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1s
Regular Member


Date Joined Sep 2007
Total Posts : 49
   Posted 9/28/2007 8:43 PM (GMT -7)   
After an analysis of my life right before UC, this is my best thoery on root cause.
 
i was having sinus problems and at that time i wasnt as nature-oriented as i am now
i had something like  a"just cut it up" mentality so i started taking drugs for the sinuses and then got the surgery. the drugs basically stopped my mucus production in my nose, and i suspect also in my colon, in some sort of spiritual or physical way, tehre must be a connection between mucus menbranes.
so with my mucus shut off, i went in for surgery. then came the antibiotics as well as the stress of the surgery. I have the feeling that this killed off the good bacteria in the colon and allowed the bad ones to thrive. The bad ones are called bad because when they eat the food, they leave toxic waste. when the good ones eat, they leave behind nutrients/ or eat things that we cannot digest.
 
this accumulated toxic waste set off a reaction from the exposed colon and the rest is history.
 
this is why i have been searching and searching for a way to repair/regenerate that intestinal mucus coating, because in my mind it is the only way to give the colon walls a break to allow them to heal. The only thing I have found to help that is goldenseal which i am heading to Chinatown soon to buy.
 
 
does anyone haqve an opinion on this theory or any suggestions as to rebuild the mucus coating?
 
thanks

FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 9/28/2007 10:18 PM (GMT -7)   
Hello....just thought I would see if I could find any information for you on the product you are thinking of trying. Along the way, I found a few sites about different ways to help out the "GOOD" mucosa. Hope this helps you find the right stuff. Take care.

Couple links about Goldenseal:......

http://nccam.nih.gov/health/goldenseal/

http://altmedicine.about.com/cs/herbsvitaminsek/a/Goldenseal.htm

Some links for Intestinal Mucosa:......

http://www.sheilashea.com/candida.html
 


Just diagnosed Aug. 14/07
Asacol 8 / day (5-Aminosalicylic Acid 400mg)
Pred. 50mg
Cortafoam (butt mousse, not emima)
Florastor Probiotic


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18086
   Posted 9/28/2007 11:27 PM (GMT -7)   

Read this link...

 

http://www.healthy.co.nz/healthy-developments-news-item-480.html

 

Imparticularly this paragraph about primadophilus reuteri..

 

 

1. Probiotics - Restore
One of the most important treatment strategies if you suspect you may have LGS is to restore a healthy balance of friendly bacteria in your digestive tract. This will not only help to naturally support your immune system but help to reduce the number of pathogenic microbes present in the bowel. Certain strains of friendly bacteria found in Nature's Way Primadophilus range have been shown to help strengthen and repair the lining of the GI tract reversing LGS. Use the appropriate age-specific Nature's Way Primadophilus product that contains a three way promise to you: True potency, True Release and True identity. Remember, there are more friendly bacteria in 1 Primadophilus capsule than you will find in eight tubs of acidophilus containing yoghurt.

 

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


NIcepeter
Regular Member


Date Joined Sep 2007
Total Posts : 72
   Posted 9/28/2007 11:52 PM (GMT -7)   
This what happened to me exactly too. Suffered from Sinasitis, took some antibiotics - Augmentin. It killed my flora in the intestine. Then started have Colitis problems a few months later. Now, my task is to find a probiotics that really works. Too many of them on the market. I am not sure which one to pick. Thanks. Peter

1s
Regular Member


Date Joined Sep 2007
Total Posts : 49
   Posted 9/29/2007 6:53 PM (GMT -7)   
Thanks a lot for those links FosterDad and pb4 i will check them out.

Nicepeter- i have taken vsl#3
there is also a similar product called floraQ which is what my gi recomended. I looked it up and it is essentialy the same as vsl at about half the price. It also contaims only 8billion bacteria perserving vs 125 billion for vsl pills and 250 billion for vsl powder.

good luck all,
jay
left sided
prescribed lialda
take herbal meds instead


mckinley5
New Member


Date Joined Mar 2008
Total Posts : 1
   Posted 3/26/2008 11:32 AM (GMT -7)   
Joy
 
I have left sided colitis and take Lialdil
Also, 2 Florastor per day
I now am going through a flare-up due to the fact that I was on
Clindimyacin for 10 days.  I went to my GI doctor and he put me on Flagyl
for 10 days to no avail.  I'm scheduled for a sigmoidoscopy next week but in the
meantime I want to scream with the frequent trips to the toilet.
Can you tell me what you take?

quincy
Elite Member


Date Joined May 2003
Total Posts : 25827
   Posted 3/26/2008 12:27 PM (GMT -7)   
The initial cause isn't really as important as is the body's response afterward.

I think slow simmering infection anywhere in the body can cause autoimmune reactions to present.

Regarding UC...seems you have it placed. It doesn't matter anymore, however...because UC has already been triggered.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18086
   Posted 3/26/2008 12:45 PM (GMT -7)   
I think it's human nature to hope that if we know specifically what triggered our disease for us that we could somehow reverse it...wishful thinking I'm sure but it's definitely human nature...not to mention the "need to know" probably so we can beat ourselves up over it LOL, human nature.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Jsanders505
Regular Member


Date Joined Mar 2008
Total Posts : 94
   Posted 3/26/2008 6:10 PM (GMT -7)   
I think alot of colitis problems are indeed caused by a total depletion of our intestinal flora. Once we lose certain strains we cant get them back. There are over 400 different species of bacteria in the gut and most of those species are yet to be identified. Most probiotics have around 8 strains at the most. This is why it cant cure most colitis cases. Also there is over 60 trillion bacteria present in the human gut. So if you think about it, taking a probiotic with only around 10 billion bacteria count isnt going to do a thing. The bad bacteria will devour it. I still think there is alot to fecal transplants. just my 2 cents

Jsanders505
Regular Member


Date Joined Mar 2008
Total Posts : 94
   Posted 3/26/2008 6:16 PM (GMT -7)   
Also i found this interesting although they never named the specific bacteria UCers lack. If someone finds out please post.

http://news.bbc.co.uk/2/hi/health/3582902.stm

blessteve
Regular Member


Date Joined Jan 2008
Total Posts : 121
   Posted 3/26/2008 7:06 PM (GMT -7)   
Try Kefir. It has been around since recorded history .
Kefir has many more friendly types of bacteria (probiotics)and yeast
then you can buy in a pill. The good bacteria will colonize in your colon
and that is the mucus. I have been drinking it for three months now and have been
off the meds for about two weeks. I have been on meds since 1990 and every time
previously I tried to get off it was instant flare. When I first started drinking it
I got mini flares AKA in bathroom for about a few hours or a day here and there.
I think it is possible when the bacteria was colonizing in my colon and reached an area of
flare or ulcers it would cause a bad bacteria die off and aggrivated my colon but
that part is just my theory. My sore joints have gone away also.
I am going to wait a few more months and have a colonoscopy. My colon has always
had ulcers since 1990 when I get a scope but I this is the best my colon has felt so I
am actually looking forward to the colonoscopy. I can't say for sure it is the Kefir(probiotics)
but it is my gut feeling. If I stay in remission for over a year of meds, wich has never happened to me even on meds,
then I will be leaning more towards it was the Kefir.
Here is a link to my previous post.

http://www.healingwell.com/community/default.aspx?f=38&m=1037653&g=1051595#m1051595


Diagnosed panColitis 1990.
Current Meds Asacol x4 twice a day. X6 1/15/08
Pred for flares. I still have my colon THANK YOU GOD!!!
vitamins-veggie juice-wheat grass juice--fish oil
Started 1/01/08 PRObiotics
Freindly bacteria:raw milk-kefir made with raw milk--natto--probiotics
1/22/08 cultued veggies(probiotic)
Antifungus:Caprylicacid, Pau D Arco, Black walnut hull, Oregano oil
grape seed extract. 2/04/08 garlic
Anti inflammatory:fish oil  1/15/08 started Turmeric
1/10/08 Started healthy diet again.1/22/08 cultued veggies(probiotic)
 
 

Post Edited (blessteve) : 3/26/2008 7:09:31 PM (GMT-6)


dare5555
Regular Member


Date Joined Mar 2008
Total Posts : 35
   Posted 3/26/2008 7:08 PM (GMT -7)   
interesting post.

try the SCENAR device to help heal the membranes . Google it up and find more info . I have one ..

dare5555
Regular Member


Date Joined Mar 2008
Total Posts : 35
   Posted 3/26/2008 7:09 PM (GMT -7)   
my symptoms also started after self medicating on antibiotics and pain killers..

NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 674
   Posted 3/26/2008 7:22 PM (GMT -7)   
we did a survey on the board somtime ago and it was evident that many of us developed UC after taking anti-biotics -- me included.
 
sad  

NBT


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


TPT
Regular Member


Date Joined Feb 2005
Total Posts : 102
   Posted 3/28/2008 11:37 PM (GMT -7)   
I agree about the killing off the flora being a (yet to be scientifically discovered and proven) cause of UC. Just a hunch. No family history what so ever, but I was on antibiotics for years off and on due to acne. I also had food poisioning in the months before being diagnosed.

TPT
Regular Member


Date Joined Feb 2005
Total Posts : 102
   Posted 3/28/2008 11:41 PM (GMT -7)   
Is there any research on fecal transplants, it sounds gross, but might it help?

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3766
   Posted 3/28/2008 11:45 PM (GMT -7)   
TPT - Yes, there is research on fecal bacteriotherapy and there have been a lot of posts here about it. Here are links to a couple: http://www.healingwell.com/community/default.aspx?f=38&m=891388&p=1&ord=d
http://www.healingwell.com/community/default.aspx?f=38&m=891388

It sounds promising, but it's hard to find a doctor to do it. There is a doctor in Australia who does it though.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


TPT
Regular Member


Date Joined Feb 2005
Total Posts : 102
   Posted 3/28/2008 11:46 PM (GMT -7)   
Thanks Sara!

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3766
   Posted 3/28/2008 11:46 PM (GMT -7)   
Sure. =)
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18086
   Posted 3/29/2008 1:03 AM (GMT -7)   
I know of someone from another support board who claims he did this himself using his babies feces and with success, but apparently it has to be an ongoing process, not something you do just once or a few times.

Not my thing, but hey I am by no means knocking the idea since I clearly understand how desperate this DD can make us.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 3/29/2008 1:58 AM (GMT -7)   
I work in health care, meet a lot of people with very unhealthy lifestyles, drug addicts to be specific. I'm talking smoking crack, shooting heroin, meth, daily use and it usually comes with smoking 1-2 packs of cigarettes a day--in the past 10 years at work I've had maybe one person tell me they have UC (and yet they were not in treatment and their symptoms didn't add up). Oh, and alcohol, people consume mass quantities of alcohol, talk about killing off good bacteria. I was a vegetarian and in pretty good shape, happy, things going pretty well for me, up to then never took an antibiotic in my life, but yet, I got UC--who knows why? And, for me, I'm not sure it matters why or how I got it--it is what it is--there is peace in that.
Dx Ulcerative Colitis 1999; IBS; GERD; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Prozac, Endocet (as needed), multi vit, probiotic, fish oil, calcium 1200 mg./day, Prednisone (off/on, unfortunately).


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1189
   Posted 3/29/2008 11:22 AM (GMT -7)   
When you take antibiotics, they cause a reduction of the good bacteria, causing yeast to proliferate. If you think your symptoms came about after having taken antibiotics, maybe you should also try an antifungal program, along with the probiotics, to help you get back on track. The yeast/fungus is what could be causing your symptoms.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18086
   Posted 3/29/2008 12:48 PM (GMT -7)   
Antibiotics kill everything, good and bad bacteria, which is why it's essential anyone who takes antibiotics takes probiotics too (for IBDers taking probiotics on antis or not is indefinite), but you should take probiotics at least 2 hours AFTER you're finished taking antibiotics for the day.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1189
   Posted 3/29/2008 1:19 PM (GMT -7)   
By the way PB4, I remember you telling us/me that psyllium hulls were good for the gut too. How much/day and what kind do you take?  I started taking p. husk caps about 3 weeks ago, and I must say, I feel wonderful. I read they can help heal a leaky gut, and also bind fungal toxins to help get them out of the body. Some brands of psyllium hulls contain licorice so you have to read the ingredients carefully if you have high blood pressure. I also take the probiotics you recommended, and I love those too! Thanks for your input :)

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18086
   Posted 3/29/2008 9:11 PM (GMT -7)   
The fibre supplement I use has some in it, I take one pill/day...others use psyllium husk but I'm not sure of the amounts people use, I think one has to play around to find what works best for them but starting with a small amount and slowly increasing if necessary, is always safest.

Glad you find it helps, make sure you take it indefinitely (even in remission), same with the probiotics.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

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