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Sideshowbob
Veteran Member


Date Joined Sep 2005
Total Posts : 697
   Posted 12/3/2007 10:38 PM (GMT -6)   
A little problem that I am wondering if anyone has any suggestions on how to help. Now after all the enemas, colonoscopy and other embarrassing things we do to figure out this illness, I really have to problem discussing this.

I have gas. Bad, terrible gas. My partner at work is going insane from it, and now with it being so cold in the winter, its too cold to keep the windows of the car open, but he says my stench is killing him slowly. And I have become (no pun intented) the butt of the joke at work regarding bad gas.

I've tried beeno, and such, but is there anything out there to reduce gas? Any prescriptions that will stop it? It actually becomes painful if I don't "release" and try to hold it in. So, I don't. Changing my diet isn't really that much of an option as I am training hard and need the protein.

But maybe there is a food that will help reduce it? It's a lot, it's often, and it is bad.

Can somebody help a poor guy out?

yeah
35 year old Male, Husband, Father of the best three kids in the universe.
First Flare was February 2005. Diagnosed June 2005-left-sided Colitis, suspect it has since spread. Started 4000 mg Oral Salofalk June 2005-stopped January 2007. Remission until November 2006. Been in a flare to various degrees since November 2006 to February 2007. Currently in remission.
Presently on 0 mg Prednisone-down from 60 mg!
Weekly 4000 mg Salofalk enemas.
Daily 4000 mg Salofalk oral.
Started Omeprazole 20 mg February 2007.
Co-Moderator-UC Forum


quincy
Elite Member


Date Joined May 2003
Total Posts : 25655
   Posted 12/3/2007 11:03 PM (GMT -6)   
did it just start?

Are you still using enemas?

I would suggest you start a good probiotic.....is it worse on any specific shifts?
 
Do you take your own food to eat? 

Any artificial sweeteners?

How are you enjoying the good old weather here?

H


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 12/3/2007 9:36:54 PM (GMT-7)


seermaag
New Member


Date Joined Sep 2007
Total Posts : 9
   Posted 12/3/2007 11:55 PM (GMT -6)   

I have sympathy for you and everyone around you since  my husband suffers from the same condition.  The smell was so bad that it woke me up in the nighttime and we ended up sleeping in separate bedrooms.  I also would recommend probiotics because it is the only thing that works for him.

You have to try various probiotics because everyone is not the same.  Try reading the book Probiotics Revolution (recommended by relativequantum).  It is really an eye opener.  The book is written by Gary Huffnage.  He suggest opening the probiotic capsule and put it in your mouth where it can start working through the digestive system from the mouth on.  I have been doing it with my 14 year old daughter for the last week and I have definitely seen an improvement in her allergies.

I hope this helps.

 

 

 


seermaag
New Member


Date Joined Sep 2007
Total Posts : 9
   Posted 12/3/2007 11:57 PM (GMT -6)   
Sorry I made a spelling mistake.  The book was written by Gary Huffnagle.

Sideshowbob
Veteran Member


Date Joined Sep 2005
Total Posts : 697
   Posted 12/4/2007 1:05 AM (GMT -6)   
Ok, any probiotics specifically that anyone can suggest? And quincy, I have had the gas on and off since getting this, but its gotten worse lately. Not affected by any shift, or food, and no to the artificial sweeteners. I cant stand the taste of them to be honest.

I take the enemas twice a week or so, and i make my own food always, usually 6-8 meals a day. protein shakes, protein bars, steak, chicken, cottage cheese, eggs, etc. lots of protein, medium carbs, low fat. but ive eaten this way for about 10 years. i do cheat here and there though........oh, and i drink a ton of water. :)
35 year old Male, Husband, Father of the best three kids in the universe.
First Flare was February 2005. Diagnosed June 2005-left-sided Colitis, suspect it has since spread. Started 4000 mg Oral Salofalk June 2005-stopped January 2007. Remission until November 2006. Been in a flare to various degrees since November 2006 to February 2007. Currently in remission.
Presently on 0 mg Prednisone-down from 60 mg!
Weekly 4000 mg Salofalk enemas.
Daily 4000 mg Salofalk oral.
Started Omeprazole 20 mg February 2007.
Co-Moderator-UC Forum


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 12/4/2007 9:51 AM (GMT -6)   
i'm not sure i can offer much good advice, because i definitely suffer from the same thing. my dad (who used to be the worst offender in the house) can't even handle it--he has often blamed me for the "paint peeling off the walls" :)

i try to stay away from coffee and splenda (the love of my life), but i am not always good at it. i don't know if this helps, but i just try to make jokes about it. and i keep body spray/air freshener with me whenever i can.

good luck and you are not alone!!
katie
23
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
gastritis

VSL #3
Amitriptyline to slow gastric emptying
Forvia
compazine


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 12/4/2007 10:10 AM (GMT -6)   
Probiotics, probiotics, probiotics. I'd personally recommend Custom Probiotics or Natren. They're pricey, but very effective. I've tried cheaper store bought brands that did nothing for me. You might find a good quality digestive enzyme supplement helpful, too.

If you're weight training, are you taking a protein supplement or MRP? These can cause digestive problems and gas, even in non-IBDers. If you're using a whey protein, make sure it's a whey protein isolate, not a concentrate. If even the isolate bothers you, try a hydrolized whey protein. If that's still a problem, try an egg white protein. Protein from real food sources is best, but I know it's hard to get all the protein you need without supplementation.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


Sideshowbob
Veteran Member


Date Joined Sep 2005
Total Posts : 697
   Posted 12/4/2007 12:08 PM (GMT -6)   
Hi princesa.....Ive always had a bit of gas. And ive used both mrp and protein supplements off and on. I am currently using a straight protein by bio x, which id have to check the label as to if its isolate or concentrate. Maybe something to look into. But ive been using this same one for years so i dont think its that. But who knows. And i agree about the real food sources. It's just hard because im in a car for a lot of my shifts so i need something portable. :)

I am going to give the probiotics a shot though. :)
35 year old Male, Husband, Father of the best three kids in the universe.
First Flare was February 2005. Diagnosed June 2005-left-sided Colitis, suspect it has since spread. Started 4000 mg Oral Salofalk June 2005-stopped January 2007. Remission until November 2006. Been in a flare to various degrees since November 2006 to February 2007. Currently in remission.
Presently on 0 mg Prednisone-down from 60 mg!
Weekly 4000 mg Salofalk enemas.
Daily 4000 mg Salofalk oral.
Started Omeprazole 20 mg February 2007.
Co-Moderator-UC Forum


senaid
Regular Member


Date Joined Apr 2007
Total Posts : 67
   Posted 12/4/2007 1:09 PM (GMT -6)   
My son has had problems like this.... and me too during a flare up. I found a great site ... www.marysherbs.com Dr. Mary is fantastic! I mentioned some conditions my son was having. She told me what herbs to take, etc. and low and behold he hasn't had problems in months. For him I think she mentioned taking "liver cleanse".... and some other things. You can write to her and within a couple of days she'll write back. She doesn't charge anything and the herbs are some you can get at your local healthfood store. I like Nature's Sunshine herbs they are fresh and effective.

Try her and let me know how you're doing!
Diagnosed with severe ulcerative proctitis - 2003.
 
Remission until late 2006,  Flared again from 11/06 to 4/07:
 
Currently in remission!! YEAH!
 
Doing acupuncture once a week.
 
I take Immunplex (multivitamin), Vit E, Fish Oil, Probiotic Eleven, Slippery Elm. Also started taking pH Balance Green because of inflammation in the finger joints (which I believe to be all connected to the proctitis inflammation as well... inflammation just moving around until I get healed!)
 
Had allergy testing done as well.... allergic to cow's milk and shellfish (no outward symptoms of this at all), but laid off those foods as well.


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2142
   Posted 12/4/2007 1:43 PM (GMT -6)   
I work in cubicle land and can't pass gas, it really hurts sometimes, then when I go to the bathroom I can't fart and that really aggravates me and by the time I go back to my cube I have to fart again. I don't know what controls it for me, I seem to eat the same things on a daily basis.

I think the gas for me may have more to do with my colon changing, meaning getting better or worse that is when I have the most gas.

As for the smell, I don't know, as long as you are not eating spicy then I don't know what to suggest? though my husband's farts are truly horrible smelling and they linger for a long, long time, i'm mostly just gassy.
Beth, 32
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 671
   Posted 12/4/2007 2:04 PM (GMT -6)   
Probiotics should help, but you also have to look at what you're eating as well.

Hopefully, your not eating anything like red beans (or any kind of bean) because they cause gas in most people. Some years ago I tried bulking up by lifting weights, etc. and I drank protein shakes...but it caused alot of gas, so maybe you should look into that.

NBT


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 12/4/2007 2:08 PM (GMT -6)   
Sideshowbob said...
But ive been using this same one for years so i dont think its that. But who knows.
Unfortunately, your ability to properly digest different foods fluctuates depending on the health of your gut. I took a whey protein isolate for a long time before I eventually got to where it bothered me. Now, I use a hydrolized whey and egg white protein. In my experience, you really have to listen to your body.
Diagnosed with ulcerative colitis spring 1999
 
Therapeutic dose sulfasalazine, back on a pred taper for first flare in years. Down to 10 mg and feeling much better.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 25655
   Posted 12/4/2007 3:31 PM (GMT -6)   
The other thing you can add is a protein digestive enzyme....it was recently suggested to take Bromelain...and that is good for you to consider when consuming protein. I find I have more gas when I take the multiple digestive enzymes....but I do take both depending on what I've consumed..etc.

One thing that might help with the gas is caraway seeds...you can chew them. They're stong, but could help.

As for the protiotics....I use Natural Factors Protec...they have rhamnosus in them which is primo for gut health/UC/. I also add oone Primadophilus Reuteri capsules or the Pearls....you can consider the Pearls that don't need to be refrigerated. Good idea for when you're working.

It's possible you're taking too much protein (I can't use ANY whey protein, hydrolized or isolate..painful discomfort!!!..as well, they do contain artificial sweeteners if they're flavoured)....but do look into the Bromelain when you take any protein. I'm grateful for the suggestion from whomever it was .... thank you!

There is also rice protein which could be another consideration...also there's Hemp Protein....pretty good when mixed with V8 juice.

I think you should consider different sources of protein....I've found that it doesn't matter if you've used it for ages...you've had some changes in your digestive tract through surgery..etc...are on different meds, stress..etc...so that can change the way we digest stuff.

How is baby doing??? girl, boy? I was having so much trouble with the anti-spam filter when baby was born, I didn't even respond...so now that you're on the board again.. I hope mom and baby are doing fine.

Oh, Bob....please consider that if you have lots of painful gas that seems to feel very uncomfortable in the rectum...that could be a sign of some inflammation starting. I would suggest you do the enemas for a week straight and see if that helps...or at the very least add a few more during the week sleep-time. I've found that when you insert the nozzle, squeeze a bit right in the anus, and continue squeezing until you reach the full insert...that gets a good amount right at the area where the UC inflammation is hard to get at.

Anyway....hope you feel better soon...keep us posted
quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Sideshowbob
Veteran Member


Date Joined Sep 2005
Total Posts : 697
   Posted 12/4/2007 5:46 PM (GMT -6)   
Hi guys, I will look into your suggestions for protein and maybe try a different type for a bit to see if it helps things.

Quincy, baby is awesome, little girl, healthy, happy, and my wife is doing great as well. It's a handful but shes off work for a year so its a lot easier then it could be. :)

I'm also going to try the enemas nightly for a bit. can't hurt, and I have boxes and boxes of em.....makes for an interesting trip to the car from the pharmacy carrying out a large cardboard box with the word ENEMAS in bold print on the outside........lol.....my wife said she was glad she didn't pick them up for me. :p
35 year old Male, Husband, Father of the best three kids in the universe.
First Flare was February 2005. Diagnosed June 2005-left-sided Colitis, suspect it has since spread. Started 4000 mg Oral Salofalk June 2005-stopped January 2007. Remission until November 2006. Been in a flare to various degrees since November 2006 to February 2007. Currently in remission.
Presently on 0 mg Prednisone-down from 60 mg!
Weekly 4000 mg Salofalk enemas.
Daily 4000 mg Salofalk oral.
Started Omeprazole 20 mg February 2007.
Co-Moderator-UC Forum


AshNH
Regular Member


Date Joined Jul 2007
Total Posts : 208
   Posted 12/4/2007 6:26 PM (GMT -6)   
I am suspecting protein as well. In the past, I have noticed smelly farts associated with particular brand/type of protein shakes, protein bars and vitamins. Not sure if you are taking any vitamin pills but some of those were very horrible for me, especially the store brand names, such as CVS, etc. Switching to Centrum seems to have helped..also Centrum Silver seems to be better in that regard.
Ash 39 NH, vegetarian
Diagnosed with UC July 06 (I think 6/6/6) during 10 day hospitalization
Current meds: Asacol 12, Imuran 150mg
Centrum Silver, Primadophilus Reuteri, DHA-Omega 3, L-glutamine


SwollenColon
Regular Member


Date Joined Nov 2006
Total Posts : 133
   Posted 12/5/2007 12:19 AM (GMT -6)   
The Beano works for me, but I have to take 4 of them. Fried foods make me gassier than usual, and those protein shakes aren't kind either.

expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 12/5/2007 12:26 PM (GMT -6)   
I saw my GI yesterday for a wellness visit, and I asked him about bad gas. I've started having it a lot more recently, and I'm not sure whether to attribute it to my UC (even though I am in remission) or to my pregnancy. He asked me if I was eating a lot of carbohydrates. I said yes... a ton. He said cut back - that the carbs/sugars are likely causing the gas. I never realized that carbs could cause gas but apparently, they can. So, you may want to consider limiting your sugar intake to see if that helps.
Current Medications:
- Asacol (4 pills, 2x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


dudewhrsmybike
Regular Member


Date Joined Dec 2007
Total Posts : 38
   Posted 12/5/2007 6:17 PM (GMT -6)   
I'm starting to take Nature's Bounty Probiotic Acidophilus. Hopefully this will help with the bad gas.

Does anyone have any input on this particular brand?

New to Fitness
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 2/4/2009 1:01 PM (GMT -6)   
If you are worried about your protein intake I would try a new product on the market. Its an all natural Whey Isolate. NO artificial sweetners It is sweetened with a natural herb called Stevia!! It is the best tasting protein powder out there. It is all natural!! I myself a friends use this and gas is not a problem! Also it contains Zero Carb and Zero fat You can find it on ** Let me know what you think

Post Edited By Moderator (Red_34) : 2/4/2009 12:31:02 PM (GMT-7)


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 2/4/2009 7:06 PM (GMT -6)   
Things changes; you may in fact have a problem digesting proteins...try eliminating them for a while and see what happens. I take a very good digestive enzme and I can still get some gas but only when eating specific foods.
Sideshowbob said...
Ok, any probiotics specifically that anyone can suggest? And quincy, I have had the gas on and off since getting this, but its gotten worse lately. Not affected by any shift, or food, and no to the artificial sweeteners. I cant stand the taste of them to be honest.

I take the enemas twice a week or so, and i make my own food always, usually 6-8 meals a day. protein shakes, protein bars, steak, chicken, cottage cheese, eggs, etc. lots of protein, medium carbs, low fat. but ive eaten this way for about 10 years. i do cheat here and there though........oh, and i drink a ton of water. :)



Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 5X per week and canasa every other day
Natural anti fungal, anti inflammation supplements and Probiotics.
Bowel Soother and IntestiNew, Fish Oil, Calcium, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Reduced sugar in my diet by at least 70%
Reduced wheat products by 70% 
Could never tolerate artificial sweetners
I excersice daily (unless like now : (  I've lost too much weight)
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*

Post Edited (bbc) : 2/4/2009 5:11:53 PM (GMT-7)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10106
   Posted 2/4/2009 7:20 PM (GMT -6)   
My gas is terrible too. I have bad bathroom odors in general. Someone posted about some products to eliminate odors in another post but I am not sure if they work well. I've never found any product to stop the gas before it starts but I do think avoiding gassy foods helps. Cabbage and beans always make me gassy.
Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


at wit's end
Regular Member


Date Joined Jun 2007
Total Posts : 498
   Posted 2/4/2009 8:52 PM (GMT -6)   
Hi Sideshowbob. I too have bouts of bad painful gas. I have UC and have had it since 1986. My gastro doctor had me buy Phazyme years ago but to me that might not be the solution. Intestinal gas takes a different treatment. There is an over the counter drug called Charco Caps that is for intestinal gas. You might try them, they helped me some. I notice I cannot handle rich foods anymore, anything with a creamy type sauce, it causes more gas than ever for me. Certain beans are a no no for me also. And slaw is a no no also, as well as corn, and nuts.
Sideshowbob said...
Hi guys, I will look into your suggestions for protein and maybe try a different type for a bit to see if it helps things.

Quincy, baby is awesome, little girl, healthy, happy, and my wife is doing great as well. It's a handful but shes off work for a year so its a lot easier then it could be. :)

I'm also going to try the enemas nightly for a bit. can't hurt, and I have boxes and boxes of em.....makes for an interesting trip to the car from the pharmacy carrying out a large cardboard box with the word ENEMAS in bold print on the outside........lol.....my wife said she was glad she didn't pick them up for me. :p


Diagnosed with left sided UC in sigmoid colon and rectum 1986.
Put on Azulfidine 2 X 3 a day and Rowasa enemas 60mg.
Have been pretty much in remission overall other than a few flares over the past 21 years.
Medicine changed to Asacol 400mg 2 pills X3 times a day. Taken off all meds in 2004.
Diagnosed with acid reflux 2005. Put on Protonix 40mg.
Have been using Canasa 1000mg suppositories nightly since January 2007.
Was put back on Asacol 400mg 2 pills 2X a day in July 2007 maintenance. 


nc_bri
Regular Member


Date Joined Dec 2008
Total Posts : 20
   Posted 2/5/2009 7:18 AM (GMT -6)   
I just saw this product on Amazon...the GasBGon Flatulence Filter Seat Cushion! It looks like a cushion that absorbs the smell and sound, so it might help in your office and car.
I have no idea if this works or not, but just thought I'd pass it along...if it works maybe I'll sew it to some pants and wear it around!

http://www.amazon.com/GasBGon-Flatulence-Filter-Cushion-Patented/dp/B0006YXVX8
Good luck!

DeanC
New Member


Date Joined Feb 2009
Total Posts : 7
   Posted 2/7/2009 1:54 AM (GMT -6)   

Sideshowbob, I've been a cop for 22 years, nothing like running lights and siren to the nearest 'safe' bathroom during a flare up is there?!  It's good to have an understanding partner. Best friends I've made have been in the front seat of a patrol car.  Soy sets me off big time, is there lots of soy in your protein shakes and bars?  Just a thought. 

 


46 year old man
Diagnosed left side UC 1998
Asacol 4x3 
Rowasa nightly 


zb420
New Member


Date Joined Jan 2011
Total Posts : 1
   Posted 1/5/2011 5:47 PM (GMT -6)   
This thread I know is a couple years old, but hopefully someone will see it.

I have terrible gas at night before bed.... and it wakes me in the early morning with that darn pressure.
Once I get up, during the day, I have no problem, but at night, I am highly explosive.

This has been going on for over a year and recently I tried Simethicone, ( Gas-Ex Extra) and got a night or two relief iwth it and it was such a pleasure to wake up not uncomfortable.

....but that didn't last too long, I am still taking Simethicone but it isn't working anymore.

What should I do, today I stopped drinking milk to see if I had developed some problem with lactose.

So I am open to any suggestoins... what about omeprazole, prevacid, or prilosec otc. ?

Thanks.
zb
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