Pericardial Window questions

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BamaFan
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 9/24/2009 5:13 PM (GMT -6)   
Hello,
I am new to this forum so I hope I am posting in the right place! I had a pericardial window 5 days ago and am home recovering.
My story began 2 years ago, (age 49) with a case of periocarditis.  My internist sent me to a cardiologist who diagnosed w/echo. The ibuprofen/10 day treatment worked and I was fine. Then, last Dec., I had a bad case of bronchitis. Two weeks later I had weird shortness of breath. More like "air hunger" and sometimes the shortness felt like it was in my throat.  I self diagnosed with "anxiety" but he said it was now a pericardial effusion. Small though. Two rounds of Ibuprofen didn't help. He wanted to do the Window a few months ago but I kept dragging my feet. Finally, I got a second opinion who agreed with the window treatment. Meanwhile, blood work all turned up negative for Lupus, RA, and other issues.
 
I had the surgery Friday and the chest tube removed on Monday. Which, I  have to say was the most SHOCKING pain I've ever imagined. Worse than natural childbirth! The pathology reports were all negative so the final verdict is that it was an unknown virus that caused the effusion and I should be fine now.
 
Here's a few post op questions for anyone who has had the Window. (left side video assisted)
I am having night sweats, day sweats, chills, is that normal? It's not hormonal since I take estrogen.
Pain is significant but getting better.  How long will that last?
Can the effusions come back? I don't understand that unless the window somehow seals over?
I cancelled an appointment with a very well renowned Rheumy when they said the path was all clear. I hope that wasn't a mistake.
 
Thanks in advance for any thoughts.
This is such a weird/unpredictable condition. I don't know ANYONE who has had this.
 
 

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32585
   Posted 9/25/2009 6:35 PM (GMT -6)   
Hello and welcome to HealingWell.  I am glad to hear you tolerated your procedure well but sorry to learn of your current concerns.

Yes pulling the tube can be a real eye opener and Ouch !!

Wondering if you are checking your temperature as you could be running a fever?  Also I do think it would be prudent to contact your Cardiologist to discuss your concerns.
 
I believe you have a right to your anxiety as you have been through alot but do give yourself permission to reach out to the medical community to seek answers to any questions you may have.
 
Are you having arthritic sx ? 
 
Please stick with us and perhaps a member will have more information for you.
 
Gentle Hugs
 
Kitt
 
 
 
 


 

Kitt,
Moderator: Osteoarthritis, GERD/Heartburn
Anxiety/Panic, & Depression
*~*
http://www.healingwell.com/donate *~*
"When you find peace within yourself, you become the kind of person who can live at peace with others."
DX: Anxiety, Depression, Osteoarthritis, GERD, Raynaud's syndrome, Skin Cancer and  IBS

Not a mental health professional of any kind


BamaFan
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 9/25/2009 7:10 PM (GMT -6)   
Temp is normal. What is arthritic sx?

stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32585
   Posted 9/25/2009 11:07 PM (GMT -6)   

Symptoms of arthritis...........  :)  You mentioned cancelling an appointment with a Rheumy .

Kitt



lojohns
New Member


Date Joined Oct 2009
Total Posts : 1
   Posted 10/5/2009 9:03 PM (GMT -6)   
I had a pericardial window 3 months ago and can agree with everything that is happening to you.  I have hot flashes, recurring pain for no reason and will have days...weeks that I feel great and then out of nowhere, I get pain and pressure on my chest and down my arm.  I'm trying to see if there is any pattern to the pain.  Right now, it has been 3 weeks since the last episode and it is back as of today.  No diagnosis for me either, so no one knows why this is happening.  I don't think the fluid has returned, just pain.  If you figure out any reason for what you are going thru, let me know.

BamaFan
New Member


Date Joined Sep 2009
Total Posts : 3
   Posted 10/5/2009 9:46 PM (GMT -6)   
Do you think some of your pain is nerve pain from surgery?
I've been having severe pain in my chest that's much worse at night. Nothing helps, including the lortab which is worthless in my opinion. Have you had that kind of pain? The doc told me it could travel from the chest to the shoulder blade or neck.
Great!

Snugs
New Member


Date Joined Apr 2011
Total Posts : 1
   Posted 4/8/2011 10:19 AM (GMT -6)   
I had pericardial window done 4 months ago and still have pain at my incision site and left side on and off. I'm now having hot flashes and chest burning and pain and tightness in my left shoulder and left arm. I'm wondering if it might be inflammation? Maybe ibuprofen might help? My effusion was caused by an echovirus, could it return? I definitely have some nerve pain that radiates to my left ear too. Its good to hear about others experiences, to be able to compare and make some sense out of the symptoms. smilewinkgrin

Mnm189
New Member


Date Joined Nov 2012
Total Posts : 2
   Posted 11/3/2012 4:01 AM (GMT -6)   
I am new to the site. I have just had a pericardial window and i can honestly say its been no picnic. The chest tube was excruciating. But i havent felt that great after either. The hot flashes come on a normal basis. The doctors actually have me on prednisone to keep the the inflammation at bay with a side of colchcine. It truely feels like a never ending story. I have seen more doctors then i cancount and this has been progressing for 6 months now. I can confirm that prednisone is one of the most dibilitating drugs out there. It has slowly decreased my muscle mass to the point where my body has no muscle. My jointsfeel aweful and my teeth have become super sensitive. My hair comes out very easily as well and my stomach is in constant pain, which the doctors are trying to heal with pepcid. The colchcine is not too bad. I would prefer just taking those but be aware if you are taking the prednisone take it carefully. I missed a dose and almost ended up in the hospital. I find it a bit shocking there isnt more information aboutbpericarditis and pericardial effusions online. I had my operation and cant seem to find much post op info. Its very frustrating and debilitating. I have been home for two weeks trying to recover but not feeling a whole lot better. I need to return to work but everything seems quite difficult.

Any advice?
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