is it contagious

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rey
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Date Joined Nov 2007
Total Posts : 346
   Posted 12/13/2007 5:01 PM (GMT -7)   
reading the when to tell th e question , someone mentioned that uc may be contagious. curious what is the contagious link, maybe then there is something to treat like an infection? are there any studies about conagion with uc or crohns?
Mom to 19 year old daughter diagnosed 11/07.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18190
   Posted 12/13/2007 5:20 PM (GMT -7)   
Highly unlikely...I've been married 18 yrs and have had IBD for going on 17 yrs, so if in almost 2 decades my hubby hasn't gotten it yet then I'd have to say it's a firm NO...One has to be predsiposed to getting IBD, then it has to be triggered for them, if one is predisposed to getting it they cannot contract it from another IBDer either.

p.s. my hubby and I have been together for a total of 25 yrs.
 
Here's a link to help put your mind at ease...
 
 
 

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)

Post Edited (pb4) : 12/13/2007 4:27:02 PM (GMT-7)


Red_34
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Date Joined Apr 2004
Total Posts : 22178
   Posted 12/13/2007 5:56 PM (GMT -7)   
There was a study done on mice who had IBD's and those mice were intermingled with the healthy mice. The sick mice infected the healthy mice but I believe only because they were eating each others droppings. There has been NO studies on humans that confirm this nor do I believe it would ever be the case. Like Pb, I've been with my hubby for 20 years, 15 of those years I had Uc - no one else in my family has Uc or Cd.
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wildfire07
Regular Member


Date Joined Oct 2007
Total Posts : 61
   Posted 12/14/2007 5:52 AM (GMT -7)   
no, it's not contagious. Hubby & I have ben together 14 years, I've only recently been correctly diagnosed, but trust me when I tell you that the "disease" has been there, ignored by me, then misdiagnosed for at least 5. Docs all confirmed that for me as well.
             
 
Diagnosed with UP Sept. 2007-2nd opinion & 2nd colonoscopy confirmed UP, & UC old pain & new pain, it's spreading...Dec. 2007
misDiagnosed with Degenerative Arthritis, 2006
2 4 asacol 3x daily for UC/UP. 
Canasa suppositories, also 3x  daily,
3tsp. Donnatol every 6 hours, as needed
1 20mg tab aciphex daily
1-2 depacote 3x daily for bipolar disorder
 


kb5
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Date Joined Jan 2007
Total Posts : 1015
   Posted 12/14/2007 5:59 AM (GMT -7)   
I have been dx'd for 10 years but docs beleive I have had this most of my life. No one in my life (husband of 4 years, family, roomates, ect) has ever had a similar problem. I do not believe UC is in anyway contagious.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, 15 mg pred. until immuran kicks in...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07
Prontonix once daily for acid reflux, zofran twice daily for nausea


Old Mike
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Date Joined Jan 2007
Total Posts : 2759
   Posted 12/14/2007 9:19 AM (GMT -7)   
I would say that the jury is still out, here is one abstract, search pubmed for more info,
search inflammatory bowel spouse. Also I believe that on this site and the j-pouch site there are a few married couples with IBD. Old Mike

Inflammatory bowel disease in married couples: 10 cases in Nord Pas de Calais region of France and Liège county of Belgium.Comes MC, Gower-Rousseau C, Colombel JF, Belaïche J, Van Kruiningen HJ, Nuttens MC, Cortot A.
Registre des Maladies Inflammatoires du Tube Digestif du Nord Ouest de la France CHRU Lille.

Ten pairs of husband-wife couples are reported with inflammatory bowel disease who were seen in the same geographical area in Nord Pas de Calais region of France and in Liège county (Belgium). Among these 10 couples, four were concordant for Crohn's disease, two for ulcerative colitis, and four were discordant. In nine of 10 couples neither spouse had symptoms before marriage but inflammatory bowel disease subsequently developed in both. In one couple, one spouse had Crohn's disease before marriage and the other partner experienced symptoms afterwards. Eighteen children were born to eight of 10 couples. Five of them developed Crohn's disease but four belong to the same family. In all cases the affected children were born to parents who both developed Crohn's disease after they had married and were conceived at a time when parents did not yet have symptoms. It is proposed that this pattern of emergence of inflammatory bowel disease suggests a role for an infectious agent yet to be identified.

PMID: 7959244 [PubMed - indexed for MEDLINE]

tjf
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Date Joined Dec 2005
Total Posts : 3238
   Posted 12/14/2007 9:24 AM (GMT -7)   
Personally no I do not believe it is contagious.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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Judy2
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Date Joined Mar 2003
Total Posts : 9644
   Posted 12/14/2007 9:57 AM (GMT -7)   
In Graves disease, which is another autoimmune disorder, there is a known increase in the disease in people who live in the same household as people who have the disease. As far as I know, they haven't determined whether there's a contagious element or perhaps it's a common environmental element.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
 
Current meds are Colazal, Azathioprine and Remicade. Completely off steroids for more than a year now! In remission since April, 2006. Remicade has been my wonder drug.
 
Now tapering Azathioprine, please pray for me.
 


Beth75
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Date Joined Jul 2007
Total Posts : 2142
   Posted 12/14/2007 10:01 AM (GMT -7)   
I have not seen proof that it is contagious.  There are some out there who 'believe' it could be because there are couples that have UC and a test done on mice (how many tests have been done????), but I think that is just coincidence, just like two type 1 diabetics getting together or two people with cancer getting together. 
 
My mother had UC my father never had it (they got married over 35 years ago)
My friends father has UC her mom never got it (married over 40 years ago)
My husband does not have UC and we have been together over 8 years
 
I want to see proof not hypothesis.
 


Beth, 32
Major Flare Sept/Oct 07 ~ working on remission almost there
UC Diagnosed March 2000 (30 cenitmeters)
Azathioprine 200mg 1xday nightly;Hydrocortisone e's tapering, Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Probiotics.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60/40mg alt days 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Potassium 600mg 2xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18190
   Posted 12/14/2007 12:38 PM (GMT -7)   
I like to be as open-minded as possible but I'm struggling with believing IBD could be communicable...I feel this research is reaching at straws because there is so much that needs to be learned about IBD, but one thing research has proven is that one must be genetically predisposed to getting IBD, and it's a matter of it being triggered for each individual...you know how many people are walking around right now oblivious to the fact that they are predisposed to getting IBD and don't even know IBD exists, lots, that's how many.

You know how many people who are predisposed to getting IBD will have lived their whole lives without it being triggered for them and die never experiancing their IBD, lots but how can scientists prove that unless they tested every person for IBD markers...but that doesn't mean it doesn't happen, why eles would people be posting about themselves being the only ones in their entire family with IBD, because likely someone eles had it but passed on before it was triggered for them, that's more likely to happen than it is for IBD to be communicable in my opinion.

I'm betting there are thousands of married couples that both have IBD because they are predisposed to having it not because one partner has it and passes it on to the other.

Not to mention you cannot rule out the people here who have posted about their long marriages/relationships with their partners still not contracting IBD from us (as I'm one of those couples who's been with my hubby for 25 yrs and to this day, no IBD) and I know science is referring to T bet deficiency in the innate immune system results in spontaneous and communicable UC.... but I just find too many holes in their research, it just seems to coincidental to me for it to be communicable.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 12/14/2007 1:12 PM (GMT -7)   
I hope its not communicable.. i just post this crap so people can be careful until we can say unequivocally
that it isn't going to hurt our friends and family..
Male 36yrs old. Indeterminate Colitis 6 yrs.


Pro-bio

Protonix
multi vitamin


tjf
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Date Joined Dec 2005
Total Posts : 3238
   Posted 12/14/2007 1:31 PM (GMT -7)   
Harpo....since it appears you buy into some of this stuff..how would one then go about not giving UC to a family member? Just interested in what you are doing not to give it to say your spouse, child, neighbor, etc.

I think we all need to be prudent when posting on this topic. There is no reason to scare members when there is really nothing scientifically solid to back up these statements.
Tabitha (Tab)

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Co-Moderator UC Forum


DocGonzo
Regular Member


Date Joined Dec 2006
Total Posts : 151
   Posted 12/14/2007 6:35 PM (GMT -7)   
If it were contagious then it would be good news indeed for all of us since it would prove beyond a shadow of a doubt that UC was caused by a pathogen, bacterial or viral, doesn't matter. It would mean that researchers would have to devote all their attention to isolating this pathogen and finding a way to kill it, instead of coming up with more dangerous "immunosupressive" drugs that do nothing but mask the symptoms at the expense of patients health in general...

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3770
   Posted 12/14/2007 8:37 PM (GMT -7)   
Harpo - Are you suggesting that we shouldn't come in contact with anyone then until we know for sure if it's contagious?
23 years old
Diagnosed with UC March 2007
Current inflamation in the rectum
Asacol 4 tablets 3x/day
Rowasa (generic) - as needed for flares
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D) for Osteopenia; flaxseed


Sideshowbob
Veteran Member


Date Joined Sep 2005
Total Posts : 697
   Posted 12/14/2007 11:50 PM (GMT -7)   
I don't believe it is contagious. But the only guarantees are death and taxes in life so who knows. Personally, I wouldn't lose sleep over it.
35 year old Male, Husband, Father of the best three kids in the universe.
First Flare was February 2005. Diagnosed June 2005-left-sided Colitis, suspect it has since spread. Started 4000 mg Oral Salofalk June 2005-stopped January 2007. Remission until November 2006. Been in a flare to various degrees since November 2006 to February 2007. Currently in remission.
Presently on 0 mg Prednisone-down from 60 mg!
Weekly 4000 mg Salofalk enemas.
Daily 4000 mg Salofalk oral.
Started Omeprazole 20 mg February 2007.
Co-Moderator-UC Forum


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted Today 9:50 AM (GMT -7)   
Me personally..

I wash my hands before helping my children brush their teeth, or cook meals, or anything else that is typically common sense..

I try and get my kids to use their bathroom, not the one in my bedroom that i use.. I also store their toothbrushes in their bathroom.

I never have any type of sex oral or whatever if I have had a BM and not showered since.

I just exercise caution... Im not saying I live in a bubble.. Lessen exposure.
Male 36yrs old. Indeterminate Colitis 6 yrs.


Pro-bio

Protonix
multi vitamin


Donnie Brasco
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Date Joined Apr 2014
Total Posts : 25
   Posted 12/2/2014 6:27 PM (GMT -7)   
Wow, this thread is old but im posting a reply anyhow, just more food for thought and i am starting to lean more and more on the idea that some or many of us might have a bug causing "UC" and that no one could identify this bug(s) - if they dont know what it is then how can they look for it, cant find what u dont know.
I just hope soon they start looking closer at the infectious aspect of UC and CD
http://drmirkin.com/morehealth/g213.html

garylouisville
Veteran Member


Date Joined Aug 2012
Total Posts : 7150
   Posted 12/2/2014 7:10 PM (GMT -7)   
While there may be some infectious aspect to the disease that no one has yet discovered, I think it is pretty much accepted that real diagnosed IBD is not contagious in any way. You could argue that you caught some bug and that your particular immune system has developed an allergic type reaction to it, causing your UC. This could also explain why certain relatives in a family can develop IBD if their genetic makeup caused them all to have the same reaction, giving them IBD. Even in those cases it would not be considered contagious because these family members rarely come down with IBD at similar times, as in one family member gets the flu and passes it on to another family member. Most family members who share IBD diagnosis came down with the disease many years apart.
Pentasa (500mg) 2 pills X 2; steroid ointment; VSL 1 pill X 2; Prescrip Assist Probiotic 1 pill X 2; Grape seed extract 400mg X 2; Vitamin D3 10,000 IU; Canasa as needed; DAO as needed due to dietary histamine intolerance; daily Allegra

Gave me trouble: Zymactive, Renew Life Probiotic 80 billion, Florastor, high histamine foods

Diva2014
Regular Member


Date Joined Nov 2014
Total Posts : 30
   Posted 12/2/2014 7:35 PM (GMT -7)   
NO...NO..and ..NO ....Ulcerative Colitis IS NOT contagious.

Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2081
   Posted 12/2/2014 8:25 PM (GMT -7)   
Yeah, I'll add my no in. Enough to worry about with this disease without making new things up.

soystud
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Date Joined Jan 2004
Total Posts : 5579
   Posted 12/2/2014 8:31 PM (GMT -7)   
you're probably safe as long as you don't eat your spouses droppings turn
diagnosed with pancolitis december 21, 2003
in submission - 2 years no meds
current supplements: vit D, cal/mag, Wild Harvest Inflamma Shield -
no gluten, rice, corn, or soy & limited sugar - just good, healthy food, lots of all natural well water, exercise, sleep as much as possible & enjoy this great life that God has blessed me with -

DBwithUC
Veteran Member


Date Joined Feb 2011
Total Posts : 1763
   Posted 12/2/2014 9:33 PM (GMT -7)   
Donnie Brasco said...
Wow, this thread is old but im posting a reply anyhow, just more food for thought and i am starting to lean more and more on the idea that some or many of us might have a bug causing "UC" and that no one could identify this bug(s) - if they dont know what it is then how can they look for it, cant find what u dont know.
I just hope soon they start looking closer at the infectious aspect of UC and CD
http://drmirkin.com/morehealth/g213.html



who says they haven't and aren't?

Tunnelvisionary
Regular Member


Date Joined Jul 2014
Total Posts : 376
   Posted 12/2/2014 10:04 PM (GMT -7)   
MAP may be involved in Crohn's, which would theoretically make it contagious, but they say the reason only some people get infected is from differences in genetics. It's plausible, people can have really variable reactions to the same virus. They were even mentioning during the whole ebola crisis that people's immune systems fight it off differently so symptoms and severity of the illness differed from person to person.

I don't think UC is contagious. I think people really want to believe that they just have a strange gut infection. Personally, I think those of us who are genetically susceptible can only get it and I feel one common trigger may be a significant change in gut bacteria, since our gut bacteria are so closely intertwined with our immune systems.

We hardly know anything about this disease though, it's mostly guesses. Even the genetic contribution is presumed, not even confirmed.
Male - 22
Dx'd w/ UC on 7/14. Recovering from an eating disorder, please no major diet mod suggestions.

Currently taking: Lialda 2x, Looking into VSL probiotics. Vitamin A+D and a multivitamin.

Donnie Brasco
Regular Member


Date Joined Apr 2014
Total Posts : 25
   Posted 12/2/2014 10:42 PM (GMT -7)   
Exactly my point Tunnelvisionary. It's all a guessing game. And by no means do i want to simplify UC but i just cannot be convinced that our imune systems our guts just decide to go bezerk at age 31 and even after going into remission they still know or learn to go crazy again and again. My point is nothing comes from nothing, something is causing our flairs to keep coming back, yes probably some genetic predisposition which everyone can interpret however they want, but our imune systems are not stupid, not crazy, i dont buy it. Remember c.diff? Took science a decade or more to find out it was a bug causing the damage, a bug that was not supposed to be there. A bug that was in front of them for 10 years.
Im not saying we can spread uc, but in the right circumstances it may become contagious. It's like the cold, its out there but not all get it.
UC Nov 2013 - Prednisone 60mg put me on Remission
Currently on Apriso (tapering of 40mg of pred for new flair this month 11/14).
I used to take bunch of supplements but realized they are really not the answer. Shifting focus/research to FT, Fage therapy, microbial treatment with Cinamon, oregano oil etc.
MAP as a possible causes. Strongly considering FT.
No more Dairy. Considering Paleo diet.

Dreadsteel
Regular Member


Date Joined Sep 2014
Total Posts : 157
   Posted 12/2/2014 11:21 PM (GMT -7)   
surprisingly i caught UC after a couple of months of being in contact with some one with UC which i didn't know had UC at the time, hell i didn't even know what UC was in the first place
27 Male UC pancolitis dx March 2013
Current Meds: Mesalamine 4gm Enema daily , 100mg Imuran, 3gm Pentasa, Parriet (nausea), Lacteol Forte, FishOil, Boswellia, Aloe Vera Juice
Current Faecal calprotectin : ~150mg/kg , Top Score ! ~2800mg/kg Feb 2014
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