What med should i switch to from Asacol?

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butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 11/9/2007 5:53 PM (GMT -6)   
I just called my new gi and told him i cannot take the asacol anymore because it making my diarrhea, abdominal pain and bleeding worse.  He actually wants toknow what i want to switch to. I told him lialda because ive heard good things.  But am curious if any one else had had the same problem with asacol and swithched to something that actually stopped the flare. 

Red_34
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Date Joined Apr 2004
Total Posts : 22017
   Posted 11/9/2007 7:15 PM (GMT -6)   
Lialda is similiar to Asacol and if Asacol is giving you troubles then Lialda might do so too. You can ask for Colazal which is slightly different the Lialda and Asacol. I took Asacol for years then I couldn't tolerate it anymore but I have no troubles with Colazal.
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia, Pro-Bio 
Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
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@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 11/9/2007 8:59 PM (GMT -6)   
I disagree with Red because I was on Colazal and it didn't work for me at ALL, but just switched to Lialda and it seems to be doing really good things for me.
Had stomach problems whole life.. on and off. Could never figure out what it was or why it was going on. about a year and a half ago I went to the dr cuz I was running to the bathroom and it was ruining my life.. my stomach problems were back and wouldn't go away. Went to the reg dr. and he took xrays and I was constipated with D. He referred me to a GI.

After tons of testing and diff. GIs. I had a colonoscopy and it came back as IBD either Crohns or UC... they couldn't decide. I took a dye test and they ruled it as UC because they said Crohns always comes up on it and it didn't.

Finally diagnosed with UC March 07

Initially put on Colazal.. it didn't really work. Was never really symptom free.. so I guess a ongoing flare for a year and a half?

Just got over a HORRIBLE flare up and was put on pred and lialda... Seems to be working.



Medications: Colazal 3 3x a day

Started taking Prednisone- 40mg and Lialda- 2 a day both in the morning one time only on 10/30/07 Haven't started tapering yet.


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 11/10/2007 12:25 AM (GMT -6)   
Well im willing to try anything at this point!My gi was supposed to call in Lialda but didnt. He said he never heard of it. So i suggested he call in what he thought would be best. Called the pharmacy and they said he never called. Now the exchange says i have to wait til Monday and call the office. I guess 10 diarrhea bloody terribly painful stools and not being able to eat anything isnt an emergency to them. Boy i bet theyd act differently if they even knew what this disease does to a persons body and life!Im bed ridden and cant even think about going to work because of the pain and diarrhea. As long as we're all sick the gi's jobs are secure. Sorry just a bit frustrated and needed to vent.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 22017
   Posted 11/10/2007 7:43 AM (GMT -6)   
Is there any way for you to phone the office and talk to the doc on call to request this med instead of waiting until Monday?
 @--->--SHERRY--<---@
Left sided Uc -'92 - Colazal, Canasa, 6mp, Prilosec, Biotin, Forvia, Pro-Bio 
Allergies - Singulair, Astelin(got the script - just haven't tried it yet!)
Secondary Reynauds Syndrome - '04 - Norvasc
Fibromyalgia - '06 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


icanrace
Regular Member


Date Joined Sep 2007
Total Posts : 204
   Posted 11/10/2007 8:14 AM (GMT -6)   
you might consider the Sulfasalizine (sp) too.
updated medication schedule coming on 11-2-07

started Prednisone & Asacol on Thursday 10-4-2007

10-22-07- coming out of about an 8 week flare (my first one ever)


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 475
   Posted 11/10/2007 9:18 AM (GMT -6)   
Butterfly,

Good for you for trying to get your doctor to prescribe another med. But why on earth would a doctor ask the patient, "well, what drug do you want?" That is probably the best way to tell you have an incompetant doctor.

If you look back in the postings here, you'll see that Red_34 asked what the difference was between all the 5-ASA drugs. Some are released higher up in the colon, some lower. My understanding is that depending on where your inflamation is,some of these drugs are better than others for you. Also, if you are allergic to an agent in the Asacol, maybe you need one of the drugs that has some other ingredients. I don't know enough about it to speak intelligently about it.

BUT -- I can tell you that my doctors (I've had 3) switched me from Asacol to Colazal, to Pentasa, to Dipentum and then finally to 6MP, which is working. Each time they made a switch, they had a really good case for why I should try the different drug. And at least I felt that I'd tried everything before I went to the 6MP which is a more serious drug. (An immunosuppressor.)

If I were treating myself, which is sounds like you are being asked to do, I ask for Cortifoam (rectal foam). Rather than the Prednisone, it will only be absorbed locally and will soothe the part of you that's probably pretty irritated from all that bloody D. You can safely use it twice a day for a short period of time. The best (most famous and expensive) GI in NYC told me that, so I trust it.

A previous post mentioned sulfasazaline. If you are allergic to the Asacol, I'd be pretty careful about trying a sulfa drug. The common allergic reaction to sulfa is fever and hives though the allergic reaction can be stopped quickly with.. you guessed it, Prednisone.

Sorry for the long post. I hope you get some relief this weekend.
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 11/10/2007 12:17 PM (GMT -6)   
The morning has just begun but i think im feeling a bit better today. I had a formed stool. My tummy still hurts. I really feel it was the asacol. Ill keep you posted. Thanks everyone!When i go on Tuesday i am gonna ask for the cortifoam.Given up on oral meds for right now. That asacol made me way to sick.

quincy
Elite Member


Date Joined May 2003
Total Posts : 25711
   Posted 11/10/2007 3:10 PM (GMT -6)   
butterfly...where in the colon is your UC...limited or throughout?
It'll be worth for you to try some of the other meds if one isn't working....but you should be on rectal meds as well. I hope the cortifoam works.

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 11/10/2007 9:36 PM (GMT -6)   
Actually its in the upper middle and lower part of the colon.I had a colonoscopy in July and was in remission. But about a month ago i started this horrible flare. Its the worst yet. Maybe its an age thing. It seems since i turned 40 i cant bounce back from health issues the way i use to.

ledaebel
Regular Member


Date Joined Jul 2006
Total Posts : 339
   Posted 11/10/2007 9:48 PM (GMT -6)   

Please ask your physician to look up Lialda.  Or, you could do it yourself.  I was in agony for 18months and one day called my GI and was asked it I'd like to be on a drug study.  The drug was Lialda.  It has been wonderful for me.  The overwhelming fatigue was beginning to lift in less than 2 weeks.  I started feeling much, much better in 4 weeks.  I "failed" the study since I was not healed enough but I would not go off it for anything.  It finally has me back to normal or as normal as anyone with this "curse" to feel.

I'll see if I can find the link for you.

 


  • LINDA
         
Prescriptions: Lialda (on a study) asacol, hycosamine, protonix, synthroid, zyrtec, avalide, nasocort, Miacalcin spray and Trazadone for sleep.
OTCs:  Usana multivitamins and multiminerals, Usana Procosa, Usana Mega Antioxidants, Omega 3, Vit. E,  Healthy trinity probiotics, Calcium Citrate


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 475
   Posted 11/10/2007 10:56 PM (GMT -6)   
I was just thinking that if your doctor doesn't know what to prescribe for you when you see him on Tuesday, you should tell him to sign on here and ask Quincy or Old Hat! lol
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2142
   Posted 11/10/2007 11:03 PM (GMT -6)   
lol I agree w/Julee, have the doctor scroll through these boards for some ideas........was he being sarcastic, like you tell me?
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 150mg 1xday nightly;Remicade tests pending;Hydrocortisone enemas 1xday;Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Potassium 600mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 2xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 11/11/2007 4:06 PM (GMT -6)   
Ya i feel like telling him you'd be amazed how truly educated you could definently become in your gi profession if you'd just sign on to the healing well uc forum and talk to people who live with this disease on a daily basis! All us gunea pigs!lol

julee70
Regular Member


Date Joined Oct 2007
Total Posts : 475
   Posted 11/14/2007 6:04 PM (GMT -6)   
I'm just bumping this in case Butterfly signs on...

Just wondering how you have been doing these last few days and whether you've been able to find a better doctor.
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 11/14/2007 6:28 PM (GMT -6)   
julee70 said...
But why on earth would a doctor ask the patient, "well, what drug do you want?" That is probably the best way to tell you have an incompetant doctor.
Agreed. I'd be looking for another doctor.
 
Quite a few folks have reported asacol actually making their symptoms worse. The older drug, sulfasalazine worked for me, but it's an individual thing that may take some trial and error.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 11/14/2007 6:51 PM (GMT -6)   
hey guys thank you so much for checking on me! i saw my new gi and he was very nice and compassionate. he switched me from asacol to lialda. im wondering if anyone else has tried this. i took my first dose today and have felt nauseated and weird. isnt this the same med as asacol? the gi said we will try meds til we find one that works.the lialda was 45 dollars so i was hoping it would work.should i give it a couple days?

julee70
Regular Member


Date Joined Oct 2007
Total Posts : 475
   Posted 11/14/2007 7:15 PM (GMT -6)   
So glad to hear that you found a new GI! Great news.

I know that a lot of people here will have opinions and info about Lialda. It's actually one of the drugs I haven't tried in the last 10 years so I can't weigh in on it.

I hope this is the one that works for you and that this is beginning of lots of improvement!
-------
UC for the last ten years
Current Meds: 6MP
Past Meds: You name it; I've tried it.


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 11/14/2007 7:31 PM (GMT -6)   
Thank you Julee70. Hope things are going well for you too!

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2748
   Posted 11/15/2007 8:16 AM (GMT -6)   
I have reacted horribly sdo far to every 5ASA but have yet to try Lialda. In each case (coated sulfasalazine, asacol, dipentum and colazol) I got severe to extreme abdominal pains, D and bleeding, so I am afraid to try Lialda, especially since you take fewer per day i..e each one has more active drug in it, and being coated you can't chop it into a smaller size to try it. However, it sounds like your adverse reaction to 5ASA's has not been quite as obvious (?) as my case and in any case you have started the Lialda so you will know within a few days. (My adverse reactions were severe enough that I had to end within 24 h).
Pancolitis dx'd 1986, full med-free remission 88-97
Flaring or simmering ever since
10 20 17.5 15 12.5 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO
Turmeric/circumin, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD)
 
 
 


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 11/15/2007 9:21 PM (GMT -6)   
Im feeling really sick right now.Having diarrhea, nausea, gut pain. My gi wants me to get samples of colazol tomorrow but im just about ready to give up!

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3766
   Posted 11/15/2007 9:27 PM (GMT -6)   
I'm so sorry to hear you're still not feeling well. Don't give up! I know it sucks dealing with all of this, but I'm glad your GI is working with you to help you try new meds. Hopefully, one of them will work soon. I think a lot of people here who couldn't tolerate Asacol had a better time with Colazol.
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - every other night
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil and Fiber Choice; Viactiv (Calcium and Vit. D) for Osteopenia; ground flaxseed


winni
Regular Member


Date Joined Jul 2006
Total Posts : 179
   Posted 11/15/2007 10:14 PM (GMT -6)   
I would really give colazal a try before i gave up. I was flaring for a year, coulden't get off steroids and was feeling like i had no future. Asacol DESTROYED me, it made my bloody D so much worse. Anyway I tried colazal and within 2 days on it was in remission and have been ever since, except for a little tussle i had with a parasite in ecuador...
Winni, 24

Diagnosed UC july 2006.
medications: prednisone 10 mg and tapering, colazal 9 daily
supplements:probiotics,calcium and iron supplements, aloe vera gel, kombucha and cinnamon tea.
osteopenia from 1 year of being off and on prednisone.
http://www.myspace.com/harshrealmbro

finally in remission... (fingers crossed)... from the colazal


butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 11/16/2007 4:21 PM (GMT -6)   
Thanks again everyone. Ill go get the colazal samples and give them a try. I appreciate you all!

butterfly1
Regular Member


Date Joined Jun 2007
Total Posts : 112
   Posted 11/16/2007 4:29 PM (GMT -6)   
Thanks again everyone. Ill go get the colazal samples and give them a try. I appreciate you all!
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