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kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 12/19/2007 7:12 PM (GMT -6)   
omg...  i just had the worst hot flash ever.
that feeling of going to pass out, puke and just die all at once while instantly being covered in sweat.
 
any of you have that happen?
is it because im tapering my prednisone doses?
i am weaning off of endone (oxycodone) as well..
 
holy crap this is a horrible feeling...
 
is it the meds or what?
steph - 31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only to splenic flexure.
last 4 days have been fabulous with no UC symptoms at all = remission (yey!) 
tapering pred = now on 20mg prednisone 1x day with breakfast
1000mg mesalazine 2x day - 1/2 endone every 6 12 hours for pain (weaning)
calicim, inner health plus (probiotic), fentalyn patch for pain and to wean off oxycodone
VSL#3 didnt work - Aloe Elite didnt work - Budesonide didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 12/19/2007 9:11 PM (GMT -6)   
I usually feel like that before a bad bout of D. Have you been constipated lately? It may be blocked but want to pass through. I get this every once in a while. It is usually after I eat out, and I have been constipated and the food I ate did not agree with me but will not pass. Do you have extreme stomach cramps too?  I always keep the trash can handy cause sometimes I vomit with the force of the D... Write back later to tell us what happened. I hope you are ok.


Adrienne,27
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with rectal fistula in 2004, put on Remicade
2007:Increased Remicade dosage-660mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia
Current meds: Remicade 660mgs every 6 wks ( I may be developing antibodies?), Lomotil, Darvocet, Clorazepate, new meds: Prograf, Cymbalta, Lyrica


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 12/19/2007 9:25 PM (GMT -6)   
well, i actually have been in a complete remission since sunday night (9th). ever since i did the landmark forum. (www.landmarkeducation.com)
amazing actually.

cuz all that day and the days before and actually the whole year up til then i had major bleeding and diarrhea and cramping and pain.
it just stopped all of a sudden.

not a single UC symptom since... so this hot flash i thought might have been due to coming off the drugs. (pred + endone).

it went away when i went to the toilet. but no D. just regular formed stools. (like a normal person for the first time in a year)

i might be constipated a little bit (pain meds), but it always ends up coming out and i tell ya, there is lots of it. i think i lose 4 lbs every time i go poo this last week and a half. i dont know where its all coming from either.
fully formed and smelly LOL!

maybe i just had to go really bad.
or maybe its the meds.
or maybe its....
who bloody knows anymore with the way ive been feeling lately.
i really do hate side effects. (the shakes are driving me insane)
steph - 31 year old female - diagnosed UC in 2000
started as proctitis and now is pancolitis..this year long flare is now severe on left side only to splenic flexure.
last 4 days have been fabulous with no UC symptoms at all = remission (yey!) 
tapering pred = now on 20mg prednisone 1x day with breakfast
1000mg mesalazine 2x day - 1/2 endone every 6 12 hours for pain (weaning)
calicim, inner health plus (probiotic), fentalyn patch for pain and to wean off oxycodone
VSL#3 didnt work - Aloe Elite didnt work - Budesonide didnt work
ive lost 40+lbs and my legs look like sticks ... ewww
 
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 12/19/2007 10:09 PM (GMT -6)   
I had really bad hot flashes on higher doses of pred. Now they are more like warm flashes. At their worst my temp would spike over 101 degrees. It was horrible. And to think we get to go through it again some day! My mom just laughed at me.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, 15 mg pred. until immuran kicks in...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07
Prontonix once daily for acid reflux, zofran twice daily for nausea


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 12/20/2007 9:36 AM (GMT -6)   
Like princess, I get this feeling sometimes if I've been a bit constipated and then end up having D. It'll go like this:
Severe stomach cramping
Nausea, hot flash, cold sweat
Shaking
Feeling like I'm going to die while sitting on the toilet; nothing happening.
Get a bit of solid stool out
A TON of D comes out
Then I feel better and thinner! Haha
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
40 mg Citalopram (for depression/social anxiety)
125mg Imuran
 
Should also be on supplements and probiotics and other UC drugs but I'm just not good at taking pills...

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