Ulcerative Colitis, Nutrition and Hair Loss

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Salmon
New Member


Date Joined Aug 2007
Total Posts : 2
   Posted 8/20/2007 1:03 AM (GMT -6)   
Hi Everyone!  I have a question.  I have been under remission for a long time now.  However I am still super skinny, feel tired, dry scalp and hair loss.  What can I do, I pretty much stopped ulcerative colitis but I hate this.  I know I am suffering from lack of nutrition.  I would appreciate any help or advice!  Thank you very much!

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 22068
   Posted 8/20/2007 7:10 AM (GMT -6)   
Hi, welcome to Healingwell :) Do you take a multivitamin? I take a vitamin designed for people with Uc and Crohns, it's called Forvia (www.forvia.com) plus I take Biotin 5mgs. I was taking a regular vitamin before but after I switched to Forvia I felt 100% overall and Biotin helps promote hair growth and healthy nails.
 @--->--SHERRY--<---@
Left sided Uc since '92 - meds - Colazal, Canasa (when needed), 6MP (50-75mgs), Forvia, Biotin (IN REMISSION - sort of!)
Secondary Raynauds Syndrome '04  - meds - Norvasc
Fibromyalgia '06 - no meds
Severe seasonal allergies - meds - Allegra 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 8/20/2007 8:41 AM (GMT -6)   
Are you on any medications for your UC?

Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
2nd Remicade infusion


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 8/20/2007 8:46 AM (GMT -6)   
What foods can you tolerate? Are there foods you have eliminated from your diet completely?
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, back to 30 mg pred.
Waiting for prometheus test to start Immuran
Prontonix once daily for acid reflux, zofran twice daily for nausea


Salmon
New Member


Date Joined Aug 2007
Total Posts : 2
   Posted 8/20/2007 9:41 AM (GMT -6)   
I have not been taking meds for years. I am not on any diets, I do eat out a bit too much.

birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 8/20/2007 10:32 AM (GMT -6)   
my suggestion: focus on protein. tofu, eggs, lean meats, whatever you can tolerate. you also might want to pick up some ensure (i had to drink gallons of it after i was in the hospital). they have a kind for lactose intolerant people, which i suggest. it does have some sugar but it also "liquid nutrition" with all kinds of essential vitamins, etc. hope that helps! p.s. i can relate, weight (keep it ON) is one of my most difficult tasks...also (sorry this is long) after the body goes through a trauma of any kind, hair loss can be expected about 4 months later. perhaps you will start to get some back soon??
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
 
 
probiotics


Terenfro
New Member


Date Joined May 2012
Total Posts : 2
   Posted 5/9/2012 10:11 PM (GMT -6)   
I was just diagnosed with Left side UC. I have been taking Asacol 400mg 3 tabs 3x day for about 3 weeks. I am pulling out clumps of hair when I blow dry. Any suggestions?

Penngurl75
Regular Member


Date Joined Nov 2011
Total Posts : 266
   Posted 5/9/2012 10:18 PM (GMT -6)   
me too, increased to highest doses of mesalamines, 4 tabs 3x daily, mesalamine suppository in day and alternating enemas at nifght. hair is gone! clumps falling, my mom is very sad seeing me.
Dx:2000, symptoms in '99
Current dx:Colitis in sigmo
Current meds: mesalamine tabs 400mg, supp,enema
Past meds:mesal enema, pred 6 mons,budesonide enema
Homeopathy: chronic sinusitis(started meds sept 2011 feel much better), UC (started feb2011, better than b4)
Diet: fenugreek,salmon, white rice,trying gluten- free(reduced my urgency)
supplements: L-glutamine,digest enzy,biotin,folic,b12

Penngurl75
Regular Member


Date Joined Nov 2011
Total Posts : 266
   Posted 5/9/2012 10:20 PM (GMT -6)   
I just started 5 mg folic acid and 5 mg biotin I spread it out thru the day and night. has to be taken with food.
Dx:2000, symptoms in '99
Current dx:Colitis in sigmo
Current meds: mesalamine tabs 400mg, supp,enema
Past meds:mesal enema, pred 6 mons,budesonide enema
Homeopathy: chronic sinusitis(started meds sept 2011 feel much better), UC (started feb2011, better than b4)
Diet: fenugreek,salmon, white rice,trying gluten- free(reduced my urgency)
supplements: L-glutamine,digest enzy,biotin,folic,b12

Terenfro
New Member


Date Joined May 2012
Total Posts : 2
   Posted 5/9/2012 10:35 PM (GMT -6)   
Thanks for the advice. I really appreciate any suggestions!
Tammy R

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5512
   Posted 5/10/2012 7:11 AM (GMT -6)   
     I suffered with hair loss too when I was taking the 6MP.  My hairdresser suggested Nioxin.  It works really well.  Good luck!

lifesover
Regular Member


Date Joined Nov 2011
Total Posts : 73
   Posted 5/10/2012 4:32 PM (GMT -6)   
Hair loss, My doc told me to buy Vitamin Magna B6, it worked for me, I was also told of something else it turned out to be Regain and quite expensive, never tried it so can't comment on that one. try the cheap vitamins first, the other you have to apply to your scalp
Pancolitis, Diagnosed with UP July 2009, UC October 2010, Pan Colitis August 2011, Male 55. Spain.

The list is getting less
Off all Stereoids at the Mo, yipeee
Salofalk 1g Enema x1 evenings
Claversol 500mg x 6 daily
Amiprazol x 1
Iron x 1
Multi vitamins x 1 daily
Physillium sometimes
Probiotics now and again

irish4me
Regular Member


Date Joined Nov 2011
Total Posts : 104
   Posted 5/10/2012 7:51 PM (GMT -6)   
Love these suggestions.  My hair is falling out like crazy.  GI thinks it's from Imuran and tells me it should subside....but it's not happening soon enough!!! 
Diagnosed 10/11
4-Lialda
Rowasa as needed
Imuran as of 12/20
Multi-vitamin, Calcium, Vit. D

kloe0038
Regular Member


Date Joined May 2012
Total Posts : 226
   Posted 5/10/2012 7:58 PM (GMT -6)   
Salmon- are you getting any exercise? How about sunlight?
Left-sided UC diagnosed October 2009.

Current meds: Imuran, Remicade, Canasa, Wellbutrin, flax/fish oil, multivitamin

Failed meds: Asacol, Rowasa

idleyouth
New Member


Date Joined Nov 2011
Total Posts : 1
   Posted 5/11/2012 1:56 PM (GMT -6)   
I can vouch for Nioxin as well, my hair was falling out all over the place after a few months on Imuran - I tried biotin and some expensive vitamins from Sephora but the Nioxin shampoo worked instantly!
22 year old female - Ulcerative Colitis Diagnosed March 2011 -
Hospitalized March 2011, then again November 2011 during bad flares
Lialda worked great for 6 months, then stopped.
I've been on Imuran for 5 months and it doesn't seem to be doing much.
Current Meds:
100mg Imuran
4 Lialda
Rowasa nightly

crosanelli
New Member


Date Joined Mar 2013
Total Posts : 1
   Posted 3/27/2013 12:50 PM (GMT -6)   
I too have many of the same symptoms as Salmon. I am a 26 year old male and I was diagnosed with UCD in 2005. I have been in remission since roughly 2009 with only slight / minor flares. From 2005 - 2009 I tried a host of meds - Asacol (did nothing), Azathrioprine (seemed to work well, but several side effects), and of course prednisone during acute flares.

I was a college athlete and still stay active today. My energy levels seem to fluctuate a great deal, however, the biggest problem has been my hair. I used to have a thick head of hair but noticed it began to thin about 6-9 months into taking the Azathrioprine. I have been medication free since 2009, but still my hair has not come back. The spot on my vertex seems to be growing, though quite slowly, while my hair has receded a little further towards the front of my head.

I have tried Rogaine, but with little (if any) noticeable change. I know the problem of hair seems trivial at times, however, it is definitely disconcerting. Any reviews or recommendations, be it for a vitamin, shampoo, etc., would be most appreciated!

iPoop
Forum Moderator


Date Joined Aug 2012
Total Posts : 2142
   Posted 3/27/2013 12:55 PM (GMT -6)   
Generally, I've heard once you discontinue Azathrioprine the hair loss stops and reverses. Any chance your hair loss could be hereditary and not due to the medication?

Energy level fluctuations seem to be common with uc.
34; flaring since 1/1/2013 w/3-4 daily bms;
Rx: Daily 50mg 6MP, Lialda, Rowasa, tapering Prednisone now @ 15mg
Dx: 2-2012 ulcerative proctosigmoiditis
Diet: Diet mods and supplements haven't done anything for me.
"You, my friend, have never been in remission during the time I've known you; inflammation in every scope" -quote my GI

Petah
Veteran Member


Date Joined Nov 2012
Total Posts : 997
   Posted 3/28/2013 3:01 AM (GMT -6)   
Hair loss on pentasa as well.. My suggestion salmon would be blackstrap molasses.. A healthy way to get Vitamins and minerals back into diet. Is meant to help with hairloss also
Proctitis ??
Pentasa 1g Enema
Slippery elm powder/ Manuka Honey 20+ Active.
Kefir Yogurt.

GutsZilla
Regular Member


Date Joined Dec 2012
Total Posts : 64
   Posted 3/28/2013 9:07 AM (GMT -6)   
pharmaceuticals aside (if they're the main cause of your hair loss, you may not be able to do much about it).....the nutrition thing can definitely be a contributor to hair loss. I have really weird bald spots on my legs. Patches where the hair has really, really thinned out. I know my stomach acid is low, which means I'm not able to absorb B vitamins from food (and, I assume, that would also apply to supplements, but not sure about that completely ATM). I added Betaine HCL supplement to my diet to increase stomach acid. Also started taking lemon juice with my meals. Hair is starting to re-grow on my legs. I hope it also re-grows on my head. Just my $0.02.

Writergirl
Regular Member


Date Joined Mar 2013
Total Posts : 43
   Posted 4/4/2013 9:23 AM (GMT -6)   
I have found that supplementing folic acid and iodine (naturally sourced from kelp) through a good quality multi-vitamin helped tremendously. The higher quality vitamins cost more, but work better - at least in my personal experience. I've had luck finding good supplements at my local health food store and also at GIProhealth.com. I'm sure there are other places, but I've found them here, so have looked no further.

I also eliminated grains. Not everyone needs to do this, but in my personal situation, I seemed to absorb nutrients better without them.

I lost so much hair at one point, I had to cut it into a pixie to cover the really thin spots. It took a few months of diet change and supplementing with the vitamins to notice a change. I'm still not back to where I was before the hair loss, but I can no longer see my scalp! So, I'm happy to be moving in the right direction.

I hope you find what works for you!
Pancolitis - diagnosed in 2001. Have tried 5-ASA, prednisone and Remicade unsuccessfully. Currently, everything but last inch of inflammation is under control by strictly following the SCD. I am always seeking to learn more, and believe it is important for us to work together as a community to support each other and share information! There's always something to learn as long as we're open!

soystud
Veteran Member


Date Joined Jan 2004
Total Posts : 5171
   Posted 4/4/2013 9:52 AM (GMT -6)   

Carmellasong
New Member


Date Joined Jun 2014
Total Posts : 10
   Posted 8/13/2014 1:46 PM (GMT -6)   
Writergirl said...
I have found that supplementing folic acid and iodine (naturally sourced from kelp) through a good quality multi-vitamin helped tremendously. The higher quality vitamins cost more, but work better - at least in my personal experience. I've had luck finding good supplements at my local health food store and also at GIProhealth.com. I'm sure there are other places, but I've found them here, so have looked no further.

I also eliminated grains. Not everyone needs to do this, but in my personal situation, I seemed to absorb nutrients better without them.

I lost so much hair at one point, I had to cut it into a pixie to cover the really thin spots. It took a few months of diet change and supplementing with the vitamins to notice a change. I'm still not back to where I was before the hair loss, but I can no longer see my scalp! So, I'm happy to be moving in the right direction.

I hope you find what works for you!

Diagnosed in 2013 with proctitis / 2014 diagnosed with left-sided colitis

Currently taking 2 Asacol 800 HD 2x daily, Alternate between Canasa suppository and Rowasa enema nightly, Scdophilus 1x daily as a probiotic, l-glutamine, biotin, folic acid, earths blend multi-vitamin, liquid vitamin D3 5000 IU, liquid vitamin B12 1000mcg, DasGro Hair formula to hopefully get my thick hair back!

aguywithuc
Veteran Member


Date Joined Jun 2010
Total Posts : 2507
   Posted 8/13/2014 4:23 PM (GMT -6)   
Probably hormones - Can you afford HGH that will be your fountain of youth. I loved it but cant justify it these days.

k-del
New Member


Date Joined Jul 2014
Total Posts : 6
   Posted 8/14/2014 4:47 PM (GMT -6)   
Have your iron checked. Anemia can cause hair loss, among other things.

Carmellasong
New Member


Date Joined Jun 2014
Total Posts : 10
   Posted 8/14/2014 4:54 PM (GMT -6)   
Yes I have had everything checked. All blood work came back normal
Diagnosed in 2013 with proctitis / 2014 diagnosed with left-sided colitis

Currently taking 2 Asacol 800 HD 2x daily, Alternate between Canasa suppository and Rowasa enema nightly, Scdophilus 1x daily as a probiotic, l-glutamine, biotin, folic acid, earths blend multi-vitamin, liquid vitamin D3 5000 IU, liquid vitamin B12 1000mcg, DasGro Hair formula to hopefully get my thick hair back!
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