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Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 4/29/2005 11:49 AM (GMT -6)   
Hi Libby! :)

Are you looking for another site besides this cardio site to go to? I'm not sure I understand exactly what you're asking??

So please don't hold that against me! lol

Hugs, Teri :)
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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Lisarose
New Member


Date Joined Apr 2005
Total Posts : 6
   Posted 4/29/2005 3:12 PM (GMT -6)   

LOL...I am also a Ph.D. but that does not cut water with my doctors.  The other day one Baylor Cardio told me to lock all my heart papers and research in a filiing cabinet and throw the key away.  Even though all EKG's for past 3-4 years show a Heart Attack and a Cardiac MRI shows a heart attack...Dr. God said I did not have a heart attack.  I guess he thinks I am some kind of imbasol. (sp) Now, if my name was Laura Bush.... eyes I would not be treated this way. 

Have a nice week-end...

P.S.Yes, there are several good heart forums on the internet.  Thank God. We learn from these.


pandacrazy
Veteran Member


Date Joined Jan 2005
Total Posts : 1326
   Posted 4/29/2005 3:39 PM (GMT -6)   
Don't feel bad Libby I had no idea how to use this forum at first. I am not that much into the internet myself. I thought it worked more like a chat room but it's a little different. Why don't you give us a lesson on how this forum works exactly Teri. I may learn a thing or 2 myself from it.

I hear you there Lisarose. I am lucky I had the ER doc I did that did extra tests because my regular doc kept telling me that I was too young for heart problems. Good thing I went to the ER instead of to see him that day. They told me I would have had a massive heart attack if that had been let go. Women really do have to push to get things done. I look forward to talking to you new ladies more along with all the veteran members. Barb

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 4/29/2005 9:19 PM (GMT -6)   
To the right of the page is a box that says "Community".  Click on any of those, especially "forum help" for a lot of your questions.  There is also the box that says "HW Links", you can use that to find out more info.  If you'd like to find out even more information on something in the archives listed at the top of each page, just enter what you are looking for under Search Archives and click.  If you'd like to edit anything on your bio page, click on the "Control Panel" top left of this page.  I'm not sure I can answer anything else myself, unless you ask a direct question... yeah
 
Happy Hunting!  Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
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LibbyG
Regular Member


Date Joined Apr 2005
Total Posts : 263
   Posted 4/29/2005 10:46 PM (GMT -6)   

hi teri (and btaylor - are you are a barb too?) and lisarose and all others!

yes, teri, i guess my specific question about the forum(s) is this:  if i have joined this one ""Heart & Cardiovascular Disease" am i automatically a member of all the other forums under the "HealingWell.com" community?  i think this one is specifically geared toward stents, since that's what i see on the top of my screen.  is there a forum specifically for, say, "coronary heart disease"?  do you, personally, tend to just wander the forums, or do you have a few that you just like to focus on and check them all regularly?  aren't you the moderator of this one (the stent focus?).  thank you for your patience in helping me understand how this is organized!  sounds like some others would like the same info too? 

well, listen mz lisarose, aren't you so right?  sometimes i think the PhD is really looked down upon by the MD's.  either they think it's worthless, or they think that because i'm a researcher that i look into things TOO much and then overreact.  it's frustrating.  the occasional doc, to be fair, thinks that they can share a lot with me because they know i have indeed researched my condition - i feel i could write a book already, and it's only been since February!

listen, about being aggressive:  unfortunately, all my medical probs started so long ago, 25+ years ago when i went to the ER with what they diagnosed as appendicitis.  gave me antiobiotics and sent me home!  i went back the next day (this is a very abbreviated version of this story!) - turned out i was having an ectopic pregnancy, nearly died...the rest is history, i've not been well since, multiple surgeries and massive scar tissue-ing all over my poor little ole torso. 

but i'm one of "those":  i feel i've been given this enormous GIFT in life - i truly, really, appreciate very minute of every day.  when i'm hurting and feeling really bad, that can be a challenge.  but in general, i am thrilled to be here, right this minute, writing you!

sorry to be so long-winded tonight. eyes    i look forward to hearing more about all of you that are active on this site!

libby


pandacrazy
Veteran Member


Date Joined Jan 2005
Total Posts : 1326
   Posted 4/30/2005 2:19 AM (GMT -6)   
Hi Libby, Yes my name is Barb. Maybe I can help you out with your question. Right now you are on the thread titled stents within the cardiovascualr forum. If you want to view the other topics you go to the top of this page and click on the purple title Heart and cardiovascular disease and it will bring you to all the other subjects in the heart forum and just click on the one that interests you. Some of them have more than one page too like the stent thread does so you have to click on the page # you want too if the one you want doesn't come up. I'll leave it to Teri to explain what she does here.

My health problems started in my 20's about 22 years unless you count my accident at age 16 which has it's own set of unique health problems it created. So I hear you there. I've had some idiot doctors over the years too that if it had not been for another doctor stepping in I would not be here. Most recent case was my regular doc telling me he would have just did the ekg & blood tests and then sent me home and I would have had a massive heart attack with in a short time. At least he was honest about it though. I am searching for a new doc though because he is no longer covered by my new insurance. And if that wasn't enough to make me want to change docs there is also the fact that for the last 5 years he just told me every time I complained of heartburn that there was nothing else that could be done because I had the surgery for it and was on medicine. Now I have pain on swallowing and will be lucky if it is not cancer from all the severe heartburn. I'm talking wakeing up with sore throats and having a scratchy voice from it. I was told by another doc that he should have kept trying meds until he found a combination that worked for me. And believe me they do not treat women the same either. That is one of the reasons that I told them my mom died in a car crash instead of suicide. I told my hubby on the way to the ER that I was going to do that because I didn't want them writing me off as being all in my head. That is what I will tell docs from now on, because years ago I had a doctor tell me it was all in my head when he found out about my mom. Had I not had a specialist at the time for my heart burn problems to go too with the bleeding and diarrhea I would have bled to death or died from dehydration. Turned out I had ulcertive colitis and was having a severe attack. Took 9 days in the hospital to get it all stopped and back to where I could eat and drink again. I go see a gastroenterologist next week to find out what is going on. Just wanted to let you know how very well I understand your frustration because of my experiences over the years with docs. Well I guess that is enough of my rambling for now I need to get to bed. Barb

LibbyG
Regular Member


Date Joined Apr 2005
Total Posts : 263
   Posted 4/30/2005 9:49 AM (GMT -6)   

hi barb,

thanks for all your thoughts.  it sounds like you've had a really rough time of it, and i sure understand.  i feel the past 28 years of my life has been about little but trying to manage my poor health.  i have done lots of things i enjoyed anyway and have loved life, but boy it is sometimes a challenge, no?  i had read about your mom and am so sorry and i agree with you completely about just lying about that to the docs.  i hate the preconceived notions that some docs (and others) get with news like that.  i have had to become SO aggressive with my health care, and i know that many/most times that really annoys my docs.  they seem to not also like that i do mega-reading on my various conditions.  i try HARD not to jump to conclusions, or draw my own conclusions, i just want to go into our conversations armed, and also to cover the little things on my own that they just don't mention, for whatever reason.  but they do seem to resent that and feel i'm overreacting.  you know, just stop it libby and we'll take care of you.  harumph!  i'm SO with you on that heartburn and  heart probs.  i have both - and i think it sounds like you do too.  it is SO hard to distinguish between the 2 pains and i've had my gastro and cardio guys both agree with that.  they tell me just to look for problems upon exertion, so that's what i try to stay calm and do.  i take 1/2 xanax a lot more than i used to.  i used to hate to rely on something like that, wished i could manage without drugs, but now i'm not ashamed, i just take 1/2 xanax on occasion and it really helps.  i wish i could take an antidepressant on a regular basis and avoid that, but i haven't found one that didn't make me feel worse than i did originally!

but i have a wonderful gastro guy, i dug around and finally found him and he's a gem.  i trust him completely.  i wish you well in finding one you like too.  i really rather like my cardio guy a lot too.  these are big statements from me!  so i know these guys are out there, it's a matter of maybe going to a few and being willing to go through that paperwork and time and sort of an "interviewing" process 'til you find someone you like, respect, and are compatible with.  i recommend it strongly, especially for those of us with serious health concerns.

thanks too for your explanation of how this forum works.  i guess my only other question would be:  i have now wandered around in this website and understand it a lot better.  what is confusing to me is how each "subtopic" is laid out.  for example, under stents, there are about 15 topics or so.  who came up with them?  why do new ones get started?  do they eventually just "peter out"?  for example, couldn't i go in there right now and start one with my own topic and see who joins in?  the topic list is sort of frustrating to me, random thoughts as the title, so i can't really tell what they're going to be about...

thanks barb!  by the way, i don't know, it seems to be offlimits to these forums for some reason, but i don't mind saying that i'm in fort worth texas!  and it's about 70 and sunny today!

 


Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 4/30/2005 12:24 PM (GMT -6)   
Okay, Libby, here goes...You now belong to the whole HealingWell.com website, which features not only this Heart and Cardiovascular section, it encompasses Allergies and Asthma, GERD, Breast Cancer, Epilepsy and many, many more! tongue You may click on "New Topic" at any time here and start your own column about anything heart related. 
 
If you go to the top of your posts and see "Diseases & Conditions" that will give you a broader view of what is offered here at HealingWell.com
 
You may mention generically that you are from Ft.Worth, Tx., just as I say that I'm from Central Tx., however never list your address or phone # here.  This is the world wide web and anyone in the world will then know it.  I wouldn't even put my email up here.  I do put mine up on the bio page which you can get to by clicking on any member's name.  I do that so if there is an issue that someone needs more 'privacy' for, I'll try to be discreet in helping with that as necessary.
 
I'm a moderator here on the Cardiovascular board and the Allergy and Asthma board.  So I 'wander' lol over the whole section.  I start topics that I think will be of interest to others, I try and moderate the boards so that it's kept on topic (mostly tongue ).  I offer some suggestions mainly from my own experience with this disease and I try to offer support and encouragement to others.  If you have a question, I try to find some answers, or try to have others who have been there, come in and help you as well.
 
I hope this has helped...?  Hugs, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


LibbyG
Regular Member


Date Joined Apr 2005
Total Posts : 263
   Posted 4/30/2005 11:22 PM (GMT -6)   
hi teri,
 
thanks!  i understand a lot better now about how this thing works.
i appreciate your attempts as moderator to keep "topics" under
control!  sometimes i don't completely understand what the thread
is going to be like under a topic, but i keep peeking -
so far i like this stent thread just fine, but i imagine i'll find others too.
naw, don't worry 'bout me - i won't put my personal email/address/
phone on here.  but i know that info can actually be easily found
online in a variety of ways.  that sure is a scary thing these days!
 
in the interest of getting back to the stents topic - i had mine on
2/25/05, just 8 weeks ago yesterday.  and my doc said that if
you make it past the 2 week mark you are much less likely to have
an MI.  he also said, as i've read lots of places, that 6 months is
sort of the marker of "general success" with stents.  so i feel i'm
hopefully past that first hump.  and sounds like most people in this
forum are past that too.  i know that restenosis can seem to happen
any time, but it does seem that the longer time that goes by, the
less likely you are to experience problems.  well, that's my "glass is
half full" theory!
 
thanks, teri -
libby
 

pandacrazy
Veteran Member


Date Joined Jan 2005
Total Posts : 1326
   Posted 5/1/2005 1:28 AM (GMT -6)   
Hey Libby, on the the 4th it'll be 4 months since my stent was put in and my test last week showed that blood is flowing the way it should through my stent. My doc said usually 6 months is the cut off for restenosis. They weren't going to do the stess test and nuclear study this soon but I had some problems that I now think were side effects from the bp med toporal. I've cut back on it and will see how it goes. I'll let you know. Are you taking Toporal and if so do you have any problems with memory, chest pain, sob, swollen feet? There are many other side effects but those are the ones that I have. Barb T

pandacrazy
Veteran Member


Date Joined Jan 2005
Total Posts : 1326
   Posted 5/1/2005 1:46 AM (GMT -6)   
Hey Libby I didn't see your post until I had already done mine. Guess I didn't go up far enough. Oh I wish I could say our weather in Wisconsin was that warm. I hate the cold. Can't wait for summer. I have acid reflux, fibromyalgia, ulcertive colitis, deteriorated disk in lower back, asthma, alergies, and to top it off now heart disease. I have a heck of a time trying to figure out what is heart and what is asthma or fibromyalgia. When I went to the ER it was because I was having a hard time breathing and my left shoulder arm and jaw hurt. I really didn't think it was my heart because when the fibro acts up it hurts in my left shoulder and arm really bad. I didn't really have chest pain. And then you throw in the acid reflux and it's anybodys guess what is causeing the pain. I hope I find a good doc for the heartburn and a general doctor too. I've been asking around at work to see who the best docs are. I think asking other patients is the best way to find out how a doctor treats his patients. By the way can I ask how old you are? I haven't really talked to anyone even close to my age except for vinny who is the other moderator here. I'm 42 by the way. There was no one in rehab my age either. My theory is that the docs don't take the younger women with heart disease serious and there for there aren't alot of us around plus it is harder to tell with women. If they would have sent me home after the first 2 tests I wouldn't have known any better. I look forward to hearing more from you. Barb T

Lisarose
New Member


Date Joined Apr 2005
Total Posts : 6
   Posted 5/1/2005 1:30 PM (GMT -6)   

Hi Barb and all,

My first stents were 9 months ago and and another stent 4 months ago. I will be on Plavix for 2 years.

What tests did you have that showed good blood flow thru the stents?  He will not do a Nuclear cardiolite till next month.  The last Cardiolite in 11/2004 still showed stenosis in the distal LAD where they say arteries are too small to stent...

I recently had  a stress echo with another doctor and although he said it looked great, I got the copy of the report and it does not look good.


LibbyG
Regular Member


Date Joined Apr 2005
Total Posts : 263
   Posted 5/1/2005 2:01 PM (GMT -6)   
hi barb and lisarose,
 
sounds like we unfortunately have a lot of the same probs:  i too have acid
refulx and fibromyalgia, also had a bilateral mastectomy 12 years ago, which
i feel lucky about.  by the way, i don't mind at all saying how old i am:  i
turned 50 in february!  in fact, i waited to go to the docs about all this 'til
my big bash was over.  i had felt lousy for 2 years though, with all docs
saying i was fine and just a bit "mental" about my poor health feelings.  so
much for that theory!  sometimes, honestly, i feel the digestive probs are
harder than the cardio probs, at least as far as feeling good day to day -
not being able to eat a lot has been a prob, i know i need to be eating
certain things to help my heart get/stay healthier!  the fibromylagia is
the BIGGEST drag on things, too - never know what "poke" and "stab"
is going to get me, or when, or why.  can't seem to relate it to food at
all, although i've read some literature on that which disagrees.  have you
tried any specific food solutions for any of our related probs?
 
lisarose, i think barb will answer best, but she probably had some kind of
thallium or nuclear stress test to show whether her stents/arteries are
doing OK.  i'm due to have the same thing in about a month. 
 
i was SO encouraged when i got my 2 months blood work, showed my total
cholesterol WAY down, ditto to my LDL.  didn't get my HDL up yet, but i'm
working on it - with niacin and oat bran in just about everything i eat!
more on that, if you're interested.  anyway, my blood work showed, though,
that my VLDL was really, really bad and so is my "particle size."  so i don't
know why all the other numbers came down and those didn't.  are you into
all those counts?  anyone?

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 5/1/2005 9:50 PM (GMT -6)   

Libby, I've read so much info on all the different testing on Cholesterols that sometimes it just runs together, tongue but I found a site that gives some #'s on VLDL and thought you might want to take a look... 

http://www.labtestsonline.org/understanding/analytes/lipid/glance-4.html

Another interesting site...

http://www.emedicine.com/med/topic3368.htm

Something else that I've learned, is to eat very healthy at least 24 hours before going in for these tests, as some foods tend to skew the tests(the wrong way)...example; eating red meat. nono

tongue Hugs, Teri
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


LibbyG
Regular Member


Date Joined Apr 2005
Total Posts : 263
   Posted 5/1/2005 11:39 PM (GMT -6)   
hi teri,
 
thanks for the links, i read clear through. 
 
what is your take on niacin?  i am a pretty firm believer in it's
ability to help.  i can't take the statins, drat the luck, and i
take SR niacin, which seems to generally help with the flushing
problem.  how about fish oil (tablets)?  have you done any
searching on that?  it seems to be a true help to some.
i still believe that what might help you might not help me and
vice-versa.  but i do also believe that much of this stuff simply
doesn't hurt to use or take wisely and carefully, and if it
helps so much the better!  at least you feel as if you have
SOME control over what's going on -
 
it seems there's not quite enough research or literature yet on
VLDL, but it seems like a pretty bad boy to me! 
 
libby
 

Kathlyn1950
Regular Member


Date Joined Mar 2004
Total Posts : 462
   Posted 5/2/2005 2:31 PM (GMT -6)   
BTaylor, my cardiologist has never mentioned being tested to see if the blood is flowing effectively through my artieries. How often should I be having this, and would I expect my cardiologist only to have this test ordered if I were having problems? I've not had any problems (knock on wood, or any other material that might help) since my stent in 2004. What test did they do to determine that? Was it the nuclear stress test? Thanks, Kathy
Had a CYPHER stent January 5, 2004 after a heart attack. Diagnosed with CAD and CHF. Need to care more about myself and do my exercises, lose weight and eat better. Still the happy grandmother of 4 beautiful grandchildren!


MARYME
Regular Member


Date Joined May 2005
Total Posts : 43
   Posted 5/3/2005 8:10 PM (GMT -6)   
tongue  Hi Teri, great to see you posting again.  Missed you.  I didn't read your email from 4/24 until yesterday, I never really use my work email.  Great to hear that your feeling a bit better since your terrible loss.  God Bless you.  I'm having an upcoming stress test for chest pain again.  Went away for awhile and then it's back.  mad Yuck.   I also have very low wbc (white blood cell count) going to a hematologist next week for some answers.  I will be posting here regularly.
 
    Take care, be will and take care.
 
     xoxoMary mm1207

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 5/3/2005 8:20 PM (GMT -6)   
Mary!!!  Welcome to HealingWell!! tongue tongue tongue
 
I've missed you and my arms are open in a big ole hug for you! yeah
 
I'm so sorry about all that's going on with you and please stay in touch with me and the others here~we have some great folks here!- and let me know what's happening with the results of your tests?!
 
Email me with a current address-you'll find mine here on my bio page, just click my name here, if you don't still have it!!
 
Big Hugs from Texas, Teri tongue
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


MARYME
Regular Member


Date Joined May 2005
Total Posts : 43
   Posted 5/3/2005 8:59 PM (GMT -6)   
Hi Teri

Oops!!! I mean take care, be well and God Bless and it's great to get your big ole Texas hug!!!!
Talk to you soon!!!
xoxo Mary

MARYME
Regular Member


Date Joined May 2005
Total Posts : 43
   Posted 5/5/2005 7:54 PM (GMT -6)   
Hi Everyone:)
This is Maryme. I posted a couple of days ago about an upcoming street test for chest pain. I have 2 stents RCA since Aug 12, 2004. I've been hospitalized 2x since stents, had an angiogram and nuclear stress test with supposedly good results. Was pain free for awhile and then wham its back in the right side of my chest, front, up left arm across shoulder blade to my neck. Told cardio and I'm having another stress test. Now recently I'm becoming winded when walking at a good pace and my calves start cramping something awful. What gives???Does this all relate???

Appreciate any feedback.

Thanks, take care and God Bless Us All

MARYME
Regular Member


Date Joined May 2005
Total Posts : 43
   Posted 5/5/2005 7:56 PM (GMT -6)   
Howdy Texas Teri:)
Hope your doing well too!!!

xoxoMary

Teri16
Veteran Member


Date Joined Dec 2003
Total Posts : 5230
   Posted 5/5/2005 9:59 PM (GMT -6)   
Hi Mary! tongue
 
You've got the possibility of a couple of things and I'm thinking a stress test is a good start to finding out what they are!  You say you're walking at a brisk pace?  Have you been doing this for a while and then the SOB just started coming on?, or did you recently pick up your pace with the walking?  That could make a difference.  The cramping in your legs while walking is significant and could be a warning sign of PAD.-is this the only time you get that when you're walking and does the cramping ease up when you stop and rest?
 
I'm really glad that you're having a stress test done, esp. with the SOB and chest pain!-you may end up needing more tests done-to be on the safe side.  And remember, please don't hesitate when these symptoms come up and the nitro doesn't help-call your Dr. or 911!!
 
Are you taking nitro with the chest pain, or the SOB??  Is it helping?
 
I wish you the best, Mary, and please let us know how your test goes!!-let us know when it's scheduled for, too.
 
Hugs, Teri tongue
 
I'm doing okay, Mary, just waiting on some tests results myself!  Isn't that the way it is with heart disease, always another corner to turn and another test waiting to happen?! lol
"Because he is he and I am I."......E. V. Lucas

"I Hope You Dance".............LeeAnn Womack
 
Please allow HealingWell to continue helping others by donating:


Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9312
   Posted 5/6/2005 11:45 AM (GMT -6)   
This thread is awesome, but just getting too huge for anyone to follow easily. So I'm locking it, please start a new thread if needed.

Peter
Peter Waite, Founder/Editor
HealingWell.com - Community, Information, Resources
 
Help HealingWell.com continue to help others
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