I can feel my colon moving

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2142
   Posted 9/20/2007 12:25 PM (GMT -6)   
It's not like normal feeling it when gassy etc.  I can feel it on my lower left side like it's pushing out almost every now and then.  I don't know what it is.....it is just in one spot and very weird.  I have been having diarreah lately and major stomach gurgles (yesterday the gurgles went up not down through my colon) don't know if it could be a blockage or something??  I am having bm's and they are slightly better than a week ago, less blood and mucous today.  Could it just be my colon healing?
 
I hope I don't get any major issues, am leaving for NYC tomorrow w/my husband for the weekend and that would stink! (no pun intended).
Beth, 31
UC Diagnosed March 2000
Lialda 2.4mg 1xday since 8/24/07 (prev. Asacol 4800mg day),Calcium and Vit D 500mg 2xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20 mg 1xday
Diovan 80mg 1xday. Fosomax 1xweek 70mg. MCD may be from hypersensitivty to 5ASA drugs.


Zurich
Regular Member


Date Joined Jul 2007
Total Posts : 49
   Posted 9/20/2007 1:23 PM (GMT -6)   
Oh my Beth, I hate that when I have the stomach gurgles and diarreah. Add it to the stress of knowing that I'm going out of town and it seems to just increase. I am trying to get myself straightened out also. I was doing so well on the Asacol alone and now I don't know whats going on. My mother passed away after her "minor" surgery on Sept. 8th. Leading up and after that (with the wake and funeral) were days of unrelenting stress along with not eating properly (the day she passed I honestly think all I ate was six pack of oreos that one of the nurses gave me - I just didn't want to leave her side and not be there for her as she passed). The wake and funeral were Tuesday and Wednesday of last week and to be honest with you my stomach has not been the same since. Now is the process of cleaning out her house and belongings and that is stressful in its own way on me. I think to myself that with this *&%$# disease that I will eventually end up like her, with a colostomy and I now have this deep "fear" of having any type of surgical procedure done since her death after a minor surgical procedure. I been on the Asacol now for around two months. I don't know if this is from the stress of everything that has happened or if the Asacol is no longer working. I hope you can have an enjoyable weekend in NYC, you deserve it with everything you have been through lately with your health scare. Sorry - didn't mean to turn your post into a post about me!
Zurich

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2142
   Posted 9/20/2007 2:10 PM (GMT -6)   
Hi Zurich,

I was just thinking about you recently and I am so sorry to hear that your Mother passed away, my heart goes out to you. I have never lost a family member that I knew and I wish I could give you some comfort and know what to say. It sounds like you were such an amazing daughter to your Mother and I am sure that meant the world to her.

I have inherited some of my mothers health issues, the colitis (not as bad as hers) and high cholesterol and her body shape = ( also she has parkinsons and I am afraid of that happening to me (my hands have always been kind of shaky) but she also has other conditions that I do not have and I worry sometimes but I try to hope for the best. Very hard to do, especially now, try to get through this step by step.

I would recommend Rowasa, they gave me that when I was first dx'd and it was awesome (who knew I would love enema's) they did the trick w/the sulfasalazine. If my flare doesn't go away soon, I am going to find a doc to give me some steriod enemas and not leave until I get some.

I am very sorry for your loss.
xo
Beth
Beth, 31
UC Diagnosed March 2000
Lialda 2.4mg 1xday since 8/24/07 (prev. Asacol 4800mg day),Calcium and Vit D 500mg 2xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20 mg 1xday
Diovan 80mg 1xday. Fosomax 1xweek 70mg. MCD may be from hypersensitivty to 5ASA drugs.


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 9/20/2007 2:18 PM (GMT -6)   
hey beth,
oh man, i can relate. as someone with the funkiest colon in all the land (ok, i know i am preaching to the choir)--i can always feel as my food digests. my stomach pushes out, makes shockingly loud noises, swells like a balloon, the whole nine yards. i like to take it as a sign that--if nothing else--it is working. i have had two major bowel obstructions and the WORST thing is NOT hearing noise. if you have "bowel sounds" it may be uncomfortable but it is a good thing. similarly, if you have D there is no way you could have a blockage. nonetheless, it is irritating, i know. good to know it happens to other people.

Zurich, we haven't spoken before, but reading beth's post i would like to add my condolences. my thoughts are with you.
katie
22
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery

VSL #3
Amitriptyline to slow gastric emptying
Forvia


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 4565
   Posted 9/20/2007 7:21 PM (GMT -6)   
Beth-- I would get a "knitting together" feeling on lower left side when severe flare began healing. It's hard to describe, but does feel like movement that is different from the usual progression of waste & gas thru the colon. Something like shrinking or slight tightening. Hope you & hubby have a great weekend in NYC! / Old Hat (nearly 30 yrs with left-sided UC; currently on 6 Colazal daily for July flare in decending colon; should be back in remission soon)

Mildewval
Veteran Member


Date Joined Dec 2004
Total Posts : 1229
   Posted 9/20/2007 10:41 PM (GMT -6)   
Beth- I get little spasms that I can feel- kind of like when your leg muscles spasm and twitch. It doesn't hurt it just feels weird. I asked my doc if it was really my colon I was feeling and he said "yep". He also said it is pretty common and related to IBS as well as UC. But he wasn't very concerned about it.

Zurich- I'm so sorry to hear about your mother. My brother died last December and my body really reacted. You just need to make sure that you are taking care of yourself. It will get better- all of it.
Pancolitis since October 2004
Currently experiencing symptoms- blood and mild pain. Have started ANOTHER round of enemas.
My drugs of choice: Asacol 2-3 times a day (if I remember), Imuran, Canasa suppositories every other day, probiotics, fish oil, Iron, multi-vitamin
My other therapies of choice: Yoga, walking, my animals, and whining.


quincy
Elite Member


Date Joined May 2003
Total Posts : 25775
   Posted 9/21/2007 3:31 AM (GMT -6)   
Beth, I can relate too sometimes. It seems it's more when there's formed stool rather than when I have diarrhea.
If it does continue or get worse, you should discuss it with the doctor, he might be able to give you an antispasmodic to help if it's bothering you a lot. The steroid enemas would possibly help if it's inflamation related.

It does seem as though things are getting better, however.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 25775
   Posted 9/21/2007 3:45 AM (GMT -6)   
Zurich...my deepest condolences to you on the passing of your mom. I can truly understand your fears regarding surgeries, etc in the future..maybe a discussion with the doctor could explain exactly as to the why.

When my mom and dad died, I ended up flaring because of the family issues involved. Both times were extremely stressful.

The rectal meds (I would suggest Rowasa) will help with your symptoms to deal with the inflammation while you're going through this time. I couldn't imagine what I was going through and dealing with uncontrolled flares.

Please consider the meds...

Healing thoughts sent your way.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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