LOL...I am also a Ph.D. but that does not cut water with my doctors. The other day one Baylor Cardio told me to lock all my heart papers and research in a filiing cabinet and throw the key away. Even though all EKG's for past 3-4 years show a Heart Attack and a Cardiac MRI shows a heart attack...Dr. God said I did not have a heart attack. I guess he thinks I am some kind of imbasol. (sp) Now, if my name was Laura Bush.... I would not be treated this way.
Have a nice week-end...
P.S.Yes, there are several good heart forums on the internet. Thank God. We learn from these.
hi teri (and btaylor - are you are a barb too?) and lisarose and all others!
yes, teri, i guess my specific question about the forum(s) is this: if i have joined this one ""Heart & Cardiovascular Disease" am i automatically a member of all the other forums under the "HealingWell.com" community? i think this one is specifically geared toward stents, since that's what i see on the top of my screen. is there a forum specifically for, say, "coronary heart disease"? do you, personally, tend to just wander the forums, or do you have a few that you just like to focus on and check them all regularly? aren't you the moderator of this one (the stent focus?). thank you for your patience in helping me understand how this is organized! sounds like some others would like the same info too?
well, listen mz lisarose, aren't you so right? sometimes i think the PhD is really looked down upon by the MD's. either they think it's worthless, or they think that because i'm a researcher that i look into things TOO much and then overreact. it's frustrating. the occasional doc, to be fair, thinks that they can share a lot with me because they know i have indeed researched my condition - i feel i could write a book already, and it's only been since February!
listen, about being aggressive: unfortunately, all my medical probs started so long ago, 25+ years ago when i went to the ER with what they diagnosed as appendicitis. gave me antiobiotics and sent me home! i went back the next day (this is a very abbreviated version of this story!) - turned out i was having an ectopic pregnancy, nearly died...the rest is history, i've not been well since, multiple surgeries and massive scar tissue-ing all over my poor little ole torso.
but i'm one of "those": i feel i've been given this enormous GIFT in life - i truly, really, appreciate very minute of every day. when i'm hurting and feeling really bad, that can be a challenge. but in general, i am thrilled to be here, right this minute, writing you!
sorry to be so long-winded tonight. i look forward to hearing more about all of you that are active on this site!
thanks for all your thoughts. it sounds like you've had a really rough time of it, and i sure understand. i feel the past 28 years of my life has been about little but trying to manage my poor health. i have done lots of things i enjoyed anyway and have loved life, but boy it is sometimes a challenge, no? i had read about your mom and am so sorry and i agree with you completely about just lying about that to the docs. i hate the preconceived notions that some docs (and others) get with news like that. i have had to become SO aggressive with my health care, and i know that many/most times that really annoys my docs. they seem to not also like that i do mega-reading on my various conditions. i try HARD not to jump to conclusions, or draw my own conclusions, i just want to go into our conversations armed, and also to cover the little things on my own that they just don't mention, for whatever reason. but they do seem to resent that and feel i'm overreacting. you know, just stop it libby and we'll take care of you. harumph! i'm SO with you on that heartburn and heart probs. i have both - and i think it sounds like you do too. it is SO hard to distinguish between the 2 pains and i've had my gastro and cardio guys both agree with that. they tell me just to look for problems upon exertion, so that's what i try to stay calm and do. i take 1/2 xanax a lot more than i used to. i used to hate to rely on something like that, wished i could manage without drugs, but now i'm not ashamed, i just take 1/2 xanax on occasion and it really helps. i wish i could take an antidepressant on a regular basis and avoid that, but i haven't found one that didn't make me feel worse than i did originally!
but i have a wonderful gastro guy, i dug around and finally found him and he's a gem. i trust him completely. i wish you well in finding one you like too. i really rather like my cardio guy a lot too. these are big statements from me! so i know these guys are out there, it's a matter of maybe going to a few and being willing to go through that paperwork and time and sort of an "interviewing" process 'til you find someone you like, respect, and are compatible with. i recommend it strongly, especially for those of us with serious health concerns.
thanks too for your explanation of how this forum works. i guess my only other question would be: i have now wandered around in this website and understand it a lot better. what is confusing to me is how each "subtopic" is laid out. for example, under stents, there are about 15 topics or so. who came up with them? why do new ones get started? do they eventually just "peter out"? for example, couldn't i go in there right now and start one with my own topic and see who joins in? the topic list is sort of frustrating to me, random thoughts as the title, so i can't really tell what they're going to be about...
thanks barb! by the way, i don't know, it seems to be offlimits to these forums for some reason, but i don't mind saying that i'm in fort worth texas! and it's about 70 and sunny today!
Hi Barb and all,
My first stents were 9 months ago and and another stent 4 months ago. I will be on Plavix for 2 years.
What tests did you have that showed good blood flow thru the stents? He will not do a Nuclear cardiolite till next month. The last Cardiolite in 11/2004 still showed stenosis in the distal LAD where they say arteries are too small to stent...
I recently had a stress echo with another doctor and although he said it looked great, I got the copy of the report and it does not look good.
Libby, I've read so much info on all the different testing on Cholesterols that sometimes it just runs together, but I found a site that gives some #'s on VLDL and thought you might want to take a look...
Another interesting site...
Something else that I've learned, is to eat very healthy at least 24 hours before going in for these tests, as some foods tend to skew the tests(the wrong way)...example; eating red meat.