 months, lialda 3 tabs canasa, rowesa, cort enemas.
Present: Lialda 3 tabs, Cort enemas. 10/3 increase Pred to 20 mg.
Future:Still waiting for Entiyvo if covered If not than Dr. says surgery

Mrs. Brady
Regular Member


Date Joined Feb 2015
Total Posts : 184
   Posted 10/13/2017 6:39 AM (GMT -6)   
Awesome news, congrats!!
Hoshimoto's Hypothyroidism DX Oct 1997
Pancolitis DX Nov 2013
GERD DX Nov 2013
Lupus, DX Sept 2015
Medications - Synthroid; Hydrocort Enemas (as needed); Prilosec; Iron; Plaquenil; Vit D, Humira
Past Meds: Lialda and Imuran - adverse reactions to both, discontinued

CCinPA
Veteran Member


Date Joined Dec 2014
Total Posts : 928
   Posted 10/13/2017 1:42 PM (GMT -6)   
Congrats!!!!!!!!
58 yo female diagnosed w/UC to mid transverse 1/1/13, now UC or Crohn's colitis. Remission since 10/16, confirmed by scope in Dec 16. Current meds: Entyvio 7/22/16, Asacol HD 2 Tabs 3x/day, Capozide 1/day (hypertension). omeprazole. OTC: Loratadine 1/day, multivitamin 1/day.

MarjieKay
Veteran Member


Date Joined Jun 2017
Total Posts : 609
   Posted 10/13/2017 3:49 PM (GMT -6)   
turn turn yeah turn turn

Celebrating WITH you !!! (all of us,lol) this is fantastic to sign on and see !

Kulinarykidz
Regular Member


Date Joined Aug 2015
Total Posts : 424
   Posted 10/13/2017 8:08 PM (GMT -6)   
Thanks everyone!!
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